Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 Jackie you could not have found a more supportive place or one with more knowledge and positive attitudes. We are right here for you. I don't have Hep C but my son was diagnosed a few months ago now. If it were not for this group I'd of probably been committed by now. Now I am not nearly as scared just really deteremined. Hugs [ ] hello..new here My name is Jackie and I've just joined. Reason being my partner just found out today he has tested positive for hepatitis C, seems we are just beginning this journey.I need somewhere for support and some where someone can answer any questions I may have and maybe he will also think about joining.Since this afternoon I have been pouring over page after page of info online and done nothing but confuse me more and scare myself silly.My mother died of hepatitis C in 1974 and although I am sure things have advanced since then , the memories still linger close enough to cause panic and fear in me.My husband died from cancer in 97 and I was there every second watching and helping him. I also lost my father uncle and grandfather with the same disease, so I am 'used' to the stress but not, I am scared to death and need to find the strength I need for this to help him.I hope this will be the right place for me to find what I need. Thanks for letting me join.jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 Thank you , this makes me feel very good, a good place to talk and maybe sceam if I need to I am glad I joined jackie \ > Jackie you could not have found a more supportive place or one with more > knowledge and positive attitudes. We are right here for you. I don't have > Hep C but my son was diagnosed a few months ago now. If it were not > for this group I'd of probably been committed by now. Now I am not nearly > as scared just really deteremined. Hugs > > [ ] hello..new here > > My name is Jackie and I've just joined. Reason being my partner just > found out today he has tested positive for hepatitis C, seems we are > just beginning this journey. > > I need somewhere for support and some where someone can answer any > questions I may have and maybe he will also think about joining. > > Since this afternoon I have been pouring over page after page of info > online and done nothing but confuse me more and scare myself silly. > > My mother died of hepatitis C in 1974 and although I am sure things > have advanced since then , the memories still linger close enough to > cause panic and fear in me. > > My husband died from cancer in 97 and I was there every second > watching and helping him. I also lost my father uncle and grandfather > with the same disease, so I am 'used' to the stress but not, I am > scared to death and need to find the strength I need for this to help > him. > > I hope this will be the right place for me to find what I need. > > Thanks for letting me join. > > jackie > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 Wecome to our family "group". You have found a loving caring & supportive group. My name is Terry. I live in southwest Az, northwest Phoenix metro area. I found out last year that I had Hep C & started treatment January this year. Last month the Dr told me that my blood work now shows no hepc detected in the blood. I am sure someone in here can answer most of your questions. I dont know what you have read so far. But the chances of passing Hep C through intercourse is next to none. This is passed through the blood. Blood transfustion's, IV drug use & tattooes. We will be praying for you. Terry bluesparkling_angel <bluesparkling_angel@...> wrote: My name is Jackie and I've just joined. Reason being my partner just found out today he has tested positive for hepatitis C, seems we are just beginning this journey.I need somewhere for support and some where someone can answer any questions I may have and maybe he will also think about joining.Since this afternoon I have been pouring over page after page of info online and done nothing but confuse me more and scare myself silly.My mother died of hepatitis C in 1974 and although I am sure things have advanced since then , the memories still linger close enough to cause panic and fear in me.My husband died from cancer in 97 and I was there every second watching and helping him. I also lost my father uncle and grandfather with the same disease, so I am 'used' to the stress but not, I am scared to death and need to find the strength I need for this to help him.I hope this will be the right place for me to find what I need. Thanks for letting me join.jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 Hi Jackie Welcome to the group. I'm sure you will find a lot of support and even a few laughs here. [ ] hello..new here > My name is Jackie and I've just joined. Reason being my partner just > found out today he has tested positive for hepatitis C, seems we are > just beginning this journey. > > I need somewhere for support and some where someone can answer any > questions I may have and maybe he will also think about joining. > > Since this afternoon I have been pouring over page after page of info > online and done nothing but confuse me more and scare myself silly. > > My mother died of hepatitis C in 1974 and although I am sure things > have advanced since then , the memories still linger close enough to > cause panic and fear in me. > > My husband died from cancer in 97 and I was there every second > watching and helping him. I also lost my father uncle and grandfather > with the same disease, so I am 'used' to the stress but not, I am > scared to death and need to find the strength I need for this to help > him. > > I hope this will be the right place for me to find what I need. > > Thanks for letting me join. > > jackie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 Hi Jackie and welcome aboard. I know it's tough when you first get this news, but it's not as bad as you may think. While this disease still is potentially fatal, most of us will live out our normal lifespan cured or not. There isn't too much long term data on the current treatment, but they are approaching a 50-60% long-term response, depending on the genotype. Most of us in the US are type 1 (a or , which is the most difficult to treat. It is a slowly advancing disease and they are improving on the treatment options, so there is good reason to have hope. I have completed a round of treatment and am currently in remission, I go back for my 6 month retest in July, to see if I have relapsed or not. The main thing you want to find out after the diagnosis of hcv, is the condition of the liver, which we have run into resistance from insurance companies and dr's to obtain. I think you'll find that somebody in the group will be able to help you with any questions you may have. None of us are dr's here, but I have learned more from this group than I ever learned from my dr. Hang in there, it sounds like you have been through your share of trials already. -dz- bluesparkling_angel <bluesparkling_angel@...