Help

[Guest guest]

Thanks for the input. I appreciate all avenues of thought and will have

everything checked out. I am a little uncomfortable giving seizure medicine

unless they find seizures, but at the same time we have a violent 17 year old

who can easily put me away and hold his own with his Dad. It seems that he is

getting some kind of satisfaction out of pulling us into this power struggle to

keep him from hurting himself. I noticed yesterday him going to the mirror to

see how much damage he had done to his head. We are a mild mannering peaceful

family. We don't understand this and are at a loss for a solution.

 

Thanks again. You gave me some more avenues to look at.

 

Drissia

From: Popplewell <JPopplewell@ vmrc.net<mailto: JPopplewell %40vmrc.net> >

Subject: RE: [ ] Re: Help

" <mailto:Autism- Mercury%40g roups.com>

" < <mailto:Autism- Mercury%40g roups.com> >

Date: Thursday, May 6, 2010, 3:34 PM

This doesn't sound to me like a clear-cut case of PANDAS. As initially defined,

PANDAS should begin before the onset of puberty and I expect a 17 year old has

passed puberty. Additionally, PANDAS includes tics or obsessive-compulsiv e

behavior; head-banging may fall under this heading but seems a little extreme.

Of more concern is the suggestion of autonomic involvement reflected in the

pallor and episodic blue lips. While there is probably little harm involved in

taking penicillin until age 21, I would recommend against stopping the search

for other causes. Did the EEG include any provocative maneuvers such as flashing

lights or hyperventilation?

Jim

From: [mailto:Autism- Mercury@ groups.

com] On Behalf Of praisehim4them

Sent: Wednesday, May 05, 2010 2:49 PM

Subject: [ ] Re: Help

He has PANDAS. Tell your Ped you want his strep titers tested. Simple blood

test.

>

>

> From: yvonne kim <kmser2000@. ..>

> Subject: Re: [ ] Help

> <mailto:Autism- Mercury%40g

roups.com>

> Date: Wednesday, May 5, 2010, 9:14 AM

>

>

> Â

>

>

>

> Hi,

>

> From wht i understand, EEG only pick up seizures or any abnormality within

certain time frame. If happen today and do EEG tomorrow, you may not get the

result.

>

> Can it be PANDAS ?

>

>

>

> ____________ _________ _________ __

> From: drissia wright <ritzywright>

>

> Sent: Wednesday, May 5, 2010 21:08:02

> Subject: [ ] Help

>

> We are a little desperate here. My son is 17 and out of the blue started

exploding. He goes into a rage. The pediatrician sent him for an MRI(nothing)

and to a neurologist. They said what I was describing sounded like Temporal Lobe

seizures but the EEG showed nothing. Yesterday he had 4 episodes between 4-10pm

last night. His face turns a gray looking color, sometimes he is pale and his

lips turn blue. Swinging helps but yesterday he was just intent on beating his

head against something. He can't tell us what is going on.

>

> Any help would be appreciated.

>

> Drissia

>

>

[Guest guest]

How many drops per minute will a patient receive if and IV of 1000 ml if 5%

Dextrose Injection is run in over eigth hours? The drip factor is 15

drop/ml

remember this formula for flowrates math

V (volume)

T (time) X D (drop factor) = flowrate

when its asking for " how many gtts per min " you would have to convert the hours

given to minutes,,in this case 8 hours X 60 min= 480min

1000ml

480min X 15gtt = 31.25 gtts/min

________________________________

From: Sarpong <samuelsarpong@...>

Sent: Mon, May 17, 2010 10:45:17 AM

Subject: Help

How many drops per minute will a patient receive if and IV of 1000 ml if 5%

Dextrose Injection is run in over eigth hours? The drip factor is 15 drop/ml

[Guest guest]

Multiply the 1000 ml times 15 drop/ml (15,000). Divide that total by your 8

hours multiplied by 60 minutes (480 minutes).

15000 divided by 480 = 31.25 drops per minute.

I hope this helps.

Neal

From:

[mailto: ] On Behalf Of Sarpong

Sent: Monday, May 17, 2010 1:45 PM

Subject: Help

How many drops per minute will a patient receive if and IV of 1000 ml if 5%

Dextrose Injection is run in over eigth hours? The drip factor is 15 drop/ml

[

[Guest guest]

Dear All,

Try the tutorials in the Files section the 5th folder:

IV Flow Rates.doc

Learn what an IV Flow rate is and how to determine or calculate from ml per hour

to drops per minute via a copyrighted (July 2002) tutorial by Jeanetta Mastron

Tutorial - Folic Acid in TPN.doc

Tutorial on calculating Folic Acid for a 3L TPN complete with photos. Inspired

by a post by dandaily. May 24, 2008

Tutorial - IV Flow Rate - Time Problem.doc

A colchicine compounding problem asked on the site by microword77 (Honest Abe)

prompted this tutorial.copyrighted by Jeanetta Mastron

Feb 1, 2005

Tutorial on IV Flow Rates

Learn what an IV Flow rate is and how to determine or calculate from ml per hour

to drops per minute via a copyrighted tutorial by Jeanetta Mastron Jan 19, 2003

Tutorial on LVP with mEq KCl.doc

Most common type of problems on the PTCB exam with mEq of KCl

Hope this understandable

Jeanetta Mastron CPhT BS

Founder/Owner

>

> How many drops per minute will a patient receive if and IV of 1000 ml if 5%

> Dextrose Injection is run in over eigth hours? The drip factor is 15

> drop/ml

>

> remember this formula for flowrates math

> V (volume)

