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In a message dated 2/6/01 7:12:09 PM Eastern Standard Time, liliwigg@...

writes:

<< And does this depend on the type of surgery or how long they

want you to be asleep? >>

Before my ankle fusion operation I was talking with the anesthesia Doctor

and he offered me 3 choices, spinal, epidural and general. I chose the

epidural, I wanted to watch the operation if that was possible. I was in the

pre op and the anesthesiologist came in and told me they were going to give

me a general anesthesia because of the duration of the operation. (that

would make a good song, " I fell in love during the duration of the

operation. " No, I'm not drinking). I would say in my case the length of time

mattered in reference to anesthesia.

E

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In a message dated 2/6/01 9:58:23 PM Eastern Standard Time, rmax@...

writes:

<< The last surgery I had non CMT, they gave me sodium penathol? >>

Yea, Becky, sodium penathol is a great anesthesia to put you to

sleep with.

E

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-----Original Message-----

From: jege6666@... <jege6666@...>

< >

Date: Tuesday, February 06, 2001 8:42 PM

Subject: Re: [] anesthesia question

>In a message dated 2/6/01 7:12:09 PM Eastern Standard Time,

liliwigg@...

>writes:

>

><< And does this depend on the type of surgery or how long they

> want you to be asleep? >>

> Before my ankle fusion operation I was talking with the anesthesia

Doctor

>and he offered me 3 choices, spinal, epidural and general. I chose the

>epidural, I wanted to watch the operation if that was possible. I was in

the

>pre op and the anesthesiologist came in and told me they were going to give

>me a general anesthesia because of the duration of the operation. (that

>would make a good song, " I fell in love during the duration of the

>operation. " No, I'm not drinking). I would say in my case the length of

time

>mattered in reference to anesthesia.

> E

>

The last surgery I had non CMT, they gave me sodium penathol? (sp) I

liked that stuff! I didn't care what surgery they had planed for me! LOL I

layed on a table watching a surgery in next surgery area, while waiting for

them to get it together for mine and was fascinated at what I was seeing!

Didn't bother me a bit, any other time I would of fainted at seeing someones

intestines laying on their chest! But that medicine made you not worry or

care. Then they gave me another shot and put a mask on my face and said

count backwards etc. Weird! ~>Becky M.

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For my surgery on November 7, the doctor (anesthesiologist) had inserted an

IV needle in the top of my hand. Once I was in the operating room, he had

me to drink a small cup of ? it was for nausea, then I laid down. He

covered my nose and mouth with oxygen, then I could feel a little stinging

sensation in my hand. He had me to count backwards from 100. I think I

made it to 95. Nighty, night. I assume it will be the same procedure for

my surgery Feb. 13. I requested the same doctor because he researched CMT

prior to my surgery.

----- Original Message -----

From: Gretchen Glick <liliwigg@...>

< >

Sent: Tuesday, February 06, 2001 6:01 PM

Subject: [] anesthesia question

> Whenever I have had surgery, which the last one was 1991, the way I got

> put 'out' was the old needle in the arm and count to ten! Just before

> that the doc was trying to engage me in conversation! Anyway, I am

> wondering, now, those of you who have had recent surgery, are they not

> giving the old needle in the arm or is gas used or is both used? Just

> curious. And does this depend on the type of surgery or how long they

> want you to be asleep?

>

> ~ G

>

>

>

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In a message dated 2/6/2001 9:52:46 PM Eastern Standard Time,

jege6666@... writes:

<< I fell in love during the duration of the

operation. " No, I'm not drinking). I would say in my case the length of time

mattered in reference to anesthesia.

E >>

You're tougher than I am. I don't like to see much in the medical field. I

was awake during one day surgery in 93, not CMT related. That was fine,

couldn't feel anything, couldn't see anything, they had a tent draped over my

shoulders.

, did I see somewhere that CMTers should not have epidurals? I sometimes

forget if I saw it on the group discussion or on some other site.

