Good Morning...

[Guest guest]

Hey " Forgetful Shaun " !!!! Top this one: At work on Saturday, I went

into the restroom. Stood there for a minute. Walked out and went back

upstairs to my desk before I remembered that I went to the restroom

because I needed to USE the bathroom. Classic brainfog example that I

will NOT be sharing with most people. Only this group would understand.

Of course then I got the giggles and could not answer anyone when they

ask me what was so funny. Yeah...like I'm gonna tell them at work " Oh

nothing...I just went to the bathroom but forgot to pee! " What a

disease! - " Forgetful Betz "

[Guest guest]

Yeah...like I'm gonna tell them at work " Oh

> nothing...I just went to the bathroom but forgot to pee! " What a

> disease! - " Forgetful Betz "

>

A few weeks ago I went to WalMart in the middle of the night to do some

grocery shopping. I spent about 40 minutes perusing the isles and

putting things in my basket. Went through checkout. Paid my bill and

left.

I was just putting my car in reverse when one of the stockboys stopped

me and told me I had left my groceries at checkout.

LOL

Sandi

(I'd rather laugh than explore my other emotional options)

[Guest guest]

> I was just putting my car in reverse when one of the stockboys

stopped

> me and told me I had left my groceries at checkout.

>

> LOL

>

> Sandi

> (I'd rather laugh than explore my other emotional options)

>

I BET IF WE TOOK A POLE...MANY OF US HAVE DONE WHAT YOU DID SANDI...I

HAVE! -NORMAL BETZ???

[Guest guest]

Oooh my goodness... I have done those kids of things too... I hate it... Its

soooo embarressing to do things like that, but what eles can we do... Barb is

usually with me now so I don't have to worry about it most times...

Love and Peace Always

Shaun and Barb

[Guest guest]

and Group,

I struggled for over 3 years without a diagnosis and constant daily pain. It

started in both thumbs and within 2 months moved throughout my entire body.

I have PA all over. I went to one Rheumatologist (male Dr) and was told to

take two motrin because the blood work was normal. I went to another doctor

for a second opinion. This was a female doctor. My blood work was normal

except for thyroid. I was started on thyroid medicine and my rheumatologist

hoped that the joint pain would be relieved by fixing the thyroid. After 6

weeks I was started on Plaquenil. Initially my Rheumatologist asked about

Rashes and I did not think anything about scalp rashes that I got every

month. I thought that I was allergic to shampoo. I had no idea that it was

Psoriasis. I told my Rheumatologist that 10 years ago I got a bad rash all

over my body then it went away. I would also get small rashes on my eye lids

in the winter. That was it. Plaquenil helped and after about 4 months I got

a terrible rash all over my body and started itching like crazy. My whole

body peeled at once and I felt faint. I called the doctor and they

immediately took me off of it. My Dr said that they do not give it to people

that have psoriasis because it can make their psoriasis worse. I booked an

appointment with a dermatologist because I started doing more research and I

suspected that I had PA due to my tests being negative and this reaction to

plaquenil. I also noticed that my finger and toe nails started looking

deformed and had well defined vertical ridges on them. My diagnosis at this

point was Sero Negative RA. I went to the dermatologist and after a quick

exam and just looking at my whole body with the naked eye, he determined

that I had plaque psoriasis covering 85% of my body. He really knew his

stuff. He said that that rash 10 years ago was the start of PA and the

joint pain occurs later. My Rhuematologist concurred and later diagnosed me

with PA. I have been on every anti inflammatory medicine that there is. This

diagnosis allowed me to start Enbrel which has been a godsend. I started it

in July 06 and have been about 80% pain free. I still have foot pain because

of heel spurs, but my podiatrist is trying to fix that. This time last year

I was using a cane due to Baker's cysts and Knee pain. I was in bed most of

the time and had to give up my full time job. My blood work continues to be

neg. Except for one instance when I was put on one medicine called

methotrexate that caused my liver enzymes to go up, but I was immediately

taken off of it. It was the last drug I was on before I could start Enbrel.

Also, do not be scared about the side effects of some of the medicines. You

are already sick and you need to be helped. That is what the drugs are for

to help you lead a normal life. I have to wrap up. It is Shot night. I have

to give myself my Enbrel Shot.

