Guest guest Posted August 11, 2009 Report Share Posted August 11, 2009 You can be tested to find out if you are gluten intollerant here: https://www.enterolab.com/Home.htm I did it last year and found I am gluten intollerant on two genes, meaning that I probably inherited it from both my mother and father. This is different from Celiac disease, which is also genetic, but similar in how it affects the body. When you eat gluten, your body forms antibodies that attack the wall of your small intestine, punching holes in it and causing " leaky gut " syndrome, which then eventually shuts down the adrenal and thyroid function, eventually getting very serious, probably causing prostate cancer in men, probably destroying the liver eventually. If you have Northern European ancestors, you may be more likely to have gluten intollerance. A physician friend says he believes as many as one in six people are gluten intollerant, and if you have lyme disease, or a candida overgrowth, it will be made much worse if you are gluten intollerant, and difficult to treat. Jack > > > Advice for people seeking to eat gluten-free. (Many folks with Lyme find it helps.) > > www.touchedbylyme.org > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2009 Report Share Posted August 11, 2009 Advice for people seeking to eat gluten-free. (Many folks with Lyme find it helps.) www.touchedbylyme.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2009 Report Share Posted August 12, 2009 I have Celiac Disease and have been thru the genetics testing, as well as the Antiendomysial antibodies (IgA), anitissue transglutaminase (IgA), antigliadin(IgA) and (IgG), and tissue transglutaminase (tTG) all thru Prometheus Lab in California. That is the preferred lab of my Celiac Disease specialist in Atlanta, GA. She is one of only 3 top docs in the field - I think the other 2 are in Chicago and New York. She also followed up the labs with an endoscopy- even though the consensus now is that if you come back with a positive tTG, you do not need the endoscopy - it alone is proof positive of Celiac Disease. About 1% of Americans have Celiac Disease. It is more common in the British Isles, so those of Northern European descent are more likely to have it. It is important to live strictly gluten-free if you have Celiac Sprue, because it can kill you by leading to severe, irreversible malnutrition as well increased cancers, especially in the GI tract. And at least 1/2 of all Celiacs are overweight, not underweight as previously believed. Celiacs also have increased risk of developing other auto-immune diseases such as lupus, rheumatoid arthritis, etc. Celiac is an auto-immune disease! I would recommend getting the book " Celiac Disease and Living Gluten-Free, the First Year " by Jules E. Dowler Shepard. I am reading it now and have read almost all of the books on Celiac Disease which are now available. Also get a good cookbook. Many, many people (some estimates as high as 30% of all Americans) have some degree of Gluten Sensitivity - so those folks would just feel better if they did go gluten-free, which is no small undertaking, believe me. Gluten is everywhere! Anyone with chronic inflammation can greatly benefit, but it can take time. My family members that have been checked for the genetic markers have all come back positive for at least one of them, so it remains to be seen if they will develop Celiac, like me. Celiac can be triggered by many stressors on the body, such as a severe infection (think Lyme!), pregnancy, trauma, etc. - if you have the genetics for it. If you do not have the genes for Celiac - you can NEVER develop the disease - but could still be gluten-sensitive. I hope this helps anyone out there who might not be aware of Celiac Disease. It has a long list of symptoms, many of which overlap those of Lyme! So, it can be confusing as to what is causing what when you have both....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 I am sorry to hear this Terri. I have also been diagnosed as gluten intollerant, and I understand it is quite common. I have been gluten free for about 15 months now. Always read labels when you buy anything, because, as you say, gluten is everywhere. Some spices have wheat added to make the product flow better, so even garlic pepper salt often has gluten in it. The tiniest amount of it can make your body react with antibodies that attack the gluten in your small intestine and punch holes in the wall, causing leaky gut, which then leads to a number of other problems as body organs break down one at a time. Fortunately, most health stores now have a lot of gluten free products, so you can find an amazing variety of things to eat. I even saw gluten free pizza crust in a health food store the other day, so it is possible to eat pizza. Amy's frozen products include a number of gluten free things, including Indian food, Mexican food