Celiac

[Guest guest]

Ann,

I have had Lyme for 21 years, and was diagnosed with Celiac this past April.

From what I have learned from the Celiac group that I belong to, cheating will

not necessarily cause a positive biopsy...longer term full fledge eating of the

bad stuff is what it takes. Celiac, which I am sure you know, is also genetic,

and often triggered by some sort of extreme stress to the immune system.

Humm...I think Lyme fits that bill. Also, a gluten free, processed food free

diet, is proving to be of terrific benefit to people with Lyme. My doc & I were

just discussing that fact. The more people I come in contact with who have

Lyme, and went gluten free, no processed foods, and yes the extra step - dairy

free...are getting better. People ask me all of the time, " What do you eat?

Are you a vegitarian? " Nope. As many raw fruits & veggies as I can a day (raw)

(I have help & achieve about 10 servings a day)...I eat meat, legumes, & I cheat

- so I take digestive enzymes...As I am trying to teach my mom, Gluten Free is

not as hard as everyone thinks it is...

ANyway...I am starting to ramble...

[ ] Celiac

-

My husband was diagnosed as a celiac and has gone wheat and gluten free for 3

years. He has been feeling alot better but also has some problems (mostly

gastrointestinal, optical migraines, aches all over) that are not better. When I

got tested for Lyme so did he, and he came out positive also.

Do you think there is a connection? I was beginning to doubt his celiac

diagnosis since his biopsy came out OK - it was the blood test and his eating

patterns that convinced the doctor he had to be wheat and gluten free. They

blamed the biopsy coming out OK because we were doing so very well on the new

diet - even though they said to " cheat " before the biopsy and he did.

Ann

Ann Prow

How Healthy Do You Want To Be????

Nikken Wellness Consultant

Positive Action

http:/www.5Pillars.com/PositiveAction

annprow@...

928 468-1410

" In each and every moment, we have the freedom to choose,

and every choice determines the direction of our lives "

Olivia Hoblitzelle

[Guest guest]

Hey Kim:

My Mom was the first to be diagnosed. She was 5'10 " and her weight dropped

to 95 lbs. She had chronic diarehha. We thought she was going to die. She

had every test (including cancer, camera down the throat and up the you know

what). Everything was normal. She went to a nutritionist as a last ditch

effort. She had her immediately tested with a blood antibody test. There is

also a

test where they biopsy a piece of the intestine. After 3 days of a gluten

free diet she stopped pooping. We (my siblings) were tested with the blood test

and 2 of 4 of us tested positive. I never had the stomach problems, but my

thyroid pooped out. I think everyone makes such a big deal about celiac- my

opinion- it's just like any other allergy (peanuts, bees, etc). It can rock

your world if left untreated just like your thyroid. It's a pretty vicious

circle. I do have a longtime friend that was also diagnosed through blood tests

because she was having really bad depression. If you have crappy insurance like

me- you might want to try eating gluten free for a month and see if that

helps. I felt better within about 2 weeks. check out www.celiac.com for more

info about this- I hope this helps. If anything, it's a great way to eat

healthier!!!

[Guest guest]

fantastic post---100% agree the only way to know if you are celaic is

to go gluten free!!!!

~ Cushing's Syndrome ~http://www.endocrineweb.com/obesity.html

Note: this page contains information which assumes you have read our

introduction to the adrenal gland page. If not, go there first.

Remember, the adrenal gland has a center gland (medulla) which

produces adrenaline, and an outer gland (the cortex) which produces

several hormones such as cortisol an aldosterone. This page is about

cortisol overproduction by the adrenal cortex.

In 1932, a physician by the name of Harvey Cushing described eight

patients with central body obesity, glucose intolerance,

hypertension, excess hair growth, osteoporosis, kidney stones,

menstrual irregularity, and emotional liability. It is now known that

these symptoms are the result of excess production of cortisol by the

adrenal glands. Cortisol is a powerful steroid hormone, and excess

cortisol has detrimental effects on many cells throughout the body.

Although some of these symptoms are common by themselves, the

combination of these suggests that a workup for this disease may be

in order. Keep in mind that Cushings syndrome is rare, occurring in

only about 10 patients per one million population. On the other hand,

simple obesity can be associated with some of these symptoms in the

absence of an adrenal tumor--this is related to the slightly

different mechanism by which normally produced steroids are

metabolized by individuals who are obese. Note: The most common cause

of excess steroids in the blood and its side effects, however, is

long-term use of steroid medications for other disorders.

