Re: article in NJEM Oct 2007- Criticizing the chronic Lyme diagnosis

[Guest guest]

Does your son have any kind of acne?

While my son was waiting to get an appointment with Dr. J (which as many of

you know can take months) the PA (physician assistant) who was seeing my son

would not prescribe antibiotics even though my son had a clearly positive

Lyme blood test (so positive that Dr. J was surprised when I told him my son

had NEVER had a Lyme vaccination).

But the PA would give my son a prescription for an antibiotic for acne which

was one of the same ones Dr. J suggested he start for Lyme, in this case

minocycline.

Unfortunately my son had a massive reaction, not just herx, and suffered a

ten-week migraine from the minocycline. One of the side effects is that it

can cause fluid build up in the brain (or something like that, I don't

remember the exact process).

Being in Iowa, it became too difficult to continue to see Dr. J in CT, so

now my son has an ongoing prescription this time for doxycycline, again for

his acne from a local physician (we have changed clinics locally in the past

few years for many reasons).

Doxy is one of the Lyme meds, so hopefully over time we will see progress.

There are no Lyme docs in Iowa, so this is how we are getting what he needs.

Kelley

From: <FinRussak@...>

Sent: Wednesday, December 19, 2007 5:56 PM

Subject: [ ] article in NJEM Oct 2007- Criticizing the

chronic Lyme diagnosis

>

> http://content.nejm.org/cgi/content/full/357/14/1422

> I would WELCOME an alternative diagnosis and treatment for my and my son's

> health woes...alas they cant give one other than " it CANT be chronic Lyme "

>

[Guest guest]

Hi Kelley

Evan is with a very good LLMD and on meds...but we cant seem to find the right

combo in 3 yrs...his main problem is a low IGG for which he had 6 mo of IV

therapy about 2 yrs ago..great improvement but then the insurance company nixed

more and not one single Dr will RX it...his levels while low arent " low

enough " ...another term I HATE --if they ARE low and if IV helped then why the

heck cant he have more???

what I meant by another diagnosis was directed at those who deny chronic or

persistent Lyme

for all those who can look at us and say " it cant be Lyme " I challenge them to

then say WHAT is it then...and also why CANT it be Lyme or  some as yet unknown

co-infection???

But thanks anyway for your suggestion...maybe itll help others!!!

(btw that town...the hospital and area in NJ that serves it...sorry but

when I was ranting about NJ doctors I guess I assumed that was clear...but with

all of us going far for treatments I apologize for not being clear)

have a happy healthy holiday and new year!!!

Finette

[“Pride is concerned with who is right. Humility is concerned with what is

right.†- Ezre Taft Benson]

[ ] article in NJEM Oct 2007- Criticizing the

chronic Lyme diagnosis

>

> http://content.nejm.org/cgi/content/full/357/14/1422

> I would WELCOME an alternative diagnosis and treatment for my and my son's

> health woes...alas they cant give one other than " it CANT be chronic Lyme "

>

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