Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 Hi and congratulations on your 5th! I see that you were dx with the AIH after your transplant. I was just wondering if that was the reason for the transplant and if so how long you had had it with the first liver....and if that wasn't the reason for the transplant had you had any other autoimmune problems before you were dx with AIH? I hope you can figure out my question! lol Thanks for the info. Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 Peggy- I had my transplant before i was diagnosed with AIH. I had my transplant when I was 8..I am now almost 20. I had my transplant because I was born with the disease Bilaria Atresia. I have never had an auto immune disease before 2 years ago. They think the reason I got AIH has to do with a medication I used to take called Cyclosporine..but they aren't sure..there aren't very many like me..people w/AIH..post transplant. Thank you for the congratulations on my anniversary. I am very lucky to be alive..and although I don't like my life some days..mainly test days(hehe..college is hard), I thank the Lord for every day I am here. I will never ever take life for granted. If there is anything else you want to know..don't hesitate to ask. I hope that clarifies things for you!! HAVE A GOOD DAY!! HOPE TO TALK TO YOU SOON! LAUREN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 numere a una madrina wrote: > > Hi how are you all? > Im just wondering if anyone here that lives with hypothyroidism or > other type of thyroiditis also suffers from any type of angioedema It's more that I suffer from hypo-T and live with angioedema. It's my wife that has the latter problem. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Okay thats quite interesting, I recently found studies on the internet that show there is a link between autoimmune diseases and angioedema. We had always wondered why I was born with congenital hypothyroidism and had always blamed it on my mums antibodies when she was pregnant with me but now it looks as though we can start blaming it on my father as he also passed his hereditary angioedema to me :-) > > > > > Hi how are you all? > > Im just wondering if anyone here that lives with hypothyroidism or > > other type of thyroiditis also suffers from any type of angioedema > > It's more that I suffer from hypo-T and live with angioedema. It's my > wife that has the latter problem. > > Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 numere a una madrina wrote: > > Okay thats quite interesting, I recently found studies on the > internet that show there is a link between autoimmune diseases and > angioedema. We had always wondered why I was born with congenital > hypothyroidism and had always blamed it on my mums antibodies when > she was pregnant with me but now it looks as though we can start > blaming it on my father as he also passed his hereditary angioedema > to me :-) My wife's condition started with a spider bite. Her current specialist is convinced it is an autoimmune pattern. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 What is angioedema? Kathy Re: just curious Okay thats quite interesting, I recently found studies on the internet that show there is a link between autoimmune diseases and angioedema. We had always wondered why I was born with congenital hypothyroidism and had always blamed it on my mums antibodies when she was pregnant with me but now it looks as though we can start blaming it on my father as he also passed his hereditary angioedema to me :-) > > > > > Hi how are you all? > > Im just wondering if anyone here that lives with hypothyroidism or > > other type of thyroiditis also suffers from any type of angioedema > > It's more that I suffer from hypo-T and live with angioedema. It's my > wife that has the latter problem. > > Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 I was reading the history of LDN and I read that Dr Bihari noticed that AIDS patients using Naltrexone dint develop immune dysfunctions as other AIDS patients that werent taking Naltrexone. Here is my dillema. The AIDS patients were taking Naltrexone in doses of 50-300 mg. If the dosage was that high how come everyone insists on a maximum of 4.5mg. It appears to me that even high doses work. I hope someone clears this up for me. leon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 I think I'm a very unusual case. In general, scoliosis is passed down from mothers to daughters. Neither my mother or my sister have scoliosis. My father has scoliosis; however, I do not know to what degree. He has never been treated for scoliosis (I wore both a Milwaukee and a TLSO Brace while a teenager, and had surgeries in 1996. A second surgery was