Re: is home!

[Guest guest]

Casey,

What great news--it sounds like everything went just as it should--Way to go

!

Marcia

Mom t Sara (DS) and 6 and Lucas 10

[Guest guest]

Casey,

Are you sure this little girls had open heart surgery? That is

great she is doing so well! What a trooper! I am so glad to hear the wonderful

news.

Pam mom to Hannah and ID twins age 6

stephaniesmom200@... wrote:

Hello

all,

Thanks so much for the words

of support before and during 's

surgery. She came

home this afternoon, after 4 1/2 days in the hospital.

They tell me she is healing

quickly, and I wasn't sure I believed them until

we got home. Within

10 minutes she was sitting on the floor surrounded by

toys and one at a time throwing

them over her shoulder with great glee! She

was her happy little self

again, as soon as she was home. Thanks again for

all the thoughts and prayers.

It was great to have know so many people were

pulling for her.

Casey, mom to

(DS) and , 19mo.

http://DSyndrome.com/Multiples

[Guest guest]

Casey,

That is such wonderful news! I'm so glad is bouncing back so beautifully! What a joy to have her home safe and sound again!

CarolynMum to on 9, 7, Emma (Ds) 5 and Nicki (Ds) 4http://www.geocities.com/nz_mom/sykesfamily.html

is home!

Hello all, Thanks so much for the words of support before and during 's surgery. She came home this afternoon, after 4 1/2 days in the hospital. They tell me she is healing quickly, and I wasn't sure I believed them until we got home. Within 10 minutes she was sitting on the floor surrounded by toys and one at a time throwing them over her shoulder with great glee! She was her happy little self again, as soon as she was home. Thanks again for all the thoughts and prayers. It was great to have know so many people were pulling for her. Casey, mom to (DS) and , 19mo. http://DSyndrome.com/Multiples

[Guest guest]

Casey - Terrific news! Isn't is amazing how quickly

kids bounce back! Tell to keep up the good

work.

Judi

__________________________________________________

[Guest guest]

Casey,

Iam very happy for you all. That is so nice she is doing good and back to

kids things.

Mabel, mom to Carolina, Cristian and a-ds (27 months old)

>From: stephaniesmom200@...

>Reply-Multiples-DS

>Multiples-DS

>Subject: is home!

>Date: Wed, 20 Jun 2001 01:45:13 EDT

>

>Hello all,

>

>Thanks so much for the words of support before and during 's

>surgery. She came home this afternoon, after 4 1/2 days in the hospital.

>They tell me she is healing quickly, and I wasn't sure I believed them

>until

>we got home. Within 10 minutes she was sitting on the floor surrounded by

>toys and one at a time throwing them over her shoulder with great glee!

>She

>was her happy little self again, as soon as she was home. Thanks again for

>all the thoughts and prayers. It was great to have know so many people

>were

>pulling for her.

>

> Casey, mom to (DS) and , 19mo.

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Casey,, glad to hear yall are home and is

doingso well. We will contiune to pray she does well

in the future.

Speedy recovery

,mom to and Dayton

__________________________________________________

[Guest guest]

> Well, my little man is home and resting comfortably. I have learned

>to never take for granted the gift God has given me for such a short time.

>It is so overwhelming sometimes dealing with a chronic condition that I

>lose sight of the fact that there is a little boy beneath that disease.

>Perhaps this emergency was God's way of reminding me. Well, thanx family

>for being there for me. I don't know what the future holds but I do know

>that I will definitely love every moment I have with .

>

>In Him,

>

Congratulations on saving him by getting him the treatment he needed!

You've both been through a lot, and now you BOTH need to recuperate. Be

kind and gentle to yourself so you can stay well enough to nurture your son.

It takes me a couple of months minimum to get back to normal and to

emotionally process what's just happened when we've had " crisis episodes. "

It is easier to appreciate your children after they've been through

something like that.

All my prayers for good health,

, (7) and 's (3) Mommy : Hypogammaglobulinemia

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

[Guest guest]

Gail!!!!!!!!!

