Re: WHEW

[Guest guest]

Heehee just signed you up I must still be on topica.com lol because I got

your request from that site lolol

Note we are now at you may want to go and register there so you

can access the web site for chats and other neat stuff. It's a great site

Kathy

[Guest guest]

WHAE IS A DEVIL DOG??? well It is a hot dog shaped snack cake . the outside

is a delectable soft devils food cake and the middle is filled with a creme

whipped creamy type filling [like in a whoopie pie] cathy from ma

[Editor's Note: And it is absolutely delicious, albeit of no detectable

nutritional value. Yummy. Kathy F.]

[Guest guest]

well kathy , my daughter who taught nutrition classes at the univ. of

mass. says these t..[.whenever I eat one she says ].. " remember your soul!..lol

....T.hese cakes are " good for the soul " and so are cookies!.... but only once

in a great while .

[Editor's Note: Hahaha. I consider cookies to old white lady soul food of the

highest order. I'm sitting here with my breakfast yogurt dreaming of devil

dogs...Kathy F.]

[Guest guest]

>

> WHAE IS A DEVIL DOG??? well It is a hot dog shaped snack cake . the

outside

> is a delectable soft devils food cake and the middle is filled with

a creme

> whipped creamy type filling [like in a whoopie pie] cathy from ma

>

>

> [Editor's Note: And it is absolutely delicious, albeit of no

detectable nutritional value. Yummy. Kathy F.]

>

I would take a Suzie Q over a devil dog any day.

Janet

[Guest guest]

You have such a beautiful attitude! When my hands are hurting,

I wonder if I should even bother getting into medicine as a Dr, but

you just encouraged me that we all have problems to overcome, not

just those of us with PA.

Thanks

>

> I have been reading and following everyone's opinions on the topic

of healing

> naturally. I'm so glad we have a medium to voice our thoughts and

feelings

> while our bodies are being ravaged by this hideous disease.

>

> Being a massage therapist I have always striven to do things as

naturally as

> I can. If I had the discipline to follow any specific diet I

would not be

> surprised to find it can help. I have tried several natural

things and I still

> find myself on Tramadol and Indocin. If I hadn't discovered the

Indocin

> (through a friend incidentally, not by my rheumatologist) I would

not be still

> working in my beloved field. I cannot do the biologics due to

another disease I

> have, therefore my options are a bit more limited.

>

> In a perfect world there would be no disease or suffering. I try

and believe

> that my challenges are here to make me appreciate the good things

I have.

>

> I appreciate hearing everyone's personal experiences in dealing

with this. I

> am SO glad even through all this conflict each person is free to

express what

> they feel has worked for them. I am always open to new ideas.

>

> Oh, and WHAT is a DEVIL DOG???????

>

>

>

[Guest guest]

You have such a beautiful attitude! When my hands are hurting,

I wonder if I should even bother getting into medicine as a Dr, but

you just encouraged me that we all have problems to overcome, not

just those of us with PA.

If you really want to be a doctor, go for it. If your hands hurt,

medical school and residency might be a wee bit tough, but once

through that, you could pick a specialty where the state of your hands

wouldn't matter......like dermatology or psychiatry instead of surgery

or OB/GYN.

I became a nurse despite having a bilateral sensorineural hearing loss

and wearing hearing aids. Things like electronic stethoscopes helped a

lot, so I could hear breath sounds and heart sounds better. Then, once

my PA was diagnosed, I had to go on short-term disability and medical

leave from my hospital employer....but once the Methotrexate kicked

in, I was able to return to nursing, albeit as an office nurse as

opposed to the hospital.

Blessings and luck to you in your endeavors!

Wanda

[Guest guest]

Hi Sharon,

I've been wondering how you were doing so am glad to hear an update. The

fatigue sure

can be tough! Glad you have that sweet husband there to help you and good

you'll be

checking in with you blood work next week. If your are feeling like passing out

-

definitely sounds like you want to check it out soon. I was told to call in if

at anytime I was

getting dizzy. I can't remember - what week are you in? Hang in there - you

are a

trooper!

Had a couple real rough weeks but woke up this past Monday - made the three hour

drive

to Pittsburgh (just beat the storm!) and have miraculously found that I've been

feeling

pretty good all week - my energy and overall health seems to be pretty decent.

