Re: Digest Number 828

[Guest guest]

In a message dated 99-11-22 20:04:25 EST, you write:

<< If we are truly an epidemic like AIDS, then we should be able to get

the funding.

Sharon

>>

Hi Sharon,

Sorry I don't have site you requested, but will help to look for info...

Remember that our " friends " at CDC control the numbers - with their super

high standards on WBs, etc. for reporting lyme.

Also, in order to get attention / funding, etc. - we need celebrities to

speak out on behalf of lymies! Am looking into this now - hey, even if

they're not a lymie today, they could well be tomorrow! You just never know

where they'll move the next herd of deer to & from...

Chris

[Guest guest]

I have a question. In a Swedish study it said 7% of the people tested had

antibodies to Bb. Does anyone have a site that would give us more

information on the % of people in US that have Lyme. and also the % of the

people who have AIDS. I want to compare the 2 and see how close our numbers

are. If we are truly an epidemic like AIDS, then we should be able to get

the funding.

Sharon

[Guest guest]

Sharon,

Try the Lyme alliance site:

http://www.lymealliance.org/Medical/MedCategory11/medcategory11.html

Also Art Doherty may be able to help you,

Art Doherty

E-mail Address(es):

Doherty@...

Hugs,

Marta NJ

-----Original Message-----

>From: " melillo " <mellillo1@...>

>

>I have a question. In a Swedish study it said 7% of the people tested had

>antibodies to Bb. Does anyone have a site that would give us more

>information on the % of people in US that have Lyme. and also the % of the

>people who have AIDS. I want to compare the 2 and see how close our

numbers

>are. If we are truly an epidemic like AIDS, then we should be able to get

>the funding.

>Sharon

[Guest guest]

Hello group:

Just wanted to point out that every case is different. I am sero-negative

and started Minocin six WEEKS after RA symptoms began, and saw no

improvement. Gave up after nine months, though I am now doing much better on

RA SPES (the Chinese herbal combination).

Rhonda

> Message: 21

> Date: Fri, 19 May 2000 20:05:46 -0500

> From: Probert <elbows@...>

> Subject: Re: Pills or IV

>

> on 5/20/00 4:12 PM, fady assaad at fadya@... wrote:

>

>> Does anybody know if a sero neg factor makes any

>> difference in healing????

>

> Lee Anne,

>

> Dr. Brown said sero-negative status is a good indicator for one who will

> respond more quickly and easily to the AP.

>

> I have had arthritis for 12 years, and am showing some good response to

> minocycline only (no IV's) after about 8 months.

>

> Are you sero-negative? If so, you may do well without the IV's.

>

> Jean

>

>

>

>

[Guest guest]

Chinese herbal------I know a woman who took chinese herbals and felt really

good. But they made her so sleepy. She took them to the state lab to have

them analyzed, and they had prednisone and librium!!!! in them. They were

supposedly pure herbals!!

M.

[Guest guest]

Rhonda,

I recognize that 9 months after a new diagnosis seems like a long time, but

I think many on the list would think you didn't give the AP enough time.

I was in a big mess at 7 and 1/2 months, then things really turned around

after a bad flare. If you didn't get results soon enough to keep you going,

so be it.

But I would encourage anyone who reads this to give it more time, and if you

are not getting results after 6 months or a year, ask or Ethel for

advice on what to try next.

Jean

> Hello group:

> Just wanted to point out that every case is different. I am sero-negative

> and started Minocin six WEEKS after RA symptoms began, and saw no

> improvement. Gave up after nine months, though I am now doing much better on

> RA SPES (the Chinese herbal combination).

> Rhonda

>

>> Message: 21

>> Date: Fri, 19 May 2000 20:05:46 -0500

>> From: Probert <elbows@...>

>> Subject: Re: Pills or IV

>>

>> on 5/20/00 4:12 PM, fady assaad at fadya@... wrote:

>>

>>> Does anybody know if a sero neg factor makes any

>>> difference in healing????

>>

>> Lee Anne,

>>

>> Dr. Brown said sero-negative status is a good indicator for one who will

>> respond more quickly and easily to the AP.