and Thai food --Jack > > I have Celiac Disease and have been thru the genetics testing, as well as the Antiendomysial antibodies (IgA), anitissue transglutaminase (IgA), antigliadin(IgA) and (IgG), and tissue transglutaminase (tTG) all thru Prometheus Lab in California. That is the preferred lab of my Celiac Disease specialist in Atlanta, GA. She is one of only 3 top docs in the field - I think the other 2 are in Chicago and New York. She also followed up the labs with an endoscopy- even though the consensus now is that if you come back with a positive tTG, you do not need the endoscopy - it alone is proof positive of Celiac Disease. About 1% of Americans have Celiac Disease. It is more common in the British Isles, so those of Northern European descent are more likely to have it. It is important to live strictly gluten-free if you have Celiac Sprue, because it can kill you by leading to severe, irreversible malnutrition as well increased cancers, especially in the GI tract. And at least 1/2 of all Celiacs are overweight, not underweight as previously believed. Celiacs also have increased risk of developing other auto-immune diseases such as lupus, rheumatoid arthritis, etc. Celiac is an auto-immune disease! > > I would recommend getting the book " Celiac Disease and Living Gluten-Free, the First Year " by Jules E. Dowler Shepard. I am reading it now and have read almost all of the books on Celiac Disease which are now available. Also get a good cookbook. > > Many, many people (some estimates as high as 30% of all Americans) have some degree of Gluten Sensitivity - so those folks would just feel better if they did go gluten-free, which is no small undertaking, believe me. Gluten is everywhere! Anyone with chronic inflammation can greatly benefit, but it can take time. > > My family members that have been checked for the genetic markers have all come back positive for at least one of them, so it remains to be seen if they will develop Celiac, like me. Celiac can be triggered by many stressors on the body, such as a severe infection (think Lyme!), pregnancy, trauma, etc. - if you have the genetics for it. If you do not have the genes for Celiac - you can NEVER develop the disease - but could still be gluten-sensitive. > > I hope this helps anyone out there who might not be aware of Celiac Disease. It has a long list of symptoms, many of which overlap those of Lyme! So, it can be confusing as to what is causing what when you have both....... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 I have gone on a celiac disease diet before that was completely gluten free. i can say it was really tough. The food that tries to replace , you know the gluten free stuff, is not the greatest. They may have expanded the choices since I was on this diet though. Good luck is all i say! I am now having to go on a lactose free diet because they believe me to have Lactase Deficiency, maybe because of Lyme. Anyone else experienced this since ill with lyme? Elaina From: DKL <jblral@...> Subject: [ ] Going Gluten-free " Lyme Support Sacramento " <saclyme@...> Date: Tuesday, August 11, 2009, 11:24 AM Advice for people seeking to eat gluten-free. (Many folks with Lyme find it helps.) www.touchedbylyme. org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 Gluten-free food is a real pain, especially when you try to eat out. I have discovered that I can eat very little in a restaurant. I am so so so sick of salads. I do fine at home--my local food coop has gluten-free food labeled on the shelves. I am able to get gluten-free bread from a chef who must eat gluten-free--it is is pretty good, but not as good as real bread. It is mostly made of rice flour. She adds pumpkin and flax seeds so that adds to the flavor and texture. Kathleen I have gone on a celiac disease diet before that was completely gluten free. i can say it was really tough. The food that tries to replace , you know the gluten free stuff, is not the greatest. They may have expanded the choices since I was on this diet though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 Hi, My daughter (14) that has bad IBS but under control now was thought to be lactose intolerant - she drinks fat free milk other wise her tummy will hurt - since she has been doing the bio-feedback and taking what it says she has been doing so much better - maybe only a flare up once every five to eight weeks - that from being almost everyday problem. My LLMD says it's a co-infection that makes the tummy problems - Hope things start getting better for you - love, Diane ________________________________ From: Elaina <nhgirlloveshorses@...