Since cortisol production by the adrenal glands is normally under the

control of the pituitary (like the thyroid gland), overproduction can

be caused by a tumor in the pituitary or within the adrenal glands

themselves. When a pituitary tumor secretes too much ACTH (Adrenal

Cortical Tropic Hormone), it simply causes the otherwise normal

adrenal glands to produce too much cortisol. This type of Cushings

syndrome is termed " Cushings Disease " and it is diagnosed like other

endocrine disorders by measuring the appropriateness of hormone

production. In this case, serum cortisol will be elevated, and, serum

ACTH will be elevated at the same time.

When the adrenal glands develop a tumor, like any other endocrine

gland, they usually produce excess amounts of the hormone normally

produced by these cells. If the adrenal tumor is composed of cortisol

producing cells, excess cortisol will be produced which can be

measured in the blood. Under these conditions, the normal pituitary

will sense the excess cortisol and will stop making ACTH in an

attempt to slow the adrenal down. In this manner, physicians can

readily distinguish whether excess cortisol is the result of a

pituitary tumor, or an adrenal tumor.

Even more rare (but placed here for completion sake) is when excess

ACTH is produced somewhere other than the pituitary. This is

extremely uncommon, but certain lung cancers can make ACTH (we don't

know why) and the patients develop Cushings Syndrome in the same way

they do as if the ACTH was coming from the pituitary.

Causes of Cushings Syndrome

ACTH Dependent (80%)

Pituitary Tumors (60%)

Lung Cancers (5%)

ACTH Independent (20%)

Benign Adrenal Tumors (adenoma) (25%)

Malignant Adrenal Tumors (adrenal cell carcinoma) (10%) [new page on

this topic]

Testing for Cushings Syndrome

The most sensitive test to check for the possibility of this disease

is to measure the amount of cortisol excreted in the during during a

24 hour time period. Cortisol is normally secreted in different

amounts during the day and night, so this test usually will be

repeated once or twice to eliminate the variability which is normally

seen. This normal variability is why simply checking the amount of

cortisol in the blood is not a very reliable test. A 24 hour free

cortisol level greater than 100 ug is diagnostic of Cushings

syndrome. The second test which helps confirms this diagnosis is the

suppression test which measures the cortisol secretion following the

administration of a powerful synthetic steroid which will shut down

steroid production in everybody with a normal adrenal gland.

Subsequent tests will distinguish whether the disease is due to an

ACTH dependent or independent cause.

Invariably, once the diagnosis is made, patients will undergo a CT

scan (or possibly an MRI or Ultrasound) of the adrenal glands to look

for tumors in one or both of them (more information on adrenal x-ray

tests on another page). If the laboratory test suggest a pituitary

origin, a CT or MRI of the brain (and possibly of the chest as well)

will be performed.

Treatment of Cushings Syndrome

Obviously, the treatment of this disease depends upon the cause.

Pituitary tumors are usually removed surgically and often treated

with radiation therapy. Neurosurgeons and some ENT surgeons

specialize in these tumors. If the cause is determined to be within a

single adrenal gland, this is treated by surgical removal. If the

tumor has characteristics of cancer on any of the x-ray tests, then a

larger, conventional operation is in order. If a single adrenal gland

possesses a small, well defined tumor, it can usually be removed by

the new technique of laparoscopic adrenalectomy.

More about X-ray Tests for Adrenal Tumors

More about Operations Performed for Adrenal Tumors

More about Laparoscopic Adrenalectomy

More about Adrenal Cancer: symptoms, diagnosis, and treatments

Return to Adrenal Introduction

[Guest guest]

>

> When it comes to celiac disease ,their is no cure except gf diet.

> If one has candida you can not cure celiac curing candida.

> www.celiac.com I have checked with GIG in Washingon and other

celiac sites and their is no cure except to eat gf.

==>Sorry , even though that is the general " medical "

viewpoint, who claim a long list of many diseases are incurable, it

is not true. Here's what they list as the cause of celiac:

Celiac disease is a digestive condition triggered by consumption of

the protein gluten, which is found in bread, pasta, cookies, pizza

crust and other foods containing wheat, barley or rye. Oats may

contain gluten as well. When a person with celiac disease eats foods

containing gluten, an immune reaction occurs in the small intestine,

resulting in damage to the surface of the small intestine and an

inability to absorb certain nutrients from food.

Eventually, decreased absorption of nutrients (malabsorption) can

cause vitamin deficiencies that deprive your brain, peripheral

nervous system, bones, liver and other organs of vital nourishment,

which can lead to other illnesses. This is especially serious in

children, who need proper nutrition to develop and grow.