>>

>> I have had arthritis for 12 years, and am showing some good response to

>> minocycline only (no IV's) after about 8 months.

>>

>> Are you sero-negative? If so, you may do well without the IV's.

>>

>> Jean

>>

>>

>>

>>

>

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> GET WHO WANTS TO BE A MILLIONAIRE FREE! GET THE OFFICIAL COMPANION

> TO TELEVISION'S HOTTEST GAME SHOW PHENOMENON PLUS 5 MORE BOOKS FOR

> $2. Click for details.

> 1/3014/0/_/532797/_/958887169/

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>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

[Guest guest]

It took me TWO and a HALF YEARS before seeing improvement and now I am in

the Bionic woman mode!!!!!

C

At 10:27 AM 5/21/00 -0500, you wrote:

>Rhonda,

>

>I recognize that 9 months after a new diagnosis seems like a long time, but

>I think many on the list would think you didn't give the AP enough time.

>

>I was in a big mess at 7 and 1/2 months, then things really turned around

>after a bad flare. If you didn't get results soon enough to keep you going,

>so be it.

>

>But I would encourage anyone who reads this to give it more time, and if you

>are not getting results after 6 months or a year, ask or Ethel for

>advice on what to try next.

>

>Jean

>

>> Hello group:

>> Just wanted to point out that every case is different. I am sero-negative

>> and started Minocin six WEEKS after RA symptoms began, and saw no

>> improvement. Gave up after nine months, though I am now doing much

better on

>> RA SPES (the Chinese herbal combination).

>> Rhonda

>>

>>> Message: 21

>>> Date: Fri, 19 May 2000 20:05:46 -0500

>>> From: Probert <elbows@...>

>>> Subject: Re: Pills or IV

>>>

>>> on 5/20/00 4:12 PM, fady assaad at fadya@... wrote:

>>>

>>>> Does anybody know if a sero neg factor makes any

>>>> difference in healing????

>>>

>>> Lee Anne,

>>>

>>> Dr. Brown said sero-negative status is a good indicator for one who will

>>> respond more quickly and easily to the AP.

>>>

>>> I have had arthritis for 12 years, and am showing some good response to

>>> minocycline only (no IV's) after about 8 months.

>>>

>>> Are you sero-negative? If so, you may do well without the IV's.

>>>

>>> Jean

>>>

>>>

>>>

>>>

>>

>> ------------------------------------------------------------------------

>> GET WHO WANTS TO BE A MILLIONAIRE FREE! GET THE OFFICIAL COMPANION

>> TO TELEVISION'S HOTTEST GAME SHOW PHENOMENON PLUS 5 MORE BOOKS FOR

>> $2. Click for details.

>> 1/3014/0/_/532797/_/958887169/

>> ------------------------------------------------------------------------

>>

>> To unsubscribe, email: rheumatic-unsubscribeegroups

>>

>>

>

>

>------------------------------------------------------------------------

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>

>

>

[Guest guest]

,

Your words and others in the group are giving me the encouragement I need not

to become discouraged. I'm on the AP for almost one year to the day and

although I've had no flares in all this time, I feel so fatigued and various

new joints here and there have been involved. I was under the impression that

after being on the minocin for awhile, there would be no new swelling or

pain, etc, but apparently, that's not the case. In general, I do feel

improved but not like I thought I would (I was hoping to be back on the

tennis court this season, but no way) However, when I read your statement of

two and a half yrs and the bionic woman, WOW!!!! Good for you!

Jude (Keels)

[Guest guest]

Hi ....thanks for your suggestion. I have an app't with a new doctor

(recommended from someone from Onelist) in July, so at that time I will talk

to him about my progress and how the minocycline is working. I can also give

it that two months in case it's the season or something else.

Jude (Keeks)

[Guest guest]

Edelson is MUCH more expensive and MUCH less flexible.

Andy

Andy is totally correct. I worked with a family not long ago who had spent

$96,000.00 in a matter of six weeks or so and still were expected to stay

on a very rigid regime which would have cost them thousands more. He

basically " dumps " patients when the can no longer afford to keep on his

protocols...I my opinion...this is medically amoral...

