hi from a new member

Posted April 27, 2003 · April 27, 2003

Dayna - many of the PID children (whom we affectionately call " Pumpkins " ) have

had problems with neutropenia. My own

daughter was at one point dealing with cyclic neutropenia. She would become

neutropenic at certain times, sometimes it

was the week before her next infusion of IVIG, sometimes it was just on an every

3 week cycle. It has resolved in the

last 2 years.

Ursula Holleman

mom to (10 yrs old) and Macey (7 yr. old with CVID, asthma, sinus disease,

GERD, Diabetes Insipidus, colonic

inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation's 2003 National Conference

http://www.execinc.com/idf/

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

/

Posted July 28, 2003 · July 28, 2003

In a message dated 7/28/2003 11:50:09 AM Eastern Daylight Time, mellowcargo2003@... writes:

Hey there. I'm a new member of this group. I live in Michigan in an area where there are no support groups. I'm in month 7 of my second round of peg/rebetol treatment. My virus came back just after 3 mos w/o the treatment. I take 50 mg Paxil and 150 mg of Effexor XR daily for the depression. My memory and attention span are both impaired by the drugs. I suffer from hair loss, dry skin, leg cramps, fatigue, bouts of insomnia, loss of appetite, upset stomach when I do eat, rashes and sores in my mouth. I range in mood swings from depression to anger where I feel like I have a chip on my shoulder just waiting for someone to tick me off. Sometimes I feel like I will just explode. I really have no besides my physician, shrink and counselor to talk to about how I feel. Since I only see each of them every month or so I hoped I could find someone here to talk with since you all know what I'm going thru. Does anyone ever use the chat room?

I'd enjoy hearing from someone.

I feel this way at times and sounds like the meds for depression is not working. As someone said on one of these Hep lists I belong to...there are like (Ithink) 60 some depression meds.....try them all until you find something that will help. I am on 150 mg. of Effexor and it is not working....I have an appt on Thursday and will try something else. Too bad these meds take time to tell if they work in ya......At times I wished I lived alone cause I am driving my family crazy as they are driving me ......I just take it a day at a time and hope relief is on the way in 2 weeks when school begins...

In health Cosy

Posted November 17, 2005 · November 17, 2005

>

> I love the idea that there is an online discussion group that

talks

> about my favorite topic: fragrance. Thank you for having me as a

> member. In my small business...Glen Custom Perfumery...(Glen is

my

> wife's middle name) I create personalized perfumes for individuals

and

> small boutique-y type businesses. I am self-taught, using a

> combination of trial and error, books, articles, and endless

> conversations with other perfumers. Last year, I had the

opportunity

> to go to the World Perfumery Congress in Cannes. I met dozens of

> perfumers and I stay in touch with a few of them. When I am

really

> lost, I can email them questions and get back on track. I am at

work

> on a website, but my work pace rivals that of a snail, so I may

never

> get it launched.

> One of the constant problems I face is the high price of naturals

when

> bought in small quantities. A kilo of rose absolute might be

$2500

> (or, $2.50 a gram) from a Grasse supplier, but by the time an

online

> distributer is selling it, it might be $10 a gram or more. Has

anyone

> heard of or considered starting a co-op that buys in larger

quantities

> and distributes to its members?

>

Hi Steve,

Welcom to the group. I am new here also and my Englisch is not so

good because I'm from Holland.

I am also learning myself with lots of books and articles and I'm

happy to find this group.

I never met a person who make perfums also and learn him or her

self. I also try to learn it just by trying and trying. I have a

room specialy for my perfume making and make perfumes now for more

than 5 years. My problem with perfume making is that it's difficult

to keep a perfume transparant and light but also longlasting. When I

put in basematerials like Sandal then the fragrance change and gets

darker.

I also have the problem that I don't keep it simple. I start with

something and want to make it complex with the result that I put in

to much different ingredients. Sometimes I make from one idea 100 or

more different perfumes and put in every bottle a different

ingredient or put in more or less from one ingredient and still I

found it difficult to let it smell like I had in mind.

Now I'm working on a soft rose perfume. I put in Mairose, Sandal,

Vannilla,Cedar,Carrotseed,Ylang and more like synthetics like

orchid, methyliononen etc, but find it difficult to deepen the rose

and keeping it soft. I don't like it to come spicy. Maybe you have

an idea.

Greetings from

Posted November 18, 2005 · November 18, 2005

I didn't mean the color get dark but the smell. When I like to make

a light perfume( a light transparant smell) and put in basematerials

like sandal the smell gets darker.

Thanks for the tips, I think Mimosa make rose more soften that's a

good idea. I tried guaicwood already but think that's to warm dark.

I want to make it soft and a little bit powdery but still warm. I

put in also a tiny bit vetiver already to go allong with the cedar

and sandal. I didn't try clary sage yet so I will try that. Thanks

for your advice. It's so nice to talk to people who have the same

passion like me. Before I felt lonely with my passion and many

people didn't understand where I talked about. Whow I'm realy happy

with this forum.

Posted October 28, 2006 · October 28, 2006

Welcome Heidi!! Love your name, I read that book as a child and always loved it. I'm , 46, w/ fibro, diabetes, bad allergies, asthma, chronic sinusitis (just had surgery last Monday--have a staph infection among something else probably) possibly cystic fibrosis (waiting for test results), gerd, IBS, RLS, insomnia, sleep apnea, high bp, high cholesterol, overweight, irritable bladder, endometriosis, anxiety & depression--I think that is all I can't remember! I have a mostly healthy husband he is just overweight and has high bp and cholesterol, my son Nick age 24 is completely healthy but had asthma as a child, and my daughter has cystic fibrosis and asthma and allergies and gerd. Well that is a lot we have a regular pharmacy around here it's not even funny, well it is but you know. Oh yes and we have an adorable brown mutt named Lucy, she was a shelter rescue dog and she is just the best dog. I love her so much and she is my best friend sometimes!

I am going to be starting pain rehab on Monday and it's very intense, it's every day for 2-3 hrs a day. It involves water aerobics, PT, OT, psych, pharmacy counseling, education, support group, a team meeting every two weeks, biofeedback, probably more but I don't remember. I am very excited about it and plan to put myself into it 110%.

