Re: Still not sure..

[Guest guest]

>

> I am a newbie here and have read through most of the discussions I was able to

find in the " search " , but still am uncertain if I have an appropriate answer.

>

> I do not have MS, but am on a a long-term, combination antibiotic protocol (am

in year 2). I also have NO thyroid and have taken Armour for over 10 years (no

problems keeping that in check) I also have adrenal insufficiency and take

Cortef (5 mg 4/day) and have for over a year.

>

> Since I became ill in 2007, and started the antibiotics, I have become

disabled and now have severe CFS and FM. My doc and I truly believe it is a

result of the antibiotics killing the bacteria (similar to the repercussions of

Lyme and its treatment).

>

> He now wants me to start LDN (at the very lowest dose -- 1.5 mg.) I have read

the information on the LDN site and saw the precautionary info re " steriods " and

thyroid replacement but am not sure if this dose (physiological) of Cortef

falls into the category of needing to be concerned; but, it IS a steriod.

>

> When I expressed my concerns about this to my doctor he said there are no

contraindictions. I still have concerns. He is wanting me to start at 1.5 mg

and get up to 3 mg as quickly as I can..

>

> I hope I am not beating a dead horse here....any input or advice with your

experience would be greatly appreciated as I didn't really find a specific

answer.. just something about contacting one of this site's doctors (?)

>

> Thank you much.

>

> Jeanne

>===========

the type of steroid(cortef) you are on should pose no problem for LDN BUT, if

you have candida yeast from the antibiotics, LDN may do nothing for you. Have

your doctor run an OAT(Organic Acid Test)-urinary dysbiosis test to check you

for candida yeast. the yeast must be dealt with.

[Guest guest]

I am also new to LDN and taking 3 mg. After taking it for 8 days and

being told that Cortisone would not be a problem with LDN by a Reg Nurse

also taking it , I got a cortisone shot for a foot problem. Several

hours after the shot, I took LDN and felt a " rush " in my entire body

within 30 min. Also felt very tired. the next morning, after arising

and before breakfast, I stood up and suddenly felt faint. I didn't,

after sitting down, the feeling subsided. I didn't take LDN for 2 days .

The cortisone took away all my joint pain-entire body for 48 hours!

After resuming the LDNon the 3rd day, all the joint pain came back! i am

having doubts that LDN is as safe as everyone says and that it works for

me . I have chronic pain and osteoarthrits. Dr's seem to be giving

conflicting advise re. side effects with other meds.

>

> I am a newbie here and have read through most of the discussions I was

able to find in the " search " , but still am uncertain if I have an

appropriate answer.

>

> I do not have MS, but am on a a long-term, combination antibiotic

protocol (am in year 2). I also have NO thyroid and have taken Armour

for over 10 years (no problems keeping that in check) I also have

adrenal insufficiency and take Cortef (5 mg 4/day) and have for over a

year.

>

> Since I became ill in 2007, and started the antibiotics, I have become

disabled and now have severe CFS and FM. My doc and I truly believe it

is a result of the antibiotics killing the bacteria (similar to the

repercussions of Lyme and its treatment).

>

> He now wants me to start LDN (at the very lowest dose -- 1.5 mg.) I

have read the information on the LDN site and saw the precautionary info

re " steriods " and thyroid replacement but am not sure if this dose

(physiological) of Cortef falls into the category of needing to be

concerned; but, it IS a steriod.

>

> When I expressed my concerns about this to my doctor he said there are

no contraindictions. I still have concerns. He is wanting me to start at

1.5 mg and get up to 3 mg as quickly as I can..

>

> I hope I am not beating a dead horse here....any input or advice with

your experience would be greatly appreciated as I didn't really find a

specific answer.. just something about contacting one of this site's

doctors (?)

>

> Thank you much.

>

> Jeanne

>

[Guest guest]

Cortisone is a steroid. It suppresses immune response. You may expect an RN to

know what is compatible or not, but if she has never needed cortisone she may

not know how it can affect a person using LDN. I don't believe your experience

shows LDN to be dangerous. Steroids can be dangerous and they have specifically

been contraindicated for use with LDN.

Is there a non-opioid pain reliever you can use with LDN?

Jaco

> From: paec60 <paec60@...>

> Subject: [low dose naltrexone] Re: Still not sure..

> low dose naltrexone

> Date: Saturday, March 28, 2009, 9:45 PM

>

> I am also  new to LDN and taking 3 mg. After taking it

> for 8 days and

> being told that Cortisone would not be a problem with LDN

> by a Reg Nurse

> also taking it , I got a cortisone shot for a foot problem.

