we could sure use your wisdom...

[Guest guest]

Greetings from Dallas, Tx., I have been reading and reading your

posts, and there is something so comforting about knowing that you are

all out there. )

My 18 year old daughter was just diagnosed with PsA. Are there any

other teens out there? She is lonely and could sure use a friend who

knows what she is going through.

she was diagnosed with type 1 diabetes at two, asthma at four, and had

a 'fuo' (fever of unknown origin) for a year at twelve... they finally

took out her gall bladder, but that didn't seem to help. After that

she started having pain in her joints and tissues.... first she was

diagnosed with undifferentiated spondyloarthropathy, then rickets,

then fibromyalgia... now (we're on our 5th rheumatologist) the guy

says that it's PsA. They wouldn't put her on biologics when diagnosed

with spondyl. because she had tested positive for being exposed to

tuberculosis (?!) so she took a year of tb meds, so now they say they

can put her on Humira in three weeks if the blood tests and xrays

confirm PsA.

Does any of this sound familiar? She has been on hydrocodone for

years, and finally is on the Duragesic pain patch... but her pain

remains at an 8.5 on a good day. I so appreciate your insight and

willingness to share!

thanks, Irene