I have a sis-in-law with cancer, she got it in June of 2005, and was given 2-4 months to live, well she beat it back and lived and in July of this year was taken off chemo, the cancer in her brain and lungs was gone and the cancer in her spine was not doing anything. But then she went back to Houston for a check up in Oct. and they found the brain tumors were back, so right now she is undergoing radiation for them. Please if you pray pray for her. She has the best attitude and is such an awesome person. Her and my husband's brother Craig have moved out here to Irvine (we live in Orange Co CA) but and Craig used to live in Houston and she wanted to keep her medical care there, she goes to MD Andersen and they are one of the top cancer hospitals in the country.

Guess that is enough Heidi, glad you're here.

Tell us more about your family and yourself.

much love,

Posted October 29, 2006 · October 29, 2006

Wow ,

You certainly have a lot to deal with, and it sounds like you cope well...

That therapy sounds very intensive, I hope you get through it well and don't have too much trouble..

I am so sorry to hear about your sis-in-law, I will light a candle for her tonight... That must be awful to watch her go through.

Well as for me, I have no children, I met my 63 year old partner over 3 years about when I was 30 and he was 60.. We were an instant love match..

He had some issues with the age to start off with, so I started dating a friend of his and he soon saw that I was not bothered by age and he came and claimed his prize!!! LOL

He is a good man, and we are very happy...

My mother passed away from leukaemia in 1997 and my Dad remarried in 2004.. I don't really get along with my step mother.

I also don't speak to my sister, she has a 7 year old daughter and we are estranged due to the fact that she likes to live in a fantasy world and tell stories.. My dad supports her because she refuses to work...

My grandmother has dementia and remembers me as her daughter, my mother and does not want to see me, which is sad but that is dementia for you.. She is convinced I am my mother reincarnated and a devil..

I don't really have many close friends, because they get sick and tired of the fact that they ring and I am asleep from fatigue, or I have to cancel out on plans because I cant go because of fibromyalgia or rheumatoid arthritis pain...

Most of my friends are online, and I have made some really good friends there..

Day to day well I am establishing an online business, a couple are already established... I sleep from midnight to 10am, then sleep for about 2 hours about 3pm... I am still tired most of the time, but I manage to keep awake..

The Internet is my outlet to the outside world, I make sure I spend a few hours online each day...

I don't know what else to add LOL

Hugs

Heidi

____________________________________________

Heidi Jaye AKA Lady Magenta Aalotar

"People are strange, when your'e a stranger"

______________________________________________

-- Re: Hi from a new member

Welcome Heidi!! Love your name, I read that book as a child and always loved it. I'm , 46, w/ fibro, diabetes, bad allergies, asthma, chronic sinusitis (just had surgery last Monday--have a staph infection among something else probably) possibly cystic fibrosis (waiting for test results), gerd, IBS, RLS, insomnia, sleep apnea, high bp, high cholesterol, overweight, irritable bladder, endometriosis, anxiety & depression--I think that is all I can't remember! I have a mostly healthy husband he is just overweight and has high bp and cholesterol, my son Nick age 24 is completely healthy but had asthma as a child, and my daughter has cystic fibrosis and asthma and allergies and gerd. Well that is a lot we have a regular pharmacy around here it's not even funny, well it is but you know. Oh yes and we have an adorable brown mutt named Lucy, she was a shelter rescue dog and she is just the best dog. I love her so much and she is my best friend sometimes!

I am going to be starting pain rehab on Monday and it's very intense, it's every day for 2-3 hrs a day. It involves water aerobics, PT, OT, psych, pharmacy counseling, education, support group, a team meeting every two weeks, biofeedback, probably more but I don't remember. I am very excited about it and plan to put myself into it 110%.

I have a sis-in-law with cancer, she got it in June of 2005, and was given 2-4 months to live, well she beat it back and lived and in July of this year was taken off chemo, the cancer in her brain and lungs was gone and the cancer in her spine was not doing anything. But then she went back to Houston for a check up in Oct. and they found the brain tumors were back, so right now she is undergoing radiation for them. Please if you pray pray for her. She has the best attitude and is such an awesome person. Her and my husband's brother Craig have moved out here to Irvine (we live in Orange Co CA) but and Craig used to live in Houston and she wanted to keep her medical care there, she goes to MD Andersen and they are one of the top cancer hospitals in the country.

Guess that is enough Heidi, glad you're here.

Tell us more about your family and yourself.

much love,

Posted October 29, 2006 · October 29, 2006

hello Heidi,

We all have our crosses to bear, I don't know if you are religious but it helps me a whole lot. I am lucky I am able to get out and go to church and volunteer there, and go to Bible study. Plus I have many friends (it seems like all of my close friends have kids with cf!!!) and while everyone has busy lives we try and get together for dinner once a month or so.

Thank you for your thoughts for my sis and for lighting a candle for her. I prayed in church for her and I prayed that not our will but the Lord's be done. If that means she is to go Home sooner than we all would rather her go, that is what His will is. Either way she will be happy. We will miss her very much but this life is but a blink of the eye and we will all be together again, no more pain, no more tears. etc.

I am so happy for you and your partner. Age makes no difference. It is what is in a person's heart that matters. I am sorry about your mother, I think I said I lost my Dad when he was 58 of a heart attack. That was at the exact same time my daughter was dxed with the cystic fibrosis. I was 24 and looking back I don't know how I made it thru but the Lord was with me then too. I did not get along with my step-mother either and my dad had not finished his will so she got everything, his insurance, the house, all of it. It was terrible. I have a step sister and step brother, the brother I have barely met and the sister I am not in touch with anymore.

I wish you all good things and that you can do what you need to feel better whatever that may be.

love and God's blessings,

Posted October 30, 2006 · October 30, 2006

Hello ,

Yes you are right we all have our crosses to bear.

I am actually a pagan, and take my beliefs very seriously, it keeps me going because I live by the three fold rule 'Do not do harm unto others'.

I don't normally talk about it unless it comes up in conversation...

I think our various beliefs keep us strong and keep us going.

I think it is important to keep active with religion, and don't care what religion a person is because we are all different and should be accepted..

Actually you mirror my thoughts about your SIL and death and meeting your Lord... It is often kinder to let the soul go rather than hang around in pain and discomfort..

