Re: What does all this mean?

[Guest guest]

Know that you are going to get through this and both of you are going to be

stronger  because of this!!  My prayers are with you and everything will work

out - it is just going to take time...............please make sure both of you

are getting treatment and stick to the treatment!!  My three girls and I have

been in treatment for about 10 months now - doing better - you go up and down

but you will get through it - I promise!!  Get a good support group - find out

if anyone is from your area with one - or get back on this site and find others

who are going through the same thing -

Peace and Love,

Diane

________________________________

From: lainamariepedro <Lainamariepedro@...>

Sent: Tuesday, September 22, 2009 11:33:20 AM

Subject: [ ] What does all this mean?

 

My 12yr old got results back his titer was 5.6 (positive)

And the western blot.....

Lyme antibody 5.60

borelia burgdorferi IgG Abs-IB positive

IgG band 18 present

band 23 present

band 28 absent

band 30 present

band 39 present

band 41 present

band 45 present

band 58 present

band 66 present

band 93 present

Borelia burgdorferi IgM Abs- IB positive

IgM band 23 present

IgM band 39 present

IgM band 41 present

These weren't done by any special lab.... just regular lab the pediatrician sent

them to. He had no bulls eye but weird rash. We are seeing Dr in CT for

first time tom. I am so overwhelmed. ... I don't even know what to ask. Come on

lyme moms pls help..... I have lyme too and I can't think!

Help please

sending you peace and love

laina

[Guest guest]

Laina

I hate it when I have to say :welcome to the group.

deep breath

you/we all can and will get thru this

simply put what the tests means is that you are LUCKY--becasue they are

absolutely and unquestionable for any insurance company that it is positive for

Lyme.

the " present " bands means that the immune system is telling you that those

proteins have been setting off the " intruder " alarm and that its from the Lyme

bacteria.

When is your appt with Dr ?? if its longer than 3 weeks please call their

office and fax them the results for advice. Dr may be able to talk with

you own pediatrician and get your son on meds asap.which is important.

Meanwhile ask Dr J's office which other tests to do while you wait--youll need

coinfection testing since its rare that anyone has " only " Lyme when the nasty

tick bites.he can fax you Rx for the tests and where/which lab he prefers.This

way when you see him all results are waiting for him.

It looks like you were on top of it ( good for you!!!) and you found it and will

be using the BEST Dr in the nation, maybe even the world-- Ray .

Follow what he says and be patient. It may be steady progress or a one step back

and 2 forward deal.

Your son is in puberty and that may make it a bit harder--emotional changes,

hormonal changes etc. Hang in and always come here for a sympathetic ear or to

learn more about this. And start a relationship with 's office staff

--theyre great and will answer any/all concerns you have. If you need an

" interpreter " for the confusing stuff, we are here fro you

good luck!!!

Finette Russak, M.S.

Science Educational Consultant

Lyme Disease Advocate

Support group Leader

original member of LDA-NJ ( now LDA)

member of lymeneteurope, lymeaid parents,many online and local support groups

This message (including any attachments) is intended only for the use of the

person(s) to whom it is addressed, and may contain information that is

privileged, confidential, and exempt from disclosure under applicable law. If

you receive this message in error, please notify me immediately by email, and

delete the original message from your records. Thank you.

Re: [ ] What does all this mean?

Know that you are going to get through this and both of you are going to be

stronger? because of this!!? My prayers are with you and everything will work

out - it is just going to take time...............please make sure both of you

are getting treatment and stick to the treatment!!? My three girls and I have

been in treatment for about 10 months now - doing better - you go up and down

but you will get through it - I promise!!? Get a good support group - find out

if anyone is from your area with one - or get back on this site and find others

who are going through the same thing -

Peace and Love,

Diane

[Guest guest]

Hi Laina,

Though I know the journey is a crazy one, you are on the road with a

positive test in hand and an appointment with Dr. . My son was infected

in 2004, treated improperly, and then became symptomatic again in 2007. He

has come off all his medications this past July and has been symptom-free

since. Every day I thank God (or whoever) that I found Dr. . He is our

hero. You will enter his office and know immediately that not only have you

found a soft place to land, but wise counsel who will not give up on

treating your son until he is better.

