Good morning from AZ

[Guest guest]

That's right. My dr told me that too. He tried me on it for sleeplessness, but I couldn't tolerate it well. -dz-

Terry Long <pawpawto3@...> wrote:

Pat, I am on a combo treatment for the Hep C. But one of the side affects of the treatment is depression. That is what the amitriptylene is for. Terry Donahoe <patsella@...> wrote:

Terry - is the amitriptyline to treat the liver? I saw the doctor today and she thinks the sores on my feet are either from Cryoglobulins or from Livido vasculitis. The first is a hep C side effect and will be treated with prednisone, the second is an independent infection which will be treated with something else. She also is putting me in touch with a liver specialist for a biopsy to find out how much fibrosis there is in the liver. Do you know what she is talking about here? She thinks I have had hepC for many years and it's only showing up now because she happen to order that test with a bunch of others and got lucky (glad someone did). So far my liver values are normal. I have been having LFT's for years because of some of the meds I take so I know that they have been normal for at least that period of time? Any info is welcome - thanks - Pat

[ ] Good morning from AZ

Hi all. The Doctor put me back on Amitriptyline this week & I have been a little out of it as I have been adjusting to it. He did give me some good news. He said there was no Hep C detected in my . Said it look's like the treatment is working. But added it was to early to check the liver. To keep on the treatment.

Terry

[Guest guest]

It is very tough on the liver and can cause high ALT/AST readings. Obviously it depends on factors I don't know about, but I would definitely bring it up with the dr. -dz-

<ralexan@...> wrote:

Hi Pat

Amitriptyline is an anti depressant used to relieve the depression that can be caused by the interferon.

I'm not a doctor but I would check with the liver specialist before taking prednisone. It is an immuno suppressant and might aggravate the hepc.

[ ] Good morning from AZ

Hi all. The Doctor put me back on Amitriptyline this week & I have been a little out of it as I have been adjusting to it. He did give me some good news. He said there was no Hep C detected in my blood. Said it look's like the treatment is working. But added it was to early to check the liver. To keep on the treatment.

Terry

[Guest guest]

Hiiiiiiiiiiiiiiiiiiiiiiiiiiiii Daveeeeeeeeeeeeeeeeee

[Guest guest]

Debbie - my only company is my bed-ridden roommate who has never recovered from a liver transplant 6 or so years ago. I don't know how we are making it - she has an aid, we both have homemakers but I am already concerned about what is going to happen if I get more disabled. If you can get any kind of support (talk to social workers) try to get some - if for no other reason just the comfort of having someone come in once in awhile. Pat

Re: [ ] Good morning from AZ

Well thanks for replying ,I was just told that I'm onthe list for treatment but have not recieved a codeaccess #(thats how I feel just a #!!!!!!!!) anyway itmay take awhile to start. Is it wise to do this aloneas far as living alone I mean. I know I have the groupfor support but I wonder if going thru this treatmentalone is smart,I do not have anyone to help me. Anythoughts about it? giglebut--- Jannewilms42@... wrote:> Giglebutt we all experience pain on the right side> but when you tell your dr. > he'll say the liver feels no pain it's the area> around it that does..I know > when my liver isn't hurting(yea right) that it can> affect the whole right > side at times..It may be your liver afterall..> __________________________________________________

[Guest guest]

Good morning giglebutt. I have been on treatment for three months. Yes it is rough & I have Susy to support me, So I would suppose going through it without any support would even be harder, But do go through it. If you can beat this, it will be worth it.

Terry

debbie henning <giglebutt2002@...> wrote: Well thanks for replying ,I was just told that I'm onthe list for treatment but have not recieved a codeaccess #(thats how I feel just a #!!!!!!!!) anyway itmay take awhile to start. Is it wise to do this aloneas far as living alone I mean. I know I have the groupfor support but I wonder if going thru this treatmentalone is smart,I do not have anyone to help me. Anythoughts about it? giglebut--- Jannewilms42@... wrote:> Giglebutt we all experience pain on the right side> but when you tell your dr. > he'll say the liver feels no pain it's the area> around it that does..I know > when my liver isn't hurting(yea right) that it can> affect the whole right > side at times..It may be your liver afterall..> __________________________________________________

[Guest guest]

Good afternoon. I am hard at work as we speak... shhhhhh.... -dz-

Jannewilms42@... wrote: Hiiiiiiiiiiiiiiiiiiiiiiiiiiiii Daveeeeeeeeeeeeeeeeee

[Guest guest]

I will be headed to work in another hour.

Terry

imaganeer <imaganeer@...> wrote:

Good afternoon. I am hard at work as we speak... shhhhhh.... -dz- Jannewilms42@... wrote: Hiiiiiiiiiiiiiiiiiiiiiiiiiiiii Daveeeeeeeeeeeeeeeeee

[Guest guest]

Morning !!!!!!!! NIce to see you this morning...