I am sorry to hear about the passing of your father... I am going to be in the same situation, my dad has made a 'verbal' promise that his property will go half to me and half to my sister when he passes, but he has no will written and I know my step mother will do anything she can to keep it..

I don't care about the money, I would rather have my dad alive, but I hate dishonesty.. She plays my dad against me, and for Fathers Day organised a lunch with my sister and her daughters and did not invite me, my Dad thought I had not turned up until I told him I was not invited.

My Dad had a life threatening allergic reaction about 5 months ago and was critical and I did not even get a phone call.. My dad wondered why I had not visited and I told him I was never told...

I wish you all the good things too...

Love and Blessings

Heidi

______________________________________________

-- Re: Hi from a new member

hello Heidi,

We all have our crosses to bear, I don't know if you are religious but it helps me a whole lot. I am lucky I am able to get out and go to church and volunteer there, and go to Bible study. Plus I have many friends (it seems like all of my close friends have kids with cf!!!) and while everyone has busy lives we try and get together for dinner once a month or so.

Thank you for your thoughts for my sis and for lighting a candle for her. I prayed in church for her and I prayed that not our will but the Lord's be done. If that means she is to go Home sooner than we all would rather her go, that is what His will is. Either way she will be happy. We will miss her very much but this life is but a blink of the eye and we will all be together again, no more pain, no more tears. etc.

I am so happy for you and your partner. Age makes no difference. It is what is in a person's heart that matters. I am sorry about your mother, I think I said I lost my Dad when he was 58 of a heart attack. That was at the exact same time my daughter was dxed with the cystic fibrosis. I was 24 and looking back I don't know how I made it thru but the Lord was with me then too. I did not get along with my step-mother either and my dad had not finished his will so she got everything, his insurance, the house, all of it. It was terrible. I have a step sister and step brother, the brother I have barely met and the sister I am not in touch with anymore.

I wish you all good things and that you can do what you need to feel better whatever that may be.

love and God's blessings,

Posted October 30, 2006 · October 30, 2006

Heidi,

How terrible about your Dad and his new wife. I am sorry you are

being cut out of news and activities. I hope things get better for

you.

Dawn

>

> Hello ,

> Yes you are right we all have our crosses to bear.

> I am actually a pagan, and take my beliefs very seriously, it keeps

me going

> because I live by the three fold rule 'Do not do harm unto others'.

> I don't normally talk about it unless it comes up in conversation...

> I think our various beliefs keep us strong and keep us going.

> I think it is important to keep active with religion, and don't

care what

> religion a person is because we are all different and should be

accepted..

> Actually you mirror my thoughts about your SIL and death and

meeting your

> Lord... It is often kinder to let the soul go rather than hang

around in

> pain and discomfort..

> I am sorry to hear about the passing of your father... I am going

to be in

> the same situation, my dad has made a 'verbal' promise that his

property

> will go half to me and half to my sister when he passes, but he has

no will

> written and I know my step mother will do anything she can to keep

it..

> I don't care about the money, I would rather have my dad alive, but

I hate

> dishonesty.. She plays my dad against me, and for Fathers Day

organised a

> lunch with my sister and her daughters and did not invite me, my

Dad thought

> I had not turned up until I told him I was not invited.

> My Dad had a life threatening allergic reaction about 5 months ago

and was

> critical and I did not even get a phone call.. My dad wondered why

I had not

> visited and I told him I was never told...

> I wish you all the good things too...

> Love and Blessings

> Heidi

>

> ______________________________________________

>

> -- Re: Hi from a new member

>

> hello Heidi,

> We all have our crosses to bear, I don't know if you are religious

but it

> helps me a whole lot. I am lucky I am able to get out and go to

church and

> volunteer there, and go to Bible study. Plus I have many friends

(it seems

> like all of my close friends have kids with cf!!!) and while

everyone has

> busy lives we try and get together for dinner once a month or so.

>

> Thank you for your thoughts for my sis and for lighting a

candle for

> her. I prayed in church for her and I prayed that not our will but

the Lord

> s be done. If that means she is to go Home sooner than we all would

rather

> her go, that is what His will is. Either way she will be happy. We

will miss

> her very much but this life is but a blink of the eye and we will

all be

> together again, no more pain, no more tears. etc.

>

> I am so happy for you and your partner. Age makes no difference. It

is what

> is in a person's heart that matters. I am sorry about your mother,

I think I

> said I lost my Dad when he was 58 of a heart attack. That was at

the exact

> same time my daughter was dxed with the cystic fibrosis. I was 24

and

> looking back I don't know how I made it thru but the Lord was with

me then

> too. I did not get along with my step-mother either and my dad had

not

> finished his will so she got everything, his insurance, the house,

all of it

> It was terrible. I have a step sister and step brother, the

brother I have

> barely met and the sister I am not in touch with anymore.

>

> I wish you all good things and that you can do what you need to

feel better

> whatever that may be.

>

> love and God's blessings,

>

Posted October 30, 2006 · October 30, 2006

Hello Heidi,

I also do not care what religion a person is. Your stepmother sounds just as nasty as mine was. My dad was never sick just died at work one day of a heart attack. Some of my aunts (his sisters) believe my stepmother had something to do with it. She was a nurse (my dad paid for her schooling) and she probably knew something to give him that would cause his heart to fail. Also at the time she was conveniently in the hospital herself from a "spider bite reaction"-- she could have cooked that one up too. Of course we will never know. IF she did do this she was in cahoots with the devil himself.

I wish you all life's blessings and much love,

Posted October 31, 2006 · October 31, 2006

Thanks Dawn,

It is nice to get your support.

