Guest guest Posted April 5, 2001 Report Share Posted April 5, 2001 I have a tumor on the adrenal gland. We ran all the test and found not to worry. So we just ignore it. We're doing the same thing with the huge kidney stone. As long as these things don't bother me I won't bother them. I went to the Dr. yesterday. I made it up and down the steps just fine but am a little sore this morning. Dr. says everything is fine. She wants me to be able to get out of the house so she has ordered a new oxygen contraption and a wheelchair. Sid will have to take me and he threw one of the worse fits he has ever done. He made up this morning. She has started weaning me off the prednisone, but it will take a long time to finish it. I don't have to go back for2 months. I won't have to see the neuro for 6 months. She is really happy with how well I'm doing. I want to thank everyone again for all the well wishes I know there's blessings going all around you wonderful people, Hugs to you Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2001 Report Share Posted April 5, 2001 Thank you Darkbeing. We are working on getting all these things so I can enjoy this spring weather. Hope you are doing well. I really like hearing from you. Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2001 Report Share Posted April 5, 2001 it will be good to be off that drug well good for you body it is cuse of it that my bones are in such bad shape i hope the wheel chare and O2 works out for you and you get out and enjoy the days to come take care <>~ ÐRKBEING ~<> -----Original Message-----From: Faulkncs@... [mailto:Faulkncs@...]Sent: Thursday, April 05, 2001 12:30 PM Subject: Re: Pituitary TumorI have a tumor on the adrenal gland. We ran all the test and found not to worry. So we just ignore it. We're doing the same thing with the huge kidney stone. As long as these things don't bother me I won't bother them. I went to the Dr. yesterday. I made it up and down the steps just fine but am a little sore this morning. Dr. says everything is fine. She wants me to be able to get out of the house so she has ordered a new oxygen contraption and a wheelchair. Sid will have to take me and he threw one of the worse fits he has ever done. He made up this morning. She has started weaning me off the prednisone, but it will take a long time to finish it. I don't have to go back for2 months. I won't have to see the neuro for 6 months. She is really happy with how well I'm doing. I want to thank everyone again for all the well wishes I know there's blessings going all around you wonderful people, Hugs to you Carolyn ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityVisual problems with colors?Click the link below and select the modify link to your right. Then select the **Send Plain Text Email** option. This will stop you receiving emails with colored or enlarged fonts./joinMembers Lounge:-Photo Album, memorial page, members profiles, birthdays, locations, medical resources, counselling via email and a whole bunch of free things.http://www.elderwyn.com/members Message Archives and Digest Attachment Pictures:-/messagesChat:- Scheduled Daily Chats at # on IRC DALnet./files/chat.htmBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator either via email <-owner > Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe ~~~~ *** ~~~ *** ~~~ *** ~~~~“Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go." - Pueblo Prayer~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2001 Report Share Posted April 5, 2001 I have had a pituitary tumor for over 30 years...in fact, I have to go next week for another MRI to check on it. Another great site for anyone interested is the PTNA. (Pituitary tumor network assn.) I don't know the actual site addr. but any browser will take you there if you use ptna. I have alot of info. on them too...soooo if anyone needs any info...give a yell. Sue --- michellefour4@... wrote: > Anyone have a tumor on their pituitary gland like > there is on mine? Here are some web sites to look > at for information > > http://www.medicalresources.org/pituitary.html > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Being Sick Community > > Visual problems with colors? > Click the link below and select the modify link to > your right. Then select the **Send Plain Text > Email** option. This will stop you receiving emails > with colored or enlarged fonts. > /join > > Members Lounge:- > Photo Album, memorial page, members profiles, > birthdays, locations, medical resources, counselling > via email and a whole bunch of free things. > http://www.elderwyn.com/members > > Message Archives and Digest Attachment Pictures:- > /messages > > Chat:- > Scheduled Daily Chats at # on IRC DALnet. > /files/chat.htm > > Bookmarks:- > Add a website URL you have found useful. > /links > > Personal Complaints or problems:- > Please