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Re: Digest Number 761

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dogs

after i lost my beloved companion, a black lab, seventeen years old i

waited six months and realized i was really a dog person at heart and

needed another good buddy, but with my arthritis i did not feel like

going through the puppy stage etc.

so i had heard about PUREBRED RESCUE and went to the library and read

about all sorts of dogs and picked an AKITA, because they are very

sturdy, strong and healthy and my lab had hip displacia in his old age

and i did not want to see any animal go through that again.

and i live alone and wanted a protective animal....so i got a nice dog

from them, a little girl two years old and she is just perfect. i have

had her four years now and am very happy with her.

just a thought, they have those groups all over the country you may wish

to check it out when its time for you to get another dog.

sorry about your loss. i know how you feel.

sincerely

fire

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  • 10 months later...

Anneke & Liz,

Do either one of you get palpitations after you eat? I do. Dr. scoped

down my throat & found a small ulcer, back in oct. Yesterday my MD told

me he got a letter from the Gastro Doc & he said stress & anxiety are

the causes. I can remember one day my father was hoeing in his garden &

had a fast heart rate. I believe he was in his 60's, at the time maybe

late 50's. They put him on 2 heart meds, one being digitalis & I think

Digoxin (sp). He had CMT. I got it from him, but we never knew about CMT

then. I wonder if my palpitations are what he had & maybe it is CMT

related. Just my OHO.

Patsy

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hi Folks,

I too have pain in my knees, epecially the right one. I thought maybe it

popped out of place, from climbing out of tub, started hurting around

Labor Day, I normally take showers, but at the time I was taking tub

baths. Doc says it is Osteoarthritis, funny but before when it bothered

me like a couple of times if i did a lot of walking or standing on

concrete floors & complained to him he said it was bursitis. Please make

up my mind! LOL I have fallen a lot on my knees HARD! Has your daughter

fallen on her knees?

Patsy

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Hi All, The daughter I was refering to was Lizs' in previous message,

about falling on knees. Sorry Patsy

Also I had dizzy spells sometimes, & thought it may be from allergies.

Always knew when I was going to get one, because I felt off balance in

my head. I wasn't dizzy while walking, but when I would turn over in

bed, the room would swim! It would just be for a couple of nights this

happened I haven't had that to happen in a long time. Cigaret smoke did

that to me I think, when I stayed the last 6 mos. of my mothers' life

w/her before she died of cancer, she was a smoker before she ended up on

oxogen, I was having the dizziness quite often. Do you suppose allergy

symptoms could be related to CMT?

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Most allergies effect your eyes, ears, nose and throat. CMT can effect your

balance. Our body's balance mechanism is located in the inner ear. If this

area is irritated by an allergy it can cause your balance to become worse.

So there is a correlation.

Regards,

BC

----- Original Message -----

From: <patsy1128@...>

< >

Sent: Tuesday, February 13, 2001 7:21 AM

Subject: Re: [] Digest Number 761

> Hi All, The daughter I was refering to was Lizs' in previous message,

> about falling on knees. Sorry Patsy

> Also I had dizzy spells sometimes, & thought it may be from allergies.

> Always knew when I was going to get one, because I felt off balance in

> my head. I wasn't dizzy while walking, but when I would turn over in

> bed, the room would swim! It would just be for a couple of nights this

> happened I haven't had that to happen in a long time. Cigaret smoke did

> that to me I think, when I stayed the last 6 mos. of my mothers' life

> w/her before she died of cancer, she was a smoker before she ended up on

> oxogen, I was having the dizziness quite often. Do you suppose allergy

> symptoms could be related to CMT?

>

>

>

>

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Bill,

Dick S here,

I thought the balance problems from CMT related to the lack of feeling in the

feet. If you can't feel your feet you can't control those little muscles

that keep you righted. And from there, the little muscles quit working cause

they don't get any signals from the brain. Help me if I am wrong. I didn't

think it was in the ear.

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Patsy,

Lamar here,

Vertigo (dizziness) can be caused by many things. I have very poor balance,

and most CMT'ers describe the same thing. This is due to the nerve damage.

