Re: I'm taking my 16 daughter to the rheumy

[Guest guest]

Hi my name is patrick, I have a son that is 23, and a daughter21, both of them

is getting P. ON there face and forehead. Like you i am scared ,for them you do

not want your kids going through what you know this stuff is like.Go to

http://groups.msn.com/Psoriasisisavoidable you do not have to join but there is

some interesting things. Warm Regards,patrick

rahrahbrick <rahrahbrick@...> wrote: Hi I am taking my 16

daughter to the Rheumy on Friday she has been

complaining of hip pain for several weeks. With my history of PA and

her history of back and chest pain for 5 years that was never

diagnosed as any thing despite having been seen by several ortho and

neuros, I don't think she goes two day with taking something for pain.

Any advice would be great from any one who has taking their children

to see the Rheumy it has me a little scared and very nervous as to

what this means for her it is one thing for me to have to deal with

this but I do not what this for my daughter. Thanks LINDA

[Editor's Note: , I'm so sorry to hear this. I've never had to deal with a

child who may have PA, but I was first diagnosed with rheumatoid arthritis when

I was 16. My mother was never a big one on offering pity, so she encouraged me

to think of myself as " healthy " and to do all the things I felt I was able to

do. Later that year, I set the Brooklyn girls indoor swimming distance record.

As a result, I have never seen myself or any situation I've been in as

" pitiable " . However, you will have to strike a delicate balance here as you will

want your daughter to know that she has your full understanding and support. I

think that you can set a great example for your daughter. If she is unable to do

something, it might be good to help her find another way to do it or to find

something else she can do rather than focusing on the things she can't do. If

your daughter feels loved and empowered in other aspects of her life, she won't

let a disease become an excuse or a reason to

be depressed. There is no way of knowing what the disease has in store for her

physically, but I think there is probably a great deal you can do for her

emotionally so that she continues to view her life with great excitement and

positivity. So, that's just my take as someone who was a teen with arthritis. I

know we have parents of kids with PA on this list, so I'm sure they'll be able

to tell you a lot more from the parent perspective. Kathy F.]

---------------------------------

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[Guest guest]

Hello ,

I have a 14 yr. old daughter who has PA. She was diagnosed in November 2006.

She had several symptoms over the years. Back pain, shoulder pain, temporary

blindness and facial droopiness on the right side of her body since the age of

6.

na had pain and swelling in her leg and was hospitalized. Discharged

without being diagnosed - after many appointments, she was finally diagnosed and

is now doing great on Enbrel.

My 9 yr old is now being evaluated for PA. She went to the dr. yesterday and he

is pretty sure the test results will come back with a diagnosis of PA.

I wish your daughter lots of luck. I have complete confidence in my daughter's

rhuemy, I hope your dr. gives as great as our's is.

-Louise

[ ] I'm taking my 16 daughter to the rheumy

Hi I am taking my 16 daughter to the Rheumy on Friday she has been

complaining of hip pain for several weeks. With my history of PA and

her history of back and chest pain for 5 years that was never

diagnosed as any thing despite having been seen by several ortho and

neuros, I don't think she goes two day with taking something for pain.

Any advice would be great from any one who has taking their children

to see the Rheumy it has me a little scared and very nervous as to

what this means for her it is one thing for me to have to deal with

this but I do not what this for my daughter. Thanks LINDA

[Editor's Note: , I'm so sorry to hear this. I've never had to deal with a

child who may have PA, but I was first diagnosed with rheumatoid arthritis when

I was 16. My mother was never a big one on offering pity, so she encouraged me

to think of myself as " healthy " and to do all the things I felt I was able to

do. Later that year, I set the Brooklyn girls indoor swimming distance record.

As a result, I have never seen myself or any situation I've been in as

" pitiable " . However, you will have to strike a delicate balance here as you will

want your daughter to know that she has your full understanding and support. I

think that you can set a great example for your daughter. If she is unable to do

something, it might be good to help her find another way to do it or to find

something else she can do rather than focusing on the things she can't do. If

your daughter feels loved and empowered in other aspects of her life, she won't

let a disease become an excuse or a reason to be depressed. There is no way of

knowing what the disease has in store for her physically, but I think there is

probably a great deal you can do for her emotionally so that she continues to

view her life with great excitement and positivity. So, that's just my take as

someone who was a teen with arthritis. I know we have parents of kids with PA on

this list, so I'm sure they'll be able to tell you a lot more from the parent

perspective. Kathy F.]

