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I am a 60 year old female with a multitude of autoimmune diseases

including PA. I have been on all the meds, and still take

Methotrexate, Plaquenil, Feldene as well as others. I was on Enbrel

for about a year or so, it has ruined my lungs. I tried Remicade,

felt good the first time, went downhill from there and voluntarily

stopped as I could not see the sense in taking such a medication when

I was not getting much of a benefit from it. Since stopping the

Enbrel, my psoriasis has gotten much worse on my skin. I would not

consider going back on Enbrel, however. I was diagnosed with PA

about 7 years ago, but in hindsight, probably had it much, much

longer and was misdiagnosed, as many others have. I have

deteriorated to the point that I can no longer walk anywhere. In the

house, I have a Hoverround and use a quad cane on my right side and a

quad half walker on my left side. I cannot stand up for any length

of time at all. I fought all of this for as long as I could. The

deterioration in the past 2 years has even frightened me. I have no

energy left at all anymore. If I overdo, I pay for it dearly. Even

riding my Hoverround out of the house can cause me excruciating pain

in my right arm from using the control, which is extremely sensitive,

its not like its hard to do at all, its just how bad I have become.

I used to swim twice a week in a heated pool doing the Arthritis

Foundation recommended exercises. I enjoyed that immensely and felt

it helped me last longer, but sadly had to give it up as I could not

walk into the building anymore to make it to the pool. Even to use

my chair was too difficult.

No one understands how painful life is for me and how hard it is just

to go to the bathroom some days. I hope to hear from others who have

any similar problems. Thanks for listening.

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