> Several

> hours after the shot, I took LDN and felt a " rush " in my

> entire body

> within 30 min. Also felt very tired. the next morning,

> after arising

> and before breakfast, I stood up and suddenly felt faint. I

> didn't,

> after sitting down, the feeling subsided. I didn't take LDN

> for 2 days .

>

>

>

> The cortisone  took away all my joint pain-entire body

> for 48 hours!

> After resuming the LDNon the 3rd day, all the joint pain

> came back! i am

> having doubts that LDN is as safe as everyone says and that

> it works for

> me . I have chronic pain and osteoarthrits. Dr's seem to

> be  giving

> conflicting advise  re. side effects with other meds.

>

>

>

>

>

>

>

> >

> > I am a newbie here and have read through most of the

> discussions I was

> able to find in the " search " , but still am uncertain if I

> have an

> appropriate answer.

> >

> > I do not have MS, but am on a a long-term, combination

> antibiotic

> protocol (am in year 2). I also have NO thyroid and have

> taken Armour

> for over 10 years (no problems keeping that in check) I

> also have

> adrenal insufficiency and take Cortef (5 mg 4/day) and have

> for over a

> year.

> >

> > Since I became ill in 2007, and started the

> antibiotics, I have become

> disabled and now have severe CFS and FM. My doc and I truly

> believe it

> is a result of the antibiotics killing the bacteria

> (similar to the

> repercussions of Lyme and its treatment).

> >

> > He now wants me to start LDN (at the very lowest dose

> -- 1.5 mg.) I

> have read the information on the LDN site and saw the

> precautionary info

> re " steriods " and thyroid replacement but am not sure if

> this dose

> (physiological) of Cortef falls into the category of

> needing to be

> concerned; but, it IS a steriod.

> >

> > When I expressed my concerns about this to my doctor

> he said there are

> no contraindictions. I still have concerns. He is wanting

> me to start at

> 1.5 mg and get up to 3 mg as quickly as I can..

> >

> > I hope I am not beating a dead horse here....any input

> or advice with

> your experience would be greatly appreciated as I didn't

> really find a

> specific answer.. just something about contacting one of

> this site's

> doctors (?)

> >

> > Thank you much.

> >

> > Jeanne

> >

[Guest guest]

clip--Steroids can be dangerous and they have specifically been contraindicated for use with LDN.

huh? what am i missing on this one? everyone told me to stay on the ldn --while doing the steroids?

From: Jaco B <jaco.b7219@...>low dose naltrexone Sent: Saturday, March 28, 2009 4:59:01 PMSubject: Re: [low dose naltrexone] Re: Still not sure..

Cortisone is a steroid. It suppresses immune response. You may expect an RN to know what is compatible or not, but if she has never needed cortisone she may not know how it can affect a person using LDN. I don't believe your experience shows LDN to be dangerous. Steroids can be dangerous and they have specifically been contraindicated for use with LDN.Is there a non-opioid pain reliever you can use with LDN?Jaco> From: paec60 <paec60 (DOT) com>> Subject: [low dose naltrexone] Re: Still not sure..> low dose naltrexone> Date: Saturday, March 28, 2009, 9:45 PM> > I am also new to LDN and taking 3 mg. After taking it> for 8 days and> being told that Cortisone would not be a problem with LDN> by a Reg Nurse> also taking it , I got a cortisone shot for a foot problem.> Several> hours after the shot, I took LDN and felt a "rush" in my> entire body> within 30 min. Also felt very tired. the next morning,> after arising > and before breakfast, I stood up and suddenly felt faint. I> didn't, > after sitting down, the feeling subsided. I didn't take LDN> for 2 days .> > > > The cortisone took away all my joint pain-entire body> for 48 hours! > After resuming the LDNon the 3rd day, all the joint pain> came back! i

am> having doubts that LDN is as safe as everyone says and that> it works for> me . I have chronic pain and osteoarthrits. Dr's seem to> be giving> conflicting advise re. side effects with other meds.> > > > > > > > >> > I am a newbie here and have read through most of the> discussions I was> able to find in the "search", but still am uncertain if I> have an> appropriate answer.> >> > I do not have MS, but am on a a long-term, combination> antibiotic> protocol (am in year 2). I also have NO thyroid and have> taken Armour> for over