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[Guest guest]

- my " scam radar " is being triggered by the " is avoidable " part

of that web address. I would think saying psoriasis is avoidable is

about the same as saying psoriasis is curable - just not compatible

with known facts.

skeptically,

sherry z

>

> Hi my name is patrick, I have a son that is 23, and a daughter21,

both of them is getting P. ON there face and forehead. Like you i am

scared ,for them you do not want your kids going through what you know

this stuff is like.Go to http://groups.msn.com/Psoriasisisavoidable

you do not have to join but there is some interesting things. Warm

Regards,patrick

[Guest guest]

- no upset on my part. I didn't visit the site and there may be

some good info there for all I know. I just wanted to clarify for

everyone that this is not a disease that is " curable " or " avoidable " .

The longer a person waits before treating the underlying immune system

problem with serious meds proven to work, the more chance there is that

the disease will progress and that irreversible damage may be done to

one's joints and bones.

Any treatment should be able to stand up to the rigors of controlled

clinical trials. And any physician (like some of the doctors who push

special diets, etc.) is fully capable of conducting controlled, peer-

reviewed studies of their theories to demonstrate that they are

effective. The fact that they don't bother to do so speaks volumes to

me about the validity of their claims.

Everyone needs to keep alert to the facts to avoid chasing rabbits that

may do more harm than good.

best regards,

sherry z

>

> Hi, hope to find everone OK. today. HEY I am very sorry if i upset

anyone just want to see what others thought about this because my kids

also has this. And i to am scared for them. I have been through all the

drugs and nothing helped very long. My Drs. have put me in pain

mangement.Have to get shots back,shoulders,knees,And sometimes feet.I

do not like it but it helps with the pain. And also pain pills.I do not

want this for my kids at all or no one eles kids.Sometimes people will

go to any lenght to try something. But very sorry. warm regards

[Guest guest]

i did go on the site and i found it full of information.and more links to more

info. the pa is here to stay and the meds too. but i do believe in food

allergies. and some foods causing more inflamation then our bodies can handle.

so cutting out foods that bother you or cause pain the next day can only be a

positive.. we just need to listen to our bodies. and sherry is right. we got

what we got. its not curable or avoidable. but it is managable....casey

" S. Zorzi " <szorzi_1999@...> wrote: - no upset on my

part. I didn't visit the site and there may be

some good info there for all I know. I just wanted to clarify for

everyone that this is not a disease that is " curable " or " avoidable " .

The longer a person waits before treating the underlying immune system

problem with serious meds proven to work, the more chance there is that

the disease will progress and that irreversible damage may be done to

one's joints and bones.

Any treatment should be able to stand up to the rigors of controlled

clinical trials. And any physician (like some of the doctors who push

special diets, etc.) is fully capable of conducting controlled, peer-

reviewed studies of their theories to demonstrate that they are

effective. The fact that they don't bother to do so speaks volumes to

me about the validity of their claims.

Everyone needs to keep alert to the facts to avoid chasing rabbits that

may do more harm than good.

best regards,

sherry z

>

> Hi, hope to find everone OK. today. HEY I am very sorry if i upset

anyone just want to see what others thought about this because my kids

also has this. And i to am scared for them. I have been through all the

drugs and nothing helped very long. My Drs. have put me in pain

mangement.Have to get shots back,shoulders,knees,And sometimes feet.I

do not like it but it helps with the pain. And also pain pills.I do not

want this for my kids at all or no one eles kids.Sometimes people will

go to any lenght to try something. But very sorry. warm regards

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Autos.

[Guest guest]

greetings....sounds good but the hla-b27 gene and allergies have to do with each

other.....the hla-b27 gene is the bad guy that causes pa...not food allergies so

what is your point now......just asking you because i already know the

answer....blessed be....bob

[Editor's Note: One word of caution here - not ALL people with PA have the

HLA-B27 genetic marker so we need to tread lightly when it comes to identifying

that as the cause of PA. Many people with the ankylosing spondylosis form of PA

carry that marker, but a lot of the rest of the PA sufferers do not. A number of

food allergies produce symptoms that are very similar to those of PA. For

people with food allergies, eliminating the allergy source will, of course,

greatly reduce the symptoms - but not PA symptoms - only PA-like symptoms caused

by the allergy. Many people with PA do NOT have food allergies, so eliminating

certain foods does nothing to relieve symptoms for those people. The old maxim

of " you are what you eat " is true, though, so all people, whether they have PA

or not, should strive to eat in a healthy, balanced way. Some foods are more

inclined to produce inflammation, but for many of us, those foods taken in

moderation will not cause harm. Kathy F.]

casey <denise05775@...> wrote: i did go on the site and i found

it full of information.and more links to more info. the pa is here to stay and

the meds too. but i do believe in food allergies. and some foods causing more

inflamation then our bodies can handle. so cutting out foods that bother you or

cause pain the next day can only be a positive.. we just need to listen to our

bodies. and sherry is right. we got what we got. its not curable or avoidable.

but it is managable....casey

" S. Zorzi " <szorzi_1999@...> wrote: - no upset on my part. I

didn't visit the site and there may be

some good info there for all I know. I just wanted to clarify for

everyone that this is not a disease that is " curable " or " avoidable " .