I am so happy for you all. Get some sleep and I can't wait to read the update. Give a gentle hug and a high 5 from us.

Shellie"Gail M. Kimball" <gmkimball@...> wrote:

I will post a full update tomorrow, but thought I would let you know that we are home. is doing ok, she is asleep.

Gail******************************************************************************************"Everyone has a photographic memory...some of us just don't have any film."

FareChase - Search multiple travel sites in one click.

[Guest guest]

>

> I will post a full update tomorrow, but thought I would let you know

that we are home. is doing ok, she is asleep.

>

> Gail

>

***********************************************************************

*******************

> " Everyone has a photographic memory...some of us just don't have any

film. "

>

[Guest guest]

HI Betz:

I continue to root for your speedy recovery.

{{{{{{{{{{{{BETZ}}}}}}}}}}}}

I continue to root for your speedy recovery.

Betsy <itsbetsy@...> wrote:

And seems to be doing well. Thank you guys for your support in this.

It

was so nice to know that you were rooting for me, knowing that our

personal lives DO effect PA. Today I was at a family graduation party

and was so slow and in more pain than I've felt for awhile. I am sure it

was due to the stress of this week. There was a pregnant gal there and I

swear, I waddled like her. And I'm a skinny butt...about 117 lbs. But I

walk like Fred Sanford. I always thought that if the PA got bad, I'd

limp. Not that it matters whether it's a limp or a waddle but I'm

curious if any of you know the mechanics behind this strange gait. Is it

the hips or the knees that makes me this way? Brent....my bet is that

you'll know all about this. -Betz

[Editor's Note: That's great news! Thanks for letting us know, Betz. Please tell

her we're all continuing to root for her speedy recovery. Kathy F.]

__________________________________________________

[Guest guest]

So glad to hear it Betsy!

Peace,

Jenn in Arkansas

>

> And seems to be doing well. Thank you guys for your support in

this. It

> was so nice to know that you were rooting for me, knowing that our

> personal lives DO effect PA. Today I was at a family graduation

party

> and was so slow and in more pain than I've felt for awhile. I am

sure it

> was due to the stress of this week. There was a pregnant gal there

and I

> swear, I waddled like her. And I'm a skinny butt...about 117 lbs.

But I

> walk like Fred Sanford. I always thought that if the PA got bad, I'd

> limp. Not that it matters whether it's a limp or a waddle but I'm

> curious if any of you know the mechanics behind this strange gait.

Is it

> the hips or the knees that makes me this way? Brent....my bet is

that

> you'll know all about this. -Betz

>

> [Editor's Note: That's great news! Thanks for letting us know,

Betz. Please tell her we're all continuing to root for her speedy

recovery. Kathy F.]

>

[Guest guest]

Welcome home, little one! Hope you're resting, ! Make sure you sleep

when she sleeps.

Amy

Wife to Will 11/3/95

Mama to Olivia Isabelle 9/18/03

&

Phineas Maximilian 11/30/05

************************************** See what's free at http://www.aol.com.

[Guest guest]

I just followed the link and saw the pictures - what a wonderful

little baby, you must be very proud!

All the best for her and all of you!

Camilla

Germany

>

> Welcome home, little one! Hope you're resting, ! Make sure

you sleep

> when she sleeps.

>

>

> Amy

> Wife to Will 11/3/95

> Mama to Olivia Isabelle 9/18/03

> &

> Phineas Maximilian 11/30/05

>

>

>

>

>

>

>

>

> ************************************** See what's free at

http://www.aol.com.

>

>

>

[Guest guest]

Glad to hear it Gail! And you are right...hospital = NO sleep!

Gail <patsmum2000@...> wrote:

>We arrived home around 2.

> 

> had set up the couch for with pillows and blankets. Made sure she

was comfortable and ever since has proceeded to bug the crap out of her! Ahhh

siblings!

> 

>She even looks better since we got home. Her back isn't really bothering her

and I am still getting over the fact that there is just one 2 x 4 " bandage on

her back and not a huge bandage covered with Tegaderm. But, he did only lengthen

the longer of the 2 rods. The shorter could not be lengthened any more, so he

only had to make one incision.

