Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 Hi Zoe Thanks for this post. I have always been so angry when I look back at ons early months. Why vaccinate a premature baby when it's immune system isn't even developed. He was vaccinated in the incubator before he should even have been born! It makes me feel ill to think about it but I do often. Sally From: Autism Treatment [mailto:Autism Treatment ] On Behalf Of Zoe Sent: Wednesday, August 30, 2006 6:26 PMAutism Treatment Subject: Primary Immune deficiency From JABS Forum, for information:My quest for knowledge as to why my daughter slipped into a maddenning world of GI problems and silence (autism) shortly after her MMR vaccination has uncovered alot. But nothing as monumental as what I have discovered over the weekend. My father & I were both Dx with a high white blood cell count of unknown origin back in the 80's. Here I am 27 hospitalizations due to chronic infections later wondering if my inherited "rare" immune disorder caused my daughter to have a severe adverse reaction to the vaccine. Yes, it did, and the NIH and CDC will agree. In fact, they say she never should have had the MMR. Primary immune deficiency diseases are disorders in which part of the body's immune system is missing or does not function properly. The World Health Organization recognizes nearly 100 primary immune deficiency disease including Bruton's Disease, Common Variable Immune Deficiency, Selective IgA Deficiency, and Severe Combined Immune Deficiency (boy-in-the-bubble disease).Some disorders, such as Selective IgA Deficiency can be quite common, occurring as often as 1/500 to 1/1000 individuals. Others, such as Severe Combined Immune Deficiency, may be as rare as one individual affected per million.Unlike secondary immune deficiency disease in which the immune system is compromised by outside factors, such as viruses or chemotherapy, the primary immune deficiency diseases are caused by genetic defects in the immune system.Should children with PI be vaccinated with live virus containing vaccines?Absolutely NOT. Children with PI diseases should not receive live virus vaccines, such as the oral polio, measles, and chicken pox vaccines. It is not even safe to give live virus vaccines to children suspected of immunodeficiency until a definitive diagnosis is rendered. There is a risk that such vaccines could cause serious illness or even death. National Institute of Health, Primary Immunodeficiency Publication, June 1999, No. 99-4149http://www.immunedisease.com/US/patients/living/healthy/immunizations.html br / Can Thimerosal cause PI?Thimerosal is an external factor, and cannot contribute to primary immune deficiency. But recent studies have shown, that thimerosal can cause immune system dysfunction, similar to a form of primary immune deficiency.Study With Mice Links Thimerosal With Immune System Dysfunctionhttp://www.sciencedaily.com/releases/2006/03/060322183922.htmT H E 1 0 W A R N I N G S I G N S O F P R I M A R Y I M M U N O D E F I C I E N C Y * 1. Eight or more new ear infections within a year.2. Two or more serious sinus infections within a year. 3. Two or more months on antibiotics with little effect. 4. Two or more pneumonias within a year. 5. Failure of an infant to gain weight or grow normally. 6. Recurrent deep abscesses in the skin or organs. 7. Persistent thrush in mouth or on skin, after age one. 8. Need for intravenous antibiotics to clear infections. 9.Two or more deep-seated infections such as meningitis, osteomyelitis, cellulitis, or sepsis. 10. A family history of primary immunodeficiency. *Courtesy of The Modell Foundation and the American Red Cross.More info can be found at:http://www.primaryimmune.org/pid/whatis_pid.htmhttp://www.primaryimmune.org/pid/patient_survey_publication.pdfhttp://www.nichd.nih.gov/publications/pubs/primaryimmunobooklet.htm# Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 Hi Sally What I find interesting about this is that many of our kids are deficient in SigA. 'Selective IgA deficiency is the severe deficiency or total absence of the IgA class of immunoglobulins in the body serum and secretions' and is one of the Primary Immune deficiencies. The National Institute of Health, Primary Immunodeficiency Publication, June 1999, No. 99-4149 says that Children with PI diseases should not receive live virus vaccines, such as the oral polio, measles, and chicken pox vaccines. It is not even safe to give live virus vaccines to children suspected of immunodeficiency until a definitive diagnosis is rendered. There is a risk that such vaccines could cause serious illness or even death. If this is also true in the UK then the docs of all our kids had a duty to ask parents about signs of PI disease or history of PI/autoimmune disease before vaccinating with any live virus. Likewise, the contraindications