Just learned about LDN.. I have MS - why wouldn't I take it?

[Guest guest]

Hello everyone,

I'm new here. I was diagnosed with MS almost 10 years ago - August of

1999, when I was 22. I have RRMS and feel very lucky so far that I

recovered completely from each of the episodes I've had. I consider

myself a moderately mild case (mostly cognitive and sensory), an average

of 1 episode a year, but they tend to last 2 or 3 months. This last

episode was last year after I was laid off for 2 months and had just

started a new job. Hello stress! It was a doozy for me - dizziness and

unable to use my right arm properly. It just didn't respond quite right

- though I managed to do my new job well without anyone knowing what was

going on. I also had a few weeks where I'd wake up every morning with

the oh-so-lovable " MS Hug " . The entire thing lasted 3 to 4 months and

my back muscles have been very tense ever since. That tells me the MS

is starting to affect me more physically.

So up until now, I've just dealt because I didn't think there were any

other option besides the current drugs prescribed and I had heard the

side effects could be pretty awful. Since I've been able to handle my

MS so far with trying to stay as stress-free as possible I don't see the

benefit of the current drugs available. But I stumbled across

information about LDN last week and ever since I haven't been able to

stop thinking about it. I've been lucky with no disability.. yet.. and

it's the yet that scares me. I've been getting really tired some days -

taking naps on weekend afternoons even after a full night's sleep - well

minus the million times I wake up to use the bathroom! Both things that

it sounds like the LDN could help. With the unpredictability of MS and

how it will affect me in the future all I can ask is - Why wouldn't I

take it?

There's a doctor 20 minutes from here who prescribes.. and compounding

pharmacies 10 minutes away.. And yet I'm still hesitant to make the

doctor's appointment.. I guess it's my mother in me saying " Don't get

your hopes up too soon " ! I'm an otherwise mostly healthy woman.. I take

100/50 Advair for my asthma plus birth control and a generic version of

Relafen 5 days out of the month for cramps. I've read that starting at

1.5 mg LDN lessens a lot of the mostly mild side effects. So am I

missing something? Why wouldn't I take it? I appreciate any input!