Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 This is the place to vent, , Lord knows we all have our days... I know it's hard for other people to understand, because often we don't "look" or "seem" sick. I know I have had people, friends and relatives, not understand why I was so "unsociable", not attending various events, etc. Take care of yourself and unload as much as you can when you are feeling this wiped out. The treatment for hepatitis is not good for you. The idea is that it's better than hepatitis, but there may come a point when the treatment could become more dangerous to you than the hepatitis. Please watch closely. It's good that you recognize you have much to be greatful for, but you're only human. I was always reminded of an old Savoy Brown song... Well I know there's folk in hospitals, who are far worse off than me.. Oh, but that don't mean too much, when my spirit don't feel free And I'm crying... Hang in there, and remember we're always here for you. -dz- <chrissea10@...> wrote: Hi Everyone,I haven't posted in such a long time but the truth is I need to get some things out because I really only talk to my husband and he can't always understand. I am in my 8th month of treatment and this is probably the hardest thing I have ever done. Although for the most part I feel ok, my bloodwork is telling a different story. I am now going to the doctor weekly and sometimes twice a week because my blood counts are all over the place. I am on Neupogen & Procrit. You know what? I hate complaining about this. I am very grateful for all that I have and feel that having Hep C is better than a lot of people have to deal with, but I guess I need to vent a little. People that have not been through this treatment really don't understand and I don't like to burden my whole family with it so I just keep going like I'm 'ok' for the most part. Really I just want to do NOTHING for the next 4 months until this is over, but I have to keep working and take care of the house & my 2 children. My husband helps out soooo much, but sometimes (mostly all the time) I just want to be alone. I want to finish this treatment because I have gone to far not to. My hematologist thinks I should stop but I have told him that stopping isn't an option for me.Ok, I guess I'm done. I really don't want any pity, just a couple of words with people who understand. Thank you for listening and my prayers are with everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 Keep your chin up Chris... XXX > > Hi Everyone, > I haven't posted in such a long time but the truth is I need to get > some things out because I really only talk to my husband and he can't > always understand. I am in my 8th month of treatment and this is > probably the hardest thing I have ever done. Although for the most > part I feel ok, my bloodwork is telling a different story. I am now > going to the doctor weekly and sometimes twice a week because my > blood counts are all over the place. I am on Neupogen & Procrit. > You know what? I hate complaining about this. I am very grateful > for all that I have and feel that having Hep C is better than a lot > of people have to deal with, but I guess I need to vent a little. > People that have not been through this treatment really don't > understand and I don't like to burden my whole family with it so I > just keep going like I'm 'ok' for the most part. Really I just want > to do NOTHING for the next 4 months until this is over, but I have to > keep working and take care of the house & my 2 children. My husband > helps out soooo much, but sometimes (mostly all the time) I just want > to be alone. > I want to finish this treatment because I have gone to far not to. > My hematologist thinks I should stop but I have told him that > stopping isn't an option for me. > Ok, I guess I'm done. I really don't want any pity, just a couple of > words with people who understand. Thank you for listening and my > prayers are with everyone. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 Thank you all so much for your words of encouragement. I know its almost over and I can't wait!!!! I look forward to playing with my kids without get dizzy & tired. Yippeee!!!! I know what you mean Dave about watching things closely because it has gotten a little scary but I am determined to finish this. I just make sure I wash my hands a million times a day so I won't catch anything and get as much sleep as possible. Thanks again & Take care everyone, > > Hi Everyone, > I haven't posted in such a long time but the truth is I need to get > some things out because I really only talk to my husband and he can't > always understand. I am in my 8th month of treatment and this is > probably the hardest thing I have ever done. Although for the most > part I feel ok, my bloodwork is telling a different story. I am now > going to the doctor weekly and sometimes twice a week because my > blood counts are all over the place. I am on Neupogen & Procrit. > You know what? I hate complaining about this. I am very grateful > for all that I have and feel that having Hep C is better than a lot > of people have to deal with, but I guess I need to vent a little. > People that have not been through this treatment really don't > understand and I don't like to burden my whole family with it so I > just keep going like I'm 'ok' for the most part. Really I just want > to do NOTHING for the next 4 months until this is over, but I have to > keep working and take care of the house & my 2 children. My husband > helps out soooo much, but sometimes (mostly all the time) I just want > to be alone. > I want to finish this treatment because I have gone to far not to. > My hematologist thinks I should stop but I have told him that > stopping isn't an option for me. > Ok, I guess I'm done. I really don't want any pity, just a couple of > words with people who understand. Thank you for listening and my > prayers are with everyone. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 Hi I am Martha and new to the group. How are you feeling today? I don't have much to offer because I am in the process of educating myself on this disease but feel free to vent anytime. My email address is maldonadomartha@.... Again I have no advice to give you but I am a great listener. > > Hi Everyone, > I haven't posted in such a long time but the truth is I need to get > some things out because I really only talk to my husband and he can't > always understand. I am in my 8th month of treatment and this is > probably the hardest thing I have ever done. Although for the most > part I feel ok, my bloodwork is telling a different story. I am now > going to the doctor weekly and sometimes twice a week because my > blood counts are all over the place. I am on Neupogen & Procrit. > You know what? I hate complaining about this. I am very grateful > for all that I have and feel that having Hep C is better than a lot > of people have to deal with, but I guess I need to vent a little. > People that have not been through this treatment really don't > understand and I don't like to burden my whole family with it so I > just keep going like I'm 'ok' for the most part. Really I just want > to do NOTHING for the next 4 months until this is over, but I have to > keep working and take care of the house & my 2 children. My husband > helps out soooo much, but sometimes (mostly all the time) I just want > to be alone. > I want to finish this treatment because I have gone to far not to. > My hematologist thinks I should stop but I have told him that > stopping isn't an option for me. > Ok, I guess I'm done. I really don't want any pity, just a couple of > words with people who understand. Thank you for listening and my > prayers are with everyone. > > Quote Link to comment Share on other sites More sharing options...
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