> 

>Her surgeon said her next surgery would probably be in about 9 months and would

involve replacing her current VEPTR rods with the VEPTR II. (9 months would be

March - Wonder if I could get that scheduled for Spring Break? Although we may

have to wait depending on when her dance recital is next year and go with the

beginning of summer vacation again.)

> 

>She's eating, drinking and moving around well. We are both exhausted because:

hospital plus nighttime does not necessarily equal SLEEP! Stupid beeping,

buzzing, whining machines!

> 

>Other than that, all is good!

> 

>

>

> 

[Guest guest]

Thank you for keeping us updated, Nora will be going down this path at some point and I appreciate the insight. Glad to hear she's okay.

Tonya Perkins

Asheboro,NC

mother of ,12 &

Nora,4 scoliosis, acid reflux

11th cast, still down to 8or9 degrees

Greenville Shriners,SC

From: Gail <patsmum2000@...>nov98moms ; Congenital <CongenitalScoliosisSupport >; infantile scoliosis treatment Sent: Sat, June 11, 2011 6:33:21 PMSubject: is home!

We arrived home around 2.

had set up the couch for with pillows and blankets. Made sure she was comfortable and ever since has proceeded to bug the crap out of her! Ahhh siblings!

She even looks better since we got home. Her back isn't really bothering her and I am still getting over the fact that there is just one 2 x 4" bandage on her back and not a huge bandage covered with Tegaderm. But, he did only lengthen the longer of the 2 rods. The shorter could not be lengthened any more, so he only had to make one incision.

Her surgeon said her next surgery would probably be in about 9 months and would involve replacing her current VEPTR rods with the VEPTR II. (9 months would be March - Wonder if I could get that scheduled for Spring Break? Although we may have to wait depending on when her dance recital is next year and go with the beginning of summer vacation again.)

She's eating, drinking and moving around well. We are both exhausted because: hospital plus nighttime does not necessarily equal SLEEP! Stupid beeping, buzzing, whining machines!

Other than that, all is good!

[Guest guest]

All is good is good news!

>

> We arrived home around 2.

>  

> had set up the couch for with pillows and blankets. Made sure she

was comfortable and ever since has proceeded to bug the crap out of her! Ahhh

siblings!

>  

> She even looks better since we got home. Her back isn't really bothering her

and I am still getting over the fact that there is just one 2 x 4 " bandage on

her back and not a huge bandage covered with Tegaderm. But, he did only lengthen

the longer of the 2 rods. The shorter could not be lengthened any more, so he

only had to make one incision.

>  

> Her surgeon said her next surgery would probably be in about 9 months and

would involve replacing her current VEPTR rods with the VEPTR II. (9 months

would be March - Wonder if I could get that scheduled for Spring Break? Although

we may have to wait depending on when her dance recital is next year and go with

the beginning of summer vacation again.)

>  

> She's eating, drinking and moving around well. We are both exhausted because:

hospital plus nighttime does not necessarily equal SLEEP! Stupid beeping,

buzzing, whining machines!

>  

> Other than that, all is good!

>  

>

>

>  

>

[Guest guest]

Glad to hear all is well. *hugs* to you both! JaneFrom: Gail <patsmum2000@...>nov98moms ; Congenital <CongenitalScoliosisSupport >; infantile scoliosis treatment Sent: Saturday, June 11, 2011 3:33 PMSubject: is home!

We arrived home around 2.

had set up the couch for with pillows and blankets. Made sure she was comfortable and ever since has proceeded to bug the crap out of her! Ahhh siblings!

She even looks better since we got home. Her back isn't really bothering her and I am still getting over the fact that there is just one 2 x 4" bandage on her back and not a huge bandage covered with Tegaderm. But, he did only lengthen the longer of the 2 rods. The shorter could not be lengthened any more, so he only had to make one incision.