> wrote: My name is Jackie and I've just joined. Reason being my partner just found out today he has tested positive for hepatitis C, seems we are just beginning this journey.I need somewhere for support and some where someone can answer any questions I may have and maybe he will also think about joining.Since this afternoon I have been pouring over page after page of info online and done nothing but confuse me more and scare myself silly.My mother died of hepatitis C in 1974 and although I am sure things have advanced since then , the memories still linger close enough to cause panic and fear in me.My husband died from cancer in 97 and I was there every second watching and helping him. I also lost my father uncle and grandfather with the same disease, so I am 'used' to the stress but not, I am scared to death and need to find the strength I need for this to help him.I hope this will be the right place for me to find what I need. Thanks for letting me join.jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 Welcome Jackie. I am Sharon, I was diagnosed last Sept. I've been on the Peg-Intron combo for almost 7 months. I'm also on a study program, so I'm taking a third drug to see if it will help. When I was diagnosed it scared me too. But I am now fighting it and I intend to win. Always remember " most people die with this disease not from it " . They are working on new drugs all the time. Your partner needs to find out his viral load, genotype and have a liver biopsy to have all the facts. If he goes on treatment you will need to be very patient and understanding, but it sounds like you have a lot of experience at that. It is not a real user-friendly treatment but I doubt if it's as bad as chemo for cancer. I can't say for sure as I've never had chemo for cancer. If you have any questions, this is a good place to be. Sharon --- bluesparkling_angel <bluesparkling_angel@...> wrote: > My name is Jackie and I've just joined. Reason being > my partner just > found out today he has tested positive for hepatitis > C, seems we are > just beginning this journey. > > I need somewhere for support and some where someone > can answer any > questions I may have and maybe he will also think > about joining. > > Since this afternoon I have been pouring over page > after page of info > online and done nothing but confuse me more and > scare myself silly. > > My mother died of hepatitis C in 1974 and although I > am sure things > have advanced since then , the memories still linger > close enough to > cause panic and fear in me. > > My husband died from cancer in 97 and I was there > every second > watching and helping him. I also lost my father > uncle and grandfather > with the same disease, so I am 'used' to the stress > but not, I am > scared to death and need to find the strength I need > for this to help > him. > > I hope this will be the right place for me to find > what I need. > > Thanks for letting me join. > > jackie > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2002 Report Share Posted May 13, 2002 Hi Jackie & Welcome to our "family/group" ask any questions & I'm sure you'll find an answer from many of us arlene From Oregon PS am very saddened to hear of your past plights with the dragon(hepC) bluesparkling_angel wrote: My name is Jackie and I've just joined. Reason being my partner just found out today he has tested positive for hepatitis C, seems we are just beginning this journey. I need somewhere for support and some where someone can answer any questions I may have and maybe he will also think about joining. Since this afternoon I have been pouring over page after page of info online and done nothing but confuse me more and scare myself silly. My mother died of hepatitis C in 1974 and although I am sure things have advanced since then , the memories still linger close enough to cause panic and fear in me. My husband died from cancer in 97 and I was there every second watching and helping him. I also lost my father uncle and grandfather with the same disease, so I am 'used' to the stress but not, I am scared to death and need to find the strength I need for this to help him. I hope this will be the right place for me to find what I need. Thanks for letting me join. jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2002 Report Share Posted May 13, 2002 Jackie it is nice to meet you..I am Jan from Louisiana and also have Hep C..I understand your fears..I was like that in the beginning too..You seem to have gotten info you have needed to get you started so far but I want ya to know we are here for ya..If we can help in anyway please let us know..At times we joke around alot to help the stress..Understanding is the most important part of dealing with your hubby..Be patient.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2002 Report Share Posted May 13, 2002 Terry .........I guess you can ignore previous message I sent about weird looking emails from you...........this one is just fine.........LOL arlene Terry Long wrote: Wecome to our family "group". You have found a loving caring & supportive group. My name is Terry. I live in southwest Az, northwest Phoenix metro area. I found out last year that I had Hep C & started treatment January this year. Last month the Dr told me that my blood work now shows no hepc detected in the blood. I am sure someone in here can answer most of your questions. I dont know what you have read so far. But the chances of passing Hep C through intercourse is next to none. This is passed through the blood. Blood transfustion's, IV drug use & tattooes. We will be praying for you. Terry bluesparkling_angel <bluesparkling_angel@...> wrote: My name is Jackie and I've just joined. Reason being my partner just found out today he has tested positive for hepatitis C, seems we are just beginning this journey. I need somewhere for support and some where someone can answer any questions I may have and maybe he will also think about joining. Since this afternoon I have been pouring over page after page of info online and done nothing but confuse me more and scare myself silly. My mother died of hepatitis C in 1974 and although I am sure things have advanced since then , the memories still linger close enough to cause panic and fear in me. My husband died from cancer in 97 and I was there every second watching and helping him. I also lost my father uncle and grandfather with the same disease, so I am 'used' to the stress but not, I am scared to death and need to find the strength I need for this to help him. I hope this will be the right place for me to find what I need. Thanks for letting me join. jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 > > Welcome to this list, Betty. I recognized you from the Grands list. Nice to know someone else on here!!! Back pain is a pain in the _____! LOL Flo ^Thanks for the welcome Flo. Yes I am in Grands.LOL > > Quote Link to comment Share on other sites More sharing options...
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