Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Jan, this explains the heat intolerance. Sharon --- Hepatitis C Aware <hcvaware@...> wrote: > From: " Hepatitis C Aware " > <hcvaware@...> > <hcvaware@...> > Subject: July Newsletter > Date: Sat, 6 Jul 2002 23:35:22 -0400 > > July Newsletter > Hepatitis C Aware > > > > The Sun and Ribavirin > Dog Days of summer have hit most of the United > States hard. For those on > treatment, especially those taking ribavirin, > remember that ribavirin can > make the skin extremely sensitive to sunlight and > heat. Limited time in the > sun, where hats and protect your skin. Be sure to > keep plenty of water on > hand if you are out in the sun. > > > > March On D.C. > > On June 23rd the March for Awareness march on > Washington D.C was held. While > the number of people in the march was a little > disappointing the group was > vocal and many fine speeches were made and the point > was made that Hepatitis > C needs much more funding for research and the > Government needs to start > taking much better care of its veterans. We are > hoping for another march > next year and hope our numbers will grow and our > voices grow louder. > > There are some highlights from the march on our web > site. > http://www.Hepatitis Caware.org/dcmarch/march.html > > Hepatitis C Aware would like to personally thank > Tricia Lupole, Norm Seiff, > Sheri Newman , , Lupole and > all the others that put a > lot of hard work into organizing the march. > > > > Waiting list for Peg-Intron > While Schering doesn’t tell us a lot about how long > the waiting list is for > Peg-Intron we are hearing many reports that the > waiting list are at least 8 > weeks long now. While waiting can be a source of > stress and anxiety, whether > it is waiting for test results or medication, we > need to keep in mind that > in most cases the hepatitis C virus progresses very > slowly, we do have time. > If you are waiting for Peg-Intron and have never > done a form of interferon > before take time to enjoy yourself, your friends and > family. Take a vacation > or do what makes you happy. Make good use of your > time before the medication > arrives. If you are one of the ones that experience > side effects you will be > glad you took some time to have some fun. Don’t > spend the time waiting and > getting anxious, be productive and do what you want > to do. > > > > Hepper Mentoring List > We have had quite a few new people sign up for the > “Hepper Mentoring” list > the last few weeks, both those offering their > experiences and those wanting > someone to talk to. Please stop by and check out the > list and if you have > some time find someone to email, new friends may be > made. > > http://www.Hepatitis Caware.org/hepper.html > > > > Cyber Snake Oil > With the birth of the Internet we now find ourselves > with unlimited > resources, the ability to purchase services and > goods, research all kinds of > topics, look for a doctor in your area, and the list > goes on and on. But > with the good things we have gained from the > Internet a door was open for > those seeking profit at others expense and a new > types of crimes. One > particular type of crime that has been steadily > rising has been the illegal > sales of prescription drugs and the offerings of > “cure all” products that > even come with testimonials. A web site that offers > herbs or other > alternatives and markets them as a cure for > illnesses are classified by the > FDA (Food and Drug Administration) and the FTC > (Federal Trade Commission) > as market drugs, at least in the United States. > Colloidal Silver for > example, has been advertised as a cure for over 650 > different diseases and > is now being marketed to Hepatitis C patients. The > FDA has sent over 20 > warnings letters to companies marketing Silver > Colloidal warning them of > violating laws. > http://www.fda.gov/cder/warn/cyber/cyber2000.htm The > National Institute of Health has reported Silver > Colloidal, as have toxic > properties. > > A press release issued by the FTC addresses the > problem of Internet Health > Fraud and can be found on their web site. > http://www.ftc.gov/opa/2001/06/cureall.htm > > While Hepatitis C Aware does not take a stand > against alternatives, holistic > or herbal remedies, we do want everyone to use > caution when considering > trying non-conventional medicines. We urge everyone > to consult with a doctor > before taking anything, over the counter medicines, > herbs or even a drastic > change in diet. Many herbs and dietary supplements > interact with other drugs > and in some cases can do more harm. When considering > anything unconventional > or conventional, we urge everyone to research the > product, discuss it with > your doctors. Be cautious of any web site making > claims and posting > testimonials that also sell the products. > > > The Hepper Community > > We hope everyone enjoys the summer and finds that > living with Hepatitis C > doesn’t have to be so bad. There are many infected > individuals, their > families and caregivers that have come together to > form a “Hepper Community” > and what a community it is. We educate each other, > talk to each other, and > offer hope and friendship to others. We are a fine > example of what can > happen when people come together. We are numerous > and strong and we need to > stick together to make our voices heard, to let > others now about this > insidious virus and get the research and funding we > need to find an > effective cure. Keep up the good work everyone! > ___________________________________________________ > Hepatitis C Aware is a non-profit organization and > sends out a monthly Email > newsletter in order to help raise awareness, and > offer support and > encouragement for those infected. If you wish to be > removed from our list > reply with remove in the subject line. > If this email was forwarded to you and you wish to > receive our newsletter > reply to hcvaware@... with " add me " > in the subject line or > go to ours web site and sign up. > ___________________________________________________ > Http://www.Hepatitis Caware.org > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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