> T (time) X D (drop factor) = flowrate

>

> when its asking for " how many gtts per min " you would have to convert the

hours given to minutes,,in this case 8 hours X 60 min= 480min

>

>

> 1000ml

> 480min X 15gtt = 31.25 gtts/min

>

>

>

>

> ________________________________

> From: Sarpong <samuelsarpong@...>

>

> Sent: Mon, May 17, 2010 10:45:17 AM

> Subject: Help

>

>

> How many drops per minute will a patient receive if and IV of 1000 ml if 5%

> Dextrose Injection is run in over eigth hours? The drip factor is 15 drop/ml

>

>

[Guest guest]

Well Done Neal and Crystal! The original poster has thanked you!

I am concerned now with others who may want a bit more or a faster way. Or after

you have mastered the what you have seen on this site posting you may want to

change to this method or thinking process:

I am going to show another way. I call it 'string math' and I coined that term.

No other book or author has or can use it.

Technically it is dimensional analysis.

The problem should read:

How many drops per minute will a patient receive if an IV of 1000 ml if 5%

Dextrose Infusion is to run in over eight hours? The drip factor is 15 drop/ml

The formula or how to 'think' in solving the problem is:

Drop Factor x ml/hr x Time Conversion (hr conversion)

or simply :

DF x IV Rate x TC

or

DF x IV R x TC

15 gtts -----1000 ml --------1 hr ------ 15000 gtts

-------- x ----------- x --------- = ----------- = 31.25 gtt/min

1ml-----------8 hrs----------60 min-------480 min

If the above does not come out well in the posting due to HTML, I am also

placing the same in a diagonal way or using a 'slash ' instead of a horizontal

dash for a fraction line.

15 gtts/1ml x 1000 ml/8 hrs x 1 hr/60min

IF this looks too difficult then 'piece meal it' in baby steps:

DF x IV Rate x TC

Drop Factor TIMES

15 gtts/1ml

Drop Factor TIMES IV Rate TIMES

15 gtts/1ml X 1000 ml/8 hrs X

Drop Factor TIMES IV Rate TIMES TC

15 gtts/1ml X 1000 ml/8 hrs X 1 hr/60min

What ever method floats your boat! Which ever you are more comfortable with go

for it!

In the beginning I think the methods outlined by Crystal and Neal (as well as in

my tutorials) are best.This may use ratio/proportion and gets you to think about

each piece.

As you get more experienced doing these problems the dimensional analysis may be

a good method for you as it is quick and you are now familiar with the 'parts'

of the set up. You recognize each part: the rate ml/hr , the drop factor in

gtts/ml and you already know how to convert or the Time Conversion of 60 min/hr

Best of Luck to you all,

Jeanetta Mastron CPhT BS

Pharm Tech Educator

Founder/Owner

>

> How many drops per minute will a patient receive if and IV of 1000 ml if 5%

> Dextrose Injection is run in over eigth hours? The drip factor is 15 drop/ml

>

> >

>

>

[Guest guest]

something in this question is missing.  maybe a formula, maybe a statement

saying drug is dosed at Xmg/kg.  also if its an adult dose why is a child's

weight listed?

 

Thanks.

How about this one.

A CHILD WEIGHS 14 POUNDS WITH AN ADULT DOSE OF 100MG, WHAT WOULD BE THE FINAL

ADULT DOSE?

________________________________

From: crystal zamudio <czamudio18@...>

Sent: Tue, May 18, 2010 2:12:33 PM

Subject: Re: Help

 

How many drops per minute will a patient receive if and IV of 1000 ml if 5%

Dextrose Injection is run in over eigth hours? The drip factor is 15

drop/ml

remember this formula for flowrates math

V (volume)

T (time) X D (drop factor) = flowrate

when its asking for " how many gtts per min " you would have to convert the hours

given to minutes,,in this case 8 hours X 60 min= 480min

1000ml

480min X 15gtt = 31.25 gtts/min

________________________________

From: Sarpong <samuelsarpong@...>

Sent: Mon, May 17, 2010 10:45:17 AM

Subject: Help

How many drops per minute will a patient receive if and IV of 1000 ml if 5%

Dextrose Injection is run in over eigth hours? The drip factor is 15 drop/ml

[Guest guest]

's Rule

Child Dose=

Child wt. in lbs

150

X Adult Dose

This may be what you are looking for. Hopefully it will appear as typed. It is

’s rule. Take the child’s weight and divide it by 150 pounds and

multiply that by the normal adult dosage.

Note: The 150 pounds is supposed to be a normal adult’s weight.

From:

[mailto: ] On Behalf Of karin h

Sent: Wednesday, May 19, 2010 6:07 PM

Subject: Re: Help

something in this question is missing. maybe a formula, maybe a statement

saying drug is dosed at Xmg/kg. also if its an adult dose why is a child's

weight listed?

[Guest guest]

Karin,

There is the 's Rule which applies here, not used much any more but can be

applied. The BSA is usually used. Teh formula is a way for a doctor nurse or

pharmacist to 'guage' what a child's dose could or should be based upon an

adults dose.