Dizziness can also be caused by other things, the most frequent being

problems with the inner ear. Allergies are the result of a totally

different thing, and I have never seen anything that relates them to CMT.

----- Original Message -----

From: patsy1128@...

Sent: Tuesday, February 13, 2001 10:21 AM

Subject: Re: [] Digest Number 761

Hi All, The daughter I was refering to was Lizs' in previous message,

about falling on knees. Sorry Patsy

Also I had dizzy spells sometimes, & thought it may be from allergies.

Always knew when I was going to get one, because I felt off balance in

my head. I wasn't dizzy while walking, but when I would turn over in

bed, the room would swim! It would just be for a couple of nights this

happened I haven't had that to happen in a long time. Cigaret smoke did

that to me I think, when I stayed the last 6 mos. of my mothers' life

w/her before she died of cancer, she was a smoker before she ended up on

oxogen, I was having the dizziness quite often. Do you suppose allergy

symptoms could be related to CMT?

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Bill and patsy,

Lamar again,

Please remember that our balance problems are mostly caused by the damage to

the proprioceptors in our extremities. These nerves pick up impulses and

send them to the brain. With me, I now have to look to see where my feet

are. One of the neurological exams physicians do is to move a person's foot

or toe without the person seeing what he is doing. (like push down or pull

up on a toe). When that is done to me, I can still tell he is touching my

toe, but I can not tell if he is pushing up or down. It is very true that

allergies can make balance worse, but they do this with anyone. With

allergies IGe antibodies build up and cause the symptoms. While some types

of CMT do result in ear damage, including deafness it is not a result of an

allergy. I would think that the only relation would be that allergies could

make our already bad balance worse.

----- Original Message -----

From: Bill , Digitec Security

Sent: Tuesday, February 13, 2001 11:33 AM

Subject: Re: [] Digest Number 761

Most allergies effect your eyes, ears, nose and throat. CMT can effect

your

balance. Our body's balance mechanism is located in the inner ear. If this

area is irritated by an allergy it can cause your balance to become worse.

So there is a correlation.

Regards,

BC

----- Original Message -----

From: <patsy1128@...>

< >

Sent: Tuesday, February 13, 2001 7:21 AM

Subject: Re: [] Digest Number 761

> Hi All, The daughter I was refering to was Lizs' in previous message,

> about falling on knees. Sorry Patsy

> Also I had dizzy spells sometimes, & thought it may be from allergies.

> Always knew when I was going to get one, because I felt off balance in

> my head. I wasn't dizzy while walking, but when I would turn over in

> bed, the room would swim! It would just be for a couple of nights this

> happened I haven't had that to happen in a long time. Cigaret smoke did

> that to me I think, when I stayed the last 6 mos. of my mothers' life

> w/her before she died of cancer, she was a smoker before she ended up on

> oxogen, I was having the dizziness quite often. Do you suppose allergy

> symptoms could be related to CMT?

>

>

>

>

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Patti here .... For Dick ... That is what I thought . Its the

weak muscles in

feet . I do have a poor balance . I have to hold on to

something when people

are talking to me. I walk like a drunk person at nights due to

my deafness and

of course my CMT .

________________________________________________________________

GET INTERNET ACCESS FROM JUNO!

Juno offers FREE or PREMIUM Internet access for less!

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I think that is what I said isn't it?

----- Original Message -----

From: Lamar son <lls@...>

< >

Sent: Tuesday, February 13, 2001 9:46 AM

Subject: Re: [] Digest Number 761

> Bill and patsy,

> Lamar again,

>

> Please remember that our balance problems are mostly caused by the damage

to

> the proprioceptors in our extremities. These nerves pick up impulses and

> send them to the brain. With me, I now have to look to see where my feet

> are. One of the neurological exams physicians do is to move a person's

foot

> or toe without the person seeing what he is doing. (like push down or

pull

> up on a toe). When that is done to me, I can still tell he is touching my

> toe, but I can not tell if he is pushing up or down. It is very true that

> allergies can make balance worse, but they do this with anyone. With

> allergies IGe antibodies build up and cause the symptoms. While some

types

> of CMT do result in ear damage, including deafness it is not a result of

an

> allergy. I would think that the only relation would be that allergies

could

> make our already bad balance worse.

