Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 Hey Hi and welcome to the group....glad that you found us in your browsing the web....you will make a lot of friends here and learn alot... I am a mom of a 19 yr old who has AIH and PSC which is another liver disease.... Welcome again...and hope to talk to you soon. Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Hi , Can I ask you why would you do another tx if you are undetectable? Thanks. --- eric snyder <1122snyder@...> wrote: > Dear Karin ,their just starting phase 2,3 triels > with vx 950 a protease drug that is supossed to turn > 11 month of tx into a 3 month cake walk ,im in balto > md and the trial is at s Hopkins starting in > march go to clinicaltrials.gov to check your area as > most big hospitals will be doing the same ask your > doc too .I did 18 months of tx and it was no fun not > terrible but now that i see a 3 month tx im abit > envious of my friend . Thinking about that 18 i > almost want to cry and it seems many are suffering > after tx sides that are pretty bad, guess i was very > luckey 18 months tx and no after sides and neg for > 33 months but i would take that 3 month tx anyday,it > will be approved around 2010 for general use this > drug is so good it has been put on the fast track to > by the FDA to market. > > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 I misunderstood. I thought you said people go on tx again after they are negative. I have a chance to participate on this trial I think too, but I am going to wait. Don't people develop resistance after they try this class of drugs (protease inhibitors)? --- eric snyder <1122snyder@...> wrote: > > Konstantin ,im not doing it a friend is setting up > to go for the vx 950 trial and since i worked in a > viral research lab i told her i would take a closer > look at this drug for her safty and efficasy ,seems > its a good drug with a very good track record to > this point and the FDA has put the rush on this one > to get it to market by 2010 no i dont need to tx > again my tx was 18 months a long hard road, I wish > i would have waited because i knew these things were > comming out and i had no liver damage ,but on the > other the other hand i have had no hcv worries for > 33 months so i guess the trade off was worth it .yep > 33 month negitive . 3 months on this drug and your > tx is over you clear the first week nice ha.Sure > beets the 18 months i did on tx a long hard road > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > fda > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 > > Good morning, > > I subscribed to the Candida group quite some time > ago, but in the last month have finally been following > it. I am working my way through all of the files in > the section. Very helpful and thank you so much for > all of the information! ==>You are so very welcome! Education is so very important! > > I did have a question. I had diahhrea about 1 week > after following the candida diet. Just felt kind of > tired and had the diahhrea. It only lasted 1-2 days. ==>Diarrhea is the body's way of cleaning out toxins. > > The second week I had the same thing happen. > > This past week (week 4) I had the diahhrea start on > Thursday night, and have had it through the weekend. I > think this last time might have been a stomach flu > bug, as I had a fever for a few days, bad > sweats/chills for a couple of days off and on, and > extreme fatigue. ==>It does sound like you had a bug. > > I think I am on " the mend " but was just curious to see > if what is happening the past month is normal for > candida when dying off? > > I noticed my diahhrea has been very deep yellow/orange > color. Not sure if that means anything. And in the > last day it's a murky green. Are these signs of > candida die off progressing? ==>The colors can be caused by foods eaten, but green can indicate the presence of bile or toxins - as your digestion improves it will change. See the Digestion file for help. Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 nice to meet you . welcome . cathy from ma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 Hello Everyone. I am new here. I was just diagnosed, finally, with Psoriatic Arthritis, in London Ontario. I have not been able to work or walk very much for 9 months now. I also have a herniated disc in my back, so this is making things worse. I look forward to reading everyone's questions and answers. I live in Waterloo, Ontario and have 3 Golden Retrievers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 Thank you for the welcome. I have only read a few emails from this group, however, I have seen that fatigue is one of the symptoms. I have very severe fatigue and its hard on my family (and me) I was just diagnosed with PA and Fibromyalgia this past week after a summer long of pain because all the specialists and doctors thought that my joint pain and swelling was from a virus or a spider bite, not any specific arthritis, because it came on so quickly. I have NOT got psoriasis, thank goodness. Do you think it will come eventually? Thanks Ontario Re: [ ] New Member - > nice to meet you . welcome . cathy from ma > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2007 Report Share Posted March 13, 2007 Hi , I am glad to see you have found this group. Its members are generally very kind, very helpful. In terms of natural