So if 100 mg is given to an adult, a child of 14 lbs may be given oly 9.33 mg

based upon the 's Rule/formula.

Now of course that is ONLY if a child should be given the drug. Some drugs are

contraindicated in children.

So it should then be more like:

Using 's Rule, a drug is not contraindicated in children and given as 100

mg to an adult, would be dosed as 9.33 mg for a 14 lb child.

Child's Wt in Lbs X Adult Dose

------------------------------ = Child's dose

150 lbs

14 lbs x 100 mg

---------------- = Child's Dose = 9.33mg

150 lbs

Not used much, but a good exercise in calculations. So I guess this is why PTCB

still uses this formula. At least it is still in the study books.

Any newbies know for sure if this formula is on a recent PTCB exam? Not asking

if the problem is, but is the topic of 's Rule on the exam? Pediatric

Dosing?

Jeanetta Mastron CPhT BS

Founder/Owner

>

>

>

>

>

> Thanks.

> How about this one.

>

> A CHILD WEIGHS 14 POUNDS WITH AN ADULT DOSE OF 100MG, WHAT WOULD BE THE FINAL

ADULT DOSE?

>

>

>

> ________________________________

> From: crystal zamudio <czamudio18@...>

>

> Sent: Tue, May 18, 2010 2:12:33 PM

> Subject: Re: Help

>

>  

> How many drops per minute will a patient receive if and IV of 1000 ml if 5%

> Dextrose Injection is run in over eigth hours? The drip factor is 15

> drop/ml

>

> remember this formula for flowrates math

> V (volume)

> T (time) X D (drop factor) = flowrate

>

> when its asking for " how many gtts per min " you would have to convert the

hours given to minutes,,in this case 8 hours X 60 min= 480min

>

> 1000ml

> 480min X 15gtt = 31.25 gtts/min

>

> ________________________________

> From: Sarpong <samuelsarpong@...>

>

> Sent: Mon, May 17, 2010 10:45:17 AM

> Subject: Help

>

> How many drops per minute will a patient receive if and IV of 1000 ml if 5%

> Dextrose Injection is run in over eigth hours? The drip factor is 15 drop/ml

>

>

[Guest guest]

I can't help you with the implant issues but until you figure that part out you

did not mention trying antihistamines for the hives before being put on the

steroids. Some folks respond to antihistamines (even metal allergies) while

trying to figure out what is causing their allergy and others do not.

I had two years of chronic (constant) urticaria (not from any orthopedic implant

or ortho related product) which caused me to have to take a 24 hr non sleepy

antihistamine every day or keep a certain level in mys system daily. I think I

got it down to where 1/2 of an RX size dose would work daily or a full dose

every other day but I had to keep it in my system constantly to ward off the

hives which were popping up in no special place but anywhere and pretty much

everywhere I was not wanting them.

To this day so far whenever I get a few hrs worth of acute hives from one or

another of my known causes of hives I seem to be able to take any of the

antihistamines (4 hr sleepy causing types all the way to the 24 hrs non sleepy

types) depending on how long I anticipate the attack to last and/or if the

itching is threatening to cause me infection or severely upsetting my social or

work life at the time.

Maybe you should go back to your primary to see what allergy testing she might

suggest and where you could go to get tested.

LEANN

>

> dear friends,

>

> i am hoping some of you can help me out with some advice or wisdom on my

current situation?!? dear friends,

>

> i had a THR one year ago last week...posterior entrance after a previous femur

> fracture had lead to degenerative joint disease.

> long hospital stay...long recovery...

>

> what im experiencing now is persistent pain (4-7 on the pain scale) that

> restricts activityand causes me to limp and curse all too often...

> im otherwise healthy 52years old, with no other health problems excepting

> osteoporosis.

> right now i have been struggling with this chronic pain, despite rest or

> exercise or vicodan...

> and SEVERE systemic rashes that have been recurring in the past few months.

>

> currently the rash seems to have centered on my left hip and glut area, and i

have extremely itchy welts on my hip and leg., large hive like welts.

> saw my primary care doc a few months back, she prescribed steroids which

seemed to

> put the rashes into

> remission for a bit...but now it is back...( im ready to scratch my skin off!)

>

> does anyone share my experience or have any ideas what could be going on in my

> body??

> im very disheartened and frustrated...at last check my hip doc said it looked

> " perfect " on the x ray and poo pooed my questions/concerns about possible

metal

> sensitivities...

>

> would so appreciate any advice or wisdom on this matter...

>

> thanks so much

>

> celaine

>

[Guest guest]

I hope and pray your hives disappear soon even if for reason's unknown as

suddenly and mysteriously as my chronic form (long lasting ones) did. Maybe

someone else on here can help more than I have.

LEANN

> >

> > dear friends,

> >

> > i am hoping some of you can help me out with some advice or wisdom on my

current situation?!? dear friends,

> >

> > i had a THR one year ago last week...posterior entrance after a previous

femur

> > fracture had lead to degenerative joint disease.

> > long hospital stay...long recovery...

> >

> > what im experiencing now is persistent pain (4-7 on the pain scale) that

> > restricts activityand causes me to limp and curse all too often...

> > im otherwise healthy 52years old, with no other health problems excepting

> > osteoporosis.

> > right now i have been struggling with this chronic pain, despite rest or

> > exercise or vicodan...