Also known as celiac sprue, nontropical sprue and gluten-sensitive

enteropathy, celiac disease occurs in people who have a

susceptibility to gluten intolerance. Some speculate that celiac

disease has been around since humankind switched from a foraging diet

of meat and nuts to a cultivated diet including grains such as wheat.

Nonetheless, it has only been in the last 50 years that researchers

have gained a better understanding of the condition and how to treat

it.

==>Therefore, what is required to cure it is two major things: 1)

Eliminate gluten grains, along with all other grains, as recommended

for candida, you stop the damage they do to the intestines. All

grains available today are not properly prepared by soaking, etc.

which must be done in order to remove the phytates and other enzymes

that block digestion of minerals and interfere with protein digestion

in the intestines. Grains also scrap and damage the lining of the

intestines. Fibres as advertised by the medical community are

definitely damaging and deplete nutrients needed by the intestines

and the body. 2) Give your body the nutrients it needs to heal the

intestines, and increase immune functioning.

==>Grains will create an immune response in the intestines because

the body is trying to handle its damaging effects. Since gluten and

lack of nutrients causes the problem you can turn it around. I know

because I turned it around and I've seen many others do it too, on

the candida program. So the medicos are wrong again.

But that doesn't mean you can go back to eating grains without proper

preparation, and even when properly prepared they still act just like

sugar in the body and should only be consumed in small amounts even

by healthy people.

Cheers, Bee

[Guest guest]

I am wondering if you might have some symptoms of "leaky gut syndrome" also. Usually the body not only has gotten so much processed foods, but also nothing to challenge the lining of the gut..along with the desensitized tissue reacting to food as foreign substances.. One of the problems I have seen after having to cook and care for a person with celiac was that most of the time her diet consisted of food with such as baked potato with lots of butter or lots of sweets. (we got along quite well as she loved my cooking) but trying to make healthier meals was a battle. Salads were eaten but with lots of dressing. I believe that lots of butter and sugar are also bad for celiac disease. Once you have any hard to diagnos problem, the first thing you have to decide to do is to start writing down every "treat" you eat and then decide how much

you love the treats and how much you want health. I gave up sugar for a year. That meant none in my coffee, none on my cereal spooned on or frosted..Though I still ate cheereos with 2% milk sometimes, if I ate cereal occasionally. I now make grits with eggs or whole rolled oats oatmeal and use apple sauce or fruit..No scooping of sugar. Oranges are whole and peeled or grapefruit and no juice..They add fructose corn syrup to so many things...So I avoid it..Even catsup/catchup now has sugar in it and it didn't when I was younger..go figure..They know that if they don't the brand that does have the sugar will sell better..so people..each time we purchase something we make a vote..consciously or unconsciously.. (Most people walk aroud unconsiously..lol...So did I for years..and even now on many subjects..so I try to have a more open mind) I found that yogurt helps but eating yogurt with sprinkles or fruit usually has extra sugar.. So the best

thing to do is to buy plain vanilla and eventually try to cut it with some plain. then add only fresh cut fruit. I don't have a problem so I add wheat germ in with it and it has a sweetness of its own.. If you must use a bannana to eat frut, try using half a day and not more than one a week or else your just getting your sugar from eating too many bannanas. Canned fruit in syrup is also not good if you already have a problem, unless its constipation..Then canned pears is great for this. Eat some of the juice with the pears..but its best to just eat fresh whole fruit when ever possible. Then as you get better, save "treats" for holidays or once a week. When growing up we didn't have a treat every day with our lunches or after dinner each night..Usually desert came on weekends and birthdays..Now we can walk into any store and buy mini cakes, donuts and more and if we don't eat it with our coffee or late' we feel

deprived.. I know I did.. Until I decided I wanted to be healthier..Even though I am much more healthier in many ways, I still do have some issues of my own and keep trying to work through them. Part is my metabolic problem. I have considered taking thyroid meds, but while on the B vitamins they test my thyroid and say its normal and I dont need it..but then again its very hard to keep my nails from growing out unless Im either doing treadmill exercizing...which I cant do at the moment or raise my blood pressure back up! lol.. or take an antidepressant that also makes me a doozer and I suddenly start growing nails and hair again..sigh.. At least I have very dense bones..and that makes me somewhat happy... I used to bruise alot but not anymore..due to lowering sugar in my diet and upping the vitamin C gradually.. Vitamin C also helps to strengthen tissue in the body...I'm a newbie here need help

Posted by: "Robin Little"

robinlittle@...

slippersmomma

Fri May 22, 2009 9:52 am (PDT)

Hi Patti

I was diagnosed with Celiac about 3 years ago, and started LDN in April. I

do not expect it to cure my Celiac, and allow me to eat gluten again. (I now

believe everyone should stay gluten fre

[Guest guest]

Cherrie,

You might ask your doc to start you off on just a very low dose of synthroid (T4) and cytomel (T3) (or their bioidenticals) For years I complained of fatigue and constipation but thyroid tests always came back within the "normal range." Unfortunately that normal range is quite wide.. so what may be normal for one individual is not necessarily the case for another. Too bad we didn't get baseline numbers for thyroid activity when we were in our prime.