Hugs

Heidi

____________________________________________

Heidi Jaye AKA Lady Magenta Aalotar

"People are strange, when your'e a stranger"

______________________________________________

-- Re: Hi from a new member> > hello Heidi,> We all have our crosses to bear, I don't know if you are religious but it> helps me a whole lot. I am lucky I am able to get out and go to church and> volunteer there, and go to Bible study. Plus I have many friends (it seems> like all of my close friends have kids with cf!!!) and while everyone has> busy lives we try and get together for dinner once a month or so.> > Thank you for your thoughts for my sis and for lighting a candle for> her. I prayed in church for her and I prayed that not our will but the Lord> s be done. If that means she is to go Home sooner than we all would rather> her go, that is what His will is. Either way she will be happy. We will miss> her very much but this life is but a blink of the eye and we will all be> together again, no more pain, no more tears. etc.> > I am so happy for you and your partner. Age makes no difference. It is what> is in a person's heart that matters. I am sorry about your mother, I think I> said I lost my Dad when he was 58 of a heart attack. That was at the exact> same time my daughter was dxed with the cystic fibrosis. I was 24 and> looking back I don't know how I made it thru but the Lord was with me then> too. I did not get along with my step-mother either and my dad had not> finished his will so she got everything, his insurance, the house, all of it> It was terrible. I have a step sister and step brother, the brother I have> barely met and the sister I am not in touch with anymore.> > I wish you all good things and that you can do what you need to feel better> whatever that may be.> > love and God's blessings,> >

Posted October 31, 2006 · October 31, 2006

Oh ,

That is horrible.. I can imagine my stepmom doing something like that.

It is like something that you see on TV.

It would be nice if you got some closure, but at the same time, it is often better not to open a can of worms...

Hugs and Blessings

Hugs

Heidi

____________________________________________

Heidi Jaye AKA Lady Magenta Aalotar

"People are strange, when your'e a stranger"

______________________________________________

-- Re: Hi from a new member

Hello Heidi,

I also do not care what religion a person is. Your stepmother sounds just as nasty as mine was. My dad was never sick just died at work one day of a heart attack. Some of my aunts (his sisters) believe my stepmother had something to do with it. She was a nurse (my dad paid for her schooling) and she probably knew something to give him that would cause his heart to fail. Also at the time she was conveniently in the hospital herself from a "spider bite reaction"-- she could have cooked that one up too. Of course we will never know. IF she did do this she was in cahoots with the devil himself.

I wish you all life's blessings and much love,

Posted November 3, 2006 · November 3, 2006

If receiving part of your dad's estate is important to

you, have a heart-to-heart discussion with him about

it. Since you have obviously been cut out of the

family circle for some recent events, you have proof

of problems. If you approach him about putting his

verbal wishes on paper, he may do it. If you wait

until he loses competence or worse than that, dies,

you will be without recourse.

My parents have a will with both my brother and myself

as executors. My brother has not spoken to me in 11

years because of a falling out I had with his wife. My

dad just died. The funeral was planned so that I had

no time to recover from the travel so I was there, but

couldn't go to the funeral. My brother wants nothing

to do with me. The cemetary offered to sell the family

the plots around my mom and dad's plots at very cheap

prices. I bought one for me and one for my son just in

case there was a tragedy before he was married.

Because I bought those plots at my parents' feet, my

brother and his family refused to buy the ones to

their side. It was too close to me. Even dead I'm

gonna be bad news. Wow! I don't feel that powerful.

I only bring this up because there may be some family

things that matter to you that would not matter at all

to your stepmom or her family. Mom's already begun

giving me some of those things because she is looking

to possibly downsize from a house to a condo. There

are a few old dishes that came from different great

aunts. I was given a Colt pistol that dates back to

the 1860's. It can never be fired with modern

ammunition. It is worth about $1500. It's value for me

is that it was my grandfather's. My mother now knows

that my brother and I can never be co-executors.

People get stupid around death. The most stressful

time for a family in my experience brings out the

worst in people. Pre-planning and things in writing

make a very difficult time go the best it can in my

experience.

; )

Willow

--- xyz_dawn1 <xyz_dawn1@...> wrote:

> Heidi,

>

> How terrible about your Dad and his new wife. I am

> sorry you are

> being cut out of news and activities. I hope things

> get better for

> you.

>

> Dawn

>

> >

> > Hello ,

> > Yes you are right we all have our crosses to bear.

> > I am actually a pagan, and take my beliefs very

> seriously, it keeps

> me going

> > because I live by the three fold rule 'Do not do

> harm unto others'.

> > I don't normally talk about it unless it comes up

> in conversation...

> > I think our various beliefs keep us strong and

> keep us going.

> > I think it is important to keep active with

> religion, and don't

> care what

> > religion a person is because we are all different

> and should be

> accepted..

> > Actually you mirror my thoughts about your SIL and

> death and

> meeting your

> > Lord... It is often kinder to let the soul go

> rather than hang

> around in

> > pain and discomfort..

> > I am sorry to hear about the passing of your

> father... I am going

> to be in

> > the same situation, my dad has made a 'verbal'

> promise that his

> property

> > will go half to me and half to my sister when he

> passes, but he has

> no will

> > written and I know my step mother will do anything

> she can to keep

> it..

> > I don't care about the money, I would rather have

> my dad alive, but

> I hate

> > dishonesty.. She plays my dad against me, and for

> Fathers Day

> organised a

> > lunch with my sister and her daughters and did not

> invite me, my

> Dad thought

> > I had not turned up until I told him I was not

> invited.

> > My Dad had a life threatening allergic reaction

> about 5 months ago

> and was

> > critical and I did not even get a phone call.. My

> dad wondered why

> I had not

> > visited and I told him I was never told...

> > I wish you all the good things too...

> > Love and Blessings

> > Heidi

> >

> > ______________________________________________

> >

> > -- Re: Hi from a new member

> >

> > hello Heidi,

> > We all have our crosses to bear, I don't know if

> you are religious

> but it

> > helps me a whole lot. I am lucky I am able to get

> out and go to

> church and

> > volunteer there, and go to Bible study. Plus I

> have many friends

> (it seems

> > like all of my close friends have kids with cf!!!)

> and while

> everyone has

> > busy lives we try and get together for dinner once

> a month or so.

> >

> > Thank you for your thoughts for my sis and

> for lighting a

> candle for

> > her. I prayed in church for her and I prayed that

> not our will but

> the Lord

> > s be done. If that means she is to go Home sooner

> than we all would

> rather

> > her go, that is what His will is. Either way she

> will be happy. We

> will miss

> > her very much but this life is but a blink of the

> eye and we will

> all be

> > together again, no more pain, no more tears. etc.