<http://www./s/379501> http://www./s/379501

[Guest guest]

Hi everyone,

I don't post much, but I do read the posts. When I was diagnosed with PA it

was strange. I had a spot on my ankle that was really red. I was at work and

as the day grew on, this spot started getting larger and larger. I thought I

had been bitten by a spider. Well, in the afternoon this spot was horrible, and

had red streaks going up my leg eeeekkk!! So I contacted my regular doctor, she

got me in quickly and they did some blood tests, put me on antibiotics, and we

watched this spot. Two days later my blood tests came back Positive for

Rheumatoid Arthritis and Lupus. My regular doctor immediately contacted a

Rheumatologist. The Rheumy had no openings for 4 months, but after my doctor

told her my RA factor and the positive Lupus test she got me in the very next

day. After many blood tests, and the fact I had Psoriasis spots all over me, my

Rheumy concluded that even tho I have a positive Rheumatoid Arthritis test, my

disease is " acting " more like Psoriatic

Arthritis. The Lupus is still positive also. I had been going to the

Rheumatologist for about 6 months when I was stricken with very strange and

hardcore muscle spasms and pain. I was then diagnosed with Fibromyalgia also.

I gues i'm just a walking Auto Immune Disease.

After being sick like this for a year, I lost my marriage of 20 years (my ex

is getting re-married today to a woman who is way younger than him and who isn't

sick like me), and I also lost my job of 11 years!! What a year last year was!

My year this year is way better tho, i've met the most wonderful man in the

world, and he is very supportive of me and these diseases. He's so quick to

help me in any way he can, and DOESN'T want me to work, which was never an

option in my marriage. I'd love to have my paycheck, but the stress of my job,

or any job just really isn't worth it at this stage of my life with pain.

I hope you all are feeling good and rested today.

*soft hugs*

Misty

bmadron <bmadron@...> wrote:

and Group,

I struggled for over 3 years without a diagnosis and constant daily pain. It

started in both thumbs and within 2 months moved throughout my entire body.

I have PA all over. I went to one Rheumatologist (male Dr) and was told to

take two motrin because the blood work was normal. I went to another doctor

for a second opinion. This was a female doctor. My blood work was normal

except for thyroid. I was started on thyroid medicine and my rheumatologist

hoped that the joint pain would be relieved by fixing the thyroid. After 6

weeks I was started on Plaquenil. Initially my Rheumatologist asked about

Rashes and I did not think anything about scalp rashes that I got every

month. I thought that I was allergic to shampoo. I had no idea that it was

Psoriasis. I told my Rheumatologist that 10 years ago I got a bad rash all

over my body then it went away. I would also get small rashes on my eye lids

in the winter. That was it. Plaquenil helped and after about 4 months I got

a terrible rash all over my body and started itching like crazy. My whole

body peeled at once and I felt faint. I called the doctor and they

immediately took me off of it. My Dr said that they do not give it to people

that have psoriasis because it can make their psoriasis worse. I booked an

appointment with a dermatologist because I started doing more research and I

suspected that I had PA due to my tests being negative and this reaction to

plaquenil. I also noticed that my finger and toe nails started looking

deformed and had well defined vertical ridges on them. My diagnosis at this

point was Sero Negative RA. I went to the dermatologist and after a quick

exam and just looking at my whole body with the naked eye, he determined

that I had plaque psoriasis covering 85% of my body. He really knew his

stuff. He said that that rash 10 years ago was the start of PA and the

joint pain occurs later. My Rhuematologist concurred and later diagnosed me

with PA. I have been on every anti inflammatory medicine that there is. This

diagnosis allowed me to start Enbrel which has been a godsend. I started it

in July 06 and have been about 80% pain free. I still have foot pain because

of heel spurs, but my podiatrist is trying to fix that. This time last year

I was using a cane due to Baker's cysts and Knee pain. I was in bed most of

the time and had to give up my full time job. My blood work continues to be

neg. Except for one instance when I was put on one medicine called

methotrexate that caused my liver enzymes to go up, but I was immediately

taken off of it. It was the last drug I was on before I could start Enbrel.

Also, do not be scared about the side effects of some of the medicines. You

are already sick and you need to be helped. That is what the drugs are for

to help you lead a normal life. I have to wrap up. It is Shot night. I have

to give myself my Enbrel Shot.

<http://www./s/379501> http://www./s/379501

[Guest guest]

Good Morning Everyone...

Love and peace always, Shaun and Barb...