Dr. Deb.

[Guest guest]

$96,000.00? How is that even possible?

Tali

--- " Dr. Deborah Baker "

<y2khealthanddetox@...> wrote:

> Edelson is MUCH more expensive and MUCH less

> flexible.

>

> Andy

>

>

>

> Andy is totally correct. I worked with a family not

> long ago who had spent

> $96,000.00 in a matter of six weeks or so and still

> were expected to stay

> on a very rigid regime which would have cost them

> thousands more. He

> basically " dumps " patients when the can no longer

> afford to keep on his

> protocols...I my opinion...this is medically

> amoral...

>

> Dr. Deb.

>

>

>

>

__________________________________________________

[Guest guest]

I wonder if he asked for the $96,000 in CASH....and

does it get reported as income on his taxes?

Aly

Re: [ ] Digest Number 828

> $96,000.00? How is that even possible?

>

> Tali

> --- " Dr. Deborah Baker "

> <y2khealthanddetox@...> wrote:

> > Edelson is MUCH more expensive and MUCH less

> > flexible.

> >

> > Andy

> >

> >

> >

> > Andy is totally correct. I worked with a family not

> > long ago who had spent

> > $96,000.00 in a matter of six weeks or so and still

> > were expected to stay

> > on a very rigid regime which would have cost them

> > thousands more. He

> > basically " dumps " patients when the can no longer

> > afford to keep on his

> > protocols...I my opinion...this is medically

> > amoral...

> >

> > Dr. Deb.

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Hi everyone,

Gretchen, do you have a URL I can look up CDIP? Thank you.

Patsy

[Guest guest]

<< >>I have wondered . maybe it is all those aliens we hear about?

LOL -tamika

Dunno Tamika.....but.........the truth is out there

*laughing as I'm watching the season finale of X Files*

>>

>>i was watching it too ya think Skully is having Mulders alien super

baby

LOL-tamika

.........Who incidentally looks JUST like Mulders long lost dead sister *L*

Happy Soaping,

& The Soap Goat Crew.

Visit our website and view our specials at: http://www.thesoapgoat.com

[Guest guest]

Thanks and Shana for your suggestions. I'll figure out my bodyfat

later today. I just hope I get into gear and start those exercises soon and

that I can see changes sooner than later. I'm extremely stressed out with

all the stuff going on in my life right now and think the exercising will

definately help relieve some of that stress.

My progress will be slow right now since I only have something like

eight-pound dumbells. Will try to get some more when we get a vehicle

running.

I'm lucky in the sense that I really don't care for junk food all that much.

It's just that when I bake and cook, I can't leave the stuff in the house or

I'll eat it all. I love home baked bread, cookies, rolls, lasagna. I try

to make everything home made because it tastes better and is cheaper than

store bought foods that have all those additive junks in them. I am getting

better at controlling how much I eat though. I've found freezing the stuff

deters me from eating everything in two days.

How can a person gain weight yet lose a dress size? Is it because your body

contours change? Right now my biggest concerns (Ha! biggest body flab

parts) are my stomach and my butt. I hate them and want to target them. I'm

so embarrassed that my thighs and butt are starting to get dimply:( I hate

seeing myself in the mirror. I keep my before picture from two years ago

when I weighed my heaviest at 145 hanging on my refrigerator to remind

myself of what I'll look like (or worse) if I continue to over eat and not

exercise.

When I weighed my least, a scrawny 115, it wasn't from me intentionally not

eating, I just wasn't hungry and would forget to eat. Don't want to get

into that funk again.

So, thank you to whoever started this group! I enjoy reading everyone's

trials and triumphs.

Terina

newbie

>

>

> Hi everyone. I sent an email out before, but my computer crashed and I don

't

> think it went through. I'm trying to start the BFL program.

> I'll have to do everything at home since we don't have the money to join a

> gym or purchase the supplements. I have food sensitivities to wheat, egg,

> garlic, peanuts, yeast, so I have to watch what I eat to begin with. I

> don't stay away from all those foods, but definately try to stay away from

> the peanuts and garlic.