> >

> > I am so happy for you and your partner. Age makes

> no difference. It

> is what

> > is in a person's heart that matters. I am sorry

> about your mother,

> I think I

> > said I lost my Dad when he was 58 of a heart

> attack. That was at

> the exact

> > same time my daughter was dxed with the cystic

> fibrosis. I was 24

> and

> > looking back I don't know how I made it thru but

> the Lord was with

> me then

> > too. I did not get along with my step-mother

> either and my dad had

> not

> > finished his will so she got everything, his

> insurance, the house,

> all of it

> > It was terrible. I have a step sister and step

> brother, the

> brother I have

> > barely met and the sister I am not in touch with

> anymore.

> >

> > I wish you all good things and that you can do

> what you need to

> feel better

> > whatever that may be.

> >

> > love and God's blessings,

> >

>

Posted December 6, 2006 · December 6, 2006

Hi Heidi,

Heh, nice job on your geocities, perfectly spaced, are you a Capricorn? lol. I am new here too, auto-immune-system issues, atrial fibrillation.

Brock

Hi from a new member

Hi guys,

I am a new old member.

I was a member of the list a few months ago but I had to unsubscribe because I was sick, LOL considering the list is for illness that is ironic...

I am Heidi 33, living in Sydney Australia..

I live with 63, we have no kids..

I am retired due to a back injury.. I also have fibromyalgia, rheumatoid arthritis, ankylosing spondylitis, vitiligo, plantar faciistis, shoulder impingement and a few other illnesses..

I was working from home making labels and business cards but the business got so busy that some days I was working 10 hours a day... I could not cope and had to give it up and admit I am not superwoman..

I have come to the realisation that there is only so much I can do, and unfortunately illness rules my life so I have to deal with that and get on with life.. I am coping very well it is just sometimes I feel useless not being able to do things around the house...

I look forward to meeting you all once again..

Hugs

Heidi

DUNGEON MIZTREZZ aka Heidiwww.geocities.com/heidijayesplace/http://blog.360./kookaburradezignsLook, Listen, but most of all Believe.+=<^^>=++=<^^>=++=<^^>=++=<^^>=+

Posted December 6, 2006 · December 6, 2006

Hello Heidi,

The list is a little slow right now. People that

usually post a lot have multiple crises in their

lives. The holiday seasons may have something to do

with it too.

I understand how hard it is when you've always worked

hard and been very productive to cope with chronic

illnesses. I'm finally quite happy with myself, but it

has taken 5 years and a divorce and a move halfway

across the country to get me where I am now.

My joys are my 2 dachshunds, my quarterhorse and my

almost 21 year old son who will be visiting me in a

couple of weeks.

Welcome back,

Willow

--- Dungeon Miztrezz <heidijaye2@...>

wrote:

> Hi guys,

> I am a new old member.

> I was a member of the list a few months ago but I

> had to unsubscribe because I was sick, LOL

> considering the list is for illness that is

> ironic...

> I am Heidi 33, living in Sydney Australia..

> I live with 63, we have no kids..

> I am retired due to a back injury.. I also have

> fibromyalgia, rheumatoid arthritis, ankylosing

> spondylitis, vitiligo, plantar faciistis, shoulder

> impingement and a few other illnesses..

> I was working from home making labels and business

> cards but the business got so busy that some days I

> was working 10 hours a day... I could not cope and

> had to give it up and admit I am not superwoman..

> I have come to the realisation that there is only so

> much I can do, and unfortunately illness rules my

> life so I have to deal with that and get on with

> life.. I am coping very well it is just sometimes I

> feel useless not being able to do things around the

> house...

> I look forward to meeting you all once again..

> Hugs

> Heidi

>

> DUNGEON MIZTREZZ aka Heidi

> www.geocities.com/heidijayesplace/

> http://blog.360./kookaburradezigns

> Look, Listen, but most of all Believe.

> +=<^^>=++=<^^>=++=<^^>=++=<^^>=+

My Challenges:

Scoliosis, Radiation Injury to my Brain, Ministrokes, Memory Problems, Cluster

Migraine Headaches, Osteoporosis with Multiple Broken Bones, Fibromyalgia,

Chronic Pain and Fatigue, Depression, PTSD, Bipolar Type II Rapid Cycling,

Anxiety, Chronic Insomnia, Sleep Apnea, Spinal Stenosis, TMJ injury, Thyroid

Cancer X3, Skin Cancer, Loss of Salivary Glands due to Thyroid Radiation Tx,

Teeth Destruction with Loss of Salivary Glands, Obesity, Restless Leg Syndrome,

Alpha Wave Intrusion on Delta Sleep plus many other Sleep Anomalies,

vonWillebrand's disease (genetic bleeding disorder), Hypertension, High

Cholesterol and Triglycerides, Chronic Allergies, Asthma, Peripheral Neuropathy,

Chronic Gastritis, GERD, Adult ADD, Overactive Bladder,

Posted December 7, 2006 · December 7, 2006

Hello Willow,

That is totally understandable..

Although I have noticed quite a few posts coming through...

I would rather enjoy my life, we are okay financially, it could always be better of course, and I am on disability so we are surviving... Not that I enjoy it because of the pain.. But I was just way too sick and started falling behind in orders and knew I had to start looking after my health... I dont remember ever hearing anyone saying on their death bed they wish they had spent more time at work...

My health has declined a lot in the last few months, and I find myself unable to do anything but sleep and spend time online..

I am sorry that you had to cope with a divorce.

You seem serene, if that is the right word to use... And serenity we all strive for...

Sounds like you have a good relationship with your son, that is great.

I dont have nor want kids.. I had a bit of a up and down childhood and with my medical problems starting in childhood I was advised against it..

