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At 10:26 AM 12/14/98 -0500, you wrote:

>From: Anne Marie <amrhodes@...>

>

>Ok, I just received a phone call from my doctor and he said that

>my blood test (TITER (Sp?)) came back ok. So what does that mean?!

>

>I asked once again to be referred to a lyme literate doctor, or

>an infectious disease doctor and so hopefully she will be calling me

>back with that soon.

>

>I think I'm at my wits end.

>Anne

Dear Anne'

Please do not rely on your doctor to find a Lyme literate physician for

you. That will very likely result in more frustration for you.

Let us know where you live, and someone on this list will privately email

you the name of a capable physician in your area.

God Bless

Colby Van Atta

>------------------------------------------------------------------------

>

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Colby,

Well I live in Joppa, land (Harford County). I have an HMO/

Freestate Insurance and need referrals to see specialists. That is

the only reason why I asked my doctor to refer me.

I am sure I am not the only one, but I am totally confused about

all this Lyme stuff. I mean people telling us were cured and people

thinking that we're faking because we have no " seen " illnesses.

Thats a bunch of BS I have ever heard of. I am tired of people

always saying to me, " you don't feel good again? " Well, duh, no,

I don't. Whats wrong with you? Uh, well let's see, I have lyme

disease, no one seems to give a hoot (doctors esp) and uh, everyone

seems to think that if I get exercise, I will feel so much better.

Well if my legs and ankles didn't hurt so much and I wasn't so tired

all the time, maybe I would be exercising.

I think the whole world should be educated on lyme. That should

be a class or training that is MANDATORY wherever you work or go to

school, etc.

Thanks for everything everyone, if it wasn't for all of you, I would

be by myself.

Anne

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At 10:10 AM 12/15/98 -0500, Anne Marie wrote:

>From: Anne Marie <amrhodes@...>

Anne Marie addressed the following to me, but we need to help her find a

Lyme literate MD in her vicinity. She then needs to insist that her HMO

give her a referral to that physician, rather than referring her to one of

their do-nothin so called specialists.

Surely someone reading this can send her a private email recommending a

literate MD.

Thanks, Colby Van tta

>Colby,

>Well I live in Joppa, land (Harford County). I have an HMO/

>Freestate Insurance and need referrals to see specialists. That is

>the only reason why I asked my doctor to refer me.

>

>I am sure I am not the only one, but I am totally confused about

>all this Lyme stuff. I mean people telling us were cured and people

>thinking that we're faking because we have no " seen " illnesses.

>Thats a bunch of BS I have ever heard of. I am tired of people

>always saying to me, " you don't feel good again? " Well, duh, no,

>I don't. Whats wrong with you? Uh, well let's see, I have lyme

>disease, no one seems to give a hoot (doctors esp) and uh, everyone

>seems to think that if I get exercise, I will feel so much better.

>Well if my legs and ankles didn't hurt so much and I wasn't so tired

>all the time, maybe I would be exercising.

>

>I think the whole world should be educated on lyme. That should

>be a class or training that is MANDATORY wherever you work or go to

>school, etc.

>

>Thanks for everything everyone, if it wasn't for all of you, I would

>be by myself.

>

>Anne

>

>------------------------------------------------------------------------

>

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  • 9 months later...

I have a blood test question I thought I would throw out there and see if

anybody has the answer to.

What is LD? All my enzymes were within normal limits except this.

Also, I am reducing pred right now and my latest labs the enzymes went up,

but stayed within normal limits. Do they periodically go up and come back

down within normal limits.

They were:

AST 16 then to 20

ALT 26 then to 28

GGT 28 to 29

bilirubin .5 to .7

It is not much higher. Am I just being paranoid?

Audra

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Dear Kathy,

I also hope, along with you, that this isn't a break in your remission. I

think I was reading in an article by Czaza of the Mayo Clinic that the

actual liver condition is a bit behind the labs. Maybe that's why you had a

" bad " day. I'll recheck that to see - I may have misunderstood. Anyways, I

hope you're feeling better. I'm glad you're in remission!

>From: KATBERCOO@...

>Reply- onelist

> onelist

>Subject: Re: [ ]blood test

>Date: Tue, 28 Sep 1999 19:43:38 EDT

>

>From: KATBERCOO@...