Her surgeon said her next surgery would probably be in about 9 months and would involve replacing her current VEPTR rods with the VEPTR II. (9 months would be March - Wonder if I could get that scheduled for Spring Break? Although we may have to wait depending on when her dance recital is next year and go with the beginning of summer vacation again.)

She's eating, drinking and moving around well. We are both exhausted because: hospital plus nighttime does not necessarily equal SLEEP! Stupid beeping, buzzing, whining machines!

Other than that, all is good!

[Guest guest]

So glad everything went so well.... I hope you all get lots of rest! - Noelle's mommy, 4 years oldRochester NYCasted 8 times for 1 1/2 years9 months in braceRegressed and went into cast 9Back in brace at 8 degrees supine, 13 standing! reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: Gail <patsmum2000@...>Subject: is home!nov98moms , "Congenital" <CongenitalScoliosisSupport >, infantile scoliosis treatment Date: Saturday, June 11, 2011, 10:33 PM

We arrived home around 2.

had set up the couch for with pillows and blankets. Made sure she was comfortable and ever since has proceeded to bug the crap out of her! Ahhh siblings!

She even looks better since we got home. Her back isn't really bothering her and I am still getting over the fact that there is just one 2 x 4" bandage on her back and not a huge bandage covered with Tegaderm. But, he did only lengthen the longer of the 2 rods. The shorter could not be lengthened any more, so he only had to make one incision.

Her surgeon said her next surgery would probably be in about 9 months and would involve replacing her current VEPTR rods with the VEPTR II. (9 months would be March - Wonder if I could get that scheduled for Spring Break? Although we may have to wait depending on when her dance recital is next year and go with the beginning of summer vacation again.)

She's eating, drinking and moving around well. We are both exhausted because: hospital plus nighttime does not necessarily equal SLEEP! Stupid beeping, buzzing, whining machines!

Other than that, all is good!

[Guest guest]

Excellent news Gail! Its also great news that the doc feels she will benefit from the VEPTR 2 replacement. That means her spine is still growing and has not prematurely fused. As does happen with so many distraction procedures. Way to grow !!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of GailSent: Saturday, June 11, 2011 4:33 PMnov98moms ; Congenital; infantile scoliosis treatment Subject: is home! We arrived home around 2. had set up the couch for with pillows and blankets. Made sure she was comfortable and ever since has proceeded to bug the crap out of her! Ahhh siblings! She even looks better since we got home. Her back isn't really bothering her and I am still getting over the fact that there is just one 2 x 4 " bandage on her back and not a huge bandage covered with Tegaderm. But, he did only lengthen the longer of the 2 rods. The shorter could not be lengthened any more, so he only had to make one incision. Her surgeon said her next surgery would probably be in about 9 months and would involve replacing her current VEPTR rods with the VEPTR II. (9 months would be March - Wonder if I could get that scheduled for Spring Break? Although we may have to wait depending on when her dance recital is next year and go with the beginning of summer vacation again.) She's eating, drinking and moving around well. We are both exhausted because: hospital plus nighttime does not necessarily equal SLEEP! Stupid beeping, buzzing, whining machines! Other than that, all is good!

[Guest guest]

There does not appear to be any fusion. I will ask about that in a month when we go for the post-op. In November he wants to do a 3d CT scan of her spine concentrating on her neck. Nothing has been done for it, and it does appear there is some kyphosis.

Gail

From: Hyatt <heather@...>Subject: RE: is home!infantile scoliosis treatment Date: Monday, June 13, 2011, 10:53 AM

Excellent news Gail! Its also great news that the doc feels she will benefit from the VEPTR 2 replacement. That means her spine is still growing and has not prematurely fused. As does happen with so many distraction procedures.

Way to grow !!

HRH

From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of GailSent: Saturday, June 11, 2011 4:33 PMnov98moms ; Congenital; infantile scoliosis treatment Subject: is home!

We arrived home around 2.

had set up the couch for with pillows and blankets. Made sure she was comfortable and ever since has proceeded to bug the crap out of her! Ahhh siblings!

