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Hi Group,

I've really gotten alot of information and support from reading all

of your heart-felt posts.

My prayers and thoughts are with all of you.

Just a word about Lyrica;

Although I'm not a candidate for this therapy, it has worked wonders

for my mother who suffers from severe sciatica. It is also a specific

for diabetic neuropaty.

She has had no side effects, and it has been a real miracle for her.

She has had to increase her dosage over time, but I'm amazed at the

difference it has made in the quality of her life. Knowledge is

power, and the fact that we can share treatment options is awesome.

I am pretty much confined to Plaquenil due to a very severe bout of

pancytopenia several years ago. My Bone marrow shut down for no

apparant reason...and I was on my way to Ireland! The amazing thing

is, the plane developed engine problems, and had to turn back to the

states. That saved my life, as I started to hemorrhage severly almost

as soon as we landed. This was my miracle.

I have just been diagnosed with PA, but my rheumy feels I've had this

for quite awhile. I'm 56, and have had my right knee replaced twice,

and getting ready to do it again.

I do get depressed about the pain, and am trying to find meds that

will work with my other medical problems..I have epilepsy, so many of

the brain drugs won't work for me.

Just knowing the diagnosis has helped, and I am hopeful that with the

help of my docs, a medical regime that will fit with me will be found.

Thank you for being so caring, kind, and supportive of each other.

Blessings,

Marjorie Mullen

String:

Dear ,

I read your email and the follow up from Marti. I think she is right

and it

sounds like you really need a good pain management doctor. It can

make the

difference between having a life and enjoying your life. I was a lot

like

you. My pain totally controlled me. I just recently wrote an email

to

another member who was venting, you might have read it. But

basically the

pain ruled my life day and night. When I finally broke down and went

into

pain management I was as low as a person could get.

The great thing was pain management changed my life. Instead of

needing

more pills all the time, I found that once I got my pain under

control, I

needed less pain medication all the time. I keep trying all the new

medications my doctor wants me to try. I go over the side effects

with

him, and sometimes I discuss it with my family doctor first, but

normally I

give just about anything a try. Recently I went on Lyrica, which has

cut my

pain in half again. For the first in ages, I actually forgot to even

take

my regularly scheduled pain medication. I'm on a time-released form

of pain

medication, and I am finding I need less and less. The key is just

not

giving up. It sounds like you have gone through so much, and you are

losing

hope. You just need someone pulling for you and a good doctor

willing to

help you. Don't give up and please check out the pain doctors in

your area.

It might be your answer too. I hope it is and you find some relief.

I'll

be thinking of you, just like all the other members who have answered

your

emails.

Take care and don't give up. Love, Fran

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