methods of stopping this disease, I think that there is only a smattering of annecdotal evidence that this or that worked for just a few people. As this disease is very individual in the way it manifests (due to our very complex systems and the complex genetic and auto-immune components), I am sure I will say little different than our brilliant moderator (Kathy F.) would say. Find yourself the very best rhuematologist that you trust and work with him/her to develop a plan you can trust. So far, only biologics and DMARDS are the only things that have been clinically proven to slow/stop the progression of this disease. Personally, if I were wanting to have a baby, I would have a blood test to see if I were HLA-B27+ . I believe the heritability of this is fairly high, and it shown to have a high correlation for people who carry this marker to have the Ankylosing Spondilytis (AS) form of PA. If you have PA and this marker, and it hasn't hit your spine yet, it probably will at some point. As I am HLA-B27+ and have AS, I find it incredibly debilitating (at times); the last thing I would want to do is pass this on to someone else. Though I have a son, whom I dearly love, if he weren't already born before I knew of my condition, I would have adopted a child to avoid passing this on. I worry that he has the marker, but we are not testing him (he's a teenager). If he starts getting symptoms, I am sure he will voice them and he will be able to blame me. If I knew ahead of time, I wouldn't know what I would say to him - glad your alive and I took a chance... sorry you weren't lucky with my gambling... In general, I think that PA is frequently passed on with or without the above marker. Good luck with all you have going. And by all means, listen to your body, eat those things that make you feel better and avoid things that hurt you. Alcohol is bad for this disease - avoid it. Best wishes... brent Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Hello Jacquiline Go to our Website www.tpa-uk.org.uk and click on "Hyperthyroidism" in the Menu on the left. You should find some very helpful information there that should be of some help to you. Before our new website was launched, we concentrated on hypothyroidism but I am receiving more and more messages asking for advice about hyperthyroidism and also thyroid cancer, that we have now included information about these. If you have any more questions to ask that might not be answered there, please let us know. Luv - Sheila Hello everyone,Its great to join the group. I was diagnosed with Graves 3 weeks ago and so pleased to know that I was not going crazy or suffering from stress or the menopause! Saying that, my emotional swings are really bad and I am even thinking of working part time until the medication kicks in.The weightloss was great, but it came with muscle wastage, palpitations, shaking which was highly embarassing as it makes people feel uncomfortable. One person even said to me 'you have the DTs'. The tissue around my eyes has swollen - lucky me - and I have difficulty sleeping. I had a bad bout of bronchitis in August which I believe brought the disease on - maybe it was laying in dormant though. Does anyone know what brings it on? Stress, Pregnancy, Grief? I have had all three in the past 12 months.But anyway, as an emotional jelly mass I am struggling along trying to smile. Not knowing if I am coming or going but luckily my hubby is kind and supportive.I am English but have been living in Holland for the past 17 years and looking forward to sharing thoughts with my fellow sufferers.How does anyone cope with the work situation though? I called my internists assistant on Thursday for advice cause I was feeling tired and looking extremely white who said that everyone works with Graves.... I find this hard to believe but maybe I am just feeling sorry for myself and my poor thyroid.Take care! No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.15.5/1084 - Release Date: 21/10/2007 15:09 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 Pleasure to hear from you! Sounds like we started this very similarly. I was diagnosed late...same symptoms..(I still have them all, yellow eyes are getting better, but still " sick eyes " )...and before I was diagnosed dropped 20 pounds. So it may be a few months here before I get rid of the nauseau I'm thinking...more cheerios! 77 yrs...yes, yes! That is nice incentive for all of us. Glad that you are maintaining and have a handle on this....I'm so impatient. thank you. > > Maybe we are one of the rare ones Missy but before I was diagnosed with AIH > at the Center for Liver diseases in Pittsburgh, along with jaundice, > fatigue, dark urine etc., I went from 135 pounds to 109 due to extreme nausea. > I was not diagnosed locally and it was three months before I was referred > to Pittsburgh. After several months on prednisone I gradually began to feel > well again. Over a period of 3 years, prednisone was gradually reduced > and I am now being maintained on 100mg of azathioprine. While I have not > posted much, this support group has been so helpful. By the way, at 77 years > I assume I must be the senior member of the group although my doctor told > me he had an AIH patient who was 90!!!! > > > Quote Link to comment Share on other sites More sharing options...
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