10 years (no problems keeping that in check) I> also have> adrenal insufficiency and take Cortef (5 mg 4/day) and have> for over a> year.> >> > Since I became ill in 2007, and started the> antibiotics, I have become> disabled and now have severe CFS and FM. My doc and I truly> believe it> is a result of the antibiotics killing the bacteria> (similar to the> repercussions of Lyme and its treatment).> >> > He now wants me to start LDN (at the very lowest dose> -- 1.5 mg.) I> have read the information on the LDN site and saw the> precautionary info> re "steriods" and thyroid replacement but am not sure if> this dose> (physiological) of Cortef falls into the category of> needing to be> concerned; but, it IS a steriod.> >> > When I expressed my concerns about this to my

doctor> he said there are> no contraindictions. I still have concerns. He is wanting> me to start at> 1.5 mg and get up to 3 mg as quickly as I can..> >> > I hope I am not beating a dead horse here....any input> or advice with> your experience would be greatly appreciated as I didn't> really find a> specific answer.. just something about contacting one of> this site's> doctors (?)> >> > Thank you much.> >> > Jeanne> >

[Guest guest]

Can LDN be taken with other medications such as tranquilizers or chemotherapy?

How about interactions with alcohol or tobacco?

LDN can be taken along with any other medication or substance, so long as it is

not narcotic-containing. Naltrexone is a pure opioid antagonist and it will

block the action of narcotics. Some examples of narcotic-containing drugs are

Ultram, morphine, Percocet, Duragesic patch and any codeine-containing

medication.

Can LDN be taken along with any of the standard medications for multiple

sclerosis?

It can, and many people with MS do this. However, all of the standard MS drugs,

with the probable exception of Copaxone, are immunosuppressant and thus tend to

oppose the beneficial immune system upregulation induced by LDN. Therefore, many

people with MS try to wean themselves away from these other medications when

they find that they are doing well on LDN.

http://www.low dose naltrexone.org/further_q_and_a.htm

>

> I am a newbie here and have read through most of the discussions I was able to

find in the " search " , but still am uncertain if I have an appropriate answer.

>

> I do not have MS, but am on a a long-term, combination antibiotic protocol (am

in year 2). I also have NO thyroid and have taken Armour for over 10 years (no

problems keeping that in check) I also have adrenal insufficiency and take

Cortef (5 mg 4/day) and have for over a year.

>

> Since I became ill in 2007, and started the antibiotics, I have become

disabled and now have severe CFS and FM. My doc and I truly believe it is a

result of the antibiotics killing the bacteria (similar to the repercussions of

Lyme and its treatment).

>

> He now wants me to start LDN (at the very lowest dose -- 1.5 mg.) I have read

the information on the LDN site and saw the precautionary info re " steriods " and

thyroid replacement but am not sure if this dose (physiological) of Cortef

falls into the category of needing to be concerned; but, it IS a steriod.

>

> When I expressed my concerns about this to my doctor he said there are no

contraindictions. I still have concerns. He is wanting me to start at 1.5 mg

and get up to 3 mg as quickly as I can..

>

> I hope I am not beating a dead horse here....any input or advice with your

experience would be greatly appreciated as I didn't really find a specific

answer.. just something about contacting one of this site's doctors (?)

>

> Thank you much.

>

> Jeanne

>

[Guest guest]

: As I have said many times before on this board, anytime someone has a

negative reaction to LDN the first question I would ask is, " What is the diet

like? " If I had a disease such as ALS or MS, I would be more than willing to see

if my dietary exogenous opioids could be causing the negative reaction to a drug

that is helping most of these people get off all their other drugs without

progression of their disease. The reason this is a worthwhile trial is that this

intolerance is affecting their general health and immunity in a negative way.

Unfortunately, sometimes it takes up to 6 months to get gluten out of the

system, so it is not so easy to test.

Celiac disease (allergy to gluten protein) which most people do not know does

not come in an " all or none " fashion; there are many degrees of celiac

intolerance. Untold numbers of people eat wheat since it is a staple food in our

society and never feel good - they have indigestion, stool irregularities,

weight issues, and never know that if they would eliminate wheat and casein they

would feel like new people. Many people who eat wheat and milk do not even know

what " feeling good " is like until they remove these foods from their diet.

Dr. JM

posted by

[Guest guest]

> >

> > I am a newbie here and have read through most of the discussions I was able

to find in the " search " , but still am uncertain if I have an appropriate answer.