>

>Dear Audra:

>

>My enzyme levels fluctuate within 'normal limits' all the time. My doctor

>said that it is nothing to worry about. I just got LFT's today but will

>probably not get results back for a few days. I've been feeling real tired

>the last couple of days. Today I've been terribly fatigued. I was

>supposed

>to have an eye exam this morning. As I was driving there, I felt like I

>was

>having trouble keeping my eyes open. My head hurt a little, too. When I

>got

>there, I decided that it wasn't the best time to have my eyes dilated and

>to

>sit there when I was feeling so crummy. I went into the office and

>canceled

>my appointment and rescheduled. They were really very nice about it. I

>went

>ahead and walked over to my GI's office (in the same building) and got my

>slip for LFT's. By the time I got my blood test and drove home, I felt

>terrible. I had to lay down for about an hour and a half. Now, it's

>almost

>5 PM and I still feel like I could just sleep for the rest of the day. It

>kind of worries me because I've been doing pretty good for a while. I hope

>it's not a break in my remission. I guess I'll know if it's related to my

>liver in a few days or if I'm just coming down with the flu or something.

>

>Well, sorry to vent. I hope everyone has a good week!

>

>Kathy (AIH)

>Seattle area

>

>>Please support the American Liver Foundation!

>

>1.) To subscribe send e-mail to -subscribeonelist

>2.) To UNsubscribe send to -unsubscribeonelist

>3.) Digest e-mail format send to -digestonelist

>4.) Normal e-mail format send to -normalonelist

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LDL is a blood test result for cholesterol. Dont know what just LD is

J

>From: ADilli5783@...

>Reply- onelist

> onelist

>Subject: Re: [ ]blood test

>Date: Tue, 28 Sep 1999 18:16:00 EDT

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>

>From: ADilli5783@...

>

>I have a blood test question I thought I would throw out there and see if

>anybody has the answer to.

>

>What is LD? All my enzymes were within normal limits except this.

>

>Also, I am reducing pred right now and my latest labs the enzymes went up,

>but stayed within normal limits. Do they periodically go up and come back

>down within normal limits.

>

>They were:

>

>AST 16 then to 20

>ALT 26 then to 28

>GGT 28 to 29

>bilirubin .5 to .7

>

>It is not much higher. Am I just being paranoid?

>

>Audra

>

>>Please support the American Liver Foundation!

>

>1.) To subscribe send e-mail to -subscribeonelist

>2.) To UNsubscribe send to -unsubscribeonelist

>3.) Digest e-mail format send to -digestonelist

>4.) Normal e-mail format send to -normalonelist

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Dear Audra:

My enzyme levels fluctuate within 'normal limits' all the time. My doctor

said that it is nothing to worry about. I just got LFT's today but will

probably not get results back for a few days. I've been feeling real tired

the last couple of days. Today I've been terribly fatigued. I was supposed

to have an eye exam this morning. As I was driving there, I felt like I was

having trouble keeping my eyes open. My head hurt a little, too. When I got

there, I decided that it wasn't the best time to have my eyes dilated and to

sit there when I was feeling so crummy. I went into the office and canceled

my appointment and rescheduled. They were really very nice about it. I went

ahead and walked over to my GI's office (in the same building) and got my

slip for LFT's. By the time I got my blood test and drove home, I felt

terrible. I had to lay down for about an hour and a half. Now, it's almost

5 PM and I still feel like I could just sleep for the rest of the day. It

kind of worries me because I've been doing pretty good for a while. I hope

it's not a break in my remission. I guess I'll know if it's related to my

liver in a few days or if I'm just coming down with the flu or something.

Well, sorry to vent. I hope everyone has a good week!

Kathy (AIH)

Seattle area

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Hi Audra,

I've been having regular lab work for 5 years. The

numbers fluctuate, even within the same day. I

wouldn't expect to see the exact same numbers each

time I go for labs, it just doesn't work that way. As

long as your numbers are within the 'normal ranges' be

happy. A few points here and there are to be

expected, especially since you're reducing the

prednisone. When I stopped taking pred. my AST and

ALT went up into the 70's over a period of 6 months.

Then, started coming back down into the normal range

over the next 3 months, and they've stayed there ever

since. It just happened, there was no change in meds.

