whats up with Fin??

[Guest guest]

Hi

Many have mistakenly thought my condition had improved, due to my renewed

activity and support at Parents' over this past year. ( and apologies for not

being able to frequent L-Aid Buhner). That couldnt have been further from the

truth. I was simply getting increased emails asking for help and thought it

easier to post back at Parents where all can see the information at the same

time, without having to reply to similar emails.

Truth be known--my condition has deteriorated over the past 3-5 years so that I

have severe and frequently intractable vertigo ( no med can help), heart issues

( it STOPS and now I get runs of PVCs of the type where they say 'get the

paddles' but a cough or 2 brings it back--for now), and Im in/out of wheelchair.

On top of that Evan ( turned 20 this Sept) has been VERY ill almost bedbound for

5-6 years. And my older 2 are not at home anymore ( grad school in Az, and

married in Boston). And the kids' father lives in a condo 3 mi away.Evan and I

are on our own.

and despite all this I tried to be available for any who needed it. Also, my

posts by necessity had to be limited to posting as much valid info as I could in

the limited time between vertigo attacks ( or while typing with one eye closed

and the world swimming) and between runs to the ER with me, or Drs with Evan.So

Ive been told my posts are curt, cold, and to the point. If Ive offended any of

you I apologize but truth be told--Ive always been terse and to the point. I was

never a huggy poster, leaving that to the others here who are more amenable to

that.

This past 2 weeks I recieved the news from my cardiologist that I had to ease

back, since they cant tell how serious my condition has become; also many of the

meds theyd suggest- I cant take due to contradicting other conditions.And since

so much re Lyme and kids is upsetting and I feel the need to help more than I am

medically able to--safely--Ive made a deal with another long time advocate.

Cave aka Janet has been on Parents for a short while and she is extremely

experienced in Lyme ( almost as long as me); and is a Mom, grandmom herself. She

has chronic Lyme and so knows full well all of what we all go through. She is

also intelligent and with her health professional background,she can grab the

science and explain it as fast as I can. All I ask is for you to be gentle with

her sarcastic sense of humor, please!

And so I made a deal with her for her to provide the support to all of you that

I normally would, in exchange for my promising her that Id not frequent the site

and take a break. A few times in the past 2 weeks, Ive recieved personal emails

cc-ing me on posts here,or specific requests of " ask Fin " , and I asked her to

post some information on the boards I knew would be helpful. We speak daily by

phone and email several times a day as my health allows,so I am up to date with

the goings on in Lyme etc.

IF you have urgent need-I can be reached via email (finrussak@...) and by

phone--many here have that number or you can email Janet for it.Dont call before

11 am NJ time (wink). I am also occassionally at Lymeneteurope and the blog

Cave76andLyme on blogspot( Cave's site for revealing all that is bad in Lymeland

and what we all can and should be doing about it to regain credibility and

accountability).OR simply rely on Janet for the support--she is GREAT.

I wish you all well and will try to have Janet/Cave post updates about Evan and

my conditions as we find out more.and I hope (G-d willing) to be back here in

full force in a short while after they run more tests and figure out what to DO

about my wonky heart.

take care and be well

Finette