> >

> > I do not have MS, but am on a a long-term, combination antibiotic protocol

(am in year 2). I also have NO thyroid and have taken Armour for over 10 years

(no problems keeping that in check) I also have adrenal insufficiency and take

Cortef (5 mg 4/day) and have for over a year.

> >

> > Since I became ill in 2007, and started the antibiotics, I have become

disabled and now have severe CFS and FM. My doc and I truly believe it is a

result of the antibiotics killing the bacteria (similar to the repercussions of

Lyme and its treatment).

> >

> > He now wants me to start LDN (at the very lowest dose -- 1.5 mg.) I have

read the information on the LDN site and saw the precautionary info re

" steriods " and thyroid replacement but am not sure if this dose (physiological)

of Cortef falls into the category of needing to be concerned; but, it IS a

steriod.

> >

> > When I expressed my concerns about this to my doctor he said there are no

contraindictions. I still have concerns. He is wanting me to start at 1.5 mg

and get up to 3 mg as quickly as I can..

> >

> > I hope I am not beating a dead horse here....any input or advice with your

experience would be greatly appreciated as I didn't really find a specific

answer.. just something about contacting one of this site's doctors (?)

> >

> > Thank you much.

> >

> > Jeanne

> >===========

>

> the type of steroid(cortef) you are on should pose no problem for LDN BUT, if

you have candida yeast from the antibiotics, LDN may do nothing for you. Have

your doctor run an OAT(Organic Acid Test)-urinary dysbiosis test to check you

for candida yeast. the yeast must be dealt with.

>

***************************************

Thanks... just as an aside, I do not have systemic yeast (been tested, but will

recommend the OAT test as mine was a blood draw) am continually taking tons of

supp's and probiotics to make sure yeast doesn't creep in on me. Jeanne

[Guest guest]

I have not been to a " Lyme Literate " doc, but tested negative for Lyme... I do

know what the bacteria that is that is the culprit and am treating it according

to a Vanderbuilt University Doctor's protocol. (C.Pneumoniae). I also tested

negative for Celiac but do watch what I eat.

The dose of Cortef (or hydrocortisone) I am taking is a " physiological " dose (in

other words it is not shutting down or stopping my adrenal function).

Cortisone and Prednisone are much much stronger. It may not be so much that LDN

is not as " safe " as everyone says.... but rather the Cortisone shot probably

should not have been given to you as it was a big hit of a steroid!!(JMHO

Jeanne

>

> : As I have said many times before on this board, anytime someone has a

negative reaction to LDN the first question I would ask is, " What is the diet

like? " If I had a disease such as ALS or MS, I would be more than willing to see

if my dietary exogenous opioids could be causing the negative reaction to a drug

that is helping most of these people get off all their other drugs without

progression of their disease. The reason this is a worthwhile trial is that this

intolerance is affecting their general health and immunity in a negative way.

Unfortunately, sometimes it takes up to 6 months to get gluten out of the

system, so it is not so easy to test.

>

> Celiac disease (allergy to gluten protein) which most people do not know does

not come in an " all or none " fashion; there are many degrees of celiac

intolerance. Untold numbers of people eat wheat since it is a staple food in our

society and never feel good - they have indigestion, stool irregularities,

weight issues, and never know that if they would eliminate wheat and casein they

would feel like new people. Many people who eat wheat and milk do not even know

what " feeling good " is like until they remove these foods from their diet.

>

> Dr. JM

>

> posted by

>

[Guest guest]

> >

> > : As I have said many times before on this board, anytime someone has

a negative reaction to LDN the first question I would ask is, " What is the diet

like? " If I had a disease such as ALS or MS, I would be more than willing to see

if my dietary exogenous opioids could be causing the negative reaction to a drug

that is helping most of these people get off all their other drugs without

progression of their disease. The reason this is a worthwhile trial is that this

intolerance is affecting their general health and immunity in a negative way.

Unfortunately, sometimes it takes up to 6 months to get gluten out of the

system, so it is not so easy to test.

> >

> > Celiac disease (allergy to gluten protein) which most people do not know

does not come in an " all or none " fashion; there are many degrees of celiac

intolerance. Untold numbers of people eat wheat since it is a staple food in our

society and never feel good - they have indigestion, stool irregularities,

weight issues, and never know that if they would eliminate wheat and casein they

would feel like new people. Many people who eat wheat and milk do not even know

what " feeling good " is like until they remove these foods from their diet.

> >

> > Dr. JM

> >

> > posted by

> >

>