contact a moderator either via email > <-owner > > > Subscription Details:- > 1) Individual email - means that every email sent to > the list you receive. > 2) Daily Digest - sends you 25 messages in one > single email for you to browse. This is an excellent > option if you receive alot of email. > 3) Web only/No mail - means that you can pop into > eGroups at your convenience and receive no email. > > To modify your subscription settings please visit:- > /join > > To subscribe or unsubscribe please email:- > -subscribe > -unsubscribe > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > “Hold on to what is good, even if it's a handful of > earth. Hold on to what you believe, even if it's a > tree that stands by itself. Hold on to what you must > do even, if it's a long way from here. Hold on to > your life, even if it's easier to let go. " - Pueblo > Prayer > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2001 Report Share Posted April 7, 2001 In a message dated 4/5/01 11:46:26 AM Central Daylight Time, Faulkncs@... writes: I have a tumor on the adrenal gland. We ran all the test and found not to worry. ****Carolyn, how did they find the tumor on your adrenal gland? I find it interesting that they haven't removed it. Chelle (michelle4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2001 Report Share Posted April 7, 2001 , Would you mind sharing your story about the tumor on your pituitary gland? Do you have thyroid problems as well? So you are going in for your annual MRI? I just received my notice in the mail yesterday reminding me that it has been six months and that I need to make an appointment with my doctor. The tumor on my pituitary gland has gone from a 4 mm to a 7 mm and is still considered to be a microadenoma. When it gets to a 10 mm (macroadenoma) they will be removing it. Sometimes it is considered a functioning tumor. For instance the alpha subunit of pituitary glycprotein hormone has been slightly elevated and suggest that it may be making alpha glycoprotein. My growth hormone has been slightly elevated in the past along with elevated prolactin levels. Two years ago my thyroid went nuts on me and my doctor is still having a difficult time getting it regulated. I was on .125 mg of synthroid and now I am up to .25mg. I have gained a lot of weight because of this and from some of the pain medications I have taken for my neck problems. Three out of four 24 hour urine tests suggest Pheocromocytoma (tumors on adrenal glands). Yet, they have done two ct scans on my adrenal glands and it shows no signs of tumors being present. My poor doctors are so puzzled with me and I get so darn frustrated! I also retain fluids (4.5 pitting). Sometimes I loose the hearing out of one ear because of the fluid, nobody can figure out what is going on! Talk about frustration! Now that I have talked about all of this, I need to have a good cry again. I wish I was brave enough to share pictures of what I look like now with all of you. I look just awful! I guess I have been brave with some of you. 4 (chelle) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2001 Report Share Posted April 7, 2001 When I had angioplasty they did a ct scan and saw it then. One Dr. insisted to remove it. I had hemoraged when they did the cathater for the heart job and my PC wouldn't let them do it. 2 MRI's later it had gone down in size rather than grown. They also found it to be fibrouis rather than cancerous. The surgery would have entaled extensive cutting from the front around to the back going into the arm pit and removing a rib. This was before they knew I had Myasthenia Gravis. All my Dr. knew was I wouldn't live through such surgery. This was in 1997.I haven't had any trouble with it at all. Hugs Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2001 Report Share Posted April 7, 2001 I bet you dont look as bad as you think you do. I always think im just about the most hidious thing walking the planet. But nobody runs and hides when i walk by. :-) We have a cool page with members pictures on them. Send an old one if it makes you feel better. Melinda At 09:00 PM 4/7/01 -0400, you wrote: , Would you mind sharing your story about the tumor on your pituitary gland? Do you have thyroid problems as well? So you are going in for your annual MRI? I just received my notice in the mail yesterday reminding me that it has been six months and that I need to make an appointment with my doctor. The tumor on my pituitary gland has gone from a 4 mm to a 7 mm and is still considered to be a microadenoma. When it gets to a 10 mm (macroadenoma) they will be removing it. Sometimes it is considered a functioning tumor. For instance the alpha subunit of pituitary glycprotein hormone has been slightly elevated and suggest that it may be making alpha glycoprotein. My growth hormone has been slightly