In week

eleven - so maybe I'm leveling off to a better place. They checked my blood

work and had

decided if if the hemo had dropped anymore, that they'd prescribe procrit - I

don't have

my lab copy yet, but as I haven't heard am assuming all is well. I was told to

call if I get hit

with fatigue again and it doesn't lift - glad to know they aren't talking

decreasing any

meds, but adding. I thank this list for my knowing what's what.

Also, they did a viral load - so I'm doing the wait again. Oh gosh! Trying not

to think

about it too much. Probably have the results in another week.

So - healthwise, I'm doing great. Issues with my son have been very stressful

again - I

know that effects my sleep more than the treatment - but even that has an end in

sight.

My love to all.

>

> My hubby has helped me clean house today, bless his little pea-pickin' Okie

soul!! I had

to actually lie down every 10 or so minutes and catch my breath and wait for the

shaking

to stop. I am soooo weak. If I move too quickly, I come dangerously close to

just passing

out.

>

> I have an appt next week and the first round of blood work has been done, so

will see

then. Mean time, it's an effort to get up the stairs, make the bed and put my

clothes on. I

have to lie down for 20 minutes to regain strength.

>

> I'm sure I'm not getting enough water, but I'm sure drinkin' a lot, as much as

I can. My

throat is always dry, so that 's not hard to do.

>

> It's still early and I know things will level off in another month or so, so

I'm hangin' in

there and clutching on to my sense of humor. lol

>

> All my personal email today is from a different foreign country and that

brightened my

spirits considerable. God bless epals!!

>

> Sharon

>

[Guest guest]

Tonight's shot will be the 6th, I think. Still have a ways to go, but I'm just hangin' out for the most part. Sold my beautiful 66 Mustang, so I don't even have my own car now. I'd sooo rather have the remodeling done to my house, tho. And I don't care if I go anywhere right now anyway. lol

Sounds like you've reached the leveling off, . YAY,now, it's just endurance and hope for svr. Kids just do not EVER stop worrying us. My sons are now in their 40's and I STILL worry about one of them daily.

Sharon

Re: whew

Hi Sharon,I've been wondering how you were doing so am glad to hear an update. The fatigue sure can be tough! Glad you have that sweet husband there to help you and good you'll be checking in with you blood work next week. If your are feeling like passing out - definitely sounds like you want to check it out soon. I was told to call in if at anytime I was getting dizzy. I can't remember - what week are you in? Hang in there - you are a trooper!Had a couple real rough weeks but woke up this past Monday - made the three hour drive to Pittsburgh (just beat the storm!) and have miraculously found that I've been feeling pretty good all week - my energy and overall health seems to be pretty decent. In week eleven - so maybe I'm leveling off to a better place. They checked my blood work and had decided if if the hemo had dropped anymore, that they'd prescribe procrit - I don't have my lab copy yet, but as I haven't heard am assuming all is well. I was told to call if I get hit with fatigue again and it doesn't lift - glad to know they aren't talking decreasing any meds, but adding. I thank this list for my knowing what's what.Also, they did a viral load - so I'm doing the wait again. Oh gosh! Trying not to think about it too much. Probably have the results in another week.So - healthwise, I'm doing great. Issues with my son have been very stressful again - I know that effects my sleep more than the treatment - but even that has an end in sight.My love to all.

[Guest guest]

Way to go Sharon,, you are doing it,, see, we told ya that you could! Im so sorry you sold your stang,, HOW can you stand it? lolSHARON CROSBY <csharonxoxo@...> wrote: Tonight's shot will be the 6th, I think. Still have a ways to go, but I'm just hangin' out for the most part. Sold my beautiful 66 Mustang, so I don't even have my own car now. I'd sooo rather have the remodeling done to my house,

tho. And I don't care if I go anywhere right now anyway. lol Sounds like you've reached the leveling off, . YAY,now, it's just endurance and hope for svr. Kids just do not EVER stop worrying us. My sons are now in their 40's and I STILL worry about one of them daily. Sharon