Even now they fluctuate within the normal range. I

had to stop looking at specific numbers because I have

a very vivid imagination and could drive myself crazy.

I just take a quick peek, if the numbers are within

range - that's good enough for me. I've included some

info on the LD - key word in the first sentence is

MAY, one number by itself is usually not indicative of

anything, and could be caused by one of the meds.

I hope you're feeling well.

Regards,

Barbara Ann

AIH Transplant Recipient

Lactate dehydrogenase (LD or " LDH " )

Increase of LD activity in serum may occur in any

injury that causes loss of cell cytoplasm. More

specific information can be obtained by LD isoenzyme

studies. Also, elevation of serum LD is observed due

to in vivo effects of anesthetic agents, clofibrate,

dicumarol, ethanol, fluorides,imipramine,

methotrexate, mithramycin, narcotic analgesics,

nitrofurantoin, propoxyphene, quinidine, and

sulfonamides.

Decrease of serum LD is probably not clinically

significant.

There are two main analytical methods for measuring

LD: pyruvate->lactate and lactate->pyruvate.Assay

conditions (particularly temperature) vary among labs.

The reference range for the assaying laboratory must

be carefully studied when interpreting any individual

result.

http://www.neosoft.com/~uthman/lab_test.html

--- ADilli5783@... wrote:

<HR>

<html>

From: ADilli5783@...

I have a blood test question I thought I would throw

out there and see if

anybody has the answer to.

What is LD? All my enzymes were within normal limits

except this.

Also, I am reducing pred right now and my latest labs

the enzymes went up, but stayed within normal limits.

Do they periodically go up and come back down within

normal limits.

They were:

AST 16 then to 20

ALT 26 then to 28

GGT 28 to 29

bilirubin .5 to .7

It is not much higher. Am I just being paranoid?

Audra

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LD I think is also called LDH..Its one of the liver

enzymes. I cant for the life of me remember what it

signifies. Mine goes up and down too..

If I figure out what it signifies I will let ya know

Jody

--- ADilli5783@... wrote:

<HR>

<html>

From: ADilli5783@...

I have a blood test question I thought I would throw

out there and see if

anybody has the answer to.

What is LD? All my enzymes were within normal limits

except this.

Also, I am reducing pred right now and my latest labs

the enzymes went up,

but stayed within normal limits. Do they periodically

go up and come back

down within normal limits.

They were:

AST 16 then to 20

ALT 26 then to 28

GGT 28 to 29

bilirubin .5 to .7

It is not much higher. Am I just being paranoid?

Audra

<table><tr><td><pre>--

Please support the American Liver Foundation!

1.) To subscribe send e-mail to

-subscribeonelist

2.) To UNsubscribe send to

-unsubscribeonelist

3.) Digest e-mail format send to

-digestonelist

4.) Normal e-mail format send to

-normalonelist

=====

Jody Compton

Dance like no one is watching. Love like it will never end.

In search of answers..

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  • 1 year later...
Guest guest

,

Good drs. will go by blood tests AND your symptoms for diagnosing and

prescribing drugs.

You can take your temperature first thing in the morning before getting

out of bed for a week, and if it is 97.8 (I believe) or lower, it might

indicate a low thyroid.

Go to www.about.com and type in hypothyroid and there is a wealth of

info.

I am still in the learning stage of this also, but others on the list

can help you more.

:)

PS Stress, trauma, diet, toxins, etc. can throw the thyroid off also.

Take care.

Love and Peace,

Reneé and Jerry

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Guest guest

:

Most " doctors " MD's are reliant on archaic blood tests and rarely pay much

attention to symptoms.

They also are not up on the effects or causes of auto-immune

disorders...which are ultimately the cause of thyroid disorders.

You might also suggest www.thyrodine.com

as another source of data.

Earl

Re: Blood test

,

Good drs. will go by blood tests AND your symptoms for diagnosing and

prescribing drugs.

You can take your temperature first thing in the morning before getting

out of bed for a week, and if it is 97.8 (I believe) or lower, it might

indicate a low thyroid.

Go to www.about.com and type in hypothyroid and there is a wealth of

info.

I am still in the learning stage of this also, but others on the list

can help you more.

:)

PS Stress, trauma, diet, toxins, etc. can throw the thyroid off also.

Take care.

