Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 I am a 60 year old female with a multitude of autoimmune diseases including PA. I have been on all the meds, and still take Methotrexate, Plaquenil, Feldene as well as others. I was on Enbrel for about a year or so, it has ruined my lungs. I tried Remicade, felt good the first time, went downhill from there and voluntarily stopped as I could not see the sense in taking such a medication when I was not getting much of a benefit from it. Since stopping the Enbrel, my psoriasis has gotten much worse on my skin. I would not consider going back on Enbrel, however. I was diagnosed with PA about 7 years ago, but in hindsight, probably had it much, much longer and was misdiagnosed, as many others have. I have deteriorated to the point that I can no longer walk anywhere. In the house, I have a Hoverround and use a quad cane on my right side and a quad half walker on my left side. I cannot stand up for any length of time at all. I fought all of this for as long as I could. The deterioration in the past 2 years has even frightened me. I have no energy left at all anymore. If I overdo, I pay for it dearly. Even riding my Hoverround out of the house can cause me excruciating pain in my right arm from using the control, which is extremely sensitive, its not like its hard to do at all, its just how bad I have become. I used to swim twice a week in a heated pool doing the Arthritis Foundation recommended exercises. I enjoyed that immensely and felt it helped me last longer, but sadly had to give it up as I could not walk into the building anymore to make it to the pool. Even to use my chair was too difficult. No one understands how painful life is for me and how hard it is just to go to the bathroom some days. I hope to hear from others who have any similar problems. Thanks for listening. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.