elevated in the past along with elevated prolactin levels. Two years ago my thyroid went nuts on me and my doctor is still having a difficult time getting it regulated. I was on .125 mg of synthroid and now I am up to .25mg. I have gained a lot of weight because of this and from some of the pain medications I have taken for my neck problems. Three out of four 24 hour urine tests suggest Pheocromocytoma (tumors on adrenal glands). Yet, they have done two ct scans on my adrenal glands and it shows no signs of tumors being present. My poor doctors are so puzzled with me and I get so darn frustrated! I also retain fluids (4.5 pitting). Sometimes I loose the hearing out of one ear because of the fluid, nobody can figure out what is going on! Talk about frustration! Now that I have talked about all of this, I need to have a good cry again. I wish I was brave enough to share pictures of what I look like now with all of you. I look just awful! I guess I have been brave with some of you. 4 (chelle) ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick Community Visual problems with colors? Click the link below and select the modify link to your right. Then select the **Send Plain Text Email** option. This will stop you receiving emails with colored or enlarged fonts. /join Members Lounge:- Photo Album, memorial page, members profiles, birthdays, locations, medical resources, counselling via email and a whole bunch of free things. http://www.elderwyn.com/members Message Archives and Digest Attachment Pictures:- /messages Chat:- Scheduled Daily Chats at # on IRC DALnet. /files/chat.htm Bookmarks:- Add a website URL you have found useful. /links Personal Complaints or problems:- Please contact a moderator either via email <-owner > Subscription Details:- 1) Individual email - means that every email sent to the list you receive. 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. 3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email. To modify your subscription settings please visit:- /join To subscribe or unsubscribe please email:- -subscribe -unsubscribe ~~~~ *** ~~~ *** ~~~ *** ~~~~ “Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go. " - Pueblo Prayer ~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2001 Report Share Posted April 9, 2001 Chelle, Its not what you look like that counts, its who you are that matters. Love Aisha. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2001 Report Share Posted April 9, 2001 Hi. Sue H. here. It amazing, but there have been studies on on cadavers...and between 20 and 25 per cent of those have or have had pituitary tumors at some time during their lives....only a very small percentage of those ever had any problems because of them. Also, there are several drugs now that can shrink the tumors thus preventing the need for surgery. I'm glad your doc refused to let you go through with it. Sue --- Faulkncs@... wrote: > > > When I had angioplasty they did a ct scan and saw it > then. One Dr. insisted > to remove it. I had hemoraged when they did the > cathater for the heart job > and my PC wouldn't let them do it. 2 MRI's later it > had gone down in size > rather than grown. They also found it to be > fibrouis rather than cancerous. > The surgery would have entaled extensive cutting > from the front around to the > back going into the arm pit and removing a rib. > This was before they knew I > had Myasthenia Gravis. All my Dr. knew was I > wouldn't live through such > surgery. This was in 1997.I haven't had any trouble > with it at all. > > Hugs Carolyn > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2001 Report Share Posted April 9, 2001 Hello again, Sue H here. I have a microprolactinoma. I haven't had an mri now in 2 years 'cause after my hysterectomy, my prolactin went to its lowest level in 30 years. It was a " 9 " (range should have been up to 20 for me) Well, it suddenly shot up to nearly 30..so I have my mri now sched. for tomorrow. The hardest part for me about this pituitary stuff was to get a diagnosis. First thing that happened was I went from 114 pounds to 187. Having been an athlete in school..and still trying to keep active, this to me was the worst thing that could have happened. Then, the docs kept discovering cysts all over...breasts, ovaries, eyes (iris cysts) etc. It was my gyn that talked to me...or should I say, listened to me, that sent me to the right doc for the diagnosis. Oh, my family doc said, and I quote.. " your 21, not married...just go on a diet and get out more. " The next hardest thing for me was to get any info about this kind of tumor. There was no " net " in 1972-1973...and all the signs they told me to watch out for ie:loss of peripheral vision, inability to loose weight etc, were problems that my Dad had...and he had died suddenly and age 53. I was scared stiff! Anyway, here I am, 