[Guest guest]

Hi Debbie

It is always easier to have some support, but you can do it alone. Just

watch out for any depression that might be caused from the medication. You

might want to ask your DR. for an antidepressant just to be safe. Start them

before you do the treatment. They usually take a couple of weeks to become

effective.

Remember that we are all here for you.

Re: [ ] Good morning from AZ

> Well thanks for replying ,I was just told that I'm on

> the list for treatment but have not recieved a code

> access #(thats how I feel just a #!!!!!!!!) anyway it

> may take awhile to start. Is it wise to do this alone

> as far as living alone I mean. I know I have the group

> for support but I wonder if going thru this treatment

> alone is smart,I do not have anyone to help me. Any

> thoughts about it? giglebut

>

>

> --- Jannewilms42@... wrote:

> > Giglebutt we all experience pain on the right side

> > but when you tell your dr.

> > he'll say the liver feels no pain it's the area

> > around it that does..I know

> > when my liver isn't hurting(yea right) that it can

> > affect the whole right

> > side at times..It may be your liver afterall..

> >

>

>

> __________________________________________________

>

[Guest guest]

My liver doc is afraid I'll go into a hepatic coma if I take too many of

anything...although I do take ambien occasionally(get it from my PCP)

I'm hoping to get my dilaudid refilled so I'll have some with me when we

take our trip.. I see the liver Dr this coming Fri--tomorrow I have to

drive in & get a blood test(had to have it done 4 days prior to seeing

him......I'm going to ask him about the dialudid @ that time........If

I don't get it from him ---I see PCP on the 14th & I can most likely

get it from him.....

arlene

imaganeer wrote:

I found Ambien gave me the best results for sleeping. It didn't always

work, but it worked better than anything else we tried, and I wasn't groggy

the next day. -dz-

ACE <arken@...> wrote:

that

sounds great Terry(doc & test) My Dr prescribed

Amitryptilene for me also but it has no effect on me... doesn't help

my

sleep or anything else...I have a very high tolerance to most all sleep

aids...... But for pain I found that Dilaudid works very well for

me..... only take it when pain gets unbearable usually about 2-3 days

per week & I only take one!! now if they could just find something

for

the insomnia-- I'd be a much more 'happy camper'!!!! I just

staying up for 24-30+ hours straight before I can sleep .... usually

I

end up sleeping in the daytime(I don't like this as Ken is home during

daytime on Weekends & when laid off! Gastro Dr told me this was

just

another sign(symptom) of my liver being sooo bad! If it was totally

up

to him he wouldn't give me anything for sleep or pain...... but I feel

it's bad when I can't rest properly--usually this is what brings on

the

major pains & not just in my liver but all over...including very

bad

headaches--etc

arlene

Terry Long wrote:

>

>

> Hi all. The Doctor put me back on Amitriptyline this week & I

have

> been a little out of it as I have been adjusting to it. He did give

me

> some good news. He said there was no Hep C detected in my . Said

> it look's like the treatment is working. But added it was to early

to

> check the liver. To keep on the treatment.

>

> Terry

>

>

> -----------------------------------------------------------------------

>

[Guest guest]

I gotta agree on that point--- it is the right side & no matter what

Dr's may say--they're not the ones suffering from these pains!!!!!!

WE ARE!!!

arlene

Jannewilms42@... wrote:

Giglebutt

we all experience pain on the right side but when you tell your dr. he'll

say the liver feels no pain it's the area around it that does..I know when

my liver isn't hurting(yea right) that it can affect the whole right side

at times..It may be your liver afterall..

[Guest guest]

Arlene the last time my Dr told me I wasn't experiencing what I told him I was I looke dat him and asked if he had it and when he responded no then I told him then he didn't know S--- except what he read..I knew from how I felt..He seemed to agree after that...LOL

[Guest guest]

Terry hope you are feeling better today..Not too many have been on today..I wonder how our dear Diane is and how is Dennis's knee and ..Arlene..Jackie..Skyler...Gigglebutt..Mike..Raf.. and to all the others I amy have forgotten forgive me but get your butts in here and say hi to us!!

[Guest guest]

No Terry you aren't getting old you are feeling tx..I know it's hard on you but you do need your rest..I have done that before too and paid for it later..The concentration is due to cRS remember that ok?? GOod to hear from ya..

[Guest guest]

Just wondering bout ya Fluffy!!!

[Guest guest]

I am just busy busy busy building a shih tzu website. But here I am.... LOL Re: [ ] Good morning from AZ Terry hope you are feeling better today..Not too many have been on today..I wonder how our dear Diane is and how is Dennis's knee and ..Arlene..Jackie..Skyler...Gigglebutt..Mike..Raf.. and to all the others I amy have forgotten forgive me but get your butts in here and say hi to us!!

[Guest guest]

I am knee deep and rising in a famous creek. LOL Re: [ ] Good morning from AZ Just wondering bout ya Fluffy!!!