Love to you and a special hug to your son, and Tucker

From:

[mailto: ] On Behalf Of lainamariepedro

Sent: Tuesday, September 22, 2009 12:33 PM

Subject: [ ] What does all this mean?

My 12yr old got results back his titer was 5.6 (positive)

And the western blot.....

Lyme antibody 5.60

borelia burgdorferi IgG Abs-IB positive

IgG band 18 present

band 23 present

band 28 absent

band 30 present

band 39 present

band 41 present

band 45 present

band 58 present

band 66 present

band 93 present

Borelia burgdorferi IgM Abs- IB positive

IgM band 23 present

IgM band 39 present

IgM band 41 present

These weren't done by any special lab.... just regular lab the pediatrician

sent them to. He had no bulls eye but weird rash. We are seeing Dr in

CT for first time tom. I am so overwhelmed.... I don't even know what to

ask. Come on lyme moms pls help..... I have lyme too and I can't think!

Help please

sending you peace and love

laina

Internal Virus Database is out of date.

Checked by AVG - www.avg.com

Version: 8.0.238 / Virus Database: 270.11.41/2040 - Release Date: 04/03/09

17:54:00

[Guest guest]

Thank you!!!

From: Hall <Jkathhall@...>

Subject: RE: [ ] What does all this mean?

Date: Tuesday, September 22, 2009, 6:09 PM

 

Hi Laina,

Though I know the journey is a crazy one, you are on the road with a

positive test in hand and an appointment with Dr. . My son was infected

in 2004, treated improperly, and then became symptomatic again in 2007. He

has come off all his medications this past July and has been symptom-free

since. Every day I thank God (or whoever) that I found Dr. . He is our

hero. You will enter his office and know immediately that not only have you

found a soft place to land, but wise counsel who will not give up on

treating your son until he is better.

Love to you and a special hug to your son, and Tucker

From:

[mailto: ] On Behalf Of lainamariepedro

Sent: Tuesday, September 22, 2009 12:33 PM

Subject: [ ] What does all this mean?

My 12yr old got results back his titer was 5.6 (positive)

And the western blot.....

Lyme antibody 5.60

borelia burgdorferi IgG Abs-IB positive

IgG band 18 present

band 23 present

band 28 absent

band 30 present

band 39 present

band 41 present

band 45 present

band 58 present

band 66 present

band 93 present

Borelia burgdorferi IgM Abs- IB positive

IgM band 23 present

IgM band 39 present

IgM band 41 present

These weren't done by any special lab.... just regular lab the pediatrician

sent them to. He had no bulls eye but weird rash. We are seeing Dr in

CT for first time tom. I am so overwhelmed. ... I don't even know what to

ask. Come on lyme moms pls help..... I have lyme too and I can't think!

Help please

sending you peace and love

laina

Internal Virus Database is out of date.

Checked by AVG - www.avg.com

Version: 8.0.238 / Virus Database: 270.11.41/2040 - Release Date: 04/03/09

17:54:00

[Guest guest]

Thank you so much!

Appt is thursday (my son's 12th bday )

From: FinRussak@... <FinRussak@...>

Subject: Re: [ ] What does all this mean?

Date: Tuesday, September 22, 2009, 3:33 PM

 

Laina

I hate it when I have to say :welcome to the group.

deep breath

you/we all can and will get thru this

simply put what the tests means is that you are LUCKY--becasue they are

absolutely and unquestionable for any insurance company that it is positive for

Lyme.

the " present " bands means that the immune system is telling you that those

proteins have been setting off the " intruder " alarm and that its from the Lyme

bacteria.

When is your appt with Dr ?? if its longer than 3 weeks please call their

office and fax them the results for advice. Dr may be able to talk with

you own pediatrician and get your son on meds asap.which is important.

Meanwhile ask Dr J's office which other tests to do while you wait--youll need

coinfection testing since its rare that anyone has " only " Lyme when the nasty

tick bites.he can fax you Rx for the tests and where/which lab he prefers.This

way when you see him all results are waiting for him.

It looks like you were on top of it ( good for you!!!) and you found it and will

be using the BEST Dr in the nation, maybe even the world-- Ray .

Follow what he says and be patient. It may be steady progress or a one step back

and 2 forward deal.