Love and Peace,

Reneé and Jerry

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Guest guest

:

Blood tests for thyroid disorders are notoriously inaccurate!!

Temperature taken before arising in the morning is a much better test.

Optimum temperature is 98.6. If temperature is below 98.0 it suggets a

disorder, the lower, the more severe.

Please look up auto-immune disorders, as that is the cause of most thyroid

dysfunctions.

There is some data on www.thyrodine.com although it is being up-dated soon.

Earl

Blood test

Hi,

I am new to this discussion, and I was wondering if there was any

other method to test for hypothyroidism instead of the blood test?

Also, is the blood test real accurate? It seems like I've heard it

can be wrong..

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  • 2 years later...

Kim wrote:

Has anyone heard of the blood test that the

Bowen Institute in FL does??

Hi Kim,

If you really want to know whether or not someone has

Lyme, the Bowen RIBb test is the one to have done.

I'm enclosing contact information below.

Jack

-----------------------

JoAnn Whitaker, M.D.

Bowen Research and Training Institute, Inc.

P.O. Box 627

Palm Harbor, Florida 34682

Tel: 727-937-9077

Fax: 727-942-9687

http://www.bowen.org

mailto:bowenresearch@...

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In a message dated 1/16/04 12:51:43 PM Eastern Standard Time,

tjs11@... writes:

Hi Kim,

If you really want to know whether or not someone has

Lyme, the Bowen RIBb test is the one to have done.

I'm enclosing contact information below.

Jack

Dear Jack - thank you for your response - my son was on antibiotics for 6

weeks then it was suggested to use this test to determine if we got it - so we

finally took the test and he remains positive.

Thank you again,

Kim

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Thanks! I just figured out I worked 50 hours this week, not including

travel time and a 4 hour roundtrip to see a new Naturopath (he was OK, but

not like my old doc). Meanwhile all week it was as cold as 50 below zero

and never above zero.

Gracia in Maine

> Gracia I was worried you were gone for a week --or it seemed too long-

> -ha!!! I'll be out of town for week or so--but I will still check in

> when I can. Waiting for some new people to speak up--so I know they

> are in the BEST of care when you are here!!!!

>

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  • 2 weeks later...

Just arrived back home--yikes I don't know how you do it in that kind

of weather. Hope everyone is doing better--need to catch up on

reading--tina

> Thanks! I just figured out I worked 50 hours this week, not

including

> travel time and a 4 hour roundtrip to see a new Naturopath (he was

OK, but

> not like my old doc). Meanwhile all week it was as cold as 50

below zero

> and never above zero.

> Gracia in Maine

>

> > Gracia I was worried you were gone for a week --or it seemed too

long-

> > -ha!!! I'll be out of town for week or so--but I will still check

in

> > when I can. Waiting for some new people to speak up--so I know

they

> > are in the BEST of care when you are here!!!!

> >

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  • 1 year later...

Thank you. When I got very sick 5 years ago and couldn't figure out what it

was it was such a mess. I almost lost my job and my parents ditched me,

leaving me to move in with a b/f whom I really didn't want to move in with and

most

of my family still acts like they don't know " what is wrong with me " even

after me telling them, so I gave up on them just recently. Some of them think

that there is this " magic pill " for me to take and it will be all better and

others think that i'm " just depressed " . So, I have chosen, through much

heartache and emotional pain to just let " them go " for a while in order to

focus on

my own health. I am so glad to have found a group that can truly understand

what it is like to live with this illness. Thank you. I hope you're doing

well.

In a message dated 11/22/2005 8:24:39 A.M. Central Standard Time,

debbie26111@... writes:

Hi just heard yesterday, that my food allergy test came back normal, I

may never know what I am allergic too that I almost died from 2 years

ago. I am so confused and where to turn, and I thought maybe again that

I really just need to stay away from sugar. ????? Enjoy the group dont

feel so alone. Debbie in Nebr.

