Hi I'm New Here

[Guest guest]

Alice,

How fortunate you are to have such an experienced Dr. Along with your

somewhat, possibly fatigued adrenals, have you had your thyroid checked with

FT3, FT4, RT3 labs? Adrenal and Thyroid issues can certainly contribute to

your CFS, Sjogrens' Syndrome and Asthma.

I am currently on the road to thyroid/adrenal health and as a result I am

now off my inhalers and all allergy medicines even though we are in the

throes of a busy spring season. BTW, was your adrenal testing blood or 24

hr saliva? In my layman's opinion, Lugol's, Selenium and Magnesium will

only help your situation. They have certainly helped in my situation and

that is the best testimonial I can share.

Abundant Blessings,

[Guest guest]

Just my two cents, but recently I had stopped taking my basic iodine dose (about 12 mg./day) for the past several weeks and my asthma was rearing it's head.   Less than a week ago, I heard about the iodine protocol and the benefits, so I started taking my iodine again, and within a few hours of only taking 6 mg, my asthma diminished.  I have now been doing about 12-15 mg/day for about 4 days and no more asthma.  It sounds like you have worse asthma than I do, but I think the iodine protocol will help you.

RobinOn Fri, Apr 24, 2009 at 8:42 AM, <cynsayre@...> wrote:

Alice,

How fortunate you are to have such an experienced Dr. Along with your

somewhat, possibly fatigued adrenals, have you had your thyroid checked with

FT3, FT4, RT3 labs? Adrenal and Thyroid issues can certainly contribute to

your CFS, Sjogrens' Syndrome and Asthma.

I am currently on the road to thyroid/adrenal health and as a result I am

now off my inhalers and all allergy medicines even though we are in the

throes of a busy spring season. BTW, was your adrenal testing blood or 24

hr saliva? In my layman's opinion, Lugol's, Selenium and Magnesium will

only help your situation. They have certainly helped in my situation and

that is the best testimonial I can share.

Abundant Blessings,

[Guest guest]

Hi ,

Welcome to the group. I am sorry I didn't get a chance to answer you the other

day...kind of crazy holiday weekend.

I don't want to minimize what you are feeling in any way by saying this, but,

welcome to the club! Your story is much like many of us...and like you, many of

us are a bit conflicted about how we feel about our previous treatment. We are

glad for the benefits mostly, but also upset that the cascading series of

problems that seems to be very common place is in direct contradiction to the

" have a nice life " that most of us got years ago.

You don't say where you live, or if you are under the care of a good ortho who

has lots of experience with us old HR types. That would be one thing that you

might want to start exploring. Those of us that have had surgery to revise our

earlier fusions and re-balance our bodies have generally had pretty good

results. However....the surgery is grueling and the recovery is lengthy. At the

point that most of us agree to go forward we are pretty debilitated...lots of

pain and little function. It is safe to say that joy had pretty much gone out of

my life when I was ready to agree to surgery.

Do you know what levels are fused in your original surgery? The flatback

condition seems much more commonplace when the fusion was down to L4, and the

other problems you have said you have are the constellation of problems that

seem pretty common here. They are now acknolwedging that long fusions will often

lead to accelerated degenerative disc disease and stenosis.

I will say that I am greatful that I had the revision and have regained most of

my former physical abilities....except that I am still 53 no matter what they do

to me! It took 3-4 years until I really felt at home in my new posture...but now

it seems pretty normal and whatever bending at the waist I can no longer do

seems small in comparison to what I CAN do.

I dont recognize the names of the gals you are looking for...but you never

know...they may be here reading this very minute. We have plenty of members who

read but rarely post.... thanks for jumping in!

As you spend a little time looking around here you will learn lots and make lots

of friends. It is tedious, but worthwhile to go backwards in time and read old

posts from time to time. You will learn a lot. We also have lots on information

in our Files and Links...just stuff to plow through on a fall day when nothing

else calls you.

Thanks again for introducing yourself and please let us know a little more about

yourself, and if there is anything particular you are looking to find out.