> > and SEVERE systemic rashes that have been recurring in the past few months.

> >

> > currently the rash seems to have centered on my left hip and glut area, and

i have extremely itchy welts on my hip and leg., large hive like welts.

> > saw my primary care doc a few months back, she prescribed steroids which

seemed to

> > put the rashes into

> > remission for a bit...but now it is back...( im ready to scratch my skin

off!)

> >

> > does anyone share my experience or have any ideas what could be going on in

my

> > body??

> > im very disheartened and frustrated...at last check my hip doc said it

looked

> > " perfect " on the x ray and poo pooed my questions/concerns about possible

metal

> > sensitivities...

> >

> > would so appreciate any advice or wisdom on this matter...

> >

> > thanks so much

> >

> > celaine

> >

>

[Guest guest]

Jen,At this point I am concerned about your doctors way of doing things.  Is he a gastro or a liver specialist or just a GP?  

The Interfuron does not cause the anemia..  the Ribavirin does.  He should know this.  A half dose of Interfuron isn't going to do much to kick the Hep C.  And 1200 mg's of Ribavirin a day is within the recommended dosage but you could go lower on that and still have the benefit of the drug but without the Interfuron at a full dosage I'm tending to think you might be spinning  your wheels.   This is the point where I personally would exit stage left and find another doctor post haste!  

Pro-Crit is a weekly shot that you take that helps stimulate red blood cells.  The other option is a blood transfusion but only if you are very anemic.  

My doctor made sure that I was not anemic prior to treatment.  I had been anemic my whole life and that wasn't going to fly with him during tx.  I had female procedures done to fix that issue and had to be in good shape blood wise to start tx.  My blood counts started tanking about my 4th week into treatment.  I had my first blood transfusion at week 6.  I was taking more than double the amount of Ribavirin you are taking and the maximum dosage of Interfuron.  

There are, in fact, some other options out there for Hep C, however, I have not heard of anything that will rid that virus from your system other than this treatment.  Dr. Berkenson has a treatment protocol out there that I believe consists mainly of diet changes.  SuziQ is following that and has kept her Hep C at bay for many many years.  His protocol is listed in the links library.  

I would like to know what your doctor is calling critically low.  If your blood counts are, in fact, critically low, you would know it.  You would be short of breath, extremely tired and able to feel your heart beating when you walk across a room.  The insides of your eyes will also be a very different color from the normal pink to red that they are...  Go to a mirror and look at the inside of your eyelids...  actually pull your bottom eyelid out just a bit so you can see the color there..  If they are dark pink to almost red, you're okay.. if they are almost white, you're critically anemic.  Someone who is critically anemic needs a blood transfusion.  My guess is that your blood count is showing some signs of compromise and he is panicking.   Your blood count is going to drop during treatment, but this doctor has me wondering...  His initial idea is just not making sense... the dosage that would need to be adjusted would be the Ribavirin and there comes a point when if you adjust that too low it's not able to work.  My thinking at this point would be a new doctor.  See if you can find a Hepatologist...  A Liver Disease Specialist.  They know how to play the Hep C game better than any doctors out there..  if your city or town doesn't have one, your next best bet is a Gastroenterologist.  I would not, under any circumstances let a run of the mill Family Practice guy orchestrate this treatment.  

Hang in there.. the world is not ending.  I promise you that much.  I will be more than happy to help you figure this out.  

Hugs,

TeriOn Thu, Oct 21, 2010 at 6:28 PM, Crouch <lucky2b916@...> wrote:

 

I just got a message from my doctor's office. My blood counts are critically low and he wants me to stop all meds immediately -- this after only two weeks of a half dose of interferon but a full dose of Ribavarin (3 in the morning; 3 in the evening). I started the treatment in June and 3 weeks into it he pulled me off because of the low blood counts.

Some of you expressed surprise that he halfed the Ribavarin, since that is the nastiest of the two. Is there some documentation that I can arm myself with to suggest he half the Ribavarin and keep me on the interferon? I'm going to do some research as soon as I post, but I thought maybe you could steer me in the right direction. I want to rid myself of this virus if at all possible.

I also want to look at natural or alternative possibilities and was reading last night that there is either a supplement or food source that can aid in helping remove toxins from the liver and help it regenerate (not sure I'm stating that correctly and left things I copied at the office)).

Some of you have mentioned " procrit " or something like that ... what does that do. I'm in a quandry: I want to do what I have to do to get well, am physically and mentally prepared, but now this again. I don't even feel that tired or dizzy. Suggestions appreciated.

Don: get well soon.

Hugs to everyone,

Jen

--  

Teri GottliebIndependent Kay Beauty ConsultantHow old you are is your business.  How old you look is mine.

847-738-8688www.marykay.com/terigottlieb

Start your own Kay Business for $100.00http://www.marykay.com/terigottlieb/sellmarykay/default.aspx

MOVE ON.  It's just a chapter in the past, but don't close the book.  Just turn the page.

[Guest guest]

Hi Jen,

I do Dr Burt Berkson's protocol. I have also been to see him. I trust him and

his protocol. Just a few simple supplements--that he does not sell.

Here are some links to info on him.

www.Berkson_Lipoic_Final

www.Berkson%20clinical20%study

www.youtube.com type in LDN conference 2009 Dr Berkson and you can see some

lectures by him.