Hugs

Heidi

DUNGEON MIZTREZZ aka Heidiwww.geocities.com/heidijayesplace/http://blog.360./kookaburradezignsLook, Listen, but most of all Believe.+=<^^>=++=<^^>=++=<^^>=++=<^^>=+

Re: Hi from a new member

Hello Heidi,The list is a little slow right now. People thatusually post a lot have multiple crises in theirlives. The holiday seasons may have something to dowith it too.I understand how hard it is when you've always workedhard and been very productive to cope with chronicillnesses. I'm finally quite happy with myself, but ithas taken 5 years and a divorce and a move halfwayacross the country to get me where I am now. My joys are my 2 dachshunds, my quarterhorse and myalmost 21 year old son who will be visiting me in acouple of weeks.Welcome back,Willow--- Dungeon Miztrezz <heidijaye2netspace (DOT) net.au>wrote:> Hi guys,> I am a new old member.> I was a member of the list a few months ago but I> had to unsubscribe because I was sick, LOL> considering the list is for illness that is> ironic...> I am Heidi 33, living in Sydney Australia..> I live with 63, we have no kids..> I am retired due to a back injury.. I also have> fibromyalgia, rheumatoid arthritis, ankylosing> spondylitis, vitiligo, plantar faciistis, shoulder> impingement and a few other illnesses..> I was working from home making labels and business> cards but the business got so busy that some days I> was working 10 hours a day... I could not cope and> had to give it up and admit I am not superwoman..> I have come to the realisation that there is only so> much I can do, and unfortunately illness rules my> life so I have to deal with that and get on with> life.. I am coping very well it is just sometimes I> feel useless not being able to do things around the> house...> I look forward to meeting you all once again..> Hugs> Heidi> > DUNGEON MIZTREZZ aka Heidi> www.geocities.com/heidijayesplace/> http://blog.360./kookaburradezigns> Look, Listen, but most of all Believe.> +=<^^>=++=<^^>=++=<^^>=++=<^^>=+My Challenges:Scoliosis, Radiation Injury to my Brain, Ministrokes, Memory Problems, Cluster Migraine Headaches, Osteoporosis with Multiple Broken Bones, Fibromyalgia, Chronic Pain and Fatigue, Depression, PTSD, Bipolar Type II Rapid Cycling, Anxiety, Chronic Insomnia, Sleep Apnea, Spinal Stenosis, TMJ injury, Thyroid Cancer X3, Skin Cancer, Loss of Salivary Glands due to Thyroid Radiation Tx, Teeth Destruction with Loss of Salivary Glands, Obesity, Restless Leg Syndrome, Alpha Wave Intrusion on Delta Sleep plus many other Sleep Anomalies, vonWillebrand's disease (genetic bleeding disorder), Hypertension, High Cholesterol and Triglycerides, Chronic Allergies, Asthma, Peripheral Neuropathy, Chronic Gastritis, GERD, Adult ADD, Overactive Bladder,

Posted December 7, 2006 · December 7, 2006

Brock,

Thank you for your kind comments....

I am actually an Aquarian, born 29th January...

Welcome to you too... I have auto immune issues too, so I can relate..

I am coming down with boils again at the moment, I have one on my neck in an akward position, it is right on the neck and every time I swallow it hurts..

Heidi

DUNGEON MIZTREZZ aka Heidiwww.geocities.com/heidijayesplace/http://blog.360./kookaburradezignsLook, Listen, but most of all Believe.+=<^^>=++=<^^>=++=<^^>=++=<^^>=+

Hi from a new member

Hi guys,

I am a new old member.

I was a member of the list a few months ago but I had to unsubscribe because I was sick, LOL considering the list is for illness that is ironic...

I am Heidi 33, living in Sydney Australia..

I live with 63, we have no kids..

I am retired due to a back injury.. I also have fibromyalgia, rheumatoid arthritis, ankylosing spondylitis, vitiligo, plantar faciistis, shoulder impingement and a few other illnesses..

I was working from home making labels and business cards but the business got so busy that some days I was working 10 hours a day... I could not cope and had to give it up and admit I am not superwoman..

I have come to the realisation that there is only so much I can do, and unfortunately illness rules my life so I have to deal with that and get on with life.. I am coping very well it is just sometimes I feel useless not being able to do things around the house...

I look forward to meeting you all once again..

Hugs

Heidi

DUNGEON MIZTREZZ aka Heidiwww.geocities.com/heidijayesplace/http://blog.360./kookaburradezignsLook, Listen, but most of all Believe.+=<^^>=++=<^^>=++=<^^>=++=<^^>=+

Posted December 7, 2006 · December 7, 2006

glad to have you back in the group. keep us posted on how you are doing. evelynDungeon Miztrezz <heidijaye2@...> wrote: Hi guys, I am a new old member. I was a member of the list a few months ago but I had to unsubscribe because I was sick, LOL

considering the list is for illness that is ironic... I am Heidi 33, living in Sydney Australia.. I live with 63, we have no kids.. I am retired due to a back injury.. I also have fibromyalgia, rheumatoid arthritis, ankylosing spondylitis, vitiligo, plantar faciistis, shoulder impingement and a few other illnesses.. I was working from home making labels and business cards but the business got so busy that some days I was working 10 hours a day... I could not cope and had to give it up and admit I am not superwoman.. I have come to the

realisation that there is only so much I can do, and unfortunately illness rules my life so I have to deal with that and get on with life.. I am coping very well it is just sometimes I feel useless not being able to do things around the house... I look forward to meeting you all once again.. Hugs Heidi DUNGEON MIZTREZZ aka Heidiwww.geocities.com/heidijayesplace/http://blog.360./kookaburradezignsLook, Listen, but most of all

Believe.+=<^^>=++=<^^>=++=<^^>=++=<^^>=+

Check out the all-new beta - Fire up a more powerful email and get things done faster.

Posted December 7, 2006 · December 7, 2006

The greatest gift that anyone can give themself is

living whatever life THEY want and can do IMHO.

Willow

--- Dungeon Miztrezz <heidijaye2@...>

wrote:

> Hello Willow,

> That is totally understandable..

> Although I have noticed quite a few posts coming

> through...

> I would rather enjoy my life, we are okay

> financially, it could always be better of course,

> and I am on disability so we are surviving... Not

> that I enjoy it because of the pain.. But I was just

> way too sick and started falling behind in orders

> and knew I had to start looking after my health... I

> dont remember ever hearing anyone saying on their

> death bed they wish they had spent more time at

> work...

> My health has declined a lot in the last few months,

> and I find myself unable to do anything but sleep

> and spend time online..

> I am sorry that you had to cope with a divorce.

> You seem serene, if that is the right word to use...

> And serenity we all strive for...

> Sounds like you have a good relationship with your

> son, that is great.

