life after narcotics...

[Guest guest]

I am having a helluva life post vicoden use of 4 years. I went to my dr

(whom I love dearly)and told him of the absolute self hatred I have

felt since taking narcotics on a daily basis. I have tried alot of

different therapies for my severe pustular psorasis and associated

arthritis. The only thing to work is steroids. I have a multiendocrine

disease a long with everything else as well as diabetes and surgery to

remove my thyroid. I have very bad immune system to start with so

cannot take most of the new meds out there. The only thing left was to

at least medicate the extreme pain stiffness than never abates.I am now

takinf celebrex with some improvement of stiffness. I experience

horrible fatigue that sleep does not touch. As a matter of fact I can't

sleep well at all. I fight my bed all night every night being so sore

and uncomforatable. I am sorry this is so long. I have been watching

the group for awhile and decided you are the right folks to speak my

constant pain and fears to. I am determined to live to the fullest and

stay as active as I can. I am only 37 years old and don't want my life

to be so limited.I am now also taking xanax for anxiety and to help me

sleep. I have only been on it 2 days bit I hope it really helps.I also

have a bit of a kidney problem right now resulting in loss of protein.

I also have off the chart sed rates. I hope

everyone out there is having a better maybe even pain free day and

thank you for listening. shaw

[Guest guest]

,

This might be a little late because I haven't been on

for a few days but I wanted you to know that I can not

take any of the new meds either. I also have chronic

fatigue, and pain with swelling of the joints and the

bottom half of my spine is fused together now. I know

how you are feeling. I am taking Lyrica for the nerve

pain which is like celebrex without so many side

effects according to my Doc. I am on a narcotic, only

it is physically addicting not mentally and it is

Advanza. It is time released and it helps all day

long. When you go to bed at night try doing relaxing

things like taking a warm bath, some say warm milk

helps them sleep. Just whatever makes you relax try

everything you can think of that might help you. I had

my thyroid taken out too, several years ago. I hope

the xanax helps you, also try other relaxing methods.

You are always welcome to vent here that's what we are

here for each other because all of us know how we are

all feeling, and we learn from each other also. You

are in my prayers I hope you find relief soon.

You can have a full life, like you mentioned just

don't overdo it, listen to your body it will let you

know so much about yourself you will be amazed. Once

you know your limits, then the sky is the limit

again!!! I have realized in the few weeks that we can

have a life once I got over feeling sorry for myself.

It took me 3 years don't let it take you that long!!

You have found a wonderful group of friends here, one

of our best cheerleaders right now is really having it

rough her name is Betz, I pray for her like I will for

you.

Sharon

[Guest guest]

I am also on Lyrica and this is the only drug that helps the pain in my back

from the herniated disc. More people should be aware of it.

Ontario

[ ] Re:life after narcotics...

> ,

> This might be a little late because I haven't been on

> for a few days but I wanted you to know that I can not

> take any of the new meds either. I also have chronic

> fatigue, and pain with swelling of the joints and the

> bottom half of my spine is fused together now. I know

> how you are feeling. I am taking Lyrica for the nerve

> pain which is like celebrex without so many side

> effects according to my Doc. I am on a narcotic, only

> it is physically addicting not mentally and it is

> Advanza. It is time released and it helps all day

> long. When you go to bed at night try doing relaxing

> things like taking a warm bath, some say warm milk

> helps them sleep. Just whatever makes you relax try

> everything you can think of that might help you. I had

> my thyroid taken out too, several years ago. I hope

> the xanax helps you, also try other relaxing methods.

> You are always welcome to vent here that's what we are

> here for each other because all of us know how we are

> all feeling, and we learn from each other also. You

> are in my prayers I hope you find relief soon.

> You can have a full life, like you mentioned just

> don't overdo it, listen to your body it will let you

> know so much about yourself you will be amazed. Once

> you know your limits, then the sky is the limit

> again!!! I have realized in the few weeks that we can

> have a life once I got over feeling sorry for myself.

> It took me 3 years don't let it take you that long!!

> You have found a wonderful group of friends here, one

> of our best cheerleaders right now is really having it

> rough her name is Betz, I pray for her like I will for

> you.

> Sharon

[Guest guest]

>

> ,

> This might be a little late because I haven't been on

> for a few days but I wanted you to know that I can not

> take any of the new meds either. I also have chronic

> fatigue, and pain with swelling of the joints and the

> bottom half of my spine is fused together now. I know

> how you are feeling. I am taking Lyrica for the nerve

> pain which is like celebrex without so many side

> effects according to my Doc. I am on a narcotic, only

> it is physically addicting not mentally and it is

> Advanza. It is time released and it helps all day

> long. When you go to bed at night try doing relaxing

> things like taking a warm bath, some say warm milk

> helps them sleep. Just whatever makes you relax try

> everything you can think of that might help you. I had

> my thyroid taken out too, several years ago. I hope

> the xanax helps you, also try other relaxing methods.

> You are always welcome to vent here that's what we are

> here for each other because all of us know how we are

> all feeling, and we learn from each other also. You

> are in my prayers I hope you find relief soon.

> You can have a full life, like you mentioned just

> don't overdo it, listen to your body it will let you

> know so much about yourself you will be amazed. Once

> you know your limits, then the sky is the limit

> again!!! I have realized in the few weeks that we can

> have a life once I got over feeling sorry for myself.

> It took me 3 years don't let it take you that long!!

> You have found a wonderful group of friends here, one

> of our best cheerleaders right now is really having it

> rough her name is Betz, I pray for her like I will for

> you.

> Sharon

>

Sharon, thank you for your kind reply. You mentioned you had your

thyroid removed too? I wonder what the link is there. I developed the

psorasis about 2 years before I had my thyroid removed. I have always

felt there was a connection. I did not develope the serious ps

arthritis pain until the dy after the surgery! I would like to talk

to you directly. If you are interested please email me at

lmiller37@... I have a host of other autoimmune processes

going on with a long history of endocronology problems. I was

wondering if you are similar? Please contact me and maybe we can

exchange numbers to discuss this. Thanks again, Shaw

[Editor's Note: , to-date, studies have suggested that the rate of thyroid

problems in people with P and PA is not any different than the rate for the

general population so in any large group, you will find people who have had

thyroid problems. However, STRESS is a huge trigger as are other bodily changes

when your immune system gets disturbed as it does following surgery or the

removal of an organ. So, I think you are right - your surgery was a trigger -

but it might have been triggered if your surgery had been for the removal of

your appendix instead of your thyroid. In any case, at this point, we'll don't

know what the specific triggers are but the link between illness onset and

stress is unmistakeable. Kathy F.]