> Right now I am a 34 year old mom of one child (unless you count my

> husband!). I'm 5'7 " and weigh 135 pounds and sometimes get up to 140. I

> used to weigh 115 which I think is too skinny. I'd like to get down to

> 120-125 with some of that being muscle weight. I've told myself I refuse

to

> purchase any more clothing in a size 10 and I've stuck to that rule. If I

> want something new, I have to buy it in a size 8. When I get to a size 8,

> I'll see if I want to go down to a size 6.

> I've tried starting the BFL program before but didn't have the willpower

to

> not eat a lot of junk food. I know I can't give up my coffee. I need at

> least one cup a day. I think I could give up everything else though (even

> chocolate - gasp). I know I'm going to need this group for encouragement

> and support. I've looked at the photos online of people who've completed

the

> challenge and I love the changes. I guess I'm afraid of failing - and

thus

> am failing right there. So, I need to get off of my butt and get moving!

> Thanks everyone.

> Terina

>

>

>

>

>

[Guest guest]

***How can a person gain weight yet lose a dress size?***

Muscle weighs more than fat... and fat takes up more space than

muscle. For those working out hard gain lots of muscle....that means

the scale goes up BUT the dress size is going down. It is so cool

how that works, isn't it?

Terina, gosh, we are so much alike. I cook and bake from scratch

too. I had a baking day yesterday and decided that I will put most

of the goodies in the freezer because, like you, I won't leave it

alone.

I hope to finish listening to the cassette tapes today. I really

want to get started... but ya know... I must be afraid of failure.

I'm afraid that I will begin and not finish... therefore, I dont'

want to start. Does that make sense? I gotta get past this!!!

Shana

> Thanks and Shana for your suggestions. I'll figure out my

bodyfat

> later today. I just hope I get into gear and start those exercises

soon and

> that I can see changes sooner than later. I'm extremely stressed

out with

> all the stuff going on in my life right now and think the

exercising will

> definately help relieve some of that stress.

> My progress will be slow right now since I only have something like

> eight-pound dumbells. Will try to get some more when we get a

vehicle

> running.

> I'm lucky in the sense that I really don't care for junk food all

that much.

> It's just that when I bake and cook, I can't leave the stuff in the

house or

> I'll eat it all. I love home baked bread, cookies, rolls,

lasagna. I try

> to make everything home made because it tastes better and is

cheaper than

> store bought foods that have all those additive junks in them. I

am getting

> better at controlling how much I eat though. I've found freezing

the stuff

> deters me from eating everything in two days.

> How can a person gain weight yet lose a dress size? Is it because

your body

> contours change? Right now my biggest concerns (Ha! biggest body

flab

> parts) are my stomach and my butt. I hate them and want to target

them. I'm

> so embarrassed that my thighs and butt are starting to get dimply:

( I hate

> seeing myself in the mirror. I keep my before picture from two

years ago

> when I weighed my heaviest at 145 hanging on my refrigerator to

remind

> myself of what I'll look like (or worse) if I continue to over eat

and not

> exercise.

> When I weighed my least, a scrawny 115, it wasn't from me

intentionally not

> eating, I just wasn't hungry and would forget to eat. Don't want

to get

> into that funk again.

> So, thank you to whoever started this group! I enjoy reading

everyone's

> trials and triumphs.

> Terina

>

>

> newbie

> >

> >

> > Hi everyone. I sent an email out before, but my computer crashed

and I don

> 't

> > think it went through. I'm trying to start the BFL program.

> > I'll have to do everything at home since we don't have the money

to join a

> > gym or purchase the supplements. I have food sensitivities to

wheat, egg,

> > garlic, peanuts, yeast, so I have to watch what I eat to begin

with. I

> > don't stay away from all those foods, but definately try to stay

away from

> > the peanuts and garlic.

> > Right now I am a 34 year old mom of one child (unless you count my

> > husband!). I'm 5'7 " and weigh 135 pounds and sometimes get up to

140. I

> > used to weigh 115 which I think is too skinny. I'd like to get

down to

> > 120-125 with some of that being muscle weight. I've told myself

I refuse

> to

> > purchase any more clothing in a size 10 and I've stuck to that

rule. If I

> > want something new, I have to buy it in a size 8. When I get to a

size 8,

> > I'll see if I want to go down to a size 6.

