Guest guest Posted April 19, 2000 Report Share Posted April 19, 2000 Geez Grace, You have a 1 year old! And a 15 year old! Are you sure it wouldn't be less exhausting to go to work? (Just kidding!) You didn't say what kind of work you do. Have you called your employer, maybe talked to them about possibly working part-time and explaining the reliability problems? They may be able to work something out, a flexible schedule or something. Have you tried ice packs for your headaches? That was about the only thing that really helped when I got those kind of headaches. I have often wondered what it is about these 'treatment' headaches that makes them so hard to get rid of. My doctor gave me Vicodin for them, but truthfully, the ice pack worked better. (I used the flexible, reusable type that I bought from the pharmacy. Wrap in a towel, and drape it wherever it hurts! 20 minutes on, then at least 20 minutes off.) Good luck, Claudine ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2000 Report Share Posted April 19, 2000 Geez Grace, You have a 1 year old! And a 15 year old! Are you sure it wouldn't be less exhausting to go to work? (Just kidding!) You didn't say what kind of work you do. Have you called your employer, maybe talked to them about possibly working part-time and explaining the reliability problems? They may be able to work something out, a flexible schedule or something. Have you tried ice packs for your headaches? That was about the only thing that really helped when I got those kind of headaches. I have often wondered what it is about these 'treatment' headaches that makes them so hard to get rid of. My doctor gave me Vicodin for them, but truthfully, the ice pack worked better. (I used the flexible, reusable type that I bought from the pharmacy. Wrap in a towel, and drape it wherever it hurts! 20 minutes on, then at least 20 minutes off.) Good luck, Claudine ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2000 Report Share Posted April 19, 2000 Grace, If you feel up to working part time, is there a way to just determine so many hours, but not specify which hours or days? My company has an 'intermittent' leave of absence where we can work when we are able, but could miss 1-2 weeks at a time if necessary. This has been a real blessing to those who are having problems or even those who have sick kids--you can miss work and not have it counted against you. Good luck, Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2000 Report Share Posted April 19, 2000 Grace, If you feel up to working part time, is there a way to just determine so many hours, but not specify which hours or days? My company has an 'intermittent' leave of absence where we can work when we are able, but could miss 1-2 weeks at a time if necessary. This has been a real blessing to those who are having problems or even those who have sick kids--you can miss work and not have it counted against you. Good luck, Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2000 Report Share Posted April 19, 2000 Hi Grace, I don't know how well it will work on the headaches people have got from meds (I was lucky did not get headaches I got every other ache though. and misc. weird things, lol). But, when I was in College I used some stuff called Tiger Balm. I saw it the other day at a Wal Mart. Use to have to hunt it down. You put it on your Temples and across your Forehead. Just a suggestion....Connie --- Claudine Crews <claudinecrews@...> wrote: > Geez Grace, > You have a 1 year old! And a 15 year old! Are > you sure it wouldn't be > less exhausting to go to work? (Just kidding!) > You didn't say what kind of work you do. Have > you called your > employer, maybe talked to them about possibly > working part-time and > explaining the reliability problems? They may be > able to work something > out, a flexible schedule or something. > Have you tried ice packs for your headaches? > That was about the only > thing that really helped when I got those kind of > headaches. I have often > wondered what it is about these 'treatment' > headaches that makes them so > hard to get rid of. My doctor gave me Vicodin for > them, but truthfully, the > ice pack worked better. (I used the flexible, > reusable type that I bought > from the pharmacy. Wrap in a towel, and drape it > wherever it hurts! 20 > minutes on, then at least 20 minutes off.) > Good luck, > Claudine > > > ______________________________________________________ > Get Your Private, Free Email at > http://www.hotmail.com > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2000 Report Share Posted April 19, 2000 Hi Grace, I don't know how well it will work on the headaches people have got from meds (I was lucky did not get headaches I got every other ache though. and misc. weird things, lol). But, when I was in College I used some stuff called Tiger Balm. I saw it the other day at a Wal Mart. Use to have to hunt it down. You put it on your Temples and across your Forehead. Just a suggestion....Connie --- Claudine Crews <claudinecrews@...