Re: PA patient new to the group

[Guest guest]

Welcome ! Your English is quite good. Most Americans butcher the language so

I would not worry about your English if I were you. I'm sorry to read that you

are having trouble with your health but I think it's wise that you have reached

out for help and are taking control of your illness. We have all had to learn to

reach out and ask others for help. But YOU have reached across an ocean. You are

a wise man. Keep reading the posts on this site and you will learn much. Always

feel free to ask questions. There are many helpful people with good information

here. Welcome again and well wishes. -Betz

alessandro132002 <alessandro132002@...> wrote: Hello to all,my

name is alex and i am from GREECE.Forgive me if my

english isn't very good,i will try to explain as good as possible.I am

24 years old and have PA for 2 years now.It was diagnosed about 7

months ago after i kept seeing orthopedists and practitioners for 13

months without finding out what my problem was.In my blood test the

HLA B27 is negative but the CW6 is positive.The x-rays showed a

spondyloarthropathy with pain in the back and in the right foot all

across the right external side.I've been taking methotrexate,sandimun

neoral,antiinflammatory and cortisone all these months but still

nothing.I think that the pain is worse than better.Anyway i just

wanted to make an introduction,anyone who wants to discuss with me

please feel free to send an e-mail.Thank you all.

[Editor's Note: Welcome, Alessandro. You come from a most beautiful country and

one with a unique history and culture. I hope this group can give you some of

the answers and support you need. Many of us (maybe the majority) with PA do not

have positive HLA B27 makers so most rheumatologists don't rely on that. In the

US and many other countries, there are many other medications we use to treat

PA, including Enbrel, Humira, Arava and Remicade to name a few. I don't know

which, if any, of these are approved for use in Greece. You might want to

research these meds, which help MANY of us, and talk to your specialist about

local availability. One of them may be right for you. There are also pain

medications that may help you to function on a day-to-day basis. In any case,

you've come to the right place and I hope that some of the things you read here

steer you in the right direction. Please look through our archives as there is a

ton of information contained there. Kathy F]

Betsy Jack itsbetsy@...

__________________________________________________

[Guest guest]

Welcome !!!!

Jeanette

alessandro132002 <alessandro132002@...> wrote: Hello to all,my name is

alex and i am from GREECE.Forgive me if my

english isn't very good,i will try to explain as good as possible.I am

24 years old and have PA for 2 years now.It was diagnosed about 7

months ago after i kept seeing orthopedists and practitioners for 13

months without finding out what my problem was.In my blood test the

HLA B27 is negative but the CW6 is positive.The x-rays showed a

spondyloarthropathy with pain in the back and in the right foot all

across the right external side.I've been taking methotrexate,sandimun

neoral,antiinflammatory and cortisone all these months but still

nothing.I think that the pain is worse than better.Anyway i just

wanted to make an introduction,anyone who wants to discuss with me

please feel free to send an e-mail.Thank you all.

[Editor's Note: Welcome, Alessandro. You come from a most beautiful country

and one with a unique history and culture. I hope this group can give you some

of the answers and support you need. Many of us (maybe the majority) with PA do

not have positive HLA B27 makers so most rheumatologists don't rely on that. In

the US and many other countries, there are many other medications we use to

treat PA, including Enbrel, Humira, Arava and Remicade to name a few. I don't

know which, if any, of these are approved for use in Greece. You might want to

research these meds, which help MANY of us, and talk to your specialist about

local availability. One of them may be right for you. There are also pain

medications that may help you to function on a day-to-day basis. In any case,

you've come to the right place and I hope that some of the things you read here

steer you in the right direction. Please look through our archives as there is a

ton of information contained there. Kathy F]