Your son is in puberty and that may make it a bit harder--emotional changes,

hormonal changes etc. Hang in and always come here for a sympathetic ear or to

learn more about this. And start a relationship with 's office staff

--theyre great and will answer any/all concerns you have. If you need an

" interpreter " for the confusing stuff, we are here fro you

good luck!!!

Finette Russak, M.S.

Science Educational Consultant

Lyme Disease Advocate

Support group Leader

original member of LDA-NJ ( now LDA)

member of lymeneteurope, lymeaid parents,many online and local support groups

This message (including any attachments) is intended only for the use of the

person(s) to whom it is addressed, and may contain information that is

privileged, confidential, and exempt from disclosure under applicable law. If

you receive this message in error, please notify me immediately by email, and

delete the original message from your records. Thank you.

Re: [ ] What does all this mean?

Know that you are going to get through this and both of you are going to be

stronger? because of this!!? My prayers are with you and everything will work

out - it is just going to take time........ .......please make sure both of you

are getting treatment and stick to the treatment!!? My three girls and I have

been in treatment for about 10 months now - doing better - you go up and down

but you will get through it - I promise!!? Get a good support group - find out

if anyone is from your area with one - or get back on this site and find others

who are going through the same thing -

Peace and Love,

Diane

[Guest guest]

Happy Birthday and good luck!!!!!

btw if you remember, tell Dr that Evan Russak and his Mom send their

regards and take some notepaper and a pencil too.

you can easily be overhwhelmed by the information thrown at you.

consider also starting a diary/ symptom journal of sorts-a composition notebook

works great-each day try to note the meds he takes, his symptoms ( dont keep

asking him, be aware of changes and such)and any reactions to drugs.At the end

of the day try to ask him how he would rate the day and why. This gets him used

to expressing whats going on inside..like if he says a 6 because he had to miss

the soccer game.You can see how his progress is at the same time get a peek at

whats bothering him or vexing or concerning him and address it if you think

necessary!!

make a pocket in the back or have a separate file folder for test results--keep

copies and ask for copies of everything--it gets harder and harder to recall

which Dr ordered what test and having to call them to fax to someone else--when

you hold copies, simply make a new copy and carry with you to appts.

many have found that rating symptoms from 1-5 or 1-10 helps. then at the next

appt you dont have to struggle to figure out whats better or worse--a day before

you go back, look through and note if for example the headaches that were a

level 6 every day now sometimes only a level 4. These patterns of changes are

often all a Dr have to go by whether a protocol is working.Some like a grid with

all the symptoms and filling it in--others (like me) rather simply list the

symptoms that apply that day. If you think it applies, noting the activity or

behavior that may have affected the symptom might help ( like eating very late

dinner causing a blood sugar drop and really awful behavior that may not even be

" the Lyme " )

Plus it gets harder to keep track of the meds and supplements youve tried and

which if any worked as time and healing goes on.

the hardest for parents of preteens and teens is blaming all on Lyme and also

none on Lyme--it takes time but you will get a sense of which is acting out due

to teen crankiness and which is because he feels crummy--however there will be

times its BOTH and let me assure you that those are the times for you to 'need'

to drive and get a carton of milk for a little while!! thats okay!! Try to not

give in too much and dont feel guilty over being mean even though he is feeling

poorly. Curfew is curfew, bedtime is bedtime and eating well and listening to

Dr's advice about activities is crucial.

Please let us all know how the appt goes and how you both are doing!!!

Finette

Re: [ ] What does all this mean?

Thank you so much!

Appt is thursday (my son's 12th bday )

[Guest guest]

Does Dr. offer any holistic advice?

How are you keeping your child's immune system strong while they are in school

especially with the swine flu madness?

peace & lovelaina

From: Hall <Jkathhall@...>

Subject: RE: [ ] What does all this mean?

Date: Tuesday, September 22, 2009, 6:09 PM

 

Hi Laina,

Though I know the journey is a crazy one, you are on the road with a

positive test in hand and an appointment with Dr. . My son was infected

in 2004, treated improperly, and then became symptomatic again in 2007. He

has come off all his medications this past July and has been symptom-free

since. Every day I thank God (or whoever) that I found Dr. . He is our

hero. You will enter his office and know immediately that not only have you

found a soft place to land, but wise counsel who will not give up on

treating your son until he is better.