> wrote: > Geez Grace, > You have a 1 year old! And a 15 year old! Are > you sure it wouldn't be > less exhausting to go to work? (Just kidding!) > You didn't say what kind of work you do. Have > you called your > employer, maybe talked to them about possibly > working part-time and > explaining the reliability problems? They may be > able to work something > out, a flexible schedule or something. > Have you tried ice packs for your headaches? > That was about the only > thing that really helped when I got those kind of > headaches. I have often > wondered what it is about these 'treatment' > headaches that makes them so > hard to get rid of. My doctor gave me Vicodin for > them, but truthfully, the > ice pack worked better. (I used the flexible, > reusable type that I bought > from the pharmacy. Wrap in a towel, and drape it > wherever it hurts! 20 > minutes on, then at least 20 minutes off.) > Good luck, > Claudine > > > ______________________________________________________ > Get Your Private, Free Email at > http://www.hotmail.com > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2000 Report Share Posted April 21, 2000 Grace... that sounds typical... i rarely let nurses make my decisions cause they usually don't know enough. Makes em mad whenI go thru them, but what you gonna do? They make decisions that could affect our lives. Let us know what happens. alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2000 Report Share Posted April 21, 2000 Grace... that sounds typical... i rarely let nurses make my decisions cause they usually don't know enough. Makes em mad whenI go thru them, but what you gonna do? They make decisions that could affect our lives. Let us know what happens. alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2000 Report Share Posted April 21, 2000 Grace... that sounds typical... i rarely let nurses make my decisions cause they usually don't know enough. Makes em mad whenI go thru them, but what you gonna do? They make decisions that could affect our lives. Let us know what happens. alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2000 Report Share Posted April 21, 2000 Grace... that sounds typical... i rarely let nurses make my decisions cause they usually don't know enough. Makes em mad whenI go thru them, but what you gonna do? They make decisions that could affect our lives. Let us know what happens. alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2003 Report Share Posted March 28, 2003 It is the best thing that you can do for yourself and your family http://www.foodforyourblood.com <http://www.foodforyourblood.com/> love Some advice please Hi after cutting out all wheat and gluten (i suspected coeliac disease)I still don't feel 100% and am about to look into this diet for my blood type O+. Can anyone recommend it - not just for weight loss (a bonus) but for well being. I suspect food intolerances are what's giving me dark circles under my eyes as its certainly not lack of sleep! I'm in the UK can anyone recommend a good book as there seems so many Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Page, use another site. You should rotate your injections, every one in a different site - thighs then stomach in a few different places (always at least 1" from the navel) then back to the thighs. There are lots of places you can use, ccheck with the Diabetes Association, they have diagrams of places to use & rotation charts. SuZie, a Diabetic (Type 1 but insulin dependant) Your future depends on your dreams. Don't waste time, go to sleep NOW! From: Page <Paget@...>Subject: Some Addivse PleaseHepatitis CSupportGroupForDummies Date: Thursday, August 28, 2008, 9:50 PM Can anyone answer what to do when the Injection site is sore i (Husband)gives my shot in upper Leg's so far it was always OK this Time is Shot Night tomorrwo and site's on both Legs are still sore i will call my DR alsoThank's for you're Help, Page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Hi Suzie, Both Legs are used up & down plus i have a Rash on side of upper Leg I'm sure we find a Place i will NOT let that stop me. Thank You, Page > > From: Page <Paget@...> > Subject: Some Addivse Please > Hepatitis CSupportGroupForDummies > Date: Thursday, August 28, 2008, 9:50 PM > > > > > > > > Can anyone answer what to do when the Injection site is sore i (Husband) > gives my shot in upper Leg's so far it was always OK this Time is Shot > Night tomorrwo and site's on both Legs are still sore i will call my DR > also > > Thank's for you're Help, Page > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 Based on my own personal experience, I believe that finding a Doctor who is knowledgable about Male Hormone Replacement Therapy and is committed to helping the men he treats is EXTREMELY difficult. I had the good fortune of having such a Doctor for about the past 5 years but he recently moved out of state. He was committed to keeping my testosterone and free tree testosterone in the OPTIMAL range for optimal health (not just getting it above 280 or 300) and when my symptoms returned about 7-8 weeks after starting TRT, he knew to test my estrogen, found it at 88 due to my body converting my testosterone to estrogen, put me on 1mg Arimidex every 2 days, which immediately got my estrogen below 20 again, and I've