My husband had an epidural during knee replacement in Sept. He hated it. It

did not keep down the pain. Not enough meds going through. He also hated

having to lay on the wire. Not really the wire, because that is so thin you

couldn't really feel it. But there was a larger piece connected to the wire

and I was constantly having to make sure it was laying in the middle of his

back, so that when he lay back it wouldn't bother him as much.>>>

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In a message dated 2/7/01 10:29:05 AM Eastern Standard Time, ktbugg54@...

writes:

<< , did I see somewhere that CMTers should not have epidurals? >>

Yes , I have read since my operation that epidural might have been a bad

choice. With our nerve problems regional anesthesia is not always the best

choice.

That probable was one of the reasons they changed it on me. What ever, I'm

glad they did.

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,

Lamar here,

It sounds as if you are referring to epidural analgesia (used for pain

control) and not epidutral anesthesia, which is used in surgical procedures

and is usually just one injection. I have never heard where those with CMT

should not have an epidural, but it may be out there. It is often

considered to be safer than general anesthesia, but is suitable for only

some procedures.

----- Original Message -----

From: ktbugg54@...

Sent: Wednesday, February 07, 2001 10:24 AM

Subject: Re: [] anesthesia question

In a message dated 2/6/2001 9:52:46 PM Eastern Standard Time,

jege6666@... writes:

<< I fell in love during the duration of the

operation. " No, I'm not drinking). I would say in my case the length of

time

mattered in reference to anesthesia.

E >>

You're tougher than I am. I don't like to see much in the medical field. I

was awake during one day surgery in 93, not CMT related. That was fine,

couldn't feel anything, couldn't see anything, they had a tent draped over

my

shoulders.

, did I see somewhere that CMTers should not have epidurals? I

sometimes

forget if I saw it on the group discussion or on some other site.

My husband had an epidural during knee replacement in Sept. He hated it.

It

did not keep down the pain. Not enough meds going through. He also hated

having to lay on the wire. Not really the wire, because that is so thin

you

couldn't really feel it. But there was a larger piece connected to the

wire

and I was constantly having to make sure it was laying in the middle of

his

back, so that when he lay back it wouldn't bother him as much.>>>

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....those of you who have had recent surgery, are they not

> giving the old needle in the arm or is gas used or is both used?

Just

> curious. And does this depend on the type of surgery or how long

they

> want you to be asleep?

>

> ~ G

Hi, Gretchen and all. Carolyn here.

On Jan. 5 I had my total knee replacement. I'm still rather irritated

at the anesthesiologist! Although we talked prior to the surgery and

I told him about the neuromuscular disease, etc, I don't think he

listened at all. He did give me a spinal anesthetic which I

requested, rather than the general. But whatever else he gave me, I

was almost completely out - no counting, no nothing. I was just out!

I have a vague remembrance of hearing one of the buzzsaws that they

use to cut the bone, but nothing of going to the operating room, the

recovery room, etc. The first conscious memory I have is being in my

hospital room and telling my daughter to go home, that I would be

okay. That was about 4:00 in the afternoon - the surgery had been at

7:30 AM.

I have had ankle surgery twice, and a prior knee surgery, but I've

never been as unaware of what was going on as this time!

Anesthesiologists wield a tremendous amount of power - they literally

hold your life in their hands! I have heard that they also have

tremendous egos! Not surprising, I suppose. Anyway, I wish they would

listen! This one didn't. He did visit me on two of the succeeding

days in the hospital to see how I was doing.

BTW, I quite accidentally caught a 1-hour program on The Learning

Channel recently of the exact knee operation I had! Thank goodness I

saw it after the surgery, rather than before!

Carolyn

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  • 4 years later...