I have more info if you feel you would be interested in having it or if these

don't come up. I can email them direct to you--too much to post.

Thanks Teri for letting Jen know about him. Couldn't find him in the Links, but

I'm not great at that

SuziQ

>

> I just got a message from my doctor's office. My blood counts are critically

low and he wants me to stop all meds immediately -- this after only two weeks of

a half dose of interferon but a full dose of Ribavarin (3 in the morning; 3 in

the evening). I started the treatment in June and 3 weeks into it he pulled me

off because of the low blood counts.

>

> Some of you expressed surprise that he halfed the Ribavarin, since that is the

nastiest of the two. Is there some documentation that I can arm myself with to

suggest he half the Ribavarin and keep me on the interferon? I'm going to do

some research as soon as I post, but I thought maybe you could steer me in the

right direction. I want to rid myself of this virus if at all possible.

>

> I also want to look at natural or alternative possibilities and was reading

last night that there is either a supplement or food source that can aid in

helping remove toxins from the liver and help it regenerate (not sure I'm

stating that correctly and left things I copied at the office)).

>

> Some of you have mentioned " procrit " or something like that ... what does that

do. I'm in a quandry: I want to do what I have to do to get well, am physically

and mentally prepared, but now this again. I don't even feel that tired or

dizzy. Suggestions appreciated.

>

> Don: get well soon.

>

> Hugs to everyone,

> Jen

>

[Guest guest]

I was hoping you'd jump in sweetie!  Thanks!

On Thu, Oct 21, 2010 at 7:59 PM, SuziQ <ancientkron@...> wrote:

 

Hi Jen,

I do Dr Burt Berkson's protocol. I have also been to see him. I trust him and his protocol. Just a few simple supplements--that he does not sell.

Here are some links to info on him.

www.Berkson_Lipoic_Final

www.Berkson%20clinical20%study

www.youtube.com type in LDN conference 2009 Dr Berkson and you can see some lectures by him.

I have more info if you feel you would be interested in having it or if these don't come up. I can email them direct to you--too much to post.

Thanks Teri for letting Jen know about him. Couldn't find him in the Links, but I'm not great at that

SuziQ

>

> I just got a message from my doctor's office. My blood counts are critically low and he wants me to stop all meds immediately -- this after only two weeks of a half dose of interferon but a full dose of Ribavarin (3 in the morning; 3 in the evening). I started the treatment in June and 3 weeks into it he pulled me off because of the low blood counts.

>

> Some of you expressed surprise that he halfed the Ribavarin, since that is the nastiest of the two. Is there some documentation that I can arm myself with to suggest he half the Ribavarin and keep me on the interferon? I'm going to do some research as soon as I post, but I thought maybe you could steer me in the right direction. I want to rid myself of this virus if at all possible.

>

> I also want to look at natural or alternative possibilities and was reading last night that there is either a supplement or food source that can aid in helping remove toxins from the liver and help it regenerate (not sure I'm stating that correctly and left things I copied at the office)).

>

> Some of you have mentioned " procrit " or something like that ... what does that do. I'm in a quandry: I want to do what I have to do to get well, am physically and mentally prepared, but now this again. I don't even feel that tired or dizzy. Suggestions appreciated.

>

> Don: get well soon.

>

> Hugs to everyone,

> Jen

>

--  

Teri GottliebIndependent Kay Beauty ConsultantHow old you are is your business.  How old you look is mine.

847-738-8688www.marykay.com/terigottlieb

Start your own Kay Business for $100.00http://www.marykay.com/terigottlieb/sellmarykay/default.aspx

MOVE ON.  It's just a chapter in the past, but don't close the book.  Just turn the page.

[Guest guest]

Hey back to you both:

Thanks for the input! I had taken a brief look at Dr. Berkson's eating

suggestions the other evening but haven't had time to delve into it. I will

follow up when I have more time this weekend and I may want additional

information because I want to fight this on as many fronts as I can. I talked

with my trainer yesterday and he is prepared to help me exercise-wise and diet

wise (to the degree he can on that front) because it is a challenge for him to

keep me healthy.

My doctor is a gastroenterologist (sp?) and has experience with treating Hep C

patients ... but I don't know how many or for how lon. Also, just read that

immunizations and other things like should be discussed with the doc before

doing them. I took a flu shot last week without having a thought about doing it

.... could that have impacted my blood counts?

My eyes seem to be pink to red and I'm not overly fatigued at all. I plan to ask

what my counts are and about the Ribavirin dosage when I go in. I do think he is

being overly reactive. I will also ask him about procrit and transfusions.The

blood doc I went to back in July said he would recommend I continue treatment

and monitor the blood counts, so I am taken aback by this recommendation, again,

particularly when I don't feel bad.

Thank you both for your help. Big hugs,

Jen

> > >

> > > I just got a message from my doctor's office. My blood counts are

> > critically low and he wants me to stop all meds immediately -- this after

> > only two weeks of a half dose of interferon but a full dose of Ribavarin (3

> > in the morning; 3 in the evening). I started the treatment in June and 3

> > weeks into it he pulled me off because of the low blood counts.

> > >

> > > Some of you expressed surprise that he halfed the Ribavarin, since that

> > is the nastiest of the two. Is there some documentation that I can arm

> > myself with to suggest he half the Ribavarin and keep me on the interferon?