Love to you and a special hug to your son, and Tucker

From:

[mailto: ] On Behalf Of lainamariepedro

Sent: Tuesday, September 22, 2009 12:33 PM

Subject: [ ] What does all this mean?

My 12yr old got results back his titer was 5.6 (positive)

And the western blot.....

Lyme antibody 5.60

borelia burgdorferi IgG Abs-IB positive

IgG band 18 present

band 23 present

band 28 absent

band 30 present

band 39 present

band 41 present

band 45 present

band 58 present

band 66 present

band 93 present

Borelia burgdorferi IgM Abs- IB positive

IgM band 23 present

IgM band 39 present

IgM band 41 present

These weren't done by any special lab.... just regular lab the pediatrician

sent them to. He had no bulls eye but weird rash. We are seeing Dr in

CT for first time tom. I am so overwhelmed. ... I don't even know what to

ask. Come on lyme moms pls help..... I have lyme too and I can't think!

Help please

sending you peace and love

laina

Internal Virus Database is out of date.

Checked by AVG - www.avg.com

Version: 8.0.238 / Virus Database: 270.11.41/2040 - Release Date: 04/03/09

17:54:00

[Guest guest]

Could someone email me off the forum a contact number for Dr and the cost

per office visit(hope fully it will not be around the cost of the one in

Hydepark NY 950......

Thanks

sara

>

> Hi Laina,

>

> Though I know the journey is a crazy one, you are on the road with a

> positive test in hand and an appointment with Dr. . My son was infected

> in 2004, treated improperly, and then became symptomatic again in 2007. He

> has come off all his medications this past July and has been symptom-free

> since. Every day I thank God (or whoever) that I found Dr. . He is our

> hero. You will enter his office and know immediately that not only have you

> found a soft place to land, but wise counsel who will not give up on

> treating your son until he is better.

>

> Love to you and a special hug to your son, and Tucker

>

> From:

> [mailto: ] On Behalf Of lainamariepedro

> Sent: Tuesday, September 22, 2009 12:33 PM

>

> Subject: [ ] What does all this mean?

>

>

> My 12yr old got results back his titer was 5.6 (positive)

>

> And the western blot.....

>

> Lyme antibody 5.60

> borelia burgdorferi IgG Abs-IB positive

> IgG band 18 present

> band 23 present

> band 28 absent

> band 30 present

> band 39 present

> band 41 present

> band 45 present

> band 58 present

> band 66 present

> band 93 present

> Borelia burgdorferi IgM Abs- IB positive

> IgM band 23 present

> IgM band 39 present

> IgM band 41 present

>

> These weren't done by any special lab.... just regular lab the pediatrician

> sent them to. He had no bulls eye but weird rash. We are seeing Dr in

> CT for first time tom. I am so overwhelmed.... I don't even know what to

> ask. Come on lyme moms pls help..... I have lyme too and I can't think!

>

> Help please

> sending you peace and love

> laina

>

> Internal Virus Database is out of date.

> Checked by AVG - www.avg.com

> Version: 8.0.238 / Virus Database: 270.11.41/2040 - Release Date: 04/03/09

> 17:54:00

>

>

>

[Guest guest]

800$ TO SEE DR JONES HE IS JUST FOR KIDS THOUGH.

From: bob <masonjarbeading@...>

Subject: Re: [ ] What does all this mean?

Date: Wednesday, September 23, 2009, 5:51 AM

 

Could someone email me off the forum a contact number for Dr

and the cost per office visit(hope fully it will not be around the cost of

the one in Hydepark NY 950......

Thanks

sara

>

> Hi Laina,

>

> Though I know the journey is a crazy one, you are on the road with a

> positive test in hand and an appointment with Dr. . My son was infected

> in 2004, treated improperly, and then became symptomatic again in 2007.. He

> has come off all his medications this past July and has been symptom-free

> since. Every day I thank God (or whoever) that I found Dr. . He is our

> hero. You will enter his office and know immediately that not only have you

> found a soft place to land, but wise counsel who will not give up on

> treating your son until he is better.

>

> Love to you and a special hug to your son, and Tucker

>

> From:

> [mailto: ] On Behalf Of lainamariepedro

> Sent: Tuesday, September 22, 2009 12:33 PM

>

> Subject: [ ] What does all this mean?