felt like a million bucks since. When my red blood cell count got borderline high, he knew what to do. Instead of lowering my testosterone dose since I was in my optimal range, he had me donate blood each 2 months, which again solved that problem. Now, how difficult is it to find such a Doctor and how many of them are out there? Well, just try to find one. They do exist and they are out there, but they are incredibly hard to find. Now that I've lost my Doctor, I'm now in the position of having to replace him. So far I've seen two providers. They both knew next to nothing about Male Hormone Replacement Therapy and one was an endocrinologist! My question for you all is this...Now that I'm back at square one, I don't really even know where to start as far as finding a Doctor comparable to the one I just lost. Any ideas or advice would be very greatly appreciated. I live in central Iowa. Thanks and God Bless-Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 Hi Markestein333, I do know what you are talking about regarding finding a good doctor. I went to two Urologists, an Endocrinologist, a Urologist/Endocrinologist who supposedly specialized in Hypogonadism, and then finally found a doctor that I like. You may be able to find a doctor much closer to you, but if you can't, here is my doctor's info: Dr. Lyle Lundblad, DO Midwest Institute of Urology 6600 France Ave South Edina, MN 55435 (952) 922-2000 It appears as if it would be about a 4 hour drive from Des Moines, IA. I have been very impressed with Dr. Lundblad. He diagnosed me with Insulin Resistance/Metabolic Syndrome - something that all the other doctors missed or didn't even know to look for (and it is caused by my hormone imbalance). He also prescribes Arimidex, HCG, and he lets you do your shots at home. He seems to accept most insurance plans, too. The only problem is that he books appointments out by about 2-3 months. P.S. Phil - I will ask the doctor if it is ok to put him in the database during my next visit. From: [mailto: ] On Behalf Of markestein333 Sent: Sunday, March 28, 2010 1:14 PM Subject: Some Advice Please Based on my own personal experience, I believe that finding a Doctor who is knowledgable about Male Hormone Replacement Therapy and is committed to helping the men he treats is EXTREMELY difficult. I had the good fortune of having such a Doctor for about the past 5 years but he recently moved out of state. He was committed to keeping my testosterone and free tree testosterone in the OPTIMAL range for optimal health (not just getting it above 280 or 300) and when my symptoms returned about 7-8 weeks after starting TRT, he knew to test my estrogen, found it at 88 due to my body converting my testosterone to estrogen, put me on 1mg Arimidex every 2 days, which immediately got my estrogen below 20 again, and I've felt like a million bucks since. When my red blood cell count got borderline high, he knew what to do. Instead of lowering my testosterone dose since I was in my optimal range, he had me donate blood each 2 months, which again solved that problem. Now, how difficult is it to find such a Doctor and how many of them are out there? Well, just try to find one. They do exist and they are out there, but they are incredibly hard to find. Now that I've lost my Doctor, I'm now in the position of having to replace him. So far I've seen two providers. They both knew next to nothing about Male Hormone Replacement Therapy and one was an endocrinologist! My question for you all is this...Now that I'm back at square one, I don't really even know where to start as far as finding a Doctor comparable to the one I just lost. Any ideas or advice would be very greatly appreciated. I live in central Iowa. Thanks and God Bless-Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 What state do you live in? > > Based on my own personal experience, I believe that finding a Doctor who is knowledgable about Male Hormone Replacement Therapy and is committed to helping the men he treats is EXTREMELY difficult. I had the good fortune of having such a Doctor for about the past 5 years but he recently moved out of state. He was committed to keeping my testosterone and free tree testosterone in the OPTIMAL range for optimal health (not just getting it above 280 or 300) and when my symptoms returned about 7-8 weeks after starting TRT, he knew to test my estrogen, found it at 88 due to my body converting my testosterone to estrogen, put me on 1mg Arimidex every 2 days, which immediately got my estrogen below 20 again, and I've felt like a million bucks since. When my red blood cell count got borderline high, he knew what to do. Instead of lowering my testosterone dose since I was in my optimal range, he had me donate blood each 2 months, which again solved that problem. Now, how difficult is it to find such a Doctor and how many of them are out there? Well, just try to find one. They do exist and they are out there, but they are incredibly hard to find. Now that I've lost my Doctor, I'm now in the position of having to replace him. So far I've seen two providers. They both knew next to nothing about Male Hormone Replacement Therapy and one was an endocrinologist! My question for you all is this...Now that I'm back at square one, I don't really even know where to start as far as finding a Doctor comparable to the one I just lost. Any ideas or advice would be very greatly appreciated. I live in central Iowa. Thanks and God Bless-Mark > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Great we need all the guys to do this. Co-Moderator Phil > From: <hostmaster@...