> > I'm going to do some research as soon as I post, but I thought maybe you

> > could steer me in the right direction. I want to rid myself of this virus if

> > at all possible.

> > >

> > > I also want to look at natural or alternative possibilities and was

> > reading last night that there is either a supplement or food source that can

> > aid in helping remove toxins from the liver and help it regenerate (not sure

> > I'm stating that correctly and left things I copied at the office)).

> > >

> > > Some of you have mentioned " procrit " or something like that ... what does

> > that do. I'm in a quandry: I want to do what I have to do to get well, am

> > physically and mentally prepared, but now this again. I don't even feel that

> > tired or dizzy. Suggestions appreciated.

> > >

> > > Don: get well soon.

> > >

> > > Hugs to everyone,

> > > Jen

> > >

> >

> >

> >

>

>

>

> --

>

> Teri Gottlieb

> Independent Kay Beauty Consultant

>

> How old you are is your business. How old you look is mine.

> 847-738-8688

> www.marykay.com/terigottlieb

>

> Start your own Kay Business for $100.00

> http://www.marykay.com/terigottlieb/sellmarykay/default.aspx

>

>

> MOVE ON. It's just a chapter in the past, but don't close the book. Just

> turn the page.

>

[Guest guest]

I am really concerned about the half dosage of Interfuron..  Not sure its enough to do the deed.  If your eye lids look okay, you're probably fine..  Mine turned white!  I had two transfusions and then went on Pro-Crit for several months...  My treatment was never even compromised.  Go in there with questions that are on point.  

What are my numbers?   If your Hemoglobin is over 9, you are FINE.

Why the decrease in the Interfuron and not the Ribavirin?  Let him know that you know it's the Ribavirin that destroys the blood cells.

The flu shot wouldn't affect treatment.. I was made to have a flu shot and a pneumonia shot on tx.  

Hugs,Teri

On Thu, Oct 21, 2010 at 8:27 PM, Crouch <lucky2b916@...> wrote:

 

Hey back to you both:

Thanks for the input! I had taken a brief look at Dr. Berkson's eating suggestions the other evening but haven't had time to delve into it. I will follow up when I have more time this weekend and I may want additional information because I want to fight this on as many fronts as I can. I talked with my trainer yesterday and he is prepared to help me exercise-wise and diet wise (to the degree he can on that front) because it is a challenge for him to keep me healthy.

My doctor is a gastroenterologist (sp?) and has experience with treating Hep C patients ... but I don't know how many or for how lon. Also, just read that immunizations and other things like should be discussed with the doc before doing them. I took a flu shot last week without having a thought about doing it ... could that have impacted my blood counts?

My eyes seem to be pink to red and I'm not overly fatigued at all. I plan to ask what my counts are and about the Ribavirin dosage when I go in. I do think he is being overly reactive. I will also ask him about procrit and transfusions.The blood doc I went to back in July said he would recommend I continue treatment and monitor the blood counts, so I am taken aback by this recommendation, again, particularly when I don't feel bad.

Thank you both for your help. Big hugs,

Jen

> > >

> > > I just got a message from my doctor's office. My blood counts are

> > critically low and he wants me to stop all meds immediately -- this after

> > only two weeks of a half dose of interferon but a full dose of Ribavarin (3

> > in the morning; 3 in the evening). I started the treatment in June and 3

> > weeks into it he pulled me off because of the low blood counts.

> > >

> > > Some of you expressed surprise that he halfed the Ribavarin, since that

> > is the nastiest of the two. Is there some documentation that I can arm

> > myself with to suggest he half the Ribavarin and keep me on the interferon?

> > I'm going to do some research as soon as I post, but I thought maybe you

> > could steer me in the right direction. I want to rid myself of this virus if

> > at all possible.

> > >

> > > I also want to look at natural or alternative possibilities and was

> > reading last night that there is either a supplement or food source that can

> > aid in helping remove toxins from the liver and help it regenerate (not sure

> > I'm stating that correctly and left things I copied at the office)).

> > >

> > > Some of you have mentioned " procrit " or something like that ... what does

> > that do. I'm in a quandry: I want to do what I have to do to get well, am

> > physically and mentally prepared, but now this again. I don't even feel that

> > tired or dizzy. Suggestions appreciated.

> > >

> > > Don: get well soon.

> > >

> > > Hugs to everyone,

> > > Jen

> > >

> >

> >

> >

>

>

>

> --

>

> Teri Gottlieb

> Independent Kay Beauty Consultant

>

> How old you are is your business. How old you look is mine.

> 847-738-8688

> www.marykay.com/terigottlieb

>

> Start your own Kay Business for $100.00

> http://www.marykay.com/terigottlieb/sellmarykay/default.aspx

>

>

> MOVE ON. It's just a chapter in the past, but don't close the book. Just

> turn the page.

>

--  

Teri GottliebIndependent Kay Beauty ConsultantHow old you are is your business.  How old you look is mine.

847-738-8688www.marykay.com/terigottlieb

Start your own Kay Business for $100.00http://www.marykay.com/terigottlieb/sellmarykay/default.aspx

MOVE ON.  It's just a chapter in the past, but don't close the book.  Just turn the page.

