Guest guest Posted March 21, 2009 Report Share Posted March 21, 2009 LIke most everyone else, tried this that and other, combined them, you name it. Found our way to end just about all of the Lyme, still Herx when treating, however all the Lyme symptoms are basically under control or gone. What is so frustrating is the chronic fatigue is totally debilitating. If it were not for that, the world would hold endless possibilities. To not be in pain, foginess, the other zillion things that accompany Lyme is great. However, to be so fatigued you can't do a thing still means no life. What do people find works for them. Open to all possibilities. Ready to join the living again. **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1220863691x1201421954/aol?redir=http:%2\ F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID %3D62%26bcd%3DMarchfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 I don't have much of a good answer for this, as I am struggling with it myself, but I know having my adrenals and thyroid checked was helpful. I am on meds for both now. Also taking IV Glutathione twice a week is a great help. And lastly, don't rule out stimulants; Adderall can make the difference between laying around frustrated on the couch and having an almost normal day for me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 , thanks for the comment on Adderall, what is your dose? Dose anybody else like a different stimulant? why? [ ] Re:When you are mostly over Lyme, yet chronic fatigue is debilitating I don't have much of a good answer for this, as I am struggling with it myself, but I know having my adrenals and thyroid checked was helpful. I am on meds for both now. Also taking IV Glutathione twice a week is a great help. And lastly, don't rule out stimulants; Adderall can make the difference between laying around frustrated on the couch and having an almost normal day for me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 Stimulants are a common treatment for the excessive daily sleepiness typical of narcolepsy. Provigil is first line treatment, but a lot of prescription plans won't cover it if you don't have the diagnosis. My daughter prefers adderall & dexedrine. Others are ritalin, concerta, vyvanse... all the drugs prescribed for ADHD. All have significant risk factors. Finding the best one & right dose is very individual. They don't take away the underlying sleepiness, but lots of time they can make it possible for you to function. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 Hi !!! glad to see you here after all of your recent health and personal challenges. When you and Blake have a chance, several are awaiting your response re the Lymefriends groups!! ( i.e. Cave) hope youre both doing better Finette [ ] Re:When you are mostly over Lyme, yet chronic fatigue is debilitating I don't have much of a good answer for this, as I am struggling with it myself, but I know having my adrenals and thyroid checked was helpful.? I am on meds for both now. ? Also taking IV Glutathione twice a week is a great help. ? And lastly, don't rule out stimulants; Adderall can make the difference between laying around frustrated on the couch and having an almost normal day for me. ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 Be careful of the stimulants and get a Dr to monitor. IF you have the slightest bit of dysautonomia from the Lyme then it may make it worse--it did just that for Evan and about 4 or 5 adults I know. Im bigger on natural--look up " natural stimulants " or " herbal stimulants " and again go carefully. F Re: [ ] Re:When you are mostly over Lyme, yet chronic fatigue is debilitating , thanks for the comment on Adderall, what is your dose? Dose anybody else like a different stimulant? why? [ ] Re:When you are mostly over Lyme, yet chronic fatigue is debilitating I don't have much of a good answer for this, as I am struggling with it myself, but I know having my adrenals and thyroid checked was helpful. I am on meds for both now. Also taking IV Glutathione twice a week is a great help. And lastly, don't rule out stimulants; Adderall can make the difference between laying around frustrated on the couch and having an almost normal day for me. Quote Link to comment Share on other sites More sharing options...
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