Did your doc check you for Hashimoto's Disease? I had a hot shot Harley Street doctor charge me a fortune to tell me I'm in the normal range - shortly afterwards I found out I had Hashis from another doctor. Honestly... the Harley street pompous doc hadn't even tested for it. He actually wrote a letter to my GP telling her that my symptoms were all in my head. Unbelievable - so much money thrown out at this guy who looks like Larry of the Three Stooges could tell me it was all in my head! This was 10 years ago.

Once I started T4 and especially the addition of T3 I couldn't believe how much better I felt.

Colorado

58, Hashimoto's Disease, late on set asthma, gut issues, funcky legs syndrome

[low dose naltrexone] Celiac

I am wondering if you might have some symptoms of "leaky gut syndrome" also. Usually the body not only has gotten so much processed foods, but also nothing to challenge the lining of the gut..along with the desensitized tissue reacting to food as foreign substances.. One of the problems I have seen after having to cook and care for a person with celiac was that most of the time her diet consisted of food with such as baked potato with lots of butter or lots of sweets. (we got along quite well as she loved my cooking) but trying to make healthier meals was a battle. Salads were eaten but with lots of dressing. I believe that lots of butter and sugar are also bad for celiac disease. Once you have any hard to diagnos problem, the first thing you have to decide to do is to start writing down every "treat" you eat and then decide how much you love the treats and how much you want health. I gave up sugar for a year. That meant none in my coffee, none on my cereal spooned on or frosted..Though I still ate cheereos with 2% milk sometimes, if I ate cereal occasionally. I now make grits with eggs or whole rolled oats oatmeal and use apple sauce or fruit..No scooping of sugar. Oranges are whole and peeled or grapefruit and no juice..They add fructose corn syrup to so many things...So I avoid it..Even catsup/catchup now has sugar in it and it didn't when I was younger..go figure..They know that if they don't the brand that does have the sugar will sell better..so people..each time we purchase something we make a vote..consciously or unconsciously.. (Most people walk aroud unconsiously..lol...So did I for years..and even now on many subjects..so I try to have a more open mind) I found that yogurt helps but eating yogurt with sprinkles or fruit usually has extra sugar.. So the best thing to do is to buy plain vanilla and eventually try to cut it with some plain. then add only fresh cut fruit. I don't have a problem so I add wheat germ in with it and it has a sweetness of its own.. If you must use a bannana to eat frut, try using half a day and not more than one a week or else your just getting your sugar from eating too many bannanas. Canned fruit in syrup is also not good if you already have a problem, unless its constipation..Then canned pears is great for this. Eat some of the juice with the pears..but its best to just eat fresh whole fruit when ever possible. Then as you get better, save "treats" for holidays or once a week. When growing up we didn't have a treat every day with our lunches or after dinner each night..Usually desert came on weekends and birthdays..Now we can walk into any store and buy mini cakes, donuts and more and if we don't eat it with our coffee or late' we feel deprived.. I know I did.. Until I decided I wanted to be healthier..Even though I am much more healthier in many ways, I still do have some issues of my own and keep trying to work through them. Part is my metabolic problem. I have considered taking thyroid meds, but while on the B vitamins they test my thyroid and say its normal and I dont need it..but then again its very hard to keep my nails from growing out unless Im either doing treadmill exercizing...which I cant do at the moment or raise my blood pressure back up! lol.. or take an antidepressant that also makes me a doozer and I suddenly start growing nails and hair again..sigh.. At least I have very dense bones..and that makes me somewhat happy... I used to bruise alot but not anymore..due to lowering sugar in my diet and upping the vitamin C gradually.. Vitamin C also helps to strengthen tissue in the body...

I'm a newbie here need help

Posted by: "Robin Little" robinlittle@... slippersmomma

Fri May 22, 2009 9:52 am (PDT) Hi PattiI was diagnosed with Celiac about 3 years ago, and started LDN in April. Ido not expect it to cure my Celiac, and allow me to eat gluten again. (I nowbelieve everyone should stay gluten fre