[Guest guest]

TrudyI don't recommend what I did with the Riba during my first tx; but, by the end of the 48 weeks, I had a full box of Riba left. However, I also had HepC still, as well. Nobody believes that missing the Riba's had anything to do with the virus mutating though, since it only happened late in my course.Is there anyway you can count your Riba that is left and see if you come up with two extra - or is it three? Anyway, that's what I would do. Don't lose any sleep over last nights pills and give yourself some time before drinking more water that is going to make you throw up.Please don't worry, you are showing that you kicked the butt of the dragon. Now, you are in count down mode

and that's when I started to just get tired of swallowing pills.Gloria

Hey guys, last night I believe I threw up my Riba. This morning I was taking meds & got distracted.( pain issues). I am pretty sure I haven't taken this mornings Riba; take them now? Even toh it COULD be a double dose. Sometimes I throw up other meds, but never the Riba till last night. And even then , I'm not sure.

http://facebook.com/people/andTrudy-Kinsey/1340460877 "

"A well- behaved woman never made history"...Mae West

http://oktravels.wordpress.com

http://allrecipes.com/cook/TrudyK/profile.aspx

[Guest guest]

Trudy, I would not take it if your not sure. My doctor took me off the Riba's for 2 weeks when I had that rash and at my 16 week check up I was still undectable and Hep C negative. I would rather not take it then to double dose yourself on that nasty stuff. I have to set the alarm on my cell phone so I remember to take them, then I don't turn the alarm off until I have put the pills in my mouth. LOL Sad but I have a lot going on, it's hard to keep up with everything, Good luck

[Guest guest]

Yep, I have a routine, got distracted looking to see how many Scripts need refilling. Thx!http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx On Dec 16, 2010, at 12:38 PM, Honey1962@... wrote:

Trudy, I would not take it if your not sure. My doctor took me off the Riba's for 2 weeks when I had that rash and at my 16 week check up I was still undectable and Hep C negative. I would rather not take it then to double dose yourself on that nasty stuff. I have to set the alarm on my cell phone so I remember to take them, then I don't turn the alarm off until I have put the pills in my mouth. LOL Sad but I have a lot going on, it's hard to keep up with everything, Good luck

[Guest guest]

Call the doctor Trudy....  Not going to even try to tell you what to do on this one..  I know what my initial response would be but I'm not going to even open my mouth.  Call the doctor and ask him what to do.  

Let me know what he says..Hugs,TeriOn Thu, Dec 16, 2010 at 11:25 AM, trudykinsey@... <trudykinsey@...> wrote:

 

Hey guys, last night I believe I threw up my Riba. This morning I was taking meds & got distracted.( pain issues). I am pretty sure I haven't taken this mornings Riba; take them now? Even toh it COULD be a double dose. Sometimes I throw up other meds, but never the Riba till last night. And even then , I'm not sure.

http://facebook.com/people/andTrudy-Kinsey/1340460877 "

" A well- behaved woman never made history " ...Mae West

http://oktravels.wordpress.com

http://allrecipes.com/cook/TrudyK/profile.aspx

[Guest guest]

Now THAT is a really good idea!  Set the alarm on your cell phone to remember to take your pills!  I LOVE THAT IDEA!Hugs,TeriOn Thu, Dec 16, 2010 at 12:38 PM, <Honey1962@...> wrote:

 

Trudy, I would not take it if your not sure.  My doctor took me off the Riba's for 2 weeks when I had that rash and at my 16 week check up I was still undectable and Hep C negative.  I would rather not take it then to double dose yourself on that nasty stuff.  I have to set the alarm on my cell phone so I remember to take them, then I don't turn the alarm off until I have put the pills in my mouth.  LOL  Sad but I have a lot going on, it's hard to keep up with everything,  Good luck

 

 

[Guest guest]



I had a whole jug left over too..I have different ones, 600 mg tabs and they r not as harsh to my stomach. I saw the doc today and I still have a viral load...it's only 160 but man I was hoping 0. My rash is full blown, guess I'll be setting another record for cutanious outbreak..gotta be good at something!She gave me a lab slip for tomorrow and maybe it'll be 0 this time. All other bloodwork was good. Not dwelling on VL as we all know true test is when TX is over.

Pam

Re: [ ] Help

TrudyI don't recommend what I did with the Riba during my first tx; but, by the end of the 48 weeks, I had a full box of Riba left. However, I also had HepC still, as well. Nobody believes that missing the Riba's had anything to do with the virus mutating though, since it only happened late in my course.Is there anyway you can count your Riba that is left and see if you come up with two extra - or is it three? Anyway, that's what I would do. Don't lose any sleep over last nights pills and give yourself some time before drinking more water that is going to make you throw up.Please don't worry, you are showing that you kicked the butt of the dragon. Now, you are in count down mode and that's when I started to just get tired of swallowing pills.Gloria

Hey guys, last night I believe I threw up my Riba. This morning I was taking meds & got distracted.( pain issues). I am pretty sure I haven't taken this mornings Riba; take them now? Even toh it COULD be a double dose. Sometimes I throw up other meds, but never the Riba till last night. And even then , I'm not sure.http://facebook.com/people/andTrudy-Kinsey/1340460877 ""A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.comhttp://allrecipes.com/cook/TrudyK/profile.aspx

[Guest guest]

What an excellent idea!! The only thing to remember, is if you go out, you'd better have the pills with you.I use the alarm on my cell to wake me up too. It's so annoying when I leave it downstairs because it doesn't quit until I manually get out of bed and come down and make it stop.Gloria

