Guest guest Posted December 5, 2009 Report Share Posted December 5, 2009 oh yeah, been there, done that. two kids with special needs and me with lyme rage. except I didn't know any of us were infected. you need to get away. you need to be able to tell them that you need a time out. you need to simplify if you can. meals really simple, minimal stuff to do, etc. I found that zoloft has really helped my moods. for a long time I had to take lithium too because the zoloft made me hypomanic but it really makes a difference and takes the edge off. Aside from the stress of the whole situation, you probably have more symptoms than you realize but they are neuropsych like mood issues. Sometimes just knowing others are in the same boat helps. I am thinking of you. Natasha From: Beth Freishtat <beth@...> Subject: [ ] I'm out of control (parenting-wise) -- anger/rage Date: Saturday, December 5, 2009, 9:24 AM  I have a 3 and 4 year old (both with Lyme) and I have it as well (never again will we go to an east coast summer camp! The deer were practically campers there were so many!) Here's my problem...I am newly on Mepron (which I know is making things worse), but almost every evening I turn into a monster (weirdly days at work are fine). If the kids are talking to me at the same time, I lose and scream " one at a time! " If my daughter is too clingy I can barely tolerate it and want to shake her off me. And when they bicker or fight with each other, I feel like yelling " I'm outta here " and slamming the door and leaving. I often feel like throwing things and do occasionally slam cabinets, throw a loaf of bread into the cabinet or something relatively benign, but truth is I feel like smashing things. I am entirely impatient and I am yelling at my kids (I was never the most patient in the world, but never out of control). I am a 46 year single mom with an au pair to help with the kids, but I need more support and understanding. I feel so horribly alone. (BTW, I am not in lots of physical pain at all -- just lots of subtle, slight, barely painful moving pains in hands, arms, legs...doesn' t even bother me except that I know it is Lyme. We all got it summer '08 and have been on antibiotoics since) Can any of you tell me stories of similar feelings so I don't feel so isolated with this. Strategies to help (that are not time consuming!) I am so worried about damaging my kids, who I love more than life. Thanks so much, Beth p.s. Totally tangential side note: My son and I LIKE the taste of Mepron!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2009 Report Share Posted December 6, 2009 I completely understand and experience much of the same. I and my 2 kids are all diagnosed and in treatment. I felt this way alot pre-diagnosis and at least being diagnosed and knowing it had to do with lyme made me a little more forgiving of myself, though of course I fear the same, that I am damaging the kids. I do find that it is worse towards the end of the day- when I am more tired, and so are they making them more whiny, demanding and bickering. My son is experiencing alot of emotional symtpoms including lyme rage also, and by the end of the day I do not have the patience to deal with it, and we are both raging at each other. I have not found an answer, except I am trying to become more structured with our routines and expectations, trying to pace myself through the day so I don't fall apart so much at night, and I explain to the kids that mommy does not feel well either. . . My son just started mepron- he hates it! Every dose it a fight. Any tricks to getting to like it?? Dara > > I have a 3 and 4 year old (both with Lyme) and I have it as well > (never again will we go to an east coast summer camp! The deer were > practically campers there were so many!) Here's my problem...I am > newly on Mepron (which I know is making things worse), but almost > every evening I turn into a monster (weirdly days at work are fine). > If the kids are talking to me at the same time, I lose and scream " one > at a time! " If my daughter is too clingy I can barely tolerate it and > want to shake her off me. And when they bicker or fight with each > other, I feel like yelling " I'm outta here " and slamming the door and > leaving. I often feel like throwing things and do occasionally slam > cabinets, throw a loaf of bread into the cabinet or something > relatively benign, but truth is I feel like smashing things. I am > entirely impatient and I am yelling at my kids (I was never the most > patient in the world, but never out of control). I am a 46 year > single mom with an au pair to help with the kids, but I need more > support and understanding. I feel so horribly alone. (BTW, I am not in > lots of physical pain at all -- just lots of subtle, slight, barely > painful moving pains in hands, arms, legs...doesn't even bother me > except that I know it is Lyme. We all got it summer '08 and have been > on antibiotoics since) > > Can any of you tell me stories of similar feelings so I don't feel so > isolated with this. Strategies to help (that are not time consuming!) > I am so worried about damaging my kids, who I love more than life. > Thanks so much, > Beth > p.s. Totally tangential side note: My son and I LIKE the taste of > Mepron!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2009 Report Share Posted December 6, 2009 I understand and also remember a time, before treatment, that I would rage, or want to, at my kids. I'm very thankful that they were too young to remember. I can understand how alone you feel and am sorry for anyone who has to go at this alone. Just remember that there are many of us suffering along with you (in our family, me and our two sons). I am also taking Mepron and don't like it. I chase it with a quick bite of cheese or peanut butter. Did you know you are supposed to take it with some fat to increase its efficiency? Our doctor told us that. It also seems to take the taste away more quickly. Be well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2009 Report Share Posted December 6, 2009 Thanks for the suggestion about the gel cap, but my son is 6 and won't/can't swallow them yet. SOmething I am going to work on! Dara > > If the medication tastes that bad what about and empty gel cap? You can get them at most drug store. > Sent via BlackBerry from T-Mobile > > [ ] Re: I'm out of control (parenting-wise) -- anger/rage > > I understand and also remember a time, before treatment, that I would rage, or want to, at my kids. I'm very thankful that they were too young to remember. > > I can understand how alone you feel and am sorry for anyone who has to go at this alone. Just remember that there are many of us suffering along with you (in our family, me and our two sons). > > I am also taking Mepron and don't like it. I chase it with a quick bite of cheese or peanut butter. Did you know you are supposed to take it with some fat to increase its efficiency? Our doctor told us that. It also seems to take the taste away more quickly. > > Be well. > > > > > ------------------------------------ > > Lyme Disease News continually updated from thousands of sources around the > net: http://www.topix.net/health/lyme-disease > > MedWorm: The latest items on: Lyme Disease > http://tinyurl.com/23dgy8 > Quote Link to comment Share on other sites More sharing options...
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