Guest guest Posted February 1, 2001 Report Share Posted February 1, 2001 Hey Marta, not to worry about spelling names and all! If you don't NEED surgery, I would suggest not to get it. You can go searching through our archives and see all the posts on surgery we've had. Might give you more info. Try this link to archives, http://.groups.com/group//archives Surgery doesn't make the CMT go away, but it can help people walk better and get around better. Usually after surgery, you get physical therapy too! ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2001 Report Share Posted February 1, 2001 opps, Marta, that should be http:///group//archives Gretchen Glick wrote: > > Hey Marta, not to worry about spelling names and all! If you don't NEED > surgery, I would suggest not to get it. You can go searching through our > archives and see all the posts on surgery we've had. Might give you more > info. Try this link to archives, > http://.groups.com/group//archives Surgery doesn't make the > CMT go away, but it can help people walk better and get around better. > Usually after surgery, you get physical therapy too! > > ~ Gretchen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 To the Brown Family, My daughter without CMT had weak abdominal muscles as a kid. My sons with CMT had super strength as toddlers. So I would have to say in my family weak shoulder or abdominal muscles would not be an indicator of CMT. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 To the Brown Family, Yes, it is possible due to a recessive inheritance on both sides of the family genealogy, but I there is a 1.4% of that happening. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 Hi Brown Family! This story sounds just like our experience when my son's 2nd grade Phys Ed teacher pulled us aside and told us she thought there was something different about our son than the other kids in his class. She said he tries everything but rarely accomplishes what others his age does. It was all muscle-tone related things she told us. Immediately the lights went off in my head as I had been diagnosed about 13 years earlier and had little reason to act on my CMT at that time. It brought back all kinds of bad childhood memories of gym class. Off we went to our local MDA clinic and led us to the path we are now on as active CMT advocates, patients, research subjects, and fundraisers. Earlier in his life, he too had language delays, but he had major ear issues and the pediatrician we used (at that time) would not give us a referral we needed for an ENT before he was 2 years old. It got to the point where some antibiotics are useless on him and I stood there demanding to know what that doctor would do if this were HIS son. Got that referral real quick, two tube, tonsil and adenoids surgeries followed, and BOY has he made up for his missed words! He is a happy, normal almost-17 year old now. He wears AFOs and has never been a great athelete, but he still never turns down a chance to try something physical and is an honor roll student. We are even about to enter a real new phase with him - his first job and driving! Yikes! Mark, CMT 1A, NJ - Quote Link to comment Share on other sites More sharing options...
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