> > Subject: RE: Some Advice Please > > Date: Sunday, March 28, 2010, 4:01 PM > Hi Markestein333, > > > > I do know what you are talking about regarding finding a > good doctor. I > went to two Urologists, an Endocrinologist, a > Urologist/Endocrinologist who > supposedly specialized in Hypogonadism, and then finally > found a doctor that > I like. > > > > You may be able to find a doctor much closer to you, but if > you can't, here > is my doctor's info: > >         Dr. > Lyle Lundblad, DO > >         > Midwest Institute of Urology > >         > 6600 France Ave South > >         > Edina, MN 55435 > >         > (952) 922-2000 > > > > It appears as if it would be about a 4 hour drive from Des > Moines, IA. > > > > I have been very impressed with Dr. Lundblad. He > diagnosed me with Insulin > Resistance/Metabolic Syndrome - something that all the > other doctors missed > or didn't even know to look for (and it is caused by my > hormone imbalance). > He also prescribes Arimidex, HCG, and he lets you do your > shots at home. He > seems to accept most insurance plans, too. > > > > The only problem is that he books appointments out by about > 2-3 months. > > > > > > > > P.S. Phil - I will ask the doctor if it is ok to put > him in the database > during my next visit. > > > > From: > [mailto: ] > On Behalf Of markestein333 > Sent: Sunday, March 28, 2010 1:14 PM > > Subject: Some Advice Please > > > >  > > Based on my own personal experience, I believe that finding > a Doctor who is > knowledgable about Male Hormone Replacement Therapy and is > committed to > helping the men he treats is EXTREMELY difficult. I had the > good fortune of > having such a Doctor for about the past 5 years but he > recently moved out of > state. He was committed to keeping my testosterone and free > tree > testosterone in the OPTIMAL range for optimal health (not > just getting it > above 280 or 300) and when my symptoms returned about 7-8 > weeks after > starting TRT, he knew to test my estrogen, found it at 88 > due to my body > converting my testosterone to estrogen, put me on 1mg > Arimidex every 2 days, > which immediately got my estrogen below 20 again, and I've > felt like a > million bucks since. When my red blood cell count got > borderline high, he > knew what to do. Instead of lowering my testosterone dose > since I was in my > optimal range, he had me donate blood each 2 months, which > again solved that > problem. Now, how difficult is it to find such a Doctor and > how many of them > are out there? Well, just try to find one. They do exist > and they are out > there, but they are incredibly hard to find. Now that I've > lost my Doctor, > I'm now in the position of having to replace him. So far > I've seen two > providers. They both knew next to nothing about Male > Hormone Replacement > Therapy and one was an endocrinologist! My question for you > all is > this...Now that I'm back at square one, I don't really even > know where to > start as far as finding a Doctor comparable to the one I > just lost. Any > ideas or advice would be very greatly appreciated. I live > in central Iowa. > Thanks and God Bless-Mark > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Iowa > > > > Based on my own personal experience, I believe that finding a Doctor who is knowledgable about Male Hormone Replacement Therapy and is committed to helping the men he treats is EXTREMELY difficult. I had the good fortune of having such a Doctor for about the past 5 years but he recently moved out of state. He was committed to keeping my testosterone and free tree testosterone in the OPTIMAL range for optimal health (not just getting it above 280 or 300) and when my symptoms returned about 7-8 weeks after starting TRT, he knew to test my estrogen, found it at 88 due to my body converting my testosterone to estrogen, put me on 1mg Arimidex every 2 days, which immediately got my estrogen below 20 again, and I've felt like a million bucks since. When my red blood cell count got borderline high, he knew what to do. Instead of lowering my testosterone dose since I was in my optimal range, he had me donate blood each 2 months, which again solved that problem. Now, how difficult is it to find such a Doctor and how many of them are out there? Well, just try to find one. They do exist and they are out there, but they are incredibly hard to find. Now that I've lost my Doctor, I'm now in the position of having to replace him. So far I've seen two providers. They both knew next to nothing about Male Hormone Replacement Therapy and one was an endocrinologist! My question for you all is this...Now that I'm back at square one, I don't really even know where to start as far as finding a Doctor comparable to the one I just lost. Any ideas or advice would be very greatly appreciated. I live in central Iowa. Thanks and God Bless-Mark > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2010 Report Share Posted March 30, 2010 I live just outside of Indianapolis. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2010 Report Share Posted July 22, 2010 , I am so sorry about his friend's mom. It broke my heart too for your sweet boy. I wish I had some good advice for keeping him indoors. All I would know to do is give him LOTS of fun stuff to have to do indoors. We are not big TV watchers, but in that situation I would allow it. Really anything, within reason, that would keep him happy indoors. Now is it OK to allow him to go ahead and play outside? I wish I knew the answer to that. We have never gone through a surgery of this kind yet. Hopefully some of the other moms will chime in soon. I just wanted you to know I am thinking about you and Damian. Glad to hear he is doing so well. Keep us posted. TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, TexasSeries of 6 casts for 14 months followed by bracing since September 2007You can read 's story at.... http://www.infantilescoliosis.org/stories.html From: <vrfj96@...>infantile scoliosis treatment Sent: Thu, July 22, 2010 4:04:34 PMSubject: Some Advice Please Hello, everybody. Damian is doing great. He had developed a hematoma (a pocket of fluid) on his back, close to the incision. We took him to his doctor and he said that since it was not accompanied with redness, soreness, or a fever he was not too worried about it. On the day of Damian's appointment the size of it had gone down tremendously. Then over the next couple days, it has almost disappeared on its own. The advice I am looking for is how do I make an extremely active boy be not active. One of the main reasons he had to get the rod repaired is from doing too much stuff and bending forward like nothing was wrong. I have not let him outside, yet, since his repair. He is very active in everything he does. He loves to run, ride his bike, jump, and play. But he shouldn't be able to do all this stuff with a rod in. Should he? What happens if I do let him play outside and he has to have another rod repair? The other day we wanted one of his best friends to come over to our house (right across the street) and play with Damian. When his friends mom said "No", it broke his heart and mine, too. He was so upset he made me cry. Any advice would be great. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2010 Report Share Posted July 23, 2010 , I am so sorry to hear about all that you both have had to go through. With Matson the key was having his brace to wear. It kept him from bending over too much and did not allow him to twist etc and when he fell which he did, it protected his anchors and rods Did the doctor say why they didn't prescribe a brace for he healing period? Matson's doctor said it was for correction of any kind it was simply made and given to us for protection, to remind him he could t/shouldn't do certain movements. It was an adjustment for him but he did so well and we felt so reassured by it. Just a thought to maybe put in a special request for one to be fitted. Then he could ride his bike, do normal things etc and have that extra protection. Especially in these first few months. Honestly without he brace I would have been a wreck. We still limited his activities somewhat but not anything extensive. We did lots o walks (nature hikes to find things outside), movie theater, and water play (with a small blowup pool in the backyard. I wish you all he best! I hope it gets better and you don't encounter any more complications during this healing time. Best regards always, Fournier and Matson age 4 Dual Growing Rods 3/24/2010Sent from my iPhoneOn Jul 22, 2010, at 2:43 PM, Tasha Fontenot <ryanswalk@...> wrote: , I am so sorry about his friend's mom. It broke my heart too for your sweet boy. I wish I had some good advice for keeping him indoors. All I would know to do is give him LOTS of fun stuff to have to do indoors. We are not big TV watchers, but in that situation I would allow it. Really anything, within reason, that would keep him happy indoors. Now is it OK to allow him to go ahead and play outside? I wish I knew the answer to that. We have never gone through a surgery of this kind yet. Hopefully some of the other moms will chime in soon. I just wanted you to know I am thinking about you and Damian. Glad to hear he is doing so well. Keep us posted. TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, TexasSeries of 6 casts for 14 months followed by bracing since September 2007You can read 's story at.... http://www.infantilescoliosis.org/stories.html From: <vrfj96 >infantile scoliosis treatment Sent: Thu, July 22, 2010 4:04:34 PMSubject: Some Advice Please Hello, everybody. Damian is doing great. He had developed a hematoma (a pocket of fluid) on his back, close to the incision. We took him to his doctor and he said that since it was not accompanied with redness, soreness, or a fever he was not too worried about it. On the day of Damian's appointment the size of it had gone down