>

>

> My 12yr old got results back his titer was 5.6 (positive)

>

> And the western blot.....

>

> Lyme antibody 5.60

> borelia burgdorferi IgG Abs-IB positive

> IgG band 18 present

> band 23 present

> band 28 absent

> band 30 present

> band 39 present

> band 41 present

> band 45 present

> band 58 present

> band 66 present

> band 93 present

> Borelia burgdorferi IgM Abs- IB positive

> IgM band 23 present

> IgM band 39 present

> IgM band 41 present

>

> These weren't done by any special lab.... just regular lab the pediatrician

> sent them to. He had no bulls eye but weird rash. We are seeing Dr in

> CT for first time tom. I am so overwhelmed. ... I don't even know what to

> ask. Come on lyme moms pls help..... I have lyme too and I can't think!

>

> Help please

> sending you peace and love

> laina

>

> Internal Virus Database is out of date.

> Checked by AVG - www.avg.com

> Version: 8.0.238 / Virus Database: 270.11.41/2040 - Release Date: 04/03/09

> 17:54:00

>

>

>

[Guest guest]

THANK YOU!!! THANK YOU SO MUCH!

From: FinRussak@... <FinRussak@...>

Subject: Re: [ ] What does all this mean?

Date: Tuesday, September 22, 2009, 9:49 PM

 

Happy Birthday and good luck!!!!!

btw if you remember, tell Dr that Evan Russak and his Mom send their

regards and take some notepaper and a pencil too.

you can easily be overhwhelmed by the information thrown at you.

consider also starting a diary/ symptom journal of sorts-a composition notebook

works great-each day try to note the meds he takes, his symptoms ( dont keep

asking him, be aware of changes and such)and any reactions to drugs.At the end

of the day try to ask him how he would rate the day and why. This gets him used

to expressing whats going on inside..like if he says a 6 because he had to miss

the soccer game.You can see how his progress is at the same time get a peek at

whats bothering him or vexing or concerning him and address it if you think

necessary!!

make a pocket in the back or have a separate file folder for test results--keep

copies and ask for copies of everything-- it gets harder and harder to recall

which Dr ordered what test and having to call them to fax to someone else--when

you hold copies, simply make a new copy and carry with you to appts.

many have found that rating symptoms from 1-5 or 1-10 helps. then at the next

appt you dont have to struggle to figure out whats better or worse--a day before

you go back, look through and note if for example the headaches that were a

level 6 every day now sometimes only a level 4. These patterns of changes are

often all a Dr have to go by whether a protocol is working.Some like a grid with

all the symptoms and filling it in--others (like me) rather simply list the

symptoms that apply that day. If you think it applies, noting the activity or

behavior that may have affected the symptom might help ( like eating very late

dinner causing a blood sugar drop and really awful behavior that may not even be

" the Lyme " )

Plus it gets harder to keep track of the meds and supplements youve tried and

which if any worked as time and healing goes on.

the hardest for parents of preteens and teens is blaming all on Lyme and also

none on Lyme--it takes time but you will get a sense of which is acting out due

to teen crankiness and which is because he feels crummy--however there will be

times its BOTH and let me assure you that those are the times for you to 'need'

to drive and get a carton of milk for a little while!! thats okay!! Try to not

give in too much and dont feel guilty over being mean even though he is feeling

poorly. Curfew is curfew, bedtime is bedtime and eating well and listening to

Dr's advice about activities is crucial.

Please let us all know how the appt goes and how you both are doing!!!

Finette

Re: [ ] What does all this mean?

Thank you so much!

Appt is thursday (my son's 12th bday )

[Guest guest]

Yes, Dr respects what I call " complementary " medicine--using traditional

medicine and drugs along with ( complementing) natural approaches. Some of his

patients' parents dabble in very unusual things and he often will eatch them

carefully and try to not butt in unless he feels its very risky to that

chjild...but that doesnt mean he approves or will suggest others to do that

As for flu protection--I recommend to my clients,as an advocate the following:

good diet, multivitamin unless your Dr advises against it

a little extra vitamin C again ask your Dr first

Boiron homeopathic flu remedy ( taken first as a preventative--google the

company and email them for advice)

and occillococcinum if you get symptoms--homeopathics may not work but they have

zero risks unless you cant tolerate milk sugars(lactose)

AND very very important--teach the kids to wash hands well several times a

day--keep hands away from noses, eyes, and mouths. Cough into elbows. and use

the Purell type gels. get a small bottle for backpacks and if they cant wash

tell them to use that before eating, after bathrooming and a few extra times a

day

some schools are installing hand gel stations!!!

at first sign of fever and flu keep them HOME. ask your school to contact via

round robin phone calls when the flu status is more than 25% in your kids'

classroom or the entire school is seeing a lot of flu cases.so youll be on

alert.