> Sent: Friday, August 14, 2009 8:17:30 PM Subject: Re: [ ] Going Gluten-free I have gone on a celiac disease diet before that was completely gluten free. i can say it was really tough. The food that tries to replace , you know the gluten free stuff, is not the greatest. They may have expanded the choices since I was on this diet though. Good luck is all i say! I am now having to go on a lactose free diet because they believe me to have Lactase Deficiency, maybe because of Lyme. Anyone else experienced this since ill with lyme? Elaina From: DKL <jblral (DOT) com> Subject: [ ] Going Gluten-free " Lyme Support Sacramento " <saclymegmail (DOT) com> Date: Tuesday, August 11, 2009, 11:24 AM Advice for people seeking to eat gluten-free. (Many folks with Lyme find it helps.) www.touchedbylyme. org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 I am gluten free because of celiac. And while I am not a huge restaurant person I have found that except for commercial pizza, eating out has gotten pretty darn easy with practice. Ethnic restaurants almost always have something that has beans, rice or corn for the starch. Some Even have millet. And most restaurants have potatoes and potato based dishes. Buffets allow for a lot of freedom of choice. And the trendiness of low carb can mean entrées without wheat in them (but be careful some have high gluten pastas or breads). Sometimes you will have to ask the wait person, and they usually don't know off the top of their head what is in what salad dressing or casserole. Almost any restaurant will put together a combination plate of sides and/or entrées to your request. When I go to a place that puts the really great smelling bread on the table in front of me I do move it or even ask the waiter to take it away, because my own will power just doesn't need that particular challenge. ________________________________ From: Kathleen Pelley <kmpelley@...> Sent: Friday, August 14, 2009 11:14:19 PM Subject: [ ] Re: Going Gluten-free Gluten-free food is a real pain, especially when you try to eat out. I have discovered that I can eat very little in a restaurant. I am so so so sick of salads. I do fine at home--my local food coop has gluten-free food labeled on the shelves. I am able to get gluten-free bread from a chef who must eat gluten-free- -it is is pretty good, but not as good as real bread. It is mostly made of rice flour. She adds pumpkin and flax seeds so that adds to the flavor and texture. Kathleen I have gone on a celiac disease diet before that was completely gluten free. i can say it was really tough. The food that tries to replace , you know the gluten free stuff, is not the greatest. They may have expanded the choices since I was on this diet though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 HI Elaina: We are gluten free here, and also dairy free. I do think lyme is involved in this. I subscribe to " Living Without " , a magazine for food allergies. It is a great resource for alternatives, they have lots of recipes and suggestions for substitutes. > > I have gone on a celiac disease diet before that was completely gluten free. i can say it was really tough. The food that tries to replace , you know the gluten free stuff, is not the greatest. They may have expanded the choices since I was on this diet though. Good luck is all i say! I am now having to go on a lactose free diet because they believe me to have Lactase Deficiency, maybe because of Lyme. Anyone else experienced this since ill with lyme? > > Elaina > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 I am on a very tough Babesia treatment to kill that, even though we don't kknow exactly what coinfections I have. For now we will try to fight through this new diet, and then I will be slowly weined onto a pill that you take before your meals to help with the concentration of lactase in my GI tract. It is good to know I'm not alone! i guess somehow lactose intolerent is a more sudden symptomised thing then lactase deficient... Ill be researching that soon though. Elaina From: DKL <jblral (DOT) com> Subject: [ ] Going Gluten-free " Lyme Support Sacramento " <saclymegmail (DOT) com> Date: Tuesday, August 11, 2009, 11:24 AM Advice for people seeking to eat gluten-free. (Many folks with Lyme find it helps.) www.touchedbylyme. org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 Outback Steakhouse has a gluten free menu. =) The food is probably prepared in the same bowls and prepping tools as gutened food.... but I just thought I would pass that information on. Makayla On Sat, Aug 15, 2009 at 2:28 PM, Elaina <nhgirlloveshorses@...>wrote: > > > I am on a very tough Babesia treatment to kill that, even though we don't > kknow exactly what coinfections I have. For now we will try to fight through > this new diet, and then I will be slowly weined onto a pill that you take > before your meals to help with the concentration of lactase in my GI tract. > It is good to know I'm not alone! i guess somehow lactose intolerent is a > more sudden symptomised thing then lactase deficient... Ill be researching > that soon though. > > Elaina > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.