tremendously. Then over the next couple days, it has almost disappeared on its own. The advice I am looking for is how do I make an extremely active boy be not active. One of the main reasons he had to get the rod repaired is from doing too much stuff and bending forward like nothing was wrong. I have not let him outside, yet, since his repair. He is very active in everything he does. He loves to run, ride his bike, jump, and play. But he shouldn't be able to do all this stuff with a rod in. Should he? What happens if I do let him play outside and he has to have another rod repair? The other day we wanted one of his best friends to come over to our house (right across the street) and play with Damian. When his friends mom said "No", it broke his heart and mine, too. He was so upset he made me cry. Any advice would be great. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2010 Report Share Posted July 23, 2010 Hey ! I have some pretty active boys and I have to say....when it rains outside and they dont get to go out...we have to be pretty creative. One of their FAVORITE things to do is help bake things. We go as far as rolling out cookie dough and making fun shapes and decorating...we do this with pizza as well.....just to drag the process out really. Also...We also whip out dominos. We dont play the game but we set them up ALL around the house and tip them over and watch them go. Super simple...but it keeps these HIGH energy kids focused for a ton of time. Mine are 7 and 4....so there is probably the age difference as well...but it is some ideas. Logan's mama (45 down to 0, 13 months old.) From: <vrfj96@...>infantile scoliosis treatment Sent: Thu, July 22, 2010 5:04:34 PMSubject: Some Advice Please Hello, everybody. Damian is doing great. He had developed a hematoma (a pocket of fluid) on his back, close to the incision. We took him to his doctor and he said that since it was not accompanied with redness, soreness, or a fever he was not too worried about it. On the day of Damian's appointment the size of it had gone down tremendously. Then over the next couple days, it has almost disappeared on its own. The advice I am looking for is how do I make an extremely active boy be not active. One of the main reasons he had to get the rod repaired is from doing too much stuff and bending forward like nothing was wrong. I have not let him outside, yet, since his repair. He is very active in everything he does. He loves to run, ride his bike, jump, and play. But he shouldn't be able to do all this stuff with a rod in. Should he? What happens if I do let him play outside and he has to have another rod repair? The other day we wanted one of his best friends to come over to our house (right across the street) and play with Damian. When his friends mom said "No", it broke his heart and mine, too. He was so upset he made me cry. Any advice would be great. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2010 Report Share Posted August 5, 2010 Hi all I have just found out i have a large cholesteatoma and need urgent surgery, at the hospital not very much was explained so I am very worried about this procedure. was just looking for some advice on the surgery will i be in pain after? how long will i be in hospital? will it all be gone? will i need my hair shaved? any advice or information would be very gratefully recieved as i am very nervous many thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2010 Report Share Posted August 6, 2010 > > Hi all > I have just found out i have a large cholesteatoma and need urgent >surgery, at the hospital not very much was explained so I am very >worried about this procedure. was just looking for some advice on the >surgery will i be in pain after? how long will i be in hospital? will >it all be gone? will i need my hair shaved? any advice or information >would be very gratefully recieved as i am very nervous > many thanks > Leah, In the UK this is usually done as a " one night stay " procedure, i.e. you go into the hospital one morning and are usually sent home the following day. My surgery was painless except for a slight soreness around the incision itself, which only lasted a day or two. You will feel " bunged up " in that ear though because of the dressing they insert at the end of the surgery - this is generally removed after about a fortnight, unless your surgeon uses the gel dressing in which case he/she should advise you what to expect. Will it all be gone? Who knows ? Standard procedure is to do a " second look " operation around a year after the first one in order to make sure the cholesteatoma has not recurred, and to deal with any recurrence which IS found; in my case there was none, so the surgeon reconstructed my ear in an effort to improve the hearing in that ear. You may temporarily lose a small amount of hair around the affected ear but there is certainly no reason to have half your head shaved. Your surgeon should be explaining all of this prior to the operation itself! Which hospital are you attending ? Milton Keynes, UK Quote Link to comment Share on other sites More sharing options...
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