> > I've tried starting the BFL program before but didn't have the

willpower

> to

> > not eat a lot of junk food. I know I can't give up my coffee. I

need at

> > least one cup a day. I think I could give up everything else

though (even

> > chocolate - gasp). I know I'm going to need this group for

encouragement

> > and support. I've looked at the photos online of people who've

completed

> the

> > challenge and I love the changes. I guess I'm afraid of failing -

and

> thus

> > am failing right there. So, I need to get off of my butt and get

moving!

> > Thanks everyone.

> > Terina

> >

> >

> >

> >

> >

[Guest guest]

Jeanetta,

My sincerest of prayers and thoughts go to you and Sugar.

You have to be one of the most compassionate and caring individuals I know.

Sugar is so lucky to have you as a caregiver and family.

Pets provide comfort to us in good times and bad, so it is sad when

something happens so suddenly.

You are so right when we should thank the healthcare professions for all

they do for providing the expertise, care and concern for us and our loved

ones, even if they are furry friends.

Should you need anything, I am here...

> Message: 2

> Date: Sun, 12 Dec 2004 11:56:10 -0000

> From: " Jeanetta Mastron CPhT BS Chemistry " <rxjm2002@...>

> Subject: Not a Good Day!

>

>

> Dear All,

>

> My cat, Sugar, has been sick for two days with hair balls and

> vomiting for the first time in his life. He is 1.5 yrs old. My other

> cat died after 18 yrs and then 6 months later I got this one, August

> of last year...So I have only had him for a year and 3 months.

>

> Man I love this cat. Sugar is the sweetest cat, always with me when

> I am on the computer and on my lap. I had been sick with a

> respiratory bug and could not get with family over the Thanksgiving

> holiday. I missed all the normal gathering and turkey and stuffing.

> But Sugar sayed by my side and kept me company.

>

> At 11 pm Saturday Dec 11 I came home to find more 'wet packages' of

> food and hair balls on the carpet. He was no where to be found.

> Finally he came out after calling him for a long, long time and was

> very lethargic. His breathing was labored and fast.

>

> One hour later I found myself on a foggy road to the emergency,

> about one half hour from my home. And one hour ago I was told my

> cat, my sweet pet who helped me through some trying times during the

> passing of my father, is now dying.

>

> My cat apparently has a white shadow masking his heart and part of

> the lungs per the xray. The doctor said it is either a heart

> condition or a tumor (most likely cancerous). But he does not know

> for sure and there is nothing that can be done either way. I learned

> all of this for $200. And for another $60 he can be put to sleep,

> relieved of suffering and for $50 more they will take him to 'rest'.

>

>

> I took him home, alive breathing fast and deep. I was just not ready

> to say goodbye. I have never even taken any photos with him! Now I

> wish I had. He is now resting under my bed scared that I will take

> him to the vet again. But the vet gave him a shot of Compazine. So

> he is now much more relaxed. The doctor said when his breathing gets

> extremely labored I should bring him back for euthanasia (he is not

> suffering right now according to the doc).

>

> I just needed more time.....

>

>

> Any way I wanted to share this with you all, because I now know what

> it is like to loose some one unexpectedly. My dad died after along

> battle. But this...this is just something totally unexpected. And I

> wanted you all to know how much it hurts, and yet how important your

> job is to the families that you serve. You may not realize it,

> during your routine work. But what you do: getting meds to a

> patient, on time and the right meds is extremely important. It is

> as important as the technician who takes an xray, or the doctor who

> diagnoses, and the nurse who administers, and the surgeon who tries

> to clean up a mess, and the receptionist who has to see the tears as

> you pay the bill.....

>

> It does not matter that the patient is a cat or a dog or a parrot or

> a father or your girlfriend...What matters is the soul that you

> love, the one that you will miss.....

>

> I pray that you all have a spiritual awakening this holiday

> season...and that you realize that the lives you help to save are as

> important as the lives that you touch, even if your service can not

> save that life. You, doing what you do, helps the loved ones of

> those who may pass on; to know that all was being done for that

> person or animal.