in the vaccination blurb for live viruses should carry warnings about PI disease. I was fantasising about us having a case against the pharmaceutical industry that witheld such warnings.............. Zoe > > > Hi Zoe > > Thanks for this post. I have always been so angry when I look back at > ons early months. Why vaccinate a premature baby when it's immune > system isn't even developed. He was vaccinated in the incubator before he > should even have been born! It makes me feel ill to think about it but I do > > often. > > Sally > > _____ > > From: Autism Treatment > [mailto:Autism Treatment ] On Behalf Of Zoe > Sent: Wednesday, August 30, 2006 6:26 PM > Autism Treatment > Subject: Primary Immune deficiency > > > > From JABS Forum, for information: > > My quest for knowledge as to why my daughter slipped into a > maddenning world of GI problems and silence (autism) shortly after > her MMR vaccination has uncovered alot. But nothing as monumental as > what I have discovered over the weekend. My father & I were both Dx > with a high white blood cell count of unknown origin back in the > 80's. Here I am 27 hospitalizations due to chronic infections later > wondering if my inherited " rare " immune disorder caused my daughter > to have a severe adverse reaction to the vaccine. Yes, it did, and > the NIH and CDC will agree. In fact, they say she never should have > had the MMR. > > Primary immune deficiency diseases are disorders in which part of > the body's immune system is missing or does not function properly. > > The World Health Organization recognizes nearly 100 primary immune > deficiency disease including Bruton's Disease, Common Variable > Immune Deficiency, Selective IgA Deficiency, and Severe Combined > Immune Deficiency (boy-in-the-bubble disease). > > Some disorders, such as Selective IgA Deficiency can be quite > common, occurring as often as 1/500 to 1/1000 individuals. Others, > such as Severe Combined Immune Deficiency, may be as rare as one > individual affected per million. > > Unlike secondary immune deficiency disease in which the immune > system is compromised by outside factors, such as viruses or > chemotherapy, the primary immune deficiency diseases are caused by > genetic defects in the immune system. > > Should children with PI be vaccinated with live virus containing > vaccines? > > Absolutely NOT. Children with PI diseases should not receive live > virus vaccines, such as the oral polio, measles, and chicken pox > vaccines. It is not even safe to give live virus vaccines to > children suspected of immunodeficiency until a definitive diagnosis > is rendered. There is a risk that such vaccines could cause serious > illness or even death. > > National Institute of Health, Primary Immunodeficiency Publication, > June 1999, No. 99-4149 > > http://www.immunedi > <http://www.immunedisease.com/US/patients/living/healthy/immunization s> > sease.com/US/patients/living/healthy/immunizations > .html br / > > Can Thimerosal cause PI? > > Thimerosal is an external factor, and cannot contribute to primary > immune deficiency. But recent studies have shown, that thimerosal > can cause immune system dysfunction, similar to a form of primary > immune deficiency. > > Study With Mice Links Thimerosal With > Immune System Dysfunction > > http://www.scienced > <http://www.sciencedaily.com/releases/2006/03/060322183922.htm> > aily.com/releases/2006/03/060322183922.htm > > T H E 1 0 W A R N I N G S I G N S O F P R I M A R Y > I M M U N O D E F I C I E N C Y * > > 1. Eight or more new ear infections within a year. > > 2. Two or more serious sinus infections within a year. > > 3. Two or more months on antibiotics with little effect. > > 4. Two or more pneumonias within a year. > > 5. Failure of an infant to gain weight or grow normally. > > 6. Recurrent deep abscesses in the skin or organs. > > 7. Persistent thrush in mouth or on skin, after age one. > > 8. Need for intravenous antibiotics to clear infections. > > 9.Two or more deep-seated infections such as meningitis, > osteomyelitis, cellulitis, or sepsis. > > 10. A family history of primary immunodeficiency. > > *Courtesy of The Modell Foundation and the American Red > Cross. > > More info can be found at: > http://www.primaryi <http://www.primaryimmune.org/pid/whatis_pid.htm> > mmune.org/pid/whatis_pid.htm > > http://www.primaryi > <http://www.primaryimmune.org/pid/patient_survey_publication.pdf> > mmune.org/pid/patient_survey_publication.pdf > > http://www.nichd. > <http://www.nichd.nih.gov/publications/pubs/primaryimmunobooklet.htm# > > nih.gov/publications/pubs/primaryimmunobooklet.htm# > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 Thanks for this Zoe - very interesting (and infuriating!) Jacqui X > > > > > > Hi Zoe > > > > Thanks for this post. I have always been so angry when I look > back at > > ons