Take Care, Cam

[Guest guest]

Roy:

Try Willard Water XXX at health store, dilute 1 part WW to 1 part purified water

and spray on affected areas.

Also, try MMS1 , see www.jimhumble.biz

Make the solution of MMS1 and activate with braggs vinegar or citric acid. Mix

enough to fill 2 ounce spray bottle and just spray on. It should eradiacate

skin issue by itself or alternate with Willard Water XXX

Hi I'm New Here

My name is Roy. I am 59 and have what I believe is a serious candida problem.

My worst symptoms are skin rash in four symmetrical places: my upper arms and

upper thighs. They are not in the usual moist, yeast-rash areas, but are in dry

exposed areas in these four places. They do not move, they do not come and go,

and they are red and raised, of various sizes, start as little bumps that become

raised red patches that itch a little but burn and are irritated. The ones on my

legs started a couple of years ago after antibiotics and the ones on my arms

started one year ago after more antibiotics. They all really exploded after more

antibiotics. I was eating a high carb, high sugar, diet. I have tried antifungal

creams, oral lamisil, a month of nystatin, and for over four months I have

followed a low carb, no sugar diet. For about two months now I have tried to

follow Bee Wilder's diet and supplements.

I started threelac last week and have been having some mouth sores and bad

sinus congestion from it which I think may be die off.

I have read the information in the files. Much of it agrees with the info on

Bee's site. But I have noticed that Duncan Price recommends inulin, whey, and

selenium. Could someone tell me a little more about that? I started inulin last

week to help keep my bowels moving when I started the threelac, but it seemed to

give me a lot of gas. When I stopped the inulin, the gas went away.

I am miserable and have just about given up hope of ever healing from these

painful rashes. Two years ago I was healthy, active, and happy. Today I can't

wear clothes comfortably, sit, walk, drive comfortably, and can't eat in

restaurants or enjoy anything.

These rashes came suddenly from the antibiotics and worsened with each new

round of antibiotics. But I have not had any antibiotics in almost a year now,

and the rashes are still there. Surely I can be healed.

Any hope?

Thanks,

Roy T.

[Guest guest]

Hi Anne,

What amounts are you taking? Do you follow a strict diet? Are you taking any

other supps?

Beth

Hi I'm New Here

Hi Roy,

I can comment on inulin/whey/selenium. That combination has helped me a great

deal with (undiagnosed) digestion and bowel irregularities and symptoms. When I

first started taking that combination, I was disappointed with the results.

After consulting with Duncan (Crow), I realized that I wasn't taking enough. Now

that my intake is sufficient, I'm feeling better than I have in years. My

suggestion: pursue healing trends that include inulin/whey/selenium. Hope this

is helpful.

Love and Laughter,

Anne

[Guest guest]

Hi Beth,

No, I'm not following a strict diet. I do minimize carbs whenever possible.

So, that's been a change.

I take:

approximately 35 grams, 2X/day of cold pressed whey isolates

approximately 4 grams, 2X/day of inulin

200 mg, 2X/day of selenium

Kona Gold Trace Minerals

Vitamin A

Vitamin E

Vitamin C

HCI

I take a couple other combination supplements for age management. But, REALLY

feeling better came from taking the whey/inulin/selenium. I don't know if these

amounts are appropriate for everyone. This is what has been recommended to me

and the regime that I now follow.

Hope this is helpful.

Love and Laughter,

Anne

[Guest guest]

>

> Hi Roy,

>

> I can comment on inulin/whey/selenium. That combination has helped me a great

deal with (undiagnosed) digestion and bowel irregularities and symptoms. When I

first started taking that combination, I was disappointed with the results.

After consulting with Duncan (Crow), I realized that I wasn't taking enough.

Now that my intake is sufficient, I'm feeling better than I have in years. My

suggestion: pursue healing trends that include inulin/whey/selenium. Hope this

is helpful.

>

> Love and Laughter,

> Anne

>

Thank you Anne, for responding. I wrote Duncan separately and asked him about

this and he suggested the same. I have inulin (in a jar sold as fiber, and in a

stevia product called Stevia Plus). When I use it, even just a little in my

decaf as sweetening, it gives me lots of gas. When I stop, the gas goes away.

But I certainly will tolerate gas if the result is to help me with my candida

and rashes. I asked Duncan about this and he suggested FOS if I couldn't

tolerate inulin. I guess he thought I found the gas intolerable. Does it give

you lots of gas and rumbling? Is it something that goes away with use?

I also asked him about the form of selenium, whether inorganic or organic. I

understand that some of it comes as a yeast product. I'm a little leery of

yeast, as I seem to react. However, I am taking threelac (for a week now) and it

of course has a teensy bit of yeast. It doesn't seem to be bothering me, though.

What IS apparently bothering me is that the threelac, and indeed any really

powerful probiotic (like Healthy Trinity), causes lots of sinus reaction,

pressure, and burning irritated gums and nasal tissue. Do you think this might

be die off? I certainly will tolerate it if it is doing me some good. Do you are

anyone else reading this find that probiotics raise the acidity level in your

mouth such that your gums tend to feel irritated and raw? I think that is what

is causing it, because about three months ago I took a very powerful (50 billion

cfu) probiotic and got the same reaction. It went away when I stopped.

Also, I read that brazil nuts have so much selenium that a single one is

tantamount to a supplement. Has anyone here used brazil nuts for a source of

selenium?

Finally, I ordered some undenatured whey. The expensive kind that comes in

individual packets, sixty to a box. I am going to start using it as soon as it

comes. I will do anything to heal. Anything. I have used methods that I quite

frankly consider foolish (oil pulling, castor oil packs, coffee enemas, etc.)

But I will gladly be foolish if it can help me heal. There is nothing I won't

consider.

Again, thank you for your response. If anyone reading this has any experience or

advice to share with someone whose problems began with antibiotics and mostly

involve what seem to be permanent fixed rashes, I will very much appreciate

reading it.

Roy T.

[Guest guest]

Roy,

 

I agree with you about the probiotics raising the acidity level in your mouth.

I've also been taking threelacs off & on the last couple months & they cause

alot die off for me especially after a cheat. My gums been being sensitive alot

off & on this month not sure if its from the threelacs or cheats. I just started

taking a powerful 50 billion probiotic this week again after running out. I get

die off from the probiotics to they make me tired.

 

April B.

[Guest guest]

In my world there is hope for you, Roy!

These rashes you are having sounds like a really deep seated fungal

issue and a lymphatic issue. As you take antifungals and antibiotics,

they drive the fungus further out to the edge of the body in an attempt

to survive.

The gas build up with the use of Duncans things would mean to me your GI

tract is severally traumatized and extremely out of balance.

The sore mouth and sinus issues is very common when the fungus is

systemic.

If I was working with you I would be having you on the a very strict NO

carb diet, MMS to rid the body of all pathogens including fungus, heavy

saturation of probioitcs and minerals, colostrum from New Zealand,

electrically formulated enzymes and an electrically formulated herbal

combination to gently clean and release fecal matter from the mucosa

lining, enhance peristalic action, repair nerve damage, increase

lymphatic drainage and promotes harmonious fuction of the adrenal

glands. And then we would look at the possibility of an electrical

reset on the body.

With this suggested protocol you will kill off the fungus and other

pathogens, support the body with elements that are electrically and

bio-available to create a maximum healing event, and bring back the

life to the GI tract(which is of paramount importance).