I also use and like Sambucol elderberry extract liquid--the original--PROVEN to

lessen colds ,flu and viral infections. we take it every day as a preventative

then increase the frequency if we get sick--it has kept bugs out of my home for

YEARS and if we do get sick--we are over it fast despite being so ill.

stay calm and keep a notebook for all of your information so you can look back

into it as needed.

Finette

RE: [ ] What does all this mean?

Does Dr. offer any holistic advice?

How are you keeping your child's immune system strong while they are in school

especially with the swine flu madness?

peace & lovelaina

[Guest guest]

That's not the cost per normal visit. The first visit is very detailed

and lasts a couple of hours. Later visits are shorter and less

expensive. Insurance may or may not cover testing.

His office staff is helpful in explaining costs.

I will email you the phone number.

laina pedro wrote:

>

>

> 800$ TO SEE DR JONES HE IS JUST FOR KIDS THOUGH.

>

>

>

> From: bob <masonjarbeading@... <mailto:masonjarbeading%40>>

> Subject: Re: [ ] What does all this mean?

>

> <mailto: %40>

> Date: Wednesday, September 23, 2009, 5:51 AM

>

>

>

> Could someone email me off the forum a contact number for Dr and

> the cost per office visit(hope fully it will not be around the cost of

> the one in Hydepark NY 950......

>

> Thanks

>

> sara

>

> >

>

> > Hi Laina,

>

> >

>

> > Though I know the journey is a crazy one, you are on the road with a

>

> > positive test in hand and an appointment with Dr. . My son was

> infected

>

> > in 2004, treated improperly, and then became symptomatic again in

> 2007.. He

>

> > has come off all his medications this past July and has been

> symptom-free

>

> > since. Every day I thank God (or whoever) that I found Dr. . He

> is our

>

> > hero. You will enter his office and know immediately that not only

> have you

>

> > found a soft place to land, but wise counsel who will not give up on

>

> > treating your son until he is better.

>

> >

>

> > Love to you and a special hug to your son, and Tucker

>

> >

>

> > From:

>

> > [mailto: ] On Behalf Of lainamariepedro

>

> > Sent: Tuesday, September 22, 2009 12:33 PM

>

> >

>

> > Subject: [ ] What does all this mean?

>

> >

>

> >

>

> > My 12yr old got results back his titer was 5.6 (positive)

>

> >

>

> > And the western blot.....

>

> >

>

> > Lyme antibody 5.60

>

> > borelia burgdorferi IgG Abs-IB positive

>

> > IgG band 18 present

>

> > band 23 present

>

> > band 28 absent

>

> > band 30 present

>

> > band 39 present

>

> > band 41 present

>

> > band 45 present

>

> > band 58 present

>

> > band 66 present

>

> > band 93 present

>

> > Borelia burgdorferi IgM Abs- IB positive

>

> > IgM band 23 present

>

> > IgM band 39 present

>

> > IgM band 41 present

>

> >

>

> > These weren't done by any special lab.... just regular lab the

> pediatrician

>

> > sent them to. He had no bulls eye but weird rash. We are seeing Dr

> in

>

> > CT for first time tom. I am so overwhelmed. ... I don't even know

> what to

>

> > ask. Come on lyme moms pls help..... I have lyme too and I can't think!

>

> >

>

> > Help please

>

> > sending you peace and love

>

> > laina

>

> >

>

> > Internal Virus Database is out of date.

>

> > Checked by AVG - www.avg.com

>

> > Version: 8.0.238 / Virus Database: 270.11.41/2040 - Release Date:

> 04/03/09

>

> > 17:54:00

>

> >

>

> >

>

> >

[Guest guest]

Since he is very okay with shared info and since you can google him anyways,here

is Dr ' info:

Dr Ray

111 park street

new haven, CT

203-772-1123

fees vary accordingly--you have to call and ask...no one Ive spoken with has

paid the same--tests vary in the ones he thinks youll need to have done and the

visit times vary as well as complexity of case. He takes financial ability into

account sometimes as well.

good luck and the waits may be long--this time of year new cases really blossom

Re: [ ] What does all this mean?