early months. Why vaccinate a premature baby when it's > immune > > system isn't even developed. He was vaccinated in the incubator > before he > > should even have been born! It makes me feel ill to think about > it but I do > > > > often. > > > > Sally > > > > _____ > > > > From: Autism Treatment > > [mailto:Autism Treatment ] On Behalf Of Zoe > > > Sent: Wednesday, August 30, 2006 6:26 PM > > Autism Treatment > > Subject: Primary Immune deficiency > > > > > > > > From JABS Forum, for information: > > > > My quest for knowledge as to why my daughter slipped into a > > maddenning world of GI problems and silence (autism) shortly after > > her MMR vaccination has uncovered alot. But nothing as monumental > as > > what I have discovered over the weekend. My father & I were both > Dx > > with a high white blood cell count of unknown origin back in the > > 80's. Here I am 27 hospitalizations due to chronic infections > later > > wondering if my inherited " rare " immune disorder caused my > daughter > > to have a severe adverse reaction to the vaccine. Yes, it did, and > > the NIH and CDC will agree. In fact, they say she never should > have > > had the MMR. > > > > Primary immune deficiency diseases are disorders in which part of > > the body's immune system is missing or does not function properly. > > > > The World Health Organization recognizes nearly 100 primary immune > > deficiency disease including Bruton's Disease, Common Variable > > Immune Deficiency, Selective IgA Deficiency, and Severe Combined > > Immune Deficiency (boy-in-the-bubble disease). > > > > Some disorders, such as Selective IgA Deficiency can be quite > > common, occurring as often as 1/500 to 1/1000 individuals. Others, > > such as Severe Combined Immune Deficiency, may be as rare as one > > individual affected per million. > > > > Unlike secondary immune deficiency disease in which the immune > > system is compromised by outside factors, such as viruses or > > chemotherapy, the primary immune deficiency diseases are caused by > > genetic defects in the immune system. > > > > Should children with PI be vaccinated with live virus containing > > vaccines? > > > > Absolutely NOT. Children with PI diseases should not receive live > > virus vaccines, such as the oral polio, measles, and chicken pox > > vaccines. It is not even safe to give live virus vaccines to > > children suspected of immunodeficiency until a definitive > diagnosis > > is rendered. There is a risk that such vaccines could cause > serious > > illness or even death. > > > > National Institute of Health, Primary Immunodeficiency > Publication, > > June 1999, No. 99-4149 > > > > http://www.immunedi > > > <http://www.immunedisease.com/US/patients/living/healthy/immunization > s> > > sease.com/US/patients/living/healthy/immunizations > > .html br / > > > > Can Thimerosal cause PI? > > > > Thimerosal is an external factor, and cannot contribute to primary > > immune deficiency. But recent studies have shown, that thimerosal > > can cause immune system dysfunction, similar to a form of primary > > immune deficiency. > > > > Study With Mice Links Thimerosal With > > Immune System Dysfunction > > > > http://www.scienced > > <http://www.sciencedaily.com/releases/2006/03/060322183922.htm> > > aily.com/releases/2006/03/060322183922.htm > > > > T H E 1 0 W A R N I N G S I G N S O F P R I M A R Y > > I M M U N O D E F I C I E N C Y * > > > > 1. Eight or more new ear infections within a year. > > > > 2. Two or more serious sinus infections within a year. > > > > 3. Two or more months on antibiotics with little effect. > > > > 4. Two or more pneumonias within a year. > > > > 5. Failure of an infant to gain weight or grow normally. > > > > 6. Recurrent deep abscesses in the skin or organs. > > > > 7. Persistent thrush in mouth or on skin, after age one. > > > > 8. Need for intravenous antibiotics to clear infections. > > > > 9.Two or more deep-seated infections such as meningitis, > > osteomyelitis, cellulitis, or sepsis. > > > > 10. A family history of primary immunodeficiency. > > > > *Courtesy of The Modell Foundation and the American Red > > Cross. > > > > More info can be found at: > > http://www.primaryi > <http://www.primaryimmune.org/pid/whatis_pid.htm> > > mmune.org/pid/whatis_pid.htm > > > > http://www.primaryi > > <http://www.primaryimmune.org/pid/patient_survey_publication.pdf> > > mmune.org/pid/patient_survey_publication.pdf > > > > http://www.nichd. > > > <http://www.nichd.nih.gov/publications/pubs/primaryimmunobooklet.htm# > > > > nih.gov/publications/pubs/primaryimmunobooklet.htm# > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 That's awful Sally. What was he going to catch in the incubator? I thought they vaccinated later when babies were premature. Peta- -- In Autism Treatment , " Sally " <sallygeorge@...