Wil Spencer VMSP, Naturopath

>

> My name is Roy. I am 59 and have what I believe is a serious candida

problem. My worst symptoms are skin rash in four symmetrical places: my

upper arms and upper thighs. They are not in the usual moist, yeast-rash

areas, but are in dry exposed areas in these four places. They do not

move, they do not come and go, and they are red and raised, of various

sizes, start as little bumps that become raised red patches that itch a

little but burn and are irritated. The ones on my legs started a couple

of years ago after antibiotics and the ones on my arms started one year

ago after more antibiotics. They all really exploded after more

antibiotics. I was eating a high carb, high sugar, diet. I have tried

antifungal creams, oral lamisil, a month of nystatin, and for over four

months I have followed a low carb, no sugar diet. For about two months

now I have tried to follow Bee Wilder's diet and supplements.

> I started threelac last week and have been having some mouth sores and

bad sinus congestion from it which I think may be die off.

> I have read the information in the files. Much of it agrees with the

info on Bee's site. But I have noticed that Duncan Price recommends

inulin, whey, and selenium. Could someone tell me a little more about

that? I started inulin last week to help keep my bowels moving when I

started the threelac, but it seemed to give me a lot of gas. When I

stopped the inulin, the gas went away.

> I am miserable and have just about given up hope of ever healing from

these painful rashes. Two years ago I was healthy, active, and happy.

Today I can't wear clothes comfortably, sit, walk, drive comfortably,

and can't eat in restaurants or enjoy anything.

> These rashes came suddenly from the antibiotics and worsened with each

new round of antibiotics. But I have not had any antibiotics in almost a

year now, and the rashes are still there. Surely I can be healed.

> Any hope?

> Thanks,

> Roy T.

>

[Guest guest]

Hi Roy; Anne's experience below represents the majority, in whom the gas

subsides as the bifidobacteria assert dominance. It takes awhile, maybe a few to

several weeks, because the all the inulin does is change the bifidobacteria and

lactobacilli count for the better over those weeks, and THEY have to outcompete

pathogens on the bowel lining, which also takes awhile.

The use of inulin to correct the bowel in this way has been advocated by medical

practitioners who have been successfully using the exact same treatment for

5,000 years in China, and 3,000 in Europe since the ancient Greeks.

all good,

Duncan

>

> Hi Roy,

>

> I can comment on inulin/whey/selenium. That combination has helped me a great

deal with (undiagnosed) digestion and bowel irregularities and symptoms. When I

first started taking that combination, I was disappointed with the results.

After consulting with Duncan (Crow), I realized that I wasn't taking enough.

Now that my intake is sufficient, I'm feeling better than I have in years. My

suggestion: pursue healing trends that include inulin/whey/selenium. Hope this

is helpful.

>

> Love and Laughter,

> Anne

>

>

[Guest guest]

, I deal with OA and FM, not ME. I have a couple friends who deal with CFS (same thing right) and they are having a really tough time taking LDN. The one finally went down to a very low dose after starting at the higher recommended dose. I don't know how low she is now but the other friend can't even seem to take .5mg. She's given up altogether for a while. She said it made her woozy, not painful necessarily.

As for me I started at .5mg almost 5 months ago and got all the way up to 2.5mg daily and after about 10 days or so at this dose, my pains in muscles/joints became intense and just too much to continue. I have enough joint/muscle pain as it is.

So now after taking a 3 day break the end of Feb. I'm back on 1.5mg every other day. So far so good and no extra pain and it's been about 10 days or so.

I also take Diatomaceous Earth for my arthritic issues and thinking both are helping more lately. I am worse some days and better others. Today was a pretty good day, I was out all day and hardly limped. I have hip/knee OA and lower back issues. I'm older too. Anyway, that's my experience to date. Hope you can work it out. Oh, I take mine at 9amish. joyce

[low dose naltrexone] Hi I'm new here

Hi allCould anyone help me understand the theory behind how LDN works please? I've read quite a lot of material, but am puzzled by something in a paper by Brown and Pankkrepp - LDN for disease prevention and quality of life, published in Medical Hypotheses, 2009. They cite research that suggests that beta-endorphins suppress TH1 and augment TH2 cells. But other work suggests the opposite, and surely most conditions that people take LDN for involve a damaging shift to TH2 immunity. I started LDN two and a half weeks ago for ME and Fibromyalgia (which I've had for 28 years), taking 1.1 mg at first, then 1.5 mg for a few days. After one week my pain and flu-like symptoms had got so much worse I decreased to 0.5 mg. After 10 days on this dose I'm still in extreme pain, feeling very ill, sweating and shivering, and haven't been able to eat anything much for all this time. So I'm stopping today for a few days at least. Are these extreme reactions common at such a low dose?Many thanks for your help.

