What's your Lyme mission statement?

[Guest guest]

Great topic!  I'm not ready to answer it yet, but I thank you for the chance to

think on this!

 

 

*******

" Between stimulus and response, there is a space. In that space is our power to

choose our response. In our response lies our growth and our freedom. " - Viktor

l

From: DKL <jblral@...>

Subject: [ ] What's your Lyme mission statement?

" jblral " <jblral@...>

Date: Wednesday, October 14, 2009, 8:07 PM

Here's my personal Lyme mission statement:

I want to change

the way the world perceives Lyme disease.

The

biggest problems Lyme patients face aren't the physical ailments

themselves, though those are major. Instead, it's " vision problems " --in

the medical arena, the insurance system, the media and society at

large. For complex reasons succinctly described in the book Cure Unknown and the

film Under Our Skin,

people suffering from Lyme disease are basically kicked to the curb by

the medical/industrial complex and left there to make it--or not--on

their own.

It's akin to the early days of

the AIDS epidemic, where very sick people found they had to fight their

illness on two completely different fronts--the personal and the

political. That's where Lyme disease is now. Anyone who has Lyme

themselves or is closely connected to someone who has it, finds

themselves thrust into a highly charged political atmosphere. Most of

us didn't choose activism. Activism chose us.

On

October 22, the day before the LDA/ILADS conferences in Washington DC,

CALDA is sponsoring a day-long workshop called the Lyme Action Program.

Even if you're not coming to the LDA/ILADS conferences, if there's any

way you can swing it, I hope you'll join us.

It's

a chance to hear from leaders in the Lyme movement: those who

spearheaded the sequence of actions which resulted in last summer's

historic IDSA Lyme hearing, those shepherding Lyme legislation through

Congress, those focusing on the special needs of children with Lyme

disease.

It's a chance to meet with

activists from all over the country (some experienced hands, some brand

new to the game), exchange ideas, and forge a renewed sense of shared

purpose.

Click here for registration information for the Lyme Action Program:

http://www.lymedisease.org/activism/lyme_events.html

And whether you join us or not, I

invite you to contemplate these questions: what's your Lyme mission

statement? And what are you going to do about it?

Dorothy Leland

www.touchedbylyme.org

[Guest guest]

Here's my personal Lyme mission statement:

I want to change

the way the world perceives Lyme disease.

The

biggest problems Lyme patients face aren't the physical ailments

themselves, though those are major. Instead, it's " vision problems " --in

the medical arena, the insurance system, the media and society at

large. For complex reasons succinctly described in the book Cure Unknown and the

film Under Our Skin,

people suffering from Lyme disease are basically kicked to the curb by

the medical/industrial complex and left there to make it--or not--on

their own.

It's akin to the early days of

the AIDS epidemic, where very sick people found they had to fight their

illness on two completely different fronts--the personal and the

political. That's where Lyme disease is now. Anyone who has Lyme

themselves or is closely connected to someone who has it, finds

themselves thrust into a highly charged political atmosphere. Most of

us didn't choose activism. Activism chose us.

On

October 22, the day before the LDA/ILADS conferences in Washington DC,

CALDA is sponsoring a day-long workshop called the Lyme Action Program.

Even if you're not coming to the LDA/ILADS conferences, if there's any

way you can swing it, I hope you'll join us.

It's

a chance to hear from leaders in the Lyme movement: those who

spearheaded the sequence of actions which resulted in last summer's

historic IDSA Lyme hearing, those shepherding Lyme legislation through

Congress, those focusing on the special needs of children with Lyme

disease.

It's a chance to meet with

activists from all over the country (some experienced hands, some brand

new to the game), exchange ideas, and forge a renewed sense of shared

purpose.

Click here for registration information for the Lyme Action Program:

http://www.lymedisease.org/activism/lyme_events.html

And whether you join us or not, I

invite you to contemplate these questions: what's your Lyme mission

statement? And what are you going to do about it?

Dorothy Leland

www.touchedbylyme.org

[Guest guest]

-

I just wanted to say I think its fantastic that you are quoting Viktor l.

His journey is an inspiration, and helps put journeys like mine into

perspective.

>

> Great topic!  I'm not ready to answer it yet, but I thank you for the chance

to think on this!

>  

>

>

>

>

>  

> *******

> " Between stimulus and response, there is a space. In that space is our power

to choose our response. In our response lies our growth and our freedom. " -

Viktor l

>

[Guest guest]

Great quote. I follow a school of Tibetan Buddhism and our teachers are always

talking about spacious mind. Would love to continue this thread of inspiring

quotes.