The longer a person waits before treating the underlying immune system

problem with serious meds proven to work, the more chance there is that

the disease will progress and that irreversible damage may be done to

one's joints and bones.

Any treatment should be able to stand up to the rigors of controlled

clinical trials. And any physician (like some of the doctors who push

special diets, etc.) is fully capable of conducting controlled, peer-

reviewed studies of their theories to demonstrate that they are

effective. The fact that they don't bother to do so speaks volumes to

me about the validity of their claims.

Everyone needs to keep alert to the facts to avoid chasing rabbits that

may do more harm than good.

best regards,

sherry z

>

> Hi, hope to find everone OK. today. HEY I am very sorry if i upset

anyone just want to see what others thought about this because my kids

also has this. And i to am scared for them. I have been through all the

drugs and nothing helped very long. My Drs. have put me in pain

mangement.Have to get shots back,shoulders,knees,And sometimes feet.I

do not like it but it helps with the pain. And also pain pills.I do not

want this for my kids at all or no one eles kids.Sometimes people will

go to any lenght to try something. But very sorry. warm regards

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Autos.

[Guest guest]

HLA-b27 is negative for my severe PA. It's not the cause, however it is a

good indication of ankylosing spondylitis..

Delane.

Re: [ ] Re: I'm taking my 16 daughter to the

rheumy

greetings....sounds good but the hla-b27 gene and allergies have to do with

each other.....the hla-b27 gene is the bad guy that causes pa...not food

allergies so what is your point now......just asking you because i already

know the answer....blessed be....bob

[Editor's Note: One word of caution here - not ALL people with PA have the

HLA-B27 genetic marker so we need to tread lightly when it comes to

identifying that as the cause of PA. Many people with the ankylosing

spondylosis form of PA carry that marker, but a lot of the rest of the PA

sufferers do not. A number of food allergies produce symptoms that are very

similar to those of PA. For people with food allergies, eliminating the

allergy source will, of course, greatly reduce the symptoms - but not PA

symptoms - only PA-like symptoms caused by the allergy. Many people with PA

do NOT have food allergies, so eliminating certain foods does nothing to

relieve symptoms for those people. The old maxim of " you are what you eat "

is true, though, so all people, whether they have PA or not, should strive

to eat in a healthy, balanced way. Some foods are more inclined to produce

inflammation, but for many of us, those foods taken in moderation will not

cause harm. Kathy F.]

casey <denise05775@...> wrote: i did go on the site and i

found it full of information.and more links to more info. the pa is here to

stay and the meds too. but i do believe in food allergies. and some foods

causing more inflamation then our bodies can handle. so cutting out foods

that bother you or cause pain the next day can only be a positive.. we just

need to listen to our bodies. and sherry is right. we got what we got. its

not curable or avoidable. but it is managable....casey

" S. Zorzi " <szorzi_1999@...> wrote: - no upset on my part. I

didn't visit the site and there may be

some good info there for all I know. I just wanted to clarify for

everyone that this is not a disease that is " curable " or " avoidable " .

The longer a person waits before treating the underlying immune system

problem with serious meds proven to work, the more chance there is that

the disease will progress and that irreversible damage may be done to

one's joints and bones.

Any treatment should be able to stand up to the rigors of controlled

clinical trials. And any physician (like some of the doctors who push

special diets, etc.) is fully capable of conducting controlled, peer-

reviewed studies of their theories to demonstrate that they are

effective. The fact that they don't bother to do so speaks volumes to

me about the validity of their claims.

Everyone needs to keep alert to the facts to avoid chasing rabbits that

may do more harm than good.

best regards,

sherry z

>

> Hi, hope to find everone OK. today. HEY I am very sorry if i upset

anyone just want to see what others thought about this because my kids

also has this. And i to am scared for them. I have been through all the

drugs and nothing helped very long. My Drs. have put me in pain

mangement.Have to get shots back,shoulders,knees,And sometimes feet.I

do not like it but it helps with the pain. And also pain pills.I do not

want this for my kids at all or no one eles kids.Sometimes people will

go to any lenght to try something. But very sorry. warm regards

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Autos.