Guest guest Posted March 25, 2006 Report Share Posted March 25, 2006 > > Hello All, > > I am new to the group and just recently diagnosised with PA and > Fibro. I am really glad to have found this group and it is great to > find information and people who can understand what you are going > through. > > Hi Debbie, Glad you found us. I am fairly new to this group too. You will find a mass of support and a mine of information that I hope will be as helpful to you as it is to me. Ian. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 Hello Debbie, Although I have been here but half a year, I am sure that I speak for others when I say we are glad you have found us. This is really a wonderful group of people. You sound kind-hearted and good-natured, which is great, because that means you can always be kind and good to yourself - even when others can't. I am glad you found a rheumatologist, and you are on a course of treatment that can help you. I ate feldene for 3 years before my stomach said enough was enough - be sure to eat meals with that med. I hope that your relationship with your child is good. My 12 year-old son is very helpful to me. Wonderfully every now and then he needs me to wrestle around with him a bit; and do I pay for it later! He's getting strong, mentally, emotionally and physically; but he is still waffling between being a kid one day and a teen-ager the next. I think he prefers being a kid more than a teen - which is probably pretty wise. Take care Brent Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 Thanks for the warm welcome all. I can say that I have been learning the hard way with the stomach upset. I started original with naprosyn, which I got no relief from and heart burn, