Re: anyone else experience this

July 28, 2006

My daughter perseverates HEAVILY too.

I'm still in the process of figuring out how to curb this behavior (she

will mention shoes or going to a store for hours and be uncontrollable

before and during the event).

I try to do an " if-then " situation. Or " When-Then "

I tell her if she sits attentively in class then she will go to the

store. Or when she sits nicely, then I will let her pick out a silly

putty or fruit snack box.

Does it work, eh, sometimes.

Em

On Thu, 27 Jul 2006 8:03 pm, jerzyannie@... wrote:

> I have a 7 y/o boy with HFA. We have experimented with meds for

> attention and impulsiveness from October to May of this year. The

> results were not impressive and side-effects were worst. He has been

> great all year in Camp.

> One thing I have noticed, not sure if anyone else has experienced

> similar, is that if when I drop him off, I tell him we are doing

> something after school, camp, etc OR that I am picking him up early, he

> is a monster all day. not listening, aggressive, runs away , just such

> a brat.

> Yesterday I told him we were going to the Supermarket after camp. He

> was excited (he loves to shop). THey said they couldn't believe how

> " off " he was.

>

> Any suggestions, other than don't tell him in advance. I mean, what

> causes this. I have seen for myself that he gets " obsessed " on things.

> I couldn't attend field trips, etc. unless I was taking him home b/c he

> would obsess on me leaving that he wouldn't enjoy himself. He is an

> only child but loves to socialize and visits with his Dad monthly and

> isn't always attached to my hip.

>

> He learned my cell phone number in kindergarten so now he bugs the

> girls at camp to call me all day, or he sneaks their cell phones when

> they are not looking to call me and say, " Mommy coming soon " . And then

> he's fine.

>

July 28, 2006

My daughter perseverates HEAVILY too.

I'm still in the process of figuring out how to curb this behavior (she

will mention shoes or going to a store for hours and be uncontrollable

before and during the event).

I try to do an " if-then " situation. Or " When-Then "

I tell her if she sits attentively in class then she will go to the

store. Or when she sits nicely, then I will let her pick out a silly

putty or fruit snack box.

Does it work, eh, sometimes.

Em

On Thu, 27 Jul 2006 8:03 pm, jerzyannie@... wrote:

> I have a 7 y/o boy with HFA. We have experimented with meds for

> attention and impulsiveness from October to May of this year. The

> results were not impressive and side-effects were worst. He has been

> great all year in Camp.

> One thing I have noticed, not sure if anyone else has experienced

> similar, is that if when I drop him off, I tell him we are doing

> something after school, camp, etc OR that I am picking him up early, he

> is a monster all day. not listening, aggressive, runs away , just such

> a brat.

> Yesterday I told him we were going to the Supermarket after camp. He

> was excited (he loves to shop). THey said they couldn't believe how

> " off " he was.

>

> Any suggestions, other than don't tell him in advance. I mean, what

> causes this. I have seen for myself that he gets " obsessed " on things.

> I couldn't attend field trips, etc. unless I was taking him home b/c he

> would obsess on me leaving that he wouldn't enjoy himself. He is an

> only child but loves to socialize and visits with his Dad monthly and

> isn't always attached to my hip.

>

> He learned my cell phone number in kindergarten so now he bugs the

> girls at camp to call me all day, or he sneaks their cell phones when

> they are not looking to call me and say, " Mommy coming soon " . And then

> he's fine.

>

July 28, 2006

Hi,

I am thinking that a visual schedule might help your son. If he comprehends a calendar make one on the computer and put pictures on the days that are camp, shopping, etc.... maybe a week at a time....

good luck

Pam

-------------- Original message -------------- From: <jerzyannie@...>

I have a 7 y/o boy with HFA. We have experimented with meds for attention and impulsiveness from October to May of this year. The results were not impressive and side-effects were worst. He has been great all year in Camp. One thing I have noticed, not sure if anyone else has experienced similar, is that if when I drop him off, I tell him we are doing something after school, camp, etc OR that I am picking him up early, he is a monster all day. not listening, aggressive, runs away , just such a brat.Yesterday I told him we were going to the Supermarket after camp. He was excited (he loves to shop). THey said they couldn't believe how "off" he was.Any suggestions, other than don't tell him in advance. I mean, what causes this. I have seen for myself that he gets "obsessed" on things. I couldn't attend field trips, etc. unless I was taking him home b/c he would obsess on me leaving that he wouldn't enjoy himself. He is an only child but loves to socialize and visits

with his Dad monthly and isn't always attached to my hip.He learned my cell phone number in kindergarten so now he bugs the girls at camp to call me all day, or he sneaks their cell phones when they are not looking to call me and say, "Mommy coming soon". And then he's fine.