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  • 1 year later...
Guest guest

Bb hides.

it (excuse my lyme brain and not technical discription) slimes itself with a

protien so your immune system doesn't recognise it as an invader. it goes into

cyst form and your immune system doesn't recognise it as an infection. the

reason it can ravage your body is because your body doesn't know it is there.

one of the first things it does is set out to destroy you natural killer cells.

they are a form of Tcells. these are the cells that recognise it but the lyme

attacks first. you should ask for a CD-57 through labcorp by your doc. if your

CD-57 is low that is considered an indication of long term lyme. so, no, you

wouldn't neccesarily have an elevated wbc count with lyme. i've had it for 15

years and never have. also if your dr finally runs the western blot and runs it

through your local insurance accepting lab, like labcorp or quest, that that

test is an abreviated test, and is oonly 50% accurate. cheaper to flip a coin.

the only western blot that i know of that is reliable is by igenex in

california. a knowledgeable LLMD (lyme literate MD) will know this. you should

also get tested for co-infections, you never get just lyme from the tick. and

some of them, especially babesia is an intercellular parasitic blood infection

and it won't respond to antibiotics. some coinfections need separate abx to

treat. if you don't treat the coinfections you will never get better.

best of luck with your health.

you can and will get better.

deb

[ ] Blood test

>

>Hi.

>

>So I went to a doctor two weeks ago to complain about my symptoms and

>ask for a blood test and he gave me a bunch of different tests to do

>instead of the western blot, even after I asked him for one. He said

>that if these first tests show any signs of an infection, then he'll

>ask for the WB. However, the blood tests show little abnormalities.

>The mucoproteins are 1.5 mg/dl (the normal values being 2.0 to 4.7)

>and the lymphocytes are 3,390/mm3 (the normal values being 900 to

>2,900). The other white blood cells (neutrophils, monocytes,

>eosinophils and basophils) are all within normal value range. Could a

>person be infected with Lyme and his/her white blood cells show little

>abnormalities? Even if it's an older infection (say 5+ years)? I used

>to think that for as long as the exogenous agent is inside your body,

>your white blood cells level would be higher to fight it, even if it's

>a latent agent.

>What I'm afraid of is that since my exposure happened in 2001, that

>the hemogram doesn't show a sign of infection, even though the Bb is

>still doing its damage in me.

>Any help/opinions, please?

>

>Thanks!

>

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Guest guest

Somehow some way, You have to DEMAND a western blot. If you can get

it through Igenex, even better. Some labs dont read the WB

correctly, and some don't know what they are even looking at. If you

can get the WB through Igenex, then post your results, I can

translate it for you, if your Dr. can't or won't. Mainstream Drs are

useless (my humble opinoin of course.

>

> Hi.

>

> So I went to a doctor two weeks ago to complain about my symptoms

and

> ask for a blood test and he gave me a bunch of different tests to do

> instead of the western blot, even after I asked him for one. He said

> that if these first tests show any signs of an infection, then he'll

> ask for the WB. However, the blood tests show little abnormalities.

> The mucoproteins are 1.5 mg/dl (the normal values being 2.0 to 4.7)

> and the lymphocytes are 3,390/mm3 (the normal values being 900 to

> 2,900). The other white blood cells (neutrophils, monocytes,

> eosinophils and basophils) are all within normal value range. Could

a

> person be infected with Lyme and his/her white blood cells show

little

> abnormalities? Even if it's an older infection (say 5+ years)? I

used

> to think that for as long as the exogenous agent is inside your

body,

> your white blood cells level would be higher to fight it, even if

it's

> a latent agent.

> What I'm afraid of is that since my exposure happened in 2001, that

> the hemogram doesn't show a sign of infection, even though the Bb is

> still doing its damage in me.

> Any help/opinions, please?

>

> Thanks!

>

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Guest guest

Hi a,

Yes, this happened to me. All my labs were " normal " or just a little

low for the leukocytes...but when taking the Igenex test I was

positive for an old infection as well as a new one. The Igenex test

is sensitive for many other strands, rather than the typical ones

which most docs use. Demand Igenex, or go see a doc that will use

that test.

I have had tick bites all my life and even had the bulls eye rash,

but could not get treatment from my PCP. I found a LLMD and went to

him and have made progress ever since.

Best wishes for your health,

cooky

>

> Hi.

>

> So I went to a doctor two weeks ago to complain about my symptoms

and

> ask for a blood test and he gave me a bunch of different tests to do

> instead of the western blot, even after I asked him for one. He said

> that if these first tests show any signs of an infection, then he'll

> ask for the WB. However, the blood tests show little abnormalities.

