Guest guest Posted August 6, 2009 Report Share Posted August 6, 2009 Id suggest traveling to CT if its for a child--Dr --the best and also one of the ONLY peds LLMDs be very careful--there are some new " lyme centers " opening in RI--staffed by infectious disease drs and NOT the place youll want to go--adult OR kids good luck!! Finette [ ] LLMD in RI Does anyone know of a LLMD in RI or surrounding areas? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 i talked to one of those infectious disease drs today and she told me she was confident that my daughter did not have lyme from the symptoms i told her and that it cannot be passed through bmilk.... feel like i am goin nuts! From: FinRussak@... <FinRussak@...> Subject: Re: [ ] LLMD in RI Date: Thursday, August 6, 2009, 2:23 PM Id suggest traveling to CT if its for a child--Dr --the best and also one of the ONLY peds LLMDs be very careful--there are some new " lyme centers " opening in RI--staffed by infectious disease drs and NOT the place youll want to go--adult OR kids good luck!! Finette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 of course she would say that--its the IDSA party line they ignore all the ?scientific evidence and stick to their scripts. shameful. Im not saying that your daughter absolutely has Lyme BUT it has been found in breast milk ( they just dont know if that measn it can infect the baby) and if you had Lyme while pregnan;t that HAS been shown to be able to be passed to the baby--my own 19 yo got it that way Id still suggest that you take your baby to a good Dr ( Dr if you can get in to see him) and get evaluated--not by the anti-Lyme Infectious disease Drs and not even by the ones that see Lyme everyuwhere--and Dr jones will tell you if he dont think its Lyme!!! good luck--its frustrating and confusing to be sure Re: [ ] LLMD in RI i talked to one of those infectious disease drs today and she told me she was confident that my daughter did not have lyme from the symptoms i told her and that it cannot be passed through bmilk.... feel like i am goin nuts! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 No, you are not going nuts - they are as they know nothing about lyme!!!!!!!!! I went to a ENT the other day and he told me my swollen base of tongue and swollen and red lymph nodes in that area were from maybe my chronic Epstein Barr virus when asked if it could be due to lyme - well no - then asked if he knew anything about what happens to a persons body when they get lyme and do not get treated - he said - oh, really bad things happen to the body - but, could not tell me what............................... when will they learn!!!!!!!!!!!!!!! Don't listen to anyone other than the lyme doc - otherwise you will go nuts................. bless you!! Diane ________________________________ From: laina pedro <Lainamariepedro@...> Sent: Thursday, August 6, 2009 6:04:08 PM Subject: Re: [ ] LLMD in RI i talked to one of those infectious disease drs today and she told me she was confident that my daughter did not have lyme from the symptoms i told her and that it cannot be passed through bmilk.... feel like i am goin nuts! From: FinRussakaol (DOT) com <FinRussakaol (DOT) com> Subject: Re: [ ] LLMD in RI Date: Thursday, August 6, 2009, 2:23 PM Id suggest traveling to CT if its for a child--Dr --the best and also one of the ONLY peds LLMDs be very careful--there are some new " lyme centers " opening in RI--staffed by infectious disease drs and NOT the place youll want to go--adult OR kids good luck!! Finette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 pls tell me more about the tounge.... my 2 yr old keeps biting hers and i was wondering if that was related. From: Diane Biel <dkbmama@...> Subject: Re: [ ] LLMD in RI Date: Friday, August 7, 2009, 3:59 PM No, you are not going nuts - they are as they know nothing about lyme!!!!!!!! ! I went to a ENT the other day and he told me my swollen base of tongue and swollen and red lymph nodes in that area were from maybe my chronic Epstein Barr virus when asked if it could be due to lyme - well no - then asked if he knew anything about what happens to a persons body when they get lyme and do not get treated - he said - oh, really bad things happen to the body - but, could not tell me what........ ......... ......... ..... when will they learn!!!!!!! !!!!!!!! Don't listen to anyone other than the lyme doc - otherwise you will go nuts........ ......... bless you!! Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 Thank you From: FinRussak@... <FinRussak@...> Subject: Re: [ ] LLMD in RI Date: Friday, August 7, 2009, 3:13 AM of course she would say that--its the IDSA party line they ignore all the ?scientific evidence and stick to their scripts. shameful. Im not saying that your daughter absolutely has Lyme BUT it has been found in breast milk ( they just dont know if that measn it can infect the baby) and if you had Lyme while pregnan;t that HAS been shown to be able to be passed to the baby--my own 19 yo got it that way Id still suggest that you take your baby to a good Dr ( Dr if you can get in to see him) and get evaluated--not by the anti-Lyme Infectious disease Drs and not even by the ones that see Lyme everyuwhere- -and Dr jones will tell you if he dont think its Lyme!!! good luck--its frustrating and confusing to be sure Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 I do not know if any tongue things are related - my girls would get sores in the mouth when not on enzymes - and also all three of my girls tongues are larger - always have to put the tongue suppressor on them for the doc to see the tonsil area - so my girls bite tongues allot - I have not heard the larger tongue is related at all but the sores I have been told are. Also because we are talking about it - my girls have very soft teeth - so we have to make sure to get protections stuff on them (??) our dentist told me that it could in fact be due to lyme - but then again who knows!!?? Sorry I couldn't of been more of a help.................... Diane ________________________________ From: laina pedro <Lainamariepedro@...> Sent: Friday, August 7, 2009 3:07:49 PM Subject: Re: [ ] LLMD in RI pls tell me more about the tounge.... my 2 yr old keeps biting hers and i was wondering if that was related. From: Diane Biel <dkbmama (DOT) com> Subject: Re: [ ] LLMD in RI Date: Friday, August 7, 2009, 3:59 PM No, you are not going nuts - they are as they know nothing about lyme!!!!!!!! ! I went to a ENT the other day and he told me my swollen base of tongue and swollen and red lymph nodes in that area were from maybe my chronic Epstein Barr virus when asked if it could be due to lyme - well no - then asked if he knew anything about what happens to a persons body when they get lyme and do not get treated - he said - oh, really bad things happen to the body - but, could not tell me what........ ......... ......... ..... when will they learn!!!!!!! !!!!!!!! Don't listen to anyone other than the lyme doc - otherwise you will go nuts........ ......... bless you!! Diane Quote Link to comment Share on other sites More sharing options...
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