30 years later...and its still under control..but I get the blood work done every 4-6 months for my own sanity. Oh, the tumor has at times shown up on mri..and then the next time, was gone. S > >The tumor on my pituitary gland has gone from a 4 > mm to a 7 mm and is still > >considered to be a microadenoma. When it gets to a > 10 mm (macroadenoma) they > >will be removing it. Sometimes it is considered a > functioning tumor. For > >instance the alpha subunit of pituitary glycprotein > hormone has been slightly > >elevated and suggest that it may be making alpha > glycoprotein. My growth > >hormone has been slightly elevated in the past > along with elevated prolactin > >levels. > > > >Two years ago my thyroid went nuts on me and my > doctor is still having a > >difficult time getting it regulated. I was on .125 > mg of synthroid and now I > >am up to .25mg. I have gained a lot of weight > because of this and from some > >of the pain medications I have taken for my neck > problems. > > > >Three out of four 24 hour urine tests suggest > Pheocromocytoma (tumors on > >adrenal glands). Yet, they have done two ct scans > on my adrenal glands and it > >shows no signs of tumors being present. My poor > doctors are so puzzled with > >me and I get so darn frustrated! I also retain > fluids (4.5 pitting). > >Sometimes I loose the hearing out of one ear > because of the fluid, nobody can > >figure out what is going on! Talk about > frustration! > > > >Now that I have talked about all of this, I need to > have a good cry again __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 I have had an enlarged pituitary gland and let me tell you, you would know if something was wrong up there. Just an enlarged pituitary is extremly painful. I had a constant pain in my head, extreme confusion, you kind of feel like you have alzheimer's disease. A tumor would not only be painful but you would have visual disturbances like seeing spots, blurred vision, blind spots, and extreme pressure behind the eyes. I had a lot of tests to confirm a pituitary tumor including an in depth eye exam, but thank God that it was only enlarged from having hypothyroidism. As far as a pituitary tumor being related...you would probably develop cushing's from having a pituitary tumor or other pituitary disorder. In my case my thyroid (or lack there of) was causing the pituitary disorder. Hope this info helps. > > I am very curious.....anyone here ever experienced a pituitary tumor????? I was looking at the possibility that I may have Cushing's and this is something that may/may not go along with it. > > > --------------------------------- > Celebrate 's 10th Birthday! > Netrospective: 100 Moments of the Web > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2005 Report Share Posted March 5, 2005 Well.....I have vision problems, and the last time I had my eyes checked the doctor asked me if I had headaches and if I have ever had a CAT scan. Which I did about 11 years ago from horrible migraines. Now they just get blurry, I have to really squint to focus on my computer or when I am reading anything. And to the alzheimer's thing...I really thought that I had early onset. I confused my stick shift the other day..........thinking it only had four gears. I lose everything. I have quite a bit of pressure behind my eyes, but I think it is sinues which have been a MAJOR pain for the last two years. I am constantly pressing on the bridge of my nose the relieve the pressure. So your pituitary was enlarged because of being Hypo???? I didn't know that could happen. What did your endo do?? <mwcislo@...> wrote: I have had an enlarged pituitary gland and let me tell you, you would know if something was wrong up there. Just an enlarged pituitary is extremly painful. I had a constant pain in my head, extreme confusion, you kind of feel like you have alzheimer's disease. A tumor would not only be painful but you would have visual disturbances like seeing spots, blurred vision, blind spots, and extreme pressure behind the eyes. I had a lot of tests to confirm a pituitary tumor including an in depth eye exam, but thank God that it was only enlarged from having hypothyroidism. As far as a pituitary tumor being related...you would probably develop cushing's from having a pituitary tumor or other pituitary disorder. In my case my thyroid (or lack there of) was causing the pituitary disorder. Hope this info helps. > > I am very curious.....anyone here ever experienced a pituitary tumor????? I was looking at the possibility that I may have Cushing's and this is something that may/may not go along with it. > > > --------------------------------- > Celebrate 's 10th Birthday! > Netrospective: 100 Moments of the Web > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2005 Report Share Posted March 5, 2005 I was diagnosed with a benign pituitary microadenoma (about the size of a pea)about 10 years ago. The doctors say that many people have them with no significant problems. They take an MRI every year to make sure it is not growing and I have to take some hormones because of damage to the pituitary (vasopressin and synthroid), but otherwise have no problems. Marcia --- <mwcislo@...