Could someone email me off the forum a contact number for Dr and the cost

per office visit(hope fully it will not be around the cost of the one in

Hydepark NY 950......

Thanks

sara

[Guest guest]

I just phoned Dr. office and practically begged for help because my son

has been on the list for months and can't get in till Jan. They told me there

was nothing they could do and they were way too busy to read his test results I

sent in.

That I had to just wait for the appt or a possible cancelation.

Hugs

Judy

[Guest guest]

So sorry, I'm sure it's frustrating. I can't imagine a doctor's

office being that booked up but the good ones usually are. He's

gotten so much national exposure there's people coming in from all

over. Hopefully you will get in soon.

Suzanne

On Sep 24, 2009, at 10:31 AM, jchabot wrote:

> I just phoned Dr. office and practically begged for help

> because my son has been on the list for months and can't get in till

> Jan. They told me there was nothing they could do and they were way

> too busy to read his test results I sent in.

> That I had to just wait for the appt or a possible cancelation.

> Hugs

> Judy

>

>

[Guest guest]

I am so sorry. It's so hard. i remeber when I was trying to find a doc for my

daughter. I was hoping to find one that took my insurance. I never did and just

took her to my doc. Are there any other doctors in your area? I didn't catch

where you were from.

Annie

>

> I just phoned Dr. office and practically begged for help because my son

has been on the list for months and can't get in till Jan. They told me there

was nothing they could do and they were way too busy to read his test results I

sent in.

> That I had to just wait for the appt or a possible cancelation.

> Hugs

> Judy

>

>

[Guest guest]

hhhmm, I wonder if it depends on who you talk to. When I talked to them

yesterday, they said I could fax the results along with my appt packet of info,

and if my ped called them, Dr. JOnes would review the results and make

recommendations. They said they would definately not talk to me about it, but

would talk to the ped. If only I could remember the name of the person I talked

to.

Dara

>

> I just phoned Dr. office and practically begged for help because my son

has been on the list for months and can't get in till Jan. They told me there

was nothing they could do and they were way too busy to read his test results I

sent in.

> That I had to just wait for the appt or a possible cancelation.

> Hugs

> Judy

>

>

[Guest guest]

YES it matters. His staff has grown and has some changes too-- they each have

their own ideas of which info gets to the Dr!!

You may want to FAX attn to him and then phone and ask that he reads it

Ive known him to talk with peds Drs ?if your appt with him was pending. He used

to offer treatment advice to the parents but now is more careful ( that pesky

investigation, again)

but peer to peer ( dr to Dr) is a routine and accepted method of care!! if all

else fails can you convince your kids' Dr to email or call him?? thats harder

since the home dr has to admit he needs help ( and often even admit the kid even

has Lyme to begin with) but its a last resort.

good luck

Finette

Re: [ ] What does all this mean?

hhhmm, I wonder if it depends on who you talk to. When I talked to them

yesterday, they said I could fax the results along with my appt packet of info,

and if my ped called them, Dr. JOnes would review the results and make

recommendations. They said they would definately not talk to me about it, but

would talk to the ped. If only I could remember the name of the person I talked

to.

Dara

[Guest guest]

depending on how far away you live... i would call weekly/daily and ask if there

is any cancellations.... good luck!

From: darabeth2003 <dara.alewine@...>

Subject: Re: [ ] What does all this mean?

Date: Thursday, September 24, 2009, 6:37 PM

 

hhhmm, I wonder if it depends on who you talk to. When I talked to them

yesterday, they said I could fax the results along with my appt packet of info,

and if my ped called them, Dr. JOnes would review the results and make

recommendations. They said they would definately not talk to me about it, but

would talk to the ped. If only I could remember the name of the person I talked

to.

Dara

>

> I just phoned Dr. office and practically begged for help because my son

has been on the list for months and can't get in till Jan. They told me there

was nothing they could do and they were way too busy to read his test results I

sent in.

> That I had to just wait for the appt or a possible cancelation.