> I dont have nor want kids.. I had a bit of a up and

> down childhood and with my medical problems starting

> in childhood I was advised against it..

> Hugs

> Heidi

>

> DUNGEON MIZTREZZ aka Heidi

> www.geocities.com/heidijayesplace/

> http://blog.360./kookaburradezigns

> Look, Listen, but most of all Believe.

> +=<^^>=++=<^^>=++=<^^>=++=<^^>=+

> Re: Hi from a new member

>

> Hello Heidi,

>

> The list is a little slow right now. People that

> usually post a lot have multiple crises in their

> lives. The holiday seasons may have something to

> do

> with it too.

>

> I understand how hard it is when you've always

> worked

> hard and been very productive to cope with chronic

> illnesses. I'm finally quite happy with myself,

> but it

> has taken 5 years and a divorce and a move halfway

> across the country to get me where I am now.

>

> My joys are my 2 dachshunds, my quarterhorse and

> my

> almost 21 year old son who will be visiting me in

> a

> couple of weeks.

>

> Welcome back,

>

> Willow

>

> --- Dungeon Miztrezz <heidijaye2@...>

> wrote:

>

> > Hi guys,

> > I am a new old member.

> > I was a member of the list a few months ago but

> I

> > had to unsubscribe because I was sick, LOL

> > considering the list is for illness that is

> > ironic...

> > I am Heidi 33, living in Sydney Australia..

> > I live with 63, we have no kids..

> > I am retired due to a back injury.. I also have

> > fibromyalgia, rheumatoid arthritis, ankylosing

> > spondylitis, vitiligo, plantar faciistis,

> shoulder

> > impingement and a few other illnesses..

> > I was working from home making labels and

> business

> > cards but the business got so busy that some

> days I

> > was working 10 hours a day... I could not cope

> and

> > had to give it up and admit I am not

> superwoman..

> > I have come to the realisation that there is

> only so

> > much I can do, and unfortunately illness rules

> my

> > life so I have to deal with that and get on with

> > life.. I am coping very well it is just

> sometimes I

> > feel useless not being able to do things around

> the

> > house...

> > I look forward to meeting you all once again..

> > Hugs

> > Heidi

> >

> > DUNGEON MIZTREZZ aka Heidi

> > www.geocities.com/heidijayesplace/

> > http://blog.360./kookaburradezigns

> > Look, Listen, but most of all Believe.

> > +=<^^>=++=<^^>=++=<^^>=++=<^^>=+

>

> My Challenges:

> Scoliosis, Radiation Injury to my Brain,

> Ministrokes, Memory Problems, Cluster Migraine

> Headaches, Osteoporosis with Multiple Broken Bones,

> Fibromyalgia, Chronic Pain and Fatigue, Depression,

> PTSD, Bipolar Type II Rapid Cycling, Anxiety,

> Chronic Insomnia, Sleep Apnea, Spinal Stenosis, TMJ

> injury, Thyroid Cancer X3, Skin Cancer, Loss of

> Salivary Glands due to Thyroid Radiation Tx, Teeth

> Destruction with Loss of Salivary Glands, Obesity,

> Restless Leg Syndrome, Alpha Wave Intrusion on Delta

> Sleep plus many other Sleep Anomalies,

> vonWillebrand's disease (genetic bleeding disorder),

> Hypertension, High Cholesterol and Triglycerides,

> Chronic Allergies, Asthma, Peripheral Neuropathy,

> Chronic Gastritis, GERD, Adult ADD, Overactive

> Bladder,

>

Posted December 7, 2006 · December 7, 2006

Heh, you are close enough! lol. What is the change date, the 27th? I AM a Capricorn, Jan. 2nd.

Brock

Hi from a new member

Hi guys,

I am a new old member.

I was a member of the list a few months ago but I had to unsubscribe because I was sick, LOL considering the list is for illness that is ironic...

I am Heidi 33, living in Sydney Australia..

I live with 63, we have no kids..

I am retired due to a back injury.. I also have fibromyalgia, rheumatoid arthritis, ankylosing spondylitis, vitiligo, plantar faciistis, shoulder impingement and a few other illnesses..

I was working from home making labels and business cards but the business got so busy that some days I was working 10 hours a day... I could not cope and had to give it up and admit I am not superwoman..

I have come to the realisation that there is only so much I can do, and unfortunately illness rules my life so I have to deal with that and get on with life.. I am coping very well it is just sometimes I feel useless not being able to do things around the house...

I look forward to meeting you all once again..

Hugs

Heidi

DUNGEON MIZTREZZ aka Heidiwww.geocities.com/heidijayesplace/http://blog.360./kookaburradezignsLook, Listen, but most of all Believe.+=<^^>=++=<^^>=++=<^^>=++=<^^>=+

Posted December 8, 2006 · December 8, 2006

Thanks

I feel good being back..

I do have my problems, but I always feel so saddened when I hear of other people suffering..

So much suffering out there..

And someone is always worse off than yourself..

I am a bit achy tonight, so I just took one paracetamol and one ibuprofen to help ease the discomfort till it is time to take my morphine in 2 hours...

I am going through a bit of a guilt process at the moment, I cant keep house as good as I used to, it is clean but it is messy, I have to keep things close at hand so I dont have to go far to get them.. And I know I should not worry about what people think but I feel bad.. My partner does not care but I do...

Hugs

Heidi

DUNGEON MIZTREZZ aka Heidiwww.geocities.com/heidijayesplace/http://blog.360./kookaburradezignsLook, Listen, but most of all Believe.+=<^^>=++=<^^>=++=<^^>=++=<^^>=+

Re: Hi from a new member

glad to have you back in the group. keep us posted on how you are doing.

evelynDungeon Miztrezz <heidijaye2netspace (DOT) net.au> wrote:

Hi guys,

I am a new old member.

I was a member of the list a few months ago but I had to unsubscribe because I was sick, LOL considering the list is for illness that is ironic...

I am Heidi 33, living in Sydney Australia..

I live with 63, we have no kids..

I am retired due to a back injury.. I also have fibromyalgia, rheumatoid arthritis, ankylosing spondylitis, vitiligo, plantar faciistis, shoulder impingement and a few other illnesses..

I was working from home making labels and business cards but the business got so busy that some days I was working 10 hours a day... I could not cope and had to give it up and admit I am not superwoman..