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.790 / Virus Database: 271.1.1/2743 - Release Date: 03/12/10 23:33:00

[Guest guest]

Mechanisms involved in beneficial effect of LDN

http://preview.tinyurl.com/lelnlu

>

> Hi all

>

> Could anyone help me understand the theory behind how LDN works please? I've

read quite a lot of material, but am puzzled by something in a paper by Brown

and Pankkrepp - LDN for disease prevention and quality of life, published in

Medical Hypotheses, 2009.

>

> They cite research that suggests that beta-endorphins suppress TH1 and augment

TH2 cells. But other work suggests the opposite, and surely most conditions that

people take LDN for involve a damaging shift to TH2 immunity.

>

> I started LDN two and a half weeks ago for ME and Fibromyalgia (which I've had

for 28 years), taking 1.1 mg at first, then 1.5 mg for a few days. After one

week my pain and flu-like symptoms had got so much worse I decreased to 0.5 mg.

After 10 days on this dose I'm still in extreme pain, feeling very ill, sweating

and shivering, and haven't been able to eat anything much for all this time. So

I'm stopping today for a few days at least.

>

> Are these extreme reactions common at such a low dose?

>

> Many thanks for your help.

>

>

>

[Guest guest]

I have fibromyalgia, dx'd for me than 10 years. Until last fall when

unremitting stress brought on a health crash, I managed it fairly well,

mainly with large doses of 5-HTP. The health crash made me seek new

solutions, and I found LDN. Because I also have Hashi's, I started at

1.5mg, but had no reactions, and moved to 3mg and the 4.5mg within a

month. It's really helped me a lot. WHen people have reactions at the

tinier doses, some people say that taking the larger doses of LDN may be

more tolerable, others say that can't be so. I guess I'm lucky. Just

wanted to share my experience. You might want to investigate the iodine

protocol (Iodine group on ), it has helped me a lot.

Oh also, it strikes me that you might have candida overgrowth, which is

frequently associated with fibro and CFS. LDN has a tendency to bring out

candida problems if they are at all present. Others here can help you with

approaches to dealing with candida. Iodine works as well.

--

>I started LDN two and a half weeks ago for ME and Fibromyalgia (which I've

>had for 28 years), taking 1.1 mg at first, then 1.5 mg for a few days.

>After one week my pain and flu-like symptoms had got so much worse I

>decreased to 0.5 mg. After 10 days on this dose I'm still in extreme pain,

>feeling very ill, sweating and shivering, and haven't been able to eat

>anything much for all this time. So I'm stopping today for a few days at

>least.

>

>Are these extreme reactions common at such a low dose?

>

>Many thanks for your help.

>

>

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

Here is is a new pdf written by Dr Ian Zagon explaining LDN.

http://www.ldnresearchtrustfiles.co.uk/docs/Dr%20Zagon.pdf

Dr. McCandless covers much in this writing

http://ldn.proboards.com/index.cgi?board=links & action=display & thread=1551

Art

My MS/LDN story/1988 - 2010

http://ldn.proboards.com/index.cgi?board=personal & action=display & thread=867

>

> Hi all

>

> Could anyone help me understand the theory behind how LDN works please? I've

read quite a lot of material, but am puzzled by something in a paper by Brown

and Pankkrepp - LDN for disease prevention and quality of life, published in

Medical Hypotheses, 2009.

>

> They cite research that suggests that beta-endorphins suppress TH1 and augment

TH2 cells. But other work suggests the opposite, and surely most conditions that

people take LDN for involve a damaging shift to TH2 immunity.