> ----- Original Message -----

> From: Bill , Digitec Security

>

> Sent: Tuesday, February 13, 2001 11:33 AM

> Subject: Re: [] Digest Number 761

>

>

> Most allergies effect your eyes, ears, nose and throat. CMT can effect

> your

> balance. Our body's balance mechanism is located in the inner ear. If

this

> area is irritated by an allergy it can cause your balance to become

worse.

> So there is a correlation.

> Regards,

> BC

> ----- Original Message -----

> From: <patsy1128@...>

> < >

> Sent: Tuesday, February 13, 2001 7:21 AM

> Subject: Re: [] Digest Number 761

>

>

> > Hi All, The daughter I was refering to was Lizs' in previous message,

> > about falling on knees. Sorry Patsy

> > Also I had dizzy spells sometimes, & thought it may be from allergies.

> > Always knew when I was going to get one, because I felt off balance in

> > my head. I wasn't dizzy while walking, but when I would turn over in

> > bed, the room would swim! It would just be for a couple of nights this

> > happened I haven't had that to happen in a long time. Cigaret smoke

did

> > that to me I think, when I stayed the last 6 mos. of my mothers' life

> > w/her before she died of cancer, she was a smoker before she ended up

on

> > oxogen, I was having the dizziness quite often. Do you suppose

allergy

> > symptoms could be related to CMT?

> >

> >

> >

> >

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Dick,

there was an earlier post from Patsy regarding dizziness and allergies and

what if any relationship they had to CMT.

My point was this:

A persons balance is controlled in their inner ear whether they have CMT or

not. Some allergies affect the ears. If a person with CMT (who has poor

balance to begin with) also has an allergy that is affecting his or her

ears, this could cause dizziness and increased problems with balance.

Does CMT cause people to get allergies, probably not.

Can an allergy exacerbate symptoms associated with CMT, absolutely!

Regards,

BC

----- Original Message -----

From: <swolfnc2@...>

< >

Sent: Tuesday, February 13, 2001 1:56 PM

Subject: Re: [] Digest Number 761

> Bill,

>

> Dick S here,

>

> I thought the balance problems from CMT related to the lack of feeling in

the

> feet. If you can't feel your feet you can't control those little muscles

> that keep you righted. And from there, the little muscles quit working

cause

> they don't get any signals from the brain. Help me if I am wrong. I

didn't

> think it was in the ear.

>

>

>

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  • 10 months later...

re: same and different

same is like matching is what I told my boys

they both learn concepts hand over hand, and using concrete objects first-

generalize to worksheets later

you can find really motivation things, or just use blocks

reduce the materials in the feild or on a page

just a mom

off topic question

>

> Does anyone have any experiences with teaching children social skills and

scenarios using videos and/ or computer programs?

>

> Any information ANYONE has regarding this would be greatly appreciated.

>

> thanks,

> julie

>

>

>

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My eldest son has strength in visual motor areas and a precocious reader.

He learned to expressively use east west north and south from one of Edmark

computer programs- I loved all of them because they adjust to the childs

level. Also concepts like big middle and little are on the math cd.

I love all their products- Sammy Science, Millies Math House, Trudies Time

and Place, 's. My son mastered these cds in a systematic hand over

hand method at the end of a cotreat for st and ot and as a reward to end st.

He loves the computer.

As for socialization- this I cannot say directly transferred but it has led

to learning songs to try and compensate. I think Barney and Magic School bus

stuff have been of interest to my child because he still is exploring how to

talk and act in public. He has picked up coin phrases and developed his

interest in science because of MSB series. He enjoys watching himself on a

video retrospectively. I do not know of any videos that teach social skills

per se. There is a kidsong video Sammy where the kids are animated and doing

alot of motor imitation and I liked that video.

Good luck

just a mom

off topic question

>

> Does anyone have any experiences with teaching children social skills and

scenarios using videos and/ or computer programs?

>

> Any information ANYONE has regarding this would be greatly appreciated.