> wrote: > > > Hi Zoe > > Thanks for this post. I have always been so angry when I look back at > ons early months. Why vaccinate a premature baby when it's immune > system isn't even developed. He was vaccinated in the incubator before he > should even have been born! It makes me feel ill to think about it but I do > > often. > > Sally > > _____ > > From: Autism Treatment > [mailto:Autism Treatment ] On Behalf Of Zoe > Sent: Wednesday, August 30, 2006 6:26 PM > Autism Treatment > Subject: Primary Immune deficiency > > > > From JABS Forum, for information: > > My quest for knowledge as to why my daughter slipped into a > maddenning world of GI problems and silence (autism) shortly after > her MMR vaccination has uncovered alot. But nothing as monumental as > what I have discovered over the weekend. My father & I were both Dx > with a high white blood cell count of unknown origin back in the > 80's. Here I am 27 hospitalizations due to chronic infections later > wondering if my inherited " rare " immune disorder caused my daughter > to have a severe adverse reaction to the vaccine. Yes, it did, and > the NIH and CDC will agree. In fact, they say she never should have > had the MMR. > > Primary immune deficiency diseases are disorders in which part of > the body's immune system is missing or does not function properly. > > The World Health Organization recognizes nearly 100 primary immune > deficiency disease including Bruton's Disease, Common Variable > Immune Deficiency, Selective IgA Deficiency, and Severe Combined > Immune Deficiency (boy-in-the-bubble disease). > > Some disorders, such as Selective IgA Deficiency can be quite > common, occurring as often as 1/500 to 1/1000 individuals. Others, > such as Severe Combined Immune Deficiency, may be as rare as one > individual affected per million. > > Unlike secondary immune deficiency disease in which the immune > system is compromised by outside factors, such as viruses or > chemotherapy, the primary immune deficiency diseases are caused by > genetic defects in the immune system. > > Should children with PI be vaccinated with live virus containing > vaccines? > > Absolutely NOT. Children with PI diseases should not receive live > virus vaccines, such as the oral polio, measles, and chicken pox > vaccines. It is not even safe to give live virus vaccines to > children suspected of immunodeficiency until a definitive diagnosis > is rendered. There is a risk that such vaccines could cause serious > illness or even death. > > National Institute of Health, Primary Immunodeficiency Publication, > June 1999, No. 99-4149 > > http://www.immunedi > <http://www.immunedisease.com/US/patients/living/healthy/immunization s> > sease.com/US/patients/living/healthy/immunizations > .html br / > > Can Thimerosal cause PI? > > Thimerosal is an external factor, and cannot contribute to primary > immune deficiency. But recent studies have shown, that thimerosal > can cause immune system dysfunction, similar to a form of primary > immune deficiency. > > Study With Mice Links Thimerosal With > Immune System Dysfunction > > http://www.scienced > <http://www.sciencedaily.com/releases/2006/03/060322183922.htm> > aily.com/releases/2006/03/060322183922.htm > > T H E 1 0 W A R N I N G S I G N S O F P R I M A R Y > I M M U N O D E F I C I E N C Y * > > 1. Eight or more new ear infections within a year. > > 2. Two or more serious sinus infections within a year. > > 3. Two or more months on antibiotics with little effect. > > 4. Two or more pneumonias within a year. > > 5. Failure of an infant to gain weight or grow normally. > > 6. Recurrent deep abscesses in the skin or organs. > > 7. Persistent thrush in mouth or on skin, after age one. > > 8. Need for intravenous antibiotics to clear infections. > > 9.Two or more deep-seated infections such as meningitis, > osteomyelitis, cellulitis, or sepsis. > > 10. A family history of primary immunodeficiency. > > *Courtesy of The Modell Foundation and the American Red > Cross. > > More info can be found at: > http://www.primaryi <http://www.primaryimmune.org/pid/whatis_pid.htm> > mmune.org/pid/whatis_pid.htm > > http://www.primaryi > <http://www.primaryimmune.org/pid/patient_survey_publication.pdf> > mmune.org/pid/patient_survey_publication.pdf > > http://www.nichd. > <http://www.nichd.nih.gov/publications/pubs/primaryimmunobooklet.htm# > > nih.gov/publications/pubs/primaryimmunobooklet.htm# > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 I am wondering if anyone has been diagnoised with this?? My daughter is going in tomorrow and getting some tests done - they think that maybe she has this because I had lyme when I was pregnate with her? Anyone have any experience with this? Diane http://my.primaryimmune.org/. Quote Link to comment Share on other sites More sharing options...
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