done six weeks after the first due to loose hooks). S. ************************************************************************************************************************************ In a message dated 10/03/09 17:51:18 Eastern Daylight Time, deborahm03@... writes: Does anyone have a family history of scoliosis in their family?I have an uncle that I think had a minor form of it and Im not sure but my grandmother may have had it. My mother's side of the family has all kinds of history so she never talked about it much, but I do know that she had a lot of health problems and maybe back then it wasnt properly diagnosed. She died when my mother was five, so its hard to say exactly what was going on. Just wondering.....-Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 Out of 6 children, I had severe scoliosis and my older sister had a very mild case. I have 3 children with no evidence of it. Thank goodness. > > I am not sure of my older relatives, but my 3 daughters have inherited it from me. My two sons don't have it. My hubby's mom recently informed us that she and her two sisters have mild scoliosis...so it is evidently on both sides. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 Hi Deborah, In my family I am the only one who had scoliosis that was significant. I have an Uncle on one side and a distant cousin on the other who had mild scoliosis, but nothing else. Now I have one son who has a mild curvature (he's 13) and we're watching him. I have a friend who has significant scoliosis, but has had no treatment. Her mother and both of her sisters all have serious curvatures. None have had any treatment. My friend claims to have no pain (she's 47) from her curve(s). She's in great shape and exercises regularly. I hope and pray that it stays that way for her. So far, her daughter (16) has no curvature at all. Pretty strange stuff this scoliosis. Jeanne [ ] Just Curious Does anyone have a family history of scoliosis in their family?I have an uncle that I think had a minor form of it and Im not sure but my grandmother may have had it. My mother's side of the family has all kinds of history so she never talked about it much, but I do know that she had a lot of health problems and maybe back then it wasnt properly diagnosed. She died when my mother was five, so its hard to say exactly what was going on. Just wondering.....-Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 cancer is different-everybody has the cancer gene and diabetes gene. It just rears up in some people. My neice died at the age of 17 after having caner since 14.--no one smoked in her house.>>> From: S. Sogg <RSSSCOLIOSIS@ aol.com>> Subject: Re: [ ] Just Curious> > Received: Sunday, October 4, 2009, 10:24 PM>> > I think I'm a very unusual case. In general, scoliosis is passed> down from mothers to daughters. Neither my mother or my sister> have scoliosis. My father has scoliosis; however, I do not know to> what degree. He has never been treated for scoliosis (I wore both> a Milwaukee and a TLSO Brace while a teenager, and had surgeries> in 1996. A second surgery was done six weeks after the first due> to loose hooks).> > S.> > ************ ********* ********* ********* ********* *********> ********* ********* ********* ********* ********* *********> ********* ********* ***> > > > In a message dated 10/03/09 17:51:18 Eastern Daylight Time,> deborahm03 (DOT) com writes:>> > Does anyone have a family history of scoliosis in their family?>> I have an uncle that I think had a minor form of it and Im not> sure but my grandmother may have had it. My mother's side of> the family has all kinds of history so she never talked about> it much, but I do know that she had a lot of health problems> and maybe back then it wasnt properly diagnosed. She died when> my mother was five, so its hard to say exactly what was going> on. Just wondering... ..>> -Deborah>> >>> ____________ _________ _________ _________ _________ __> Do You ?> Tired of spam? has the best spam protection around> http://mail. >> ------------ --------- --------- ------scoliosis veterans * flatback sufferers * revision candidates Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 Mine was also idiopathic. 1967 was a very long time ago and I am sure there must be new findings about the cause. I just had never asked anyone. I do have an annual check-up this week here in Houston. We'll see what I learn that's new. Debra cosby@... Dyann Diamond wrote: > > > I was told it could be either hereditary or not.. I have idiopathic > scoliosis which means no known cause. (Although, I suspect being a > Love Canal baby has something to do with some of my medical issues) > > But it does tend to be hereditary, mostly through the females, but not > always. > > It's probably like cancer. Some people can smoke a pack a day and live > to be 90, while others can contract it without having smoked a single > cigarette. > -Dyann > > > > > > > > From: S. Sogg <RSSSCOLIOSIS@... > </mc/compose?to=RSSSCOLIOSIS@...