>

> thanks,

> julie

>

>

>

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  • 2 years later...
Guest guest

Just got back from a long trip and have to admit I have not been reading my

digests the last couple of weeks.

I start my LDN on Thursday after my liver biopsy. I'll be on the LDN for

several autoimmune conditions, HepC, Thyroid Cancer and Fibromyalgia (or

something much like it) but the message I read in digest 761 struck a nerve.

Please keep your personal opinions about stem cell research to yourself.

That belongs on another forum. If a person on this message board wants to

talk about it as a viable companion treatment to LDN for their illness then

they should be able to do so without being verbally attacked by another

member.

This is not a Right to Lifers forum. This is not a Christians on LDN forum.

If you don't believe in stem cell research, fine. There are probably a lot

of you out there who don't. But I am quite sure that the person who

mentioned the benefit of their experience with stem cell therapy was not

looking to be attacked by you.

And BTW, I agree with 's statement below.

I find so much hypocrisy in the arguments against stem cell therapy that it

baffles me. Hello Pot, this is the Kettle calling....You are Black. As for

God's law and Natural Law, who are you to say you know what is and isn't

against it?

Humanity has been playing God and messing around with this one so much for

the last century that we have polluted our own environment to the point that

we have become the Canary in the Coalmine.

If a 15 year-old is raped and impregnated, and that pregnancy is aborted

because the thought of carrying a child conceived in such violence is

unbearable to her, then why shouldn't that group of cells be donated to

scientific research and become something positive in a research environment

instead of being sent to the biohazard waste bin? Turn the negative into the

positive.

Not one person who supports Stem Cell Therapy has ever come outright and

said " We need to kill us some more babies so we can further our

research.... " If you find a quote to that effect in print somewhere please

send it to me or post it here and then maybe we will all change our tune.

Until then I am hoping that Stem Cell research and Gene Therapy will be the

Saving Grace that may prevent my two beautiful children from having to go

through the medical hell that my diseases have wrought on me! Humanity has

already played God with our environment, our health and our medical

practices. We can make an infertile woman carry eight babies and some

fundamentalist will jump up and say it was God's Will. But I don't buy that

for a minute...a human doctor made that happen and that couple chose to

carry all eight of those petri-made babies. We might as well use our

God-like skills to try and cure people of terrible diseases, too.

Can I hear an Amen?

> Message: 1

> Date: Mon, 5 Jul 2004 20:52:12 -0700

> From: " Olin " <jolin@...>

> Subject: Re: Re: Stem Cell Treatment (OT)

>

> So why are you devout Christians always supporting wars that kill babies.

So what's worse - aborting a group of undifferentiated cells or dropping a

bomb on a family and killing their 3 year old.

> RO

> ----- Original Message -----

> From: tradpab916

> low dose naltrexone

> Sent: Monday, July 05, 2004 8:31 PM

> Subject: [low dose naltrexone] Re: Stem Cell Treatment (OT)

>

>

> I hope you know where you are getting these stem cells from. Are they

> cord stem cells or adult stem cells OR ARE THEY THE STEM CELLS TAKEN

> FROM KILLED BABIES?! IF YOU USE CELLS FROM ABORTED BABIES (INCLUDING

> THOSE GROWN IN A PETRIE DISH, AS THESE ARE BABIES TOO) YOU ARE IN

> LEAGUE WITH COMMITTING MURDER--MULTIPLE MURDERS, AND WILL BE HELD

> RESPONSIBLE BEFORE GOD HIMSELF. What good is using stem cells if you

> have to kill babies to get them. That is horrible. I am using LDN for

> Chronic Active Epstein Barr virus, and also have a spinal cord injury

> and I would NEVER use stem cells under ANY circumstance unless I knew

> for certain that they were cord stem cells or adult stem cells. This

> is not just my opinion--it is God's Law and the Natural Law.-----

> ette Brady

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Guest guest

Amen...