> wrote: > > I have had an enlarged pituitary gland and let me > tell you, you > would know if something was wrong up there. Just an > enlarged > pituitary is extremly painful. I had a constant > pain in my head, > extreme confusion, you kind of feel like you have > alzheimer's > disease. A tumor would not only be painful but you > would have > visual disturbances like seeing spots, blurred > vision, blind spots, > and extreme pressure behind the eyes. I had a lot > of tests to > confirm a pituitary tumor including an in depth eye > exam, but thank > God that it was only enlarged from having > hypothyroidism. As far as > a pituitary tumor being related...you would probably > develop > cushing's from having a pituitary tumor or other > pituitary > disorder. In my case my thyroid (or lack there of) > was causing the > pituitary disorder. Hope this info helps. > > > > > > > > > > > I am very curious.....anyone here ever experienced > a pituitary > tumor????? I was looking at the possibility that I > may have > Cushing's and this is something that may/may not go > along with it. > > > > > > --------------------------------- > > Celebrate 's 10th Birthday! > > Netrospective: 100 Moments of the Web > > > > [Non-text portions of this message have been > removed] > > > > __________________________________ Celebrate 's 10th Birthday! Netrospective: 100 Moments of the Web http://birthday./netrospective/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 you sound hypothyroid Gracia > > > Well.....I have vision problems, and the last time I had my eyes checked the doctor asked me if I had headaches and if I have ever had a CAT scan. Which I did about 11 years ago from horrible migraines. Now they just get blurry, I have to really squint to focus on my computer or when I am reading anything. And to the alzheimer's thing...I really thought that I had early onset. I confused my stick shift the other day..........thinking it only had four gears. I lose everything. I have quite a bit of pressure behind my eyes, but I think it is sinues which have been a MAJOR pain for the last two years. I am constantly pressing on the bridge of my nose the relieve the pressure. > > So your pituitary was enlarged because of being Hypo???? I didn't know that could happen. What did your endo do?? > > <mwcislo@...> wrote: > > I have had an enlarged pituitary gland and let me tell you, you > would know if something was wrong up there. Just an enlarged > pituitary is extremly painful. I had a constant pain in my head, > extreme confusion, you kind of feel like you have alzheimer's > disease. A tumor would not only be painful but you would have > visual disturbances like seeing spots, blurred vision, blind spots, > and extreme pressure behind the eyes. I had a lot of tests to > confirm a pituitary tumor including an in depth eye exam, but thank > God that it was only enlarged from having hypothyroidism. As far as > a pituitary tumor being related...you would probably develop > cushing's from having a pituitary tumor or other pituitary > disorder. In my case my thyroid (or lack there of) was causing the > pituitary disorder. Hope this info helps. > > > > > > > > > > > I am very curious.....anyone here ever experienced a pituitary > tumor????? I was looking at the possibility that I may have > Cushing's and this is something that may/may not go along with it. > > > > > > --------------------------------- > > Celebrate 's 10th Birthday! > > Netrospective: 100 Moments of the Web > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Hi Marcia, What does taking vasopressin do for you? Thanks, Much Love, Pamela Marcia Oubre <mhoubre@...> wrote: I was diagnosed with a benign pituitary microadenoma (about the size of a pea)about 10 years ago. The doctors say that many people have them with no significant problems. They take an MRI every year to make sure it is not growing and I have to take some hormones because of damage to the pituitary (vasopressin and synthroid), but otherwise have no problems. Marcia __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Vasopressin is the anti-diuretic hormone secreted by the pituitary that allows your body to retain water. Without it there is a disturbance of the water balance of the body and deyhdration occurs. Without the vasopressin, I am constantly thirsty and the water goes right through me and is not retained by the body. This is a form of Diabetes Insipidus, also called water diabetes( it has nothing to do with sugar or insulin). Marcia --- Pamela <southallp@...