[Guest guest]

Hi giglebutt here, Sorry I have not been partaking in conversation but I have been reading messages everyday kind of been depressed lately still waiting to hear from the drs. on when I can start treatment .Hope everyone has a nice weekend GIGLEBUTT

WILLIAM A WALTKE <kbwaltke@...> wrote:

I am just busy busy busy building a shih tzu website. But here I am.... LOL

Re: [ ] Good morning from AZ

Terry hope you are feeling better today..Not too many have been on today..I wonder how our dear Diane is and how is Dennis's knee and ..Arlene..Jackie..Skyler...Gigglebutt..Mike..Raf.. and to all the others I amy have forgotten forgive me but get your butts in here and say hi to us!!

[Guest guest]

I know what you mean. I did pretty much the same. Now I'm having a hard time getting back into the swing of things. I got kind of used to lounging around. -dz-

Terry Long <pawpawto3@...> wrote:

Good morning all.

I was a little out of it yesterday no concentration. I missed work the second time in 4 monthes seance starting. Feeling better today. Thanking about it, both times that I missed work I did a little to much on the weekend & didn't rest enough. So I guess for the next 8 monthes till I am off of treatment. I will try to spend more time in my Lazy-Boy. It has been 4 monthes seance starting treatment & it is already getting old, just working Monday-Friday & resting up on the weekend so I can fullfill my duties at work the next week.

Terry

[Guest guest]

So can all the shih tzu's get on and chat? -dz-

WILLIAM A WALTKE <kbwaltke@...> wrote:

I am just busy busy busy building a shih tzu website. But here I am.... LOL

Re: [ ] Good morning from AZ

Terry hope you are feeling better today..Not too many have been on today..I wonder how our dear Diane is and how is Dennis's knee and ..Arlene..Jackie..Skyler...Gigglebutt..Mike..Raf.. and to all the others I amy have forgotten forgive me but get your butts in here and say hi to us!!

[Guest guest]

I don't suppose you have a paddle? -dz-

WILLIAM A WALTKE <kbwaltke@...> wrote:

I am knee deep and rising in a famous creek. LOL

Re: [ ] Good morning from AZ

Just wondering bout ya Fluffy!!!

[Guest guest]

Just pop in once in a while to let us know you're here... It's hard to play that waiting game isn't it? I've got a little over a month to wait and find out if the beast is back. I'm starting to get a little anxious about that, too. -dz-

debbie henning <giglebutt2002@...> wrote:

Hi giglebutt here, Sorry I have not been partaking in conversation but I have been reading messages everyday kind of been depressed lately still waiting to hear from the drs. on when I can start treatment .Hope everyone has a nice weekend GIGLEBUTT WILLIAM A WALTKE <kbwaltke@...> wrote:

I am just busy busy busy building a shih tzu website. But here I am.... LOL

Re: [ ] Good morning from AZ

Terry hope you are feeling better today..Not too many have been on today..I wonder how our dear Diane is and how is Dennis's knee and ..Arlene..Jackie..Skyler...Gigglebutt..Mike..Raf.. and to all the others I amy have forgotten forgive me but get your butts in here and say hi to us!!

[Guest guest]

They are putting me on thyroid, the meds can cause

hypothyroid which makes you very tired. Mine is low.

You might ask to have that checked.

Sharon

--- Terry Long <pawpawto3@...> wrote:

>

> Good morning all.

>

> I was a little out of it yesterday no

> concentration. I missed work the second time in 4

> monthes seance starting. Feeling better today.

> Thanking about it, both times that I missed work I

> did a little to much on the weekend & didn't rest

> enough. So I guess for the next 8 monthes till I am

> off of treatment. I will try to spend more time in

> my Lazy-Boy. It has been 4 monthes seance starting

> treatment & it is already getting old, just working

> Monday-Friday & resting up on the weekend so I can

> fullfill my duties at work the next week.

>

> Terry

>

>

>

> ---------------------------------

>

[Guest guest]

Hi Debbie

I know it is hard, but I want to suggest that you try not to let this disease get you to depressed. I have found that having a positive outlook on everything seems to help. I'm sure that you will be able to start treatment soon. I'll be praying for you.

Re: [ ] Good morning from AZ

Terry hope you are feeling better today..Not too many have been on today..I wonder how our dear Diane is and how is Dennis's knee and ..Arlene..Jackie..Skyler...Gigglebutt..Mike..Raf.. and to all the others I amy have forgotten forgive me but get your butts in here and say hi to us!!

[Guest guest]

Hi, Debbie,

is quite right; I've been on the treatment about a month now, and I'm finding that having a positive attitude is everything. It would be easy for me to 'run' with the side effects, but I keep in mind why I'm doing this: to get well, to prevent a much worse liver condition, and to avoid being a burden for my spouse, insofar possible, should I get liver cancer, etc.

And thank God, there IS a treatment available! Not too long ago there was none.

Kind regards,

Re: [ ] Good morning from AZ

Terry hope you are feeling better today..Not too many have been on today..I wonder how our dear Diane is and how is Dennis's knee and ..Arlene..Jackie..Skyler...Gigglebutt..Mike..Raf.. and to all the others I amy have forgotten forgive me but get your butts in here and say hi to us!!