----- Original Message -----

From: Lara Schuchat

low dose naltrexone

Sent: Tuesday, July 06, 2004 1:21 PM

Subject: Re: [low dose naltrexone] Digest Number 761

Just got back from a long trip and have to admit I have not been reading mydigests the last couple of weeks.I start my LDN on Thursday after my liver biopsy. I'll be on the LDN forseveral autoimmune conditions, HepC, Thyroid Cancer and Fibromyalgia (orsomething much like it) but the message I read in digest 761 struck a nerve.Please keep your personal opinions about stem cell research to yourself.That belongs on another forum. If a person on this message board wants totalk about it as a viable companion treatment to LDN for their illness thenthey should be able to do so without being verbally attacked by anothermember.This is not a Right to Lifers forum. This is not a Christians on LDN forum.If you don't believe in stem cell research, fine. There are probably a lotof you out there who don't. But I am quite sure that the person whomentioned the benefit of their experience with stem cell therapy was notlooking to be attacked by you.And BTW, I agree with 's statement below.I find so much hypocrisy in the arguments against stem cell therapy that itbaffles me. Hello Pot, this is the Kettle calling....You are Black. As forGod's law and Natural Law, who are you to say you know what is and isn'tagainst it?Humanity has been playing God and messing around with this one so much forthe last century that we have polluted our own environment to the point thatwe have become the Canary in the Coalmine.If a 15 year-old is raped and impregnated, and that pregnancy is abortedbecause the thought of carrying a child conceived in such violence isunbearable to her, then why shouldn't that group of cells be donated toscientific research and become something positive in a research environmentinstead of being sent to the biohazard waste bin? Turn the negative into thepositive.Not one person who supports Stem Cell Therapy has ever come outright andsaid "We need to kill us some more babies so we can further ourresearch...." If you find a quote to that effect in print somewhere pleasesend it to me or post it here and then maybe we will all change our tune.Until then I am hoping that Stem Cell research and Gene Therapy will be theSaving Grace that may prevent my two beautiful children from having to gothrough the medical hell that my diseases have wrought on me! Humanity hasalready played God with our environment, our health and our medicalpractices. We can make an infertile woman carry eight babies and somefundamentalist will jump up and say it was God's Will. But I don't buy thatfor a minute...a human doctor made that happen and that couple chose tocarry all eight of those petri-made babies. We might as well use ourGod-like skills to try and cure people of terrible diseases, too.Can I hear an Amen?> Message: 1> Date: Mon, 5 Jul 2004 20:52:12 -0700> From: " Olin" <jolin@...>> Subject: Re: Re: Stem Cell Treatment (OT)>> So why are you devout Christians always supporting wars that kill babies.So what's worse - aborting a group of undifferentiated cells or dropping abomb on a family and killing their 3 year old.> RO> ----- Original Message ----- > From: tradpab916> low dose naltrexone > Sent: Monday, July 05, 2004 8:31 PM> Subject: [low dose naltrexone] Re: Stem Cell Treatment (OT)>>> I hope you know where you are getting these stem cells from. Are they> cord stem cells or adult stem cells OR ARE THEY THE STEM CELLS TAKEN> FROM KILLED BABIES?! IF YOU USE CELLS FROM ABORTED BABIES (INCLUDING> THOSE GROWN IN A PETRIE DISH, AS THESE ARE BABIES TOO) YOU ARE IN> LEAGUE WITH COMMITTING MURDER--MULTIPLE MURDERS, AND WILL BE HELD> RESPONSIBLE BEFORE GOD HIMSELF. What good is using stem cells if you> have to kill babies to get them. That is horrible. I am using LDN for> Chronic Active Epstein Barr virus, and also have a spinal cord injury> and I would NEVER use stem cells under ANY circumstance unless I knew> for certain that they were cord stem cells or adult stem cells. This> is not just my opinion--it is God's Law and the Natural Law.-----> ette Brady

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  • 3 months later...

Hi Guys,

I'm about half way through my elimination diet - so far so good - I didn't

react ot salycilates, but a very strong hit on sulphites. Tomorrow I think

is amines. Fingers crossed.

