for Mom Tiffanie

[Guest guest]

Tiffanie, When I was diagnosed with Lyme in 2005 and then soon found out that I

had given it to my daughters through pregnancy I was devastated with guilt. Not

only that but after 15 years of being misdiagnosed with CFS and fibromyalgia,

etc. I felt no better finding out that I had the most controversial disease in

the US!

But that was 5 years ago now and I am much better and my kids have been off

antibiotics for over a year now. After I picked myself off the floor I began to

focus ONLY on getting us better (my husband has Lyme too) and kept the faith

that we would get over this with the right treatment. We decided we weren't

going to mess around but see the best doctors we could find in the country. You

are so close to the number 1 pediatric Lyme specialist in the country, Dr.

Ray in New Haven, CT. We traveled all the way across the country

for years to see him because he was the only one we trusted with our children.

It will take months for you to get your son an appt so in the meantime stick

with the ID doctors or ask for other recommendations but DO have him see a lyme

literate doctor in addition to an ID doctor. As others have said through

experience your son will not get the correct treatment to cure him from the ID

doctors because of politics that

if you delve into will only make you feel worse.

Hang in there, your son WILL get better with the right treatment, don't hesitate

to call Dr. and get on his waiting list! Barbara