She even looks better since we got home. Her back isn't really bothering her and I am still getting over the fact that there is just one 2 x 4" bandage on her back and not a huge bandage covered with Tegaderm. But, he did only lengthen the longer of the 2 rods. The shorter could not be lengthened any more, so he only had to make one incision.

Her surgeon said her next surgery would probably be in about 9 months and would involve replacing her current VEPTR rods with the VEPTR II. (9 months would be March - Wonder if I could get that scheduled for Spring Break? Although we may have to wait depending on when her dance recital is next year and go with the beginning of summer vacation again.)

She's eating, drinking and moving around well. We are both exhausted because: hospital plus nighttime does not necessarily equal SLEEP! Stupid beeping, buzzing, whining machines!

Other than that, all is good!

[Guest guest]

Great news Gail, I hope heals quickly and you all get some much deserved rest! Heidi, Bexon's Mommy, (3.5 years old, in 10th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)From: Hyatt <heather@...>To:

infantile scoliosis treatment Sent: Mon, June 13, 2011 7:53:13 AMSubject: RE: is home!

Excellent news Gail! Its also great news that the doc feels she will benefit from the VEPTR 2 replacement. That means her spine is still growing and has not prematurely fused. As does happen with so many distraction procedures. Way to grow !!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of GailSent: Saturday, June 11, 2011 4:33 PMTo:

nov98moms ; Congenital; infantile scoliosis treatment Subject: is home! We arrived home around 2. had set up the couch for with pillows and blankets. Made sure she was comfortable and ever since has proceeded to bug the crap out of her! Ahhh siblings! She even looks better since we got home. Her back isn't really bothering her and I am still getting over the fact that there is just one 2 x 4" bandage on her back and not a huge bandage covered with Tegaderm.

But, he did only lengthen the longer of the 2 rods. The shorter could not be lengthened any more, so he only had to make one incision. Her surgeon said her next surgery would probably be in about 9 months and would involve replacing her current VEPTR rods with the VEPTR II. (9 months would be March - Wonder if I could get that scheduled for Spring Break? Although we may have to wait depending on when her dance recital is next year and go with the beginning of summer vacation again.) She's eating, drinking and moving around well. We are both exhausted because: hospital plus nighttime does not necessarily equal SLEEP! Stupid beeping, buzzing, whining machines! Other than that, all is good!

[Guest guest]

When she was measured pre-op 52 1/2" tall. Not sure if she gained any height with the expansion yet.

Gail

From: Hyatt <heather@...>Subject: RE: is home!infantile scoliosis treatment Date: Monday, June 13, 2011, 10:53 AM

Excellent news Gail! Its also great news that the doc feels she will benefit from the VEPTR 2 replacement. That means her spine is still growing and has not prematurely fused. As does happen with so many distraction procedures.

Way to grow !!

HRH

From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of GailSent: Saturday, June 11, 2011 4:33 PMnov98moms ; Congenital; infantile scoliosis treatment Subject: is home!

We arrived home around 2.

had set up the couch for with pillows and blankets. Made sure she was comfortable and ever since has proceeded to bug the crap out of her! Ahhh siblings!

She even looks better since we got home. Her back isn't really bothering her and I am still getting over the fact that there is just one 2 x 4" bandage on her back and not a huge bandage covered with Tegaderm. But, he did only lengthen the longer of the 2 rods. The shorter could not be lengthened any more, so he only had to make one incision.

Her surgeon said her next surgery would probably be in about 9 months and would involve replacing her current VEPTR rods with the VEPTR II. (9 months would be March - Wonder if I could get that scheduled for Spring Break? Although we may have to wait depending on when her dance recital is next year and go with the beginning of summer vacation again.)

She's eating, drinking and moving around well. We are both exhausted because: hospital plus nighttime does not necessarily equal SLEEP! Stupid beeping, buzzing, whining machines!

Other than that, all is good!