> wrote: > Hi Marcia, > > What does taking vasopressin do for you? > > Thanks, > Much Love, > Pamela > > Marcia Oubre <mhoubre@...> wrote: > > > I was diagnosed with a benign pituitary microadenoma > (about the size of a pea)about 10 years ago. The > doctors say that many people have them with no > significant problems. They take an MRI every year to > make sure it is not growing and I have to take some > hormones because of damage to the pituitary > (vasopressin and synthroid), but otherwise have no > problems. > > Marcia > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2007 Report Share Posted June 9, 2007 of course she could be hypo, she has hormone probs. Have you read Hormone Solutions by Thierry Hertoghe MD? Gracia Okay here's a question for ya'll pro's. My mom had a pituitary tumor which was removed in 2005. how can it be that all her labs were " normal " ? her endo checked everything and said her #'s were fine, yet she is still producing breast milk (by the way that is what gave away the tumor). She is 55 post hysterectomy. DO you think she could possibly be hypo? ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.8.11/838 - Release Date: 6/7/2007 2:21 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2007 Report Share Posted June 9, 2007 No i haven't, but I will refer it to my mom. Thanks, Crystal > > > of course she could be hypo, she has hormone probs. Have you read Hormone Solutions by Thierry Hertoghe MD? > Gracia > > > Okay here's a question for ya'll pro's. My mom had a pituitary tumor > which was removed in 2005. how can it be that all her labs were > " normal " ? her endo checked everything and said her #'s were fine, yet > she is still producing breast milk (by the way that is what gave away > the tumor). She is 55 post hysterectomy. DO you think she could > possibly be hypo? > > > > > > > ------------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.472 / Virus Database: 269.8.11/838 - Release Date: 6/7/2007 2:21 PM > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2007 Report Share Posted June 9, 2007 sweetenloe1 wrote: > > > Okay here's a question for ya'll pro's. My mom had a pituitary tumor > which was removed in 2005. how can it be that all her labs were > " normal " ? her endo checked everything and said her #'s were fine, ... What numbers? Does she have symptoms? Do you want us to just make a wild guess in the dark? Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 If you want a guess in the dark, the tumor was not that evasive that it affected the workings of the gland itself. Maybe it was on the outside of the gland? That could be. I suggest you ask her doctor about all of the facts and what they found when she had the tumor taken out. If the Dr. don't want to tell you you could ask your mother to ask the Dr. Chuck B <gumboyaya@...> wrote: sweetenloe1 wrote: > > > Okay here's a question for ya'll pro's. My mom had a pituitary tumor > which was removed in 2005. how can it be that all her labs were > " normal " ? her endo checked everything and said her #'s were fine, ... What numbers? Does she have symptoms? Do you want us to just make a wild guess in the dark? Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2010 Report Share Posted July 29, 2010 My brain MRI came back and it shows that I have a space occupying lesion by my pituitary. I have to get additional blood work done to see if is producing any additional hormones. Does anybody have any experience with this and with the treatment (surgery) involved? Below is a copy of the letter that my endo sent my PCP. --begin letter During the evaluation of Mr Tomines' hypogonadotropic hypogonadism, indeed he does have, on MRI, a space-occupying lesion, which could be causative of his hypogonadism. As you know, it is not a functional pituitary tumor as evidenced by normal prolactin as a cause of his hypogonadism, and it appears that his other function tests are normal. For completeness, I will get an AM corisol, ACTH, and IGF-1; however, it is a 1.0 x 0.9 x 0.75 pituitary adenoma with some suprasellar extension. This has caused some deficiency in hormonal function and surgical removal may be indicated, even in the lack of function. If it is ACTH-producing or growth hormone-producing, surgery would be indicated as well. I think a referral to neurosurgery is indicated a this time for possible removal of what I consider to be a nonfunctional pituitary adenoma. It has, however knocked out his gonadotropins. I will sned him a lab slip for IGF-1, ACTH, cortisol, and alpha-subunit, and then have him come back for further discussion. Neurosurgery, howeve, should be consulted to discuss possible elective removal. --end letter. Quote Link to comment Share on other sites More sharing options...
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