Hi ,

Based on my experience it sounds like the dentist has stirred up bugs, metals,

and mercury. I had terrible dreams and light shows going on in my head when I

had some bridge work and amalgam removal. It can also be caused by the

anesthesia. There are a couple new " caines " out there. I think the name of one

that is very very strong is Serocaine(?). Some people have bad reactions that

can last from it.

She should go see a holistic dentist with a list of all chemicals and materials

used on her to be sure she is not allergic.

Sorry I do not have something more pleasant to share.

Best wishes, Sue T

Du Pre <isaiah40@...> wrote:

Question from my M. E./CFS Support Group

A member of our group, Carolyn, went to the dentist three days ago to have

bridgework done. She spent over 3 hours in the dentist chair. She was under

anesthetic, local, the whole time. She left the office feeling shaky, but

ok to drive the short distance to her house.

Since then she has been in excessive FM pain, she's felt jittery and

anxious, and she's had terrible nightmares in her sleep, causing her to

wake up. She does have FM but the pain is exacerbated. She does not

normally dream, nor does she normally wake up during the night.

She was not feeling well prior to going to the dentist. She felt like she

had some kind of bug, a cold or a virus that she might have caught from her

grandchildren, so she probably had reduced immune system going into the

dentist appointment. She almost cancelled.

My suspicion is she may be experiencing a bad reaction to the anesthesia.

If anyone has experienced a bad reaction to anesthesia, can you tell me, do

these symptoms sound familiar? What, if anything, can she do about these

symptoms? I recommended that Carolyn contact her dentist and tell him about

her problems and her suspicions that the anesthesia might be the cause.

Would valium or xanax help with the jitters if this was a reaction to

something in the novacaine? Any suggestions would be appreciated.

Thanks,

Du Pre

Website: http://www.angelfire.com/poetry/soareagle/index.html

" By words the mind is winged. " Aristophanes

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I had similar reaction to anesthesia. Doctor had used only half of standard

amount of anesthesia but I still had it. Also the anesthetic she used was

free of epinephrine but still I had a very bad reaction.It was novocaine

alone.And preservatives??Could not do much

about it at that time. It took me long time to recover or it could be that

damage was permanent and I never recovered from that trauma.At this point I

am thinking that quick detox methods like coffee enemas,master

cleanse,increasing water intake,etc might help to increase liver's detox

capacity and keep the damage at lowest level. I got the feeling that my

brain was sensitive to anesthesia and as my liver could not detoxify it

quickly. So,I was exposed to harmful effects more than normal people's

brains would do.

I would appreciate any more info on that subject as I am very scared of

taking anesthesia at this point.I would like to know ways to overcome this

problem.

best wishes

nil

Re: Anesthesia Question

> Hi, .

>

> If she had injected anesthesia, I think it might be important to

> note that injected anesthesia, in addition to containing a pain

> killer, also often contains epinephrine (adrenaline). As I

> understand it, this is included to cause constriction of blood

> vessels in order to keep the pain killer in the local area for a

> longer time, to prolong the anesthesia. I think it's possible that

> Carolyn was responding to adrenaline, based on the symptoms

> reported. I don't know what her genetic variations might be like,

> but if she has a genetic variation in her COMT enzyme (catechol-O-

> methyl transferase), this would make the breakdown of the adrenaline

> slower, so that it would reach higher concentrations in her blood

> and last for a longer time than in a person with normal ( " wild

> type " ) COMT. Several PWCs have reported COMT genetic variations

> (single nucleotide polymorphisms or SNPs).

>

> Rich

>

>

>>

>>

>>

>> Question from my M. E./CFS Support Group

>> A member of our group, Carolyn, went to the dentist three days ago

> to have

>> bridgework done. She spent over 3 hours in the dentist chair. She

> was under

>> anesthetic, local, the whole time. She left the office feeling

> shaky, but

>> ok to drive the short distance to her house.

>> Since then she has been in excessive FM pain, she's felt jittery

> and

>> anxious, and she's had terrible nightmares in her sleep, causing

>

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