[Guest guest]

She is tall!  I just found out that Liv weighs 74 lbs and is 4 ft 7 in.  This is 10 lbs heavier than last year & 5 in.’s taller!  She is really in a growth spurt now.She is home from SLC and all went well.  No xrays were taken, yay!  Her doc said that her chest is expanding well. Her fusion is healed and that its time for her to live her life!  No restrictions!  He even said that she could snowboard!  Whoo hoo!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of GailSent: Thursday, June 16, 2011 9:30 AMinfantile scoliosis treatment Subject: RE: is home! When she was measured pre-op 52 1/2 " tall. Not sure if she gained any height with the expansion yet. GailFrom: Hyatt <heather@...>Subject: RE: is home!infantile scoliosis treatment Date: Monday, June 13, 2011, 10:53 AM Excellent news Gail! Its also great news that the doc feels she will benefit from the VEPTR 2 replacement. That means her spine is still growing and has not prematurely fused. As does happen with so many distraction procedures. Way to grow !!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of GailSent: Saturday, June 11, 2011 4:33 PMnov98moms ; Congenital; infantile scoliosis treatment Subject: is home! We arrived home around 2. had set up the couch for with pillows and blankets. Made sure she was comfortable and ever since has proceeded to bug the crap out of her! Ahhh siblings! She even looks better since we got home. Her back isn't really bothering her and I am still getting over the fact that there is just one 2 x 4 " bandage on her back and not a huge bandage covered with Tegaderm. But, he did only lengthen the longer of the 2 rods. The shorter could not be lengthened any more, so he only had to make one incision. Her surgeon said her next surgery would probably be in about 9 months and would involve replacing her current VEPTR rods with the VEPTR II. (9 months would be March - Wonder if I could get that scheduled for Spring Break? Although we may have to wait depending on when her dance recital is next year and go with the beginning of summer vacation again.) She's eating, drinking and moving around well. We are both exhausted because: hospital plus nighttime does not necessarily equal SLEEP! Stupid beeping, buzzing, whining machines! Other than that, all is good!

[Guest guest]

That is so great !! Way to go Liv!!From: Hyatt <heather@...>infantile scoliosis treatment Sent: Mon, June 20, 2011 8:04:52 AMSubject: RE: is home!

She is tall! I just found out that Liv weighs 74 lbs and is 4 ft 7 in. This is 10 lbs heavier than last year & 5 in.’s taller! She is really in a growth spurt now.She is home from SLC and all went well. No xrays were taken, yay! Her doc said that her chest is expanding well. Her fusion is healed and that its time for her to live her life! No restrictions! He even said that she could snowboard! Whoo hoo!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of GailSent: Thursday, June 16, 2011 9:30 AMinfantile scoliosis treatment Subject: RE: is home! When she was measured pre-op 52 1/2" tall. Not sure if she gained any height with the expansion yet. GailFrom: Hyatt <heather@...>Subject: RE: is home!infantile scoliosis treatment Date: Monday, June 13, 2011, 10:53 AM Excellent news Gail! Its also great news that the doc feels she will benefit from the VEPTR 2 replacement. That means her spine is still growing and has not prematurely fused. As does happen with so

many distraction procedures. Way to grow !!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of GailSent: Saturday, June 11, 2011 4:33 PMnov98moms ; Congenital; infantile scoliosis treatment Subject: is home! We arrived home around 2. had set up the couch for with pillows and blankets. Made sure she was comfortable and ever since has proceeded to bug the crap out of her! Ahhh siblings! She even looks better since we got home. Her back isn't really bothering her and I am still getting over the fact that there is just one 2 x 4" bandage on her back and not a huge bandage covered with Tegaderm. But, he did only lengthen the longer of the 2 rods. The shorter could not be lengthened any more, so he only had to make one incision. Her surgeon

said her next surgery would probably be in about 9 months and would involve replacing her current VEPTR rods with the VEPTR II. (9 months would be March - Wonder if I could get that scheduled for Spring Break? Although we may have to wait depending on when her dance recital is next year and go with the beginning of summer vacation again.) She's eating, drinking and moving around well. We are both exhausted because: hospital plus nighttime does not necessarily equal SLEEP! Stupid beeping, buzzing, whining machines! Other than that, all is good!