Re: whew Hi Sharon,I've been wondering how you were doing so am glad to hear an update. The fatigue sure can be tough! Glad you have that sweet husband there to help you and good you'll be checking in with you blood work next week. If your are feeling like passing out - definitely sounds like you want to check it out soon. I was told to call in if at anytime I was getting dizzy. I can't remember - what week are you in? Hang in there - you are a trooper!Had a couple real rough weeks but woke up this past Monday - made the three hour drive to Pittsburgh (just beat the storm!) and have miraculously found that I've been feeling pretty good all week - my energy and overall health seems to be pretty decent. In week eleven - so maybe I'm leveling off to a better place. They checked my blood work and had decided if if the hemo had dropped

anymore, that they'd prescribe procrit - I don't have my lab copy yet, but as I haven't heard am assuming all is well. I was told to call if I get hit with fatigue again and it doesn't lift - glad to know they aren't talking decreasing any meds, but adding. I thank this list for my knowing what's what.Also, they did a viral load - so I'm doing the wait again. Oh gosh! Trying not to think about it too much. Probably have the results in another week.So - healthwise, I'm doing great. Issues with my son have been very stressful again - I know that effects my sleep more than the treatment - but even that has an end in sight.My love to all. Jackie

[Guest guest]

THanks. I came to the conclusion that lying around the house is not good either, I feel worse. I did a bunch of stretching excercises tonight and feel much better. Back to the TM tomorrow morning, even if for a short stint. I also can tell I feel better when I down the water, so the advice is valid and I'm gonna pay more attention to it.

I'll miss my little yellow stang, but it was good while it lasted and I WANT/NEED more than 630 sq ft to live in. arrgghh

Sharon

Re: whew

Hi Sharon,I've been wondering how you were doing so am glad to hear an update. The fatigue sure can be tough! Glad you have that sweet husband there to help you and good you'll be checking in with you blood work next week. If your are feeling like passing out - definitely sounds like you want to check it out soon. I was told to call in if at anytime I was getting dizzy. I can't remember - what week are you in? Hang in there - you are a trooper!Had a couple real rough weeks but woke up this past Monday - made the three hour drive to Pittsburgh (just beat the storm!) and have miraculously found that I've been feeling pretty good all week - my energy and overall health seems to be pretty decent. In week eleven - so maybe I'm leveling off to a better place. They checked my blood work and had decided if if the hemo had dropped anymore, that they'd prescribe procrit - I don't have my lab copy yet, but as I haven't heard am assuming all is well. I was told to call if I get hit with fatigue again and it doesn't lift - glad to know they aren't talking decreasing any meds, but adding. I thank this list for my knowing what's what.Also, they did a viral load - so I'm doing the wait again. Oh gosh! Trying not to think about it too much. Probably have the results in another week.So - healthwise, I'm doing great. Issues with my son have been very stressful again - I know that effects my sleep more than the treatment - but even that has an end in sight.My love to all.

Jackie

[Guest guest]

I had a 91'Anniversary Edition" ragtop Camaro and when I gave it up, it killed me,, and now if I had known that my roger was coming, I would have kept it,, I LOVED IT and it was so fun to drive.. Yep, Rog and I are walking everyday and its helping... in fact, I gotta go now and do my walkSHARON CROSBY <csharonxoxo@...> wrote: THanks. I came to the conclusion that lying around the house is not good

either, I feel worse. I did a bunch of stretching excercises tonight and feel much better. Back to the TM tomorrow morning, even if for a short stint. I also can tell I feel better when I down the water, so the advice is valid and I'm gonna pay more attention to it. I'll miss my little yellow stang, but it was good while it lasted and I WANT/NEED more than 630 sq ft to live in. arrgghh Sharon Re: whew Hi

Sharon,I've been wondering how you were doing so am glad to hear an update. The fatigue sure can be tough! Glad you have that sweet husband there to help you and good you'll be checking in with you blood work next week. If your are feeling like passing out - definitely sounds like you want to check it out soon. I was told to call in if at anytime I was getting dizzy. I can't remember - what week are you in? Hang in there - you are a trooper!Had a couple real rough weeks but woke up this past Monday - made the three hour drive to Pittsburgh (just beat the storm!) and have miraculously found that I've been feeling pretty good all week - my energy and overall health seems to be pretty decent. In week eleven - so maybe I'm leveling off to a better place. They checked my blood work and had decided if if the hemo had dropped anymore, that they'd prescribe procrit - I don't have my

lab copy yet, but as I haven't heard am assuming all is well. I was told to call if I get hit with fatigue again and it doesn't lift - glad to know they aren't talking decreasing any meds, but adding. I thank this list for my knowing what's what.Also, they did a viral load - so I'm doing the wait again. Oh gosh! Trying not to think about it too much. Probably have the results in another week.So - healthwise, I'm doing great. Issues with my son have been very stressful again - I know that effects my sleep more than the treatment - but even that has an end in sight.My love to all. Jackie Jackie