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Hi,

Like I wrote the other day, reading labels will not be enough. You could still be getting those additives and not know until the end of the day or after a while if you react after there is a buildup. If it would help, the organization, Feingold Association, has a Shopping Guide and Foodlist among its membership materials. Because of weak labeling laws, members have to stay away from the additives we are discussing here so it communicates with manufactures to learn whether the products meet the criteria. If it does, then the members are made aware of the information via the newsletter and Shopping Guide and Foodlist. There are over 1000 products listed by brand name. Check out Feingold Association Home Page

Markey

************************************

i spoke with my dr and a few friends whoare doctors and they all encouraged me to start with an eliminationdiet because it is an easier place to start. an elimination diet prohibits ALL additives, preservatives, colors etc, as does dengate'sdiet. i frankly think this is the most important part of both diets.there is so much junk in the foods that we eat. i was a prettyconsciencous label reader and a rather healthy eater and i was stillamazed at how much bad stuff i was eating.

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Butter only has annatto and it is not preserved.

* Oil and butter are necessities in diet but watch out for hidden colourants and preservatives (oxidants BHA, BHT and TBHQ).

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But annatto isn't allowed on the Failsafe diet.

Re: http://members.ozemail.com.au/~sdengate/THE%20BIG%2050.html

And one little mistake like this can skew the results of the

elimination diet.

in NM

>

> Butter only has annatto and it is not preserved.

>

> * Oil and butter are necessities in diet but watch out for hidden

colourants

> and preservatives (oxidants BHA, BHT and TBHQ).

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Be careful with this colourant is all I can say. I react with irritable airways,

bronchial hyperresponsiveness (BHR). Colourant tto 160b should be AVOIDED

according to the website links posted yesterday and available in the Sampters

library for reference purposes). to extracts c, e, f are too new to have

been tested for behavioural toxicity. Beta-carotene 160a is safe.

>>> Mjetd@... 10/26/04 07:27PM >>>

Butter only has annatto and it is not preserved.

* Oil and butter are necessities in diet but watch out for hidden colourants

and preservatives (oxidants BHA, BHT and TBHQ).

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  • 6 months later...
Guest guest

Although I appreciate whatever FACTS can be brought to bear on the Life system situation.   As for these bland un-substantiated assertions.The certification board is in no way bogus,  nor is the school which is in no way owned or run by Quantum-Life and never has been.  The reason they endorsed it is on their site.  But for your information it is because they became inspired by comprehensiveness of the knowledge of health care presented by the Chancellor R. Decker.  What seems bogus here is the nasty defensiveness that seems to prevail with regard to this subject.Keep your statement to substantiated facts without ad hock insults and we will be out of the "Spin Zone"!Marla S. On May 15, 2005, at 7:18 PM, qxci-english wrote:I personally think the Life System is one of three scams damaging the reputation of the biofeedback community.  The other two are a bogus certification board and "university" started by, owned by, run by or at least endorsed by Quantum Life. Marla CBBT ATTr DiPh CBT Owner http://www.marlasapothecary.com Marla's Apothecary     VP Heilkunst Publishing http://www.homeopathy.com

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  • 4 months later...

" I wish I had listened to him. My daughter might have a had

a life worth living. "

I'm hoping you don't really mean that, or won't always mean it. Lives worth

living come in infinite varieties, and although my son's autism and other

labels initially made me worried about his quality of life, I have learned

over the past decade that what I used to think of as quality of life

(so-called intelligence, socially approved behavior, and verbal language) is

not the measure of the person. Make no mistake, my son will never be able

to live without functional and behavioral supports, (i.e., he's not " high

functioning " - a value-laden label), but he is a teacher to all those who

are open to him. I'm not a " wow, aren't we lucky we have autism, it's so

neat " person. We've been through very bleak times, struggling to keep my

family together. We have been extremely lucky that my son has been

reasonably healthy.

I hope you and your child and family continue to thrive.

Best regards, Laurel, ( " Mum " to Chrissie, Steve, and Danny, 12 y.o., who

has labels of classic infantile autism, intellectual disability, mood

disorder and Tourettes, and goes to school with other 6th graders with and

without disabilities.)

Laurel , MFA

Family Support Coordinator

Univ of TN Boling Center for Developmental Disabilities

711 Jefferson Avenue

Memphis, TN 38105

(901) 448-3737

(901) 448-7097 fax

lryan2@...

www.utmem.edu/bcdd

Digest Number 761

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