>

> I started LDN two and a half weeks ago for ME and Fibromyalgia (which I've had

for 28 years), taking 1.1 mg at first, then 1.5 mg for a few days. After one

week my pain and flu-like symptoms had got so much worse I decreased to 0.5 mg.

After 10 days on this dose I'm still in extreme pain, feeling very ill, sweating

and shivering, and haven't been able to eat anything much for all this time. So

I'm stopping today for a few days at least.

>

> Are these extreme reactions common at such a low dose?

>

> Many thanks for your help.

>

>

>

[Guest guest]

Dr Zagon

http://fred.psu.edu/ds/retrieve/fred/investigator/isz1

Bernard Bihari, MD

http://www.low dose naltrexone.org/bbihari_cv.htm

Dr. McCandless

Autism_LDN/

>

> Hi all

>

> Could anyone help me understand the theory behind how LDN works please? I've

read quite a lot of material, but am puzzled by something in a paper by Brown

and Pankkrepp - LDN for disease prevention and quality of life, published in

Medical Hypotheses, 2009.

>

> They cite research that suggests that beta-endorphins suppress TH1 and augment

TH2 cells. But other work suggests the opposite, and surely most conditions that

people take LDN for involve a damaging shift to TH2 immunity.

>

> I started LDN two and a half weeks ago for ME and Fibromyalgia (which I've had

for 28 years), taking 1.1 mg at first, then 1.5 mg for a few days. After one

week my pain and flu-like symptoms had got so much worse I decreased to 0.5 mg.

After 10 days on this dose I'm still in extreme pain, feeling very ill, sweating

and shivering, and haven't been able to eat anything much for all this time. So

I'm stopping today for a few days at least.

>

> Are these extreme reactions common at such a low dose?

>

> Many thanks for your help.

>

>

>

[Guest guest]

I've just heard from somebody new to LDN who states the same. She started on

2mg and got increased pains for some three days, she upped it to 3 mg and her

fibromyalgia pains improved but no noticeable improvement with her RA issues.

She upped it to 4 mg and then everything seemed to improve. Maybe it's the body

getting used to LDN and maybe she did improve on the higher dose better than on

the low one.

Silvia

>

> I have fibromyalgia, dx'd for me than 10 years. Until last fall when

> unremitting stress brought on a health crash, I managed it fairly well,

> mainly with large doses of 5-HTP. The health crash made me seek new

> solutions, and I found LDN. Because I also have Hashi's, I started at

> 1.5mg, but had no reactions, and moved to 3mg and the 4.5mg within a

> month. It's really helped me a lot. WHen people have reactions at the

> tinier doses, some people say that taking the larger doses of LDN may be

> more tolerable, others say that can't be so. I guess I'm lucky. Just

> wanted to share my experience. You might want to investigate the iodine

> protocol (Iodine group on ), it has helped me a lot.

>

> Oh also, it strikes me that you might have candida overgrowth, which is

> frequently associated with fibro and CFS. LDN has a tendency to bring out

> candida problems if they are at all present. Others here can help you with

> approaches to dealing with candida. Iodine works as well.

>

> --

[Guest guest]

Hi. I'm Loretta. I am 51 years old and was diagnosed with psoriatic arthritis

when I was 30. It came on almost over night and took some time for them to find

out what was wrong.

I have been on gold pills, Enbrel, methotextrate and other drugs and now just

try to do diet, meditation, and Aleve, Tylenol or Motrin. I can not go back on

the strong drugs since they caused bad side effects.

My right fingers are bending now. I have it all over my body but still can walk

and do things. It has stopped me from riding horses, heavy hiking, etc. The

worse of this disease are the limits and fatigue.

My psoriasis is on my scalp and occasionally will get in my belly button. Does

any one here have scalp problems and what do you do to help? I use Elcon liquid

and it helps but not a lot and I use good shampoo in addition to Denorex. Suave

makes me itch really horribly.

" loretta587 " <loretta587@...>