>

> That is the message that this post is about. For some may say that

> it has nothing to do with pharmacy. And perhaps you would be right.

> But it has to do with healthcare and how we take care of the health

> of our patients: physically, mentally, and spiritually . I wanted

> you to know how grateful I am to the vet/doctor, vet tech and

> receptionist who had to deal with me, my surprise, my fears and my

> grief.

>

> Sugar is resting under the bed...but I do not know if he will

> survive to see tomarrow. I may come home and he will be gone, or I

> may have to bring him in to be put to sleep. Either way I am

> eternally grateful to the medical staff for their kindness.

>

> OH yeah! A young woman in the parking lot saw me crying... she also

> had heard me say that I did not have 800 dollars to give my cat IV

> hydration therapy (which may prolong his life, but not cure him).

> She had received a gift of a dog/puppy from her husband who is in

> Iraq. She was there because the dog was breathing heavy and

> vomiting. The doctor also told her that the dog would die. But she

> believes that the transporting of the dog cause him to be sick.

> Anyway she gave me a $100 bill! She felt that she must do this. And

> I did not know what to say except 'thank you'. In my life time I

> have given down and out some money. But I never expected any return.

> This money will be used to put my cat to sleep when the time comes...

>

> God bless you all, and may you have a greater appreciation of the

> service that you all provide others, especially during this holiday

> season.

>

> Love and Peace,

> Jeanetta Mastron CPhT BS Chemistry

> Founder/Owner

[Guest guest]

Dear ,

Thank you for your post and private email.

Yes that is my main point: we are technicians and it is easy for us

to think we are not noticed or appreciated by our patients. the

reality is we may or may not be, but we must find it in ourselves

to 'know' the importance that our role in healthcare has played on

the therapeutic treatment of our patients, whether they know it or

not. I think it is harder for the in-pt hospital tech that does not

see the pt, up and personal and does not get the occaisional 'thank

you' directly from the pt or the family member. But we must know it

in our hearts that our service and dedication to quality dispensing

has contributed to the 'best' outcome for that patient.

Love

Jeanetta

> Jeanetta,

> My sincerest of prayers and thoughts go to you and Sugar.

> You have to be one of the most compassionate and caring

individuals I know.

> Sugar is so lucky to have you as a caregiver and family.

> Pets provide comfort to us in good times and bad, so it is sad when

> something happens so suddenly.

> You are so right when we should thank the healthcare professions

for all

> they do for providing the expertise, care and concern for us and

our loved

> ones, even if they are furry friends.

> Should you need anything, I am here...

>

[Guest guest]

> Has anyone heard about the benefits of Gamma Oryzanol for

GERD?

==>If it is from rice bran, firstly getting oil from rice would be

extremely difficult requiring a lot of processing. Secondly it

interferes with hormones:

I'm 42 and haven't had a period in a year so my hormones must be a wreck. I

appreciate your info though. When I read that body builders use it, I thought

it was probably not something to rush into.

>se of its apparent effect on hormone levels, pregnant or breast-

feeding women should avoid taking gamma-oryzanol in highly

concentrated supplement form.

==>Pepcid and prevacid are not helping you. Burning in your throat

indicates you have candida growing there.

the burning doesn't happen unless I take the medicine. How can one decipher

between candida and a side effect--or does lower acid cause even more candida

symptoms?

>I'm also seriously constipated since starting the Nystatinj so

that could be making the reflux worse. How can one have low stomach

acid and yet serious acid reflux? I have all the symptoms of

> low stomach acid yet the burning and belly growling and the

diagnosis and > damage done must mean I'm not low acid??

==>Symptoms of low acid and high acid are exactly the same.

oy. So a doctor needs to determine in order for one to be 100% certain? I

never burp following the baking soda test...and rarely burp (or fart) ever.

(What I wouldn't give to have a few rips like the men in this house. lol) Maybe

you can ask your sister if most feeding tube patients have residual acid in

the morning. I've had acid return just twice in a year. Would be nice if that

could be as telling as a test.

Thanks, Bee.

MC