Kim

[ ] Re: What's your Lyme mission statement?

-

I just wanted to say I think its fantastic that you are quoting Viktor l.

His journey is an inspiration, and helps put journeys like mine into

perspective.

[Guest guest]

Thanks, .  l does inspire me.  There really are things that are

beyond my control, so it helps to focus on what I can control...mainly, how I

face all the rest of it.

 

 

 

*******

" Between stimulus and response, there is a space. In that space is our power to

choose our response. In our response lies our growth and our freedom. " - Viktor

l

From: amandaleehancock <amandalynnlee@...>

Subject: [ ] Re: What's your Lyme mission statement?

Date: Tuesday, October 20, 2009, 4:48 PM

-

I just wanted to say I think its fantastic that you are quoting Viktor l.

His journey is an inspiration, and helps put journeys like mine into

perspective.

>

> Great topic!  I'm not ready to answer it yet, but I thank you for the chance

to think on this!

>  

>

>

>

>

>  

> *******

> " Between stimulus and response, there is a space. In that space is our power

to choose our response. In our response lies our growth and our freedom. " -

Viktor l

>

------------------------------------

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[Guest guest]

I've thought about this...basically, this is the first time since an incident

when I was in my late teens in which I have come up against a situation that has

moved me to this extent.  We have little money and no insurance and this is not

the time to face an illness like Lyme.  But I have also seen other people in

similar heart-breaking situations and have seen doctors willing to go to the

line and beyond...something that they should not be forced to do in order to

heal...that thing they became doctors because they wanted to do in the first

place.  I've moved beyond my feelings of helplessness and into anger - healthy,

life-affirming, world-changing anger.

 

So...my mission statement goes beyond Lyme, really.

 

I mean, how dare anyone tell my doctor that she can't do what's best for me? 

How dare anyone vote for me to die because of my current financial situation? 

 

Zukav wrote: " if you strike without compassion against the darkness, you

yourself enter the darkness. "  

 

My current experience has broadened my own compassion, reminded me of how I have

moved beyond past struggles and what the moment of despair feels like, as well

as how to turn it into hope.

 

So...my mission these days: To heal...myself, other sufferers, and a world that

allows such suffering with audacity, and to fight until we win.

 

 

 

*******

" Between stimulus and response, there is a space. In that space is our power to

choose our response. In our response lies our growth and our freedom. " - Viktor

l

From: DKL <jblral@...>

Subject: [ ] What's your Lyme mission statement?

" jblral " <jblral@...>

Date: Wednesday, October 14, 2009, 8:07 PM

Here's my personal Lyme mission statement:

I want to change

the way the world perceives Lyme disease.

The

biggest problems Lyme patients face aren't the physical ailments

themselves, though those are major. Instead, it's " vision problems " --in

the medical arena, the insurance system, the media and society at

large. For complex reasons succinctly described in the book Cure Unknown and the

film Under Our Skin,

people suffering from Lyme disease are basically kicked to the curb by

the medical/industrial complex and left there to make it--or not--on

their own.

It's akin to the early days of

the AIDS epidemic, where very sick people found they had to fight their

illness on two completely different fronts--the personal and the

political. That's where Lyme disease is now. Anyone who has Lyme

themselves or is closely connected to someone who has it, finds

themselves thrust into a highly charged political atmosphere. Most of

us didn't choose activism. Activism chose us.

On

October 22, the day before the LDA/ILADS conferences in Washington DC,

CALDA is sponsoring a day-long workshop called the Lyme Action Program.

Even if you're not coming to the LDA/ILADS conferences, if there's any

way you can swing it, I hope you'll join us.

It's

a chance to hear from leaders in the Lyme movement: those who

spearheaded the sequence of actions which resulted in last summer's

historic IDSA Lyme hearing, those shepherding Lyme legislation through

Congress, those focusing on the special needs of children with Lyme

disease.

It's a chance to meet with

activists from all over the country (some experienced hands, some brand

new to the game), exchange ideas, and forge a renewed sense of shared

purpose.

Click here for registration information for the Lyme Action Program:

http://www.lymedisease.org/activism/lyme_events.html

And whether you join us or not, I

invite you to contemplate these questions: what's your Lyme mission

statement? And what are you going to do about it?

Dorothy Leland

www.touchedbylyme.org