Doctor's Appointment - Frustrated

September 26, 2006

I thought I had true acceptance of my illness, but I am finding that

I still have been in denial or not sure exactly what to call it. I

had a rheumy follow up to get some test results, since I cannot seem

to get a right medicine combination and still in constant pain with

my sed rate still soaring and lower back pain, that even with

increasing excercise/stretching and desparately trying to lose

weight, their is pain. Ok, yes I need to lose weight, but there is a

pain that even if I was a size 2 would still be there I know, it.

Today, I somehow feel very mixed, since I have extreme inflammation

of my SI joints, spinal stenois,and degenerative disc disease. Also,

in addition of PA and Fibro, I have the markers for RA now as well

and my sed rates are higher than I was just 3 weeks when I was there

last. So, I knew I had something wrong in my back, but ok, wow.

So, my insurance copmany approved the increasing of Humira to every

week, which I can barely stand the thought of, since I have no one to

help me out. The thought of that shot every 2 weeks makes me cringe,

I just cried leaving her office, since the feel of that shot is

ugh........ Ok, I am having a pity party today, sorry........Plus,

all the meds I was given, to help with pain, I really cannot even

take, since I am lucky enough to still be able to work, but I would

never get up ontime. So, I will figure something out since I cannot

sleep, ugh what a cycle.....

Thanks for listening,

Debbie

[Editor's Note: Debbie, be sure to let the Humira come to room temperature

before injecting. I also found it very helpful to " freeze " the injection site

for several minutes beforehand (I used a box of frozen peas, but you can use an

ice pack, LOL). It was also a lot less painful to inject very, very, very, very

slowly. By doing those three things, I eventually found the Humira injections

to be quite tolerable. Have you talked to your rheumy about switching to

Enbrel? It's a lot less painful on the way in. Kathy F]

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