Trudy, I would not take it if your not sure. My doctor took me off the Riba's for 2 weeks when I had that rash and at my 16 week check up I was still undectable and Hep C negative. I would rather not take it then to double dose yourself on that nasty stuff. I have to set the alarm on my cell phone so I remember to take them, then I don't turn the alarm off until I have put the pills in my mouth. LOL Sad but I have a lot going on, it's hard to keep up with everything, Good luck

[Guest guest]

PamThat's very good, not stressing about the VL. As I heard it once, worrying is like sitting on a rocking horse - lots of action; but, you're going nowhere.Please remind me what week you are in with your meds. Besides, I have to have a candle for you as well. I'm putting your name on one right now. Do you do your shots on a Friday night??Gloria



I had a whole jug left over too..I have different ones, 600 mg tabs and they r not as harsh to my stomach. I saw the doc today and I still have a viral load...it's only 160 but man I was hoping 0. My rash is full blown, guess I'll be setting another record for cutanious outbreak..gotta be good at something!She gave me a lab slip for tomorrow and maybe it'll be 0 this time. All other bloodwork was good. Not dwelling on VL as we all know true test is when TX is over.

Pam

Re: [ ] Help

TrudyI don't recommend what I did with the Riba during my first tx; but, by the end of the 48 weeks, I had a full box of Riba left. However, I also had HepC still, as well. Nobody believes that missing the Riba's had anything to do with the virus mutating though, since it only happened late in my course.Is there anyway you can count your Riba that is left and see if you come up with two extra - or is it three? Anyway, that's what I would do. Don't lose any sleep over last nights pills and give yourself some time before drinking more water that is going to make you throw up.Please don't worry, you are showing that you kicked the butt of the dragon. Now, you are in count down mode and that's when I started to just get tired of swallowing pills.Gloria

Hey guys, last night I believe I threw up my Riba. This morning I was taking meds & got distracted.( pain issues). I am pretty sure I haven't taken this mornings Riba; take them now? Even toh it COULD be a double dose. Sometimes I throw up other meds, but never the Riba till last night. And even then , I'm not sure.http://facebook.com/people/andTrudy-Kinsey/1340460877 ""A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.comhttp://allrecipes.com/cook/TrudyK/profile.aspx

[Guest guest]



Thanks Gloria,

I'm week 6. I do shots friday mornings after kids go to school.I feel the most tired on Thursdays.Weird. I do the shot then clean and do my running.I really don't feel any different. I did talk to the doc about my panicy feelings and might try the lexipro after the holidays.I just feel sooo sick taking that stuff. Pam Re: [ ] Help

TrudyI don't recommend what I did with the Riba during my first tx; but, by the end of the 48 weeks, I had a full box of Riba left. However, I also had HepC still, as well. Nobody believes that missing the Riba's had anything to do with the virus mutating though, since it only happened late in my course.Is there anyway you can count your Riba that is left and see if you come up with two extra - or is it three? Anyway, that's what I would do. Don't lose any sleep over last nights pills and give yourself some time before drinking more water that is going to make you throw up.Please don't worry, you are showing that you kicked the butt of the dragon. Now, you are in count down mode and that's when I started to just get tired of swallowing pills.Gloria

Hey guys, last night I believe I threw up my Riba. This morning I was taking meds & got distracted.( pain issues). I am pretty sure I haven't taken this mornings Riba; take them now? Even toh it COULD be a double dose. Sometimes I throw up other meds, but never the Riba till last night. And even then , I'm not sure.http://facebook.com/people/andTrudy-Kinsey/1340460877 ""A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.comhttp://allrecipes.com/cook/TrudyK/profile.aspx

[Guest guest]

Wow Pam, you are brave. I couldn't imagine doing a shot in the morning and then cleaning and other chores!! Sure, I was never nauseous but the fatigue would put me down.Gloria



Thanks Gloria,

I'm week 6. I do shots friday mornings after kids go to school.I feel the most tired on Thursdays.Weird. I do the shot then clean and do my running.I really don't feel any different. I did talk to the doc about my panicy feelings and might try the lexipro after the holidays.I just feel sooo sick taking that stuff. Pam Re: [ ] Help

TrudyI don't recommend what I did with the Riba during my first tx; but, by the end of the 48 weeks, I had a full box of Riba left. However, I also had HepC still, as well. Nobody believes that missing the Riba's had anything to do with the virus mutating though, since it only happened late in my course.Is there anyway you can count your Riba that is left and see if you come up with two extra - or is it three? Anyway, that's what I would do. Don't lose any sleep over last nights pills and give yourself some time before drinking more water that is going to make you throw up.Please don't worry, you are showing that you kicked the butt of the dragon. Now, you are in count down mode and that's when I started to just get tired of swallowing pills.Gloria

Hey guys, last night I believe I threw up my Riba. This morning I was taking meds & got distracted.( pain issues). I am pretty sure I haven't taken this mornings Riba; take them now? Even toh it COULD be a double dose. Sometimes I throw up other meds, but never the Riba till last night. And even then , I'm not sure.http://facebook.com/people/andTrudy-Kinsey/1340460877 ""A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.comhttp://allrecipes.com/cook/TrudyK/profile.aspx