> The mucoproteins are 1.5 mg/dl (the normal values being 2.0 to 4.7)

> and the lymphocytes are 3,390/mm3 (the normal values being 900 to

> 2,900). The other white blood cells (neutrophils, monocytes,

> eosinophils and basophils) are all within normal value range. Could

a

> person be infected with Lyme and his/her white blood cells show

little

> abnormalities? Even if it's an older infection (say 5+ years)? I

used

> to think that for as long as the exogenous agent is inside your

body,

> your white blood cells level would be higher to fight it, even if

it's

> a latent agent.

> What I'm afraid of is that since my exposure happened in 2001, that

> the hemogram doesn't show a sign of infection, even though the Bb is

> still doing its damage in me.

> Any help/opinions, please?

>

> Thanks!

>

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  • 2 years later...
Guest guest

Had blood test done last week and doc just called to tell me that iron was

somewhat low, dhea and b12 were normal. Anyway I'm gonna get copy in mail and I

will take it from there and post results.

I asked him to test my blood as it's been 2 weeks that I've been on androgel and

he refused and what's me to wait 2 more weeks at least. Should I go to primary

and have him test my blood or wait two more weeks till I see dr barry gordon and

have him test my blood?

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Guest guest

Not better. Ever since I started on the gel after only 3 days I've been

depressed one day better the next and pretty much on a roller coaster. This

feeling stinks.

>

> > From: andrenym007 <no_reply >

> > Subject: Blood test

> >

> > Date: Monday, March 1, 2010, 3:16 PM

> > Had blood test done last week and doc

> > just called to tell me that iron was somewhat low, dhea and

> > b12 were normal. Anyway I'm gonna get copy in mail and I

> > will take it from there and post results.

> >

> > I asked him to test my blood as it's been 2 weeks that I've

> > been on androgel and he refused and what's me to wait 2 more

> > weeks at least. Should I go to primary and have him test my

> > blood or wait two more weeks till I see dr barry gordon and

> > have him test my blood?

> >

> >

> >

> > ------------------------------------

> >

> >

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  • 1 month later...
Guest guest

le,In my former life... pre Hep C and a few years back I was a Medical Lab Tech. Your numbers are fine. The normal WBC count for a healthy adult is between 5 and 12. Yes, you are on the low side but this medication wipes out your immune system usually. It wouldn't be surprising for that number to go even lower. Your WBC is what we look at when you are sick to see if you have a bacterial infection or a virus. If you have a bacterial infection that number shoots up to over 20,000 if you have a virus, it's usually below 4. Going thru tx they are more concerned about your Hemoglobin level. The average person runs between 13 and 15 on that. When that number drops below 9 is when they start

talking about transfusions. That's when you start getting lightheaded and you can feel your heartbeat with every step. Sounds like for now you are all good. Let the Doc's worry about the lab work.. that's what you are paying them to do. They won't tell you something is fine if it isn't. Just hang in there and take care of yourself. Get plenty of rest and drink lots of fluids. Feel better and I hope this helps... if you need more of an explanation or if that didn't make sense.. just let me know.. I'll break it down even further for you.Teri From: dbrown715907 <dbrown715907@...> Sent: Tue, April 13, 2010 3:16:04 PMSubject:

[ ] blood test

I got my blood results today and was wondering when I started treatment on 3/25 my wbc was 12.55 and now test done 4/7 it is down to 4.3 dr says that it is decent? idk. I have been feeling like hell latley shoud I be woried about this? thanks le

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Thank you Teri

One of the nice thing about this group is that those with the know, help those who dont know.

Including me.

Sometimes I can answer stuff, other times I just have to provide links.

It really helps when someone can break it down into laymans terms for the rest of us.

love

don in ks

From: Teri Gottlieb <theresagottlieb@...>Subject: Re: [ ] blood test Date: Tuesday, April 13, 2010, 4:32 PM

Basic blood work I can still handle! Now start giving me crazy stuff and I'll have to crack the books out... all of which I have. I even have a ton of books from my new doc who gave me his med school stuff! I have resources!And I keep cutting my hair so getting any information thru there is probably impossible... Doesn't work as antennae like yours does... not sure I'd want it to either.Still cracking up in Chicago,Teri

From: Christ <ludichrist2000@...> Sent: Tue, April 13, 2010 4:08:59 PMSubject: Re: [ ] blood test

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