>> > > Subject: Re: [ ] Just Curious > > > </mc/compose?to= > > > Received: Sunday, October 4, 2009, 10:24 PM > > > > > > I think I'm a very unusual case. In general, scoliosis is passed > > down from mothers to daughters. Neither my mother or my sister > > have scoliosis. My father has scoliosis; however, I do not > know to > > what degree. He has never been treated for scoliosis (I wore > both > > a Milwaukee and a TLSO Brace while a teenager, and had surgeries > > in 1996. A second surgery was done six weeks after the first due > > to loose hooks). > > > > S. > > > > ************ ********* ********* ********* ********* ********* > > ********* ********* ********* ********* ********* ********* > > ********* ********* *** > > > > > > > > In a message dated 10/03/09 17:51:18 Eastern Daylight Time, > > deborahm03 (DOT) com writes: > > > > > > Does anyone have a family history of scoliosis in their > family? > > > > I have an uncle that I think had a minor form of it and > Im not > > sure but my grandmother may have had it. My mother's side of > > the family has all kinds of history so she never talked > about > > it much, but I do know that she had a lot of health problems > > and maybe back then it wasnt properly diagnosed. She > died when > > my mother was five, so its hard to say exactly what was > going > > on. Just wondering... .. > > > > -Deborah > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2009 Report Share Posted October 17, 2009 Sorry I've been away to see the doctor. Just wanted to say that at the time my scoliosis was discovered, there was no family history. It wasn't until I was doing genealogy, that I discovered a distant cousin on my mother's side with scoliosis, though I did know that the men on my father's side all had bad backs which was thought to be due to their occupation (stone mason, farmer, etc.). As to my surgeon's report, I think the Canadian surgeons are very conservative as he doesn't think surgery will improve my situation. He does want me to see a neuro-surgeon to have nerve tests done since he believes my feet/leg pain are a result of the diabetes, especially since it got suddenly worse in the last 6 months. I admit that thought had crossed my mind so I'll get further tests done. I did FINALLY get the report back from my visit 3 years ago and discovered that I am fused to L2, not L3 like I thought. The latest discovery, if I remember what was said this time correctly, is that L5-S1 are naturally being fused together. Since I have discovered the proper departments to request the various reports, X-rays from at that hospital, I have requested the latest report when it gets typed up and I will be sure of what exactly was discovered. Llweyn From: [mailto: ] On Behalf Of c-e-cole@...Sent: October 5, 2009 7:29 AM Subject: RE: [ ] Just Curious I inherited my scoliosis from my father, who inherited it from his mother. We don't know about her mother, as she died when my grandmother was a teen. My brother also has mild scoliosis. My father's scoliosis is mild enough that at 85 he still walks over 2 mile per day, and has a slight stoop forward, with occasional mild pain associated. Carol "No storm can shake my inmost calm, when to that Rock I'm clinging........ " Re: [ ] Just Curious Received: Sunday, October 4, 2009, 10:24 PM I think I'm a very unusual case. In general, scoliosis is passed down from mothers to daughters. Neither my mother or my sister have scoliosis. My father has scoliosis; however, I do not know to what degree. He has never been treated for scoliosis (I wore both a Milwaukee and a TLSO Brace while a teenager, and had surgeries in 1996. A second surgery was done six weeks after the first due to loose hooks). S. ************ ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* *** In a message dated 10/03/09 17:51:18 Eastern Daylight Time, deborahm03 (DOT) com writes: Does anyone have a family history of scoliosis in their family?I have an uncle that I think had a minor form of it and Im not sure but my grandmother may have had it. My mother's side of the family has all kinds of history so she never talked about it much, but I do know that she had a lot of health problems and maybe back then it wasnt properly diagnosed. She died when my mother was five, so its hard to say exactly what was going on. Just wondering... ..-Deborah __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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