> Hugs

> Judy

>

>

[Guest guest]

I am only about an hour and a half away form Dr. , but I have to take out a

loan just to go.

 For some reason when I tried to download the Lyme aid for kids website ,it said

I had to open a file and I couldn't open it.

Hugs

Judy

________________________________

From: akannielm <akannielm@...>

Sent: Thursday, September 24, 2009 6:33:00 PM

Subject: Re: [ ] What does all this mean?

 

I am so sorry. It's so hard. i remeber when I was trying to find a doc for my

daughter. I was hoping to find one that took my insurance. I never did and just

took her to my doc. Are there any other doctors in your area? I didn't catch

where you were from.

Annie

>

> I just phoned Dr. office and practically begged for help because my son

has been on the list for months and can't get in till Jan. They told me there

was nothing they could do and they were way too busy to read his test results I

sent in.

> That I had to just wait for the appt or a possible cancelation.

> Hugs

> Judy

>

>

[Guest guest]

I guess it does, because I sent them all the test results and packet 2 months

ago.

I have to say the woman I spoke with was very grouchy.

Hugs

Judy

________________________________

From: darabeth2003 <dara.alewine@...>

Sent: Thursday, September 24, 2009 6:37:08 PM

Subject: Re: [ ] What does all this mean?

 

hhhmm, I wonder if it depends on who you talk to. When I talked to them

yesterday, they said I could fax the results along with my appt packet of info,

and if my ped called them, Dr. JOnes would review the results and make

recommendations. They said they would definately not talk to me about it, but

would talk to the ped. If only I could remember the name of the person I talked

to.

Dara

>

> I just phoned Dr. office and practically begged for help because my son

has been on the list for months and can't get in till Jan. They told me there

was nothing they could do and they were way too busy to read his test results I

sent in.

> That I had to just wait for the appt or a possible cancelation.

> Hugs

> Judy

>

>

[Guest guest]

You could print it at the library or Dr. ' office can give you a copy when

you get there... that's what they did for me yesterday.

From: jchabot <jchabot@...>

Subject: Re: [ ] What does all this mean?

Date: Friday, September 25, 2009, 7:45 AM

 

I am only about an hour and a half away form Dr. , but I

have to take out a loan just to go.

 For some reason when I tried to download the Lyme aid for kids website ,it said

I had to open a file and I couldn't open it.

Hugs

Judy

____________ _________ _________ __

From: akannielm <akannielm (DOT) com>

Sent: Thursday, September 24, 2009 6:33:00 PM

Subject: Re: [ ] What does all this mean?

 

I am so sorry. It's so hard. i remeber when I was trying to find a doc for my

daughter. I was hoping to find one that took my insurance. I never did and just

took her to my doc. Are there any other doctors in your area? I didn't catch

where you were from.

Annie

>

> I just phoned Dr. office and practically begged for help because my son

has been on the list for months and can't get in till Jan. They told me there

was nothing they could do and they were way too busy to read his test results I

sent in.

> That I had to just wait for the appt or a possible cancelation.

> Hugs

> Judy

>

>

[Guest guest]

You have to have Acrobat Reader. I just read a post that said they're out of

funds. I think she was writing about this. I hope not!

________________________________

From: jchabot <jchabot@...>

Sent: Friday, September 25, 2009 7:45:46 AM

Subject: Re: [ ] What does all this mean?

 

I am only about an hour and a half away form Dr. , but I have to take out a

loan just to go.

 For some reason when I tried to download the Lyme aid for kids website ,it said

I had to open a file and I couldn't open it.

Hugs

Judy

____________ _________ _________ __

From: akannielm <akannielm (DOT) com>

Sent: Thursday, September 24, 2009 6:33:00 PM

Subject: Re: [ ] What does all this mean?

 

I am so sorry. It's so hard. i remeber when I was trying to find a doc for my

daughter. I was hoping to find one that took my insurance. I never did and just

took her to my doc. Are there any other doctors in your area? I didn't catch

where you were from.

Annie

>

> I just phoned Dr. office and practically begged for help because my son

has been on the list for months and can't get in till Jan. They told me there

was nothing they could do and they were way too busy to read his test results I

sent in.

> That I had to just wait for the appt or a possible cancelation.

> Hugs

> Judy

>

>