I have com e to the realisation that there is only so much I can do, and unfortunately illness rules my life so I have to deal with that and get on with life.. I am coping very well it is just sometimes I feel useless not being able to do things around the house...

I look forward to meeting you all once again..

Hugs

Heidi

DUNGEON MIZTREZZ aka Heidiwww.geocities.com/heidijayesplace/http://blog.360./kookaburradezignsLook, Listen, but most of all Believe.+=<^^>=++=<^^>=++=<^^>=++=<^^>=+

Check out the all-new beta - Fire up a more powerful email and get things done faster.

Posted December 8, 2006 · December 8, 2006

That is so true....

DUNGEON MIZTREZZ aka Heidiwww.geocities.com/heidijayesplace/http://blog.360./kookaburradezignsLook, Listen, but most of all Believe.+=<^^>=++=<^^>=++=<^^>=++=<^^>=+

Re: Hi from a new member> > > Hello Heidi,> > The list is a little slow right now. People that> usually post a lot have multiple crises in their> lives. The holiday seasons may have something to> do> with it too.> > I understand how hard it is when you've always> worked> hard and been very productive to cope with chronic> illnesses. I'm finally quite happy with myself,> but it> has taken 5 years and a divorce and a move halfway> across the country to get me where I am now. > > My joys are my 2 dachshunds, my quarterhorse and> my> almost 21 year old son who will be visiting me in> a> couple of weeks.> > Welcome back,> > Willow> > --- Dungeon Miztrezz <heidijaye2netspace (DOT) net.au>> wrote:> > > Hi guys,> > I am a new old member.> > I was a member of the list a few months ago but> I> > had to unsubscribe because I was sick, LOL> > considering the list is for illness that is> > ironic...> > I am Heidi 33, living in Sydney Australia..> > I live with 63, we have no kids..> > I am retired due to a back injury.. I also have> > fibromyalgia, rheumatoid arthritis, ankylosing> > spondylitis, vitiligo, plantar faciistis,> shoulder> > impingement and a few other illnesses..> > I was working from home making labels and> business> > cards but the business got so busy that some> days I> > was working 10 hours a day... I could not cope> and> > had to give it up and admit I am not> superwoman..> > I have come to the realisation that there is> only so> > much I can do, and unfortunately illness rules> my> > life so I have to deal with that and get on with> > life.. I am coping very well it is just> sometimes I> > feel useless not being able to do things around> the> > house...> > I look forward to meeting you all once again..> > Hugs> > Heidi> > > > DUNGEON MIZTREZZ aka Heidi> > www.geocities.com/heidijayesplace/> > http://blog.360./kookaburradezigns> > Look, Listen, but most of all Believe.> > +=<^^>=++=<^^>=++=<^^>=++=<^^>=+> > My Challenges:> Scoliosis, Radiation Injury to my Brain,> Ministrokes, Memory Problems, Cluster Migraine> Headaches, Osteoporosis with Multiple Broken Bones,> Fibromyalgia, Chronic Pain and Fatigue, Depression,> PTSD, Bipolar Type II Rapid Cycling, Anxiety,> Chronic Insomnia, Sleep Apnea, Spinal Stenosis, TMJ> injury, Thyroid Cancer X3, Skin Cancer, Loss of> Salivary Glands due to Thyroid Radiation Tx, Teeth> Destruction with Loss of Salivary Glands, Obesity,> Restless Leg Syndrome, Alpha Wave Intrusion on Delta> Sleep plus many other Sleep Anomalies,> vonWillebrand's disease (genetic bleeding disorder),> Hypertension, High Cholesterol and Triglycerides,> Chronic Allergies, Asthma, Peripheral Neuropathy,> Chronic Gastritis, GERD, Adult ADD, Overactive> Bladder,> > > >

Posted December 8, 2006 · December 8, 2006

My sister is a capricorn on jan 5th... I think it changes on the 22nd.. I should know my astrology, but in the middle of a fibro flare up and my memory gets foggy...

I suffer from mental illness so in work and anything I put passion into I am a perfectionist, when it comes to the house well everything is everywhere, it is clean, just messy...

I have attached a photo to prove it... LOL

I have also attached a pic of me

Now my hair is a lot shorter

DUNGEON MIZTREZZ aka Heidiwww.geocities.com/heidijayesplace/http://blog.360./kookaburradezignsLook, Listen, but most of all Believe.+=<^^>=++=<^^>=++=<^^>=++=<^^>=+

Hi from a new member

Hi guys,

I am a new old member.

I was a member of the list a few months ago but I had to unsubscribe because I was sick, LOL considering the list is for illness that is ironic...

I am Heidi 33, living in Sydney Australia..

I live with 63, we have no kids..

I am retired due to a back injury.. I also have fibromyalgia, rheumatoid arthritis, ankylosing spondylitis, vitiligo, plantar faciistis, shoulder impingement and a few other illnesses..

I was working from home making labels and business cards but the business got so busy that some days I was working 10 hours a day... I could not cope and had to give it up and admit I am not superwoman..

I have come to the realisation that there is only so much I can do, and unfortunately illness rules my life so I have to deal with that and get on with life.. I am coping very well it is just sometimes I feel useless not being able to do things around the house...

I look forward to meeting you all once again..

Hugs

Heidi

DUNGEON MIZTREZZ aka Heidiwww.geocities.com/heidijayesplace/http://blog.360./kookaburradezignsLook, Listen, but most of all Believe.+=<^^>=++=<^^>=++=<^^>=++=<^^>=+

Posted December 8, 2006 · December 8, 2006

OMG, a dachshund list that I'm on is almost at

fisticuffs over whether to use bleach or vinegar or

some environmental safe commercial cleaner. It's gone

on for days. Last night, I finally told them ENOUGH. I

felt tired from all the TALK about cleaning. That

broke some tension, but they're at it again this am.

There is so much more in this life than cleaning your

house every day. I've always wanted my house to be

clean enough to be healthy and dirty enough that

anyone would feel at home to do whatever (except

clean).

I had to chuckle when you said for Australia. When I

was a kid I used to go on when something was bothering

me that some day I'm going to run away from all this

crap and move to Australia.

LOL