July 28, 2006

Hi,

I am thinking that a visual schedule might help your son. If he comprehends a calendar make one on the computer and put pictures on the days that are camp, shopping, etc.... maybe a week at a time....

good luck

Pam

-------------- Original message -------------- From: <jerzyannie@...>

I have a 7 y/o boy with HFA. We have experimented with meds for attention and impulsiveness from October to May of this year. The results were not impressive and side-effects were worst. He has been great all year in Camp. One thing I have noticed, not sure if anyone else has experienced similar, is that if when I drop him off, I tell him we are doing something after school, camp, etc OR that I am picking him up early, he is a monster all day. not listening, aggressive, runs away , just such a brat.Yesterday I told him we were going to the Supermarket after camp. He was excited (he loves to shop). THey said they couldn't believe how "off" he was.Any suggestions, other than don't tell him in advance. I mean, what causes this. I have seen for myself that he gets "obsessed" on things. I couldn't attend field trips, etc. unless I was taking him home b/c he would obsess on me leaving that he wouldn't enjoy himself. He is an only child but loves to socialize and visits

with his Dad monthly and isn't always attached to my hip.He learned my cell phone number in kindergarten so now he bugs the girls at camp to call me all day, or he sneaks their cell phones when they are not looking to call me and say, "Mommy coming soon". And then he's fine.

July 28, 2006

I can't tell Karac that we are going to do something after school or after the rec. etc. because he can't wait for the activitity; he wants to do it immediately. Maybe that is the way your son is. Pat K

July 28, 2006

I can't tell Karac that we are going to do something after school or after the rec. etc. because he can't wait for the activitity; he wants to do it immediately. Maybe that is the way your son is. Pat K

November 2, 2009

All 6 of us have tested positive and treated for lyme to some degree.

Unfortunately B had neuro lyme it was terrible for her. Sometimes, its hard to

set those boundaries

Sent via BlackBerry from T-Mobile

Re: [ ] anyone else experience this?

I agree Jeanette, though I have some idea, as I have lyme too. I just hate

having to go around in public feeling like I have to explain his behavior. When

I do people are understanding though.

Dara

November 2, 2009

How do you know if your child has neuro lyme versus just lyme?

thanks

Judy

________________________________

From: <InRNette@...>

Sent: Sun, November 1, 2009 11:13:18 PM

Subject: Re: [ ] anyone else experience this

All 6 of us have tested positive and treated for lyme to some degree.

Unfortunately B had neuro lyme it was terrible for her. Sometimes, its hard to

set those boundaries

Sent via BlackBerry from T-Mobile

Re: [ ] anyone else experience this?

I agree Jeanette, though I have some idea, as I have lyme too. I just hate

having to go around in public feeling like I have to explain his behavior. When

I do people are understanding though.

Dara

------------------------------------

For free up to date information about Lyme disease and the known

co-infections delivered to your email address see:

Robynns_Lyme_List/

November 3, 2009

My daughter went from an A/B student to failing everything from Oct to Nov. We

thought she was simply going through hormone stage. She was having difficulty

staying on task and also chattered randomly never finishing a thought.

Now I insisted that she be tested because my oldest daughter got bitten by 3

mosquitos one night walking her boy friend out to the car. She came in

complaining about the bites, went to bed, and we ended up in the ER about 1am a

steriod dosepack, benedryl shot, and something for the itch. She literally had

solid hives on both cheeks of her butt. It kept flaring despite the medicine and

back to our family doctor...800 dollars of blood work all normal, she ended up

leaving class and walking into his office and demanded he come out right then to

see her blood red hands feet and splotches as well. The only test he did not do

was for lyme and he said he didn't think so but just to cover ALL bases...three

days later she was on a protocol for Lyme for a year treatment because of the

high number ofc bands....sorry more later

Sent via BlackBerry from T-Mobile

Re: [ ] anyone else experience this

How do you know if your child has neuro lyme versus just lyme?

thanks

Judy

November 3, 2009

My second daughter was involved in volleyball and basketball. She came in after

practices and hit her bed and sleep until the next morning this went on for a

while until there was a weight loss, continue exhaustion, muscle aches and

pains. We chalked it up to low iron and too much activity. My oldest took her to

the doctor for me on a Mon. Complete blood work including Lyme test but

preliminary diagnosis was fibro and she could hang up her basketball shoes and

put her bat away. Two days later, I had a sheduled appt. and I was handed her

blood report. Looking down the 3-4 pages report was WNL all the way down until

the lyme test which showed a reportable number of bands identical to older

daughters bloodwork (two different testing labs) I was able to take her starter

medicine to her basketball game and despite the exhaustion she played her best

game! This occurred the first of Dec. As a follow up to my older two girls, my

oldest mentioned to the doctor the events leading up to third daughter's report

card, inattention, etc. As a result, since the youngest and I were outside more

than any of the six, we went the day after Christmas for complete bloodwork. My

iron was dangerously low and had one band under to be reportable but my third

daughter's bands were way very high. Looking back the doc was upset for not

testing prior when she showed signs of a sleep disturbance...but then who would

have expected? She had gone untreated for probably 3±yrs. Thus started our

roller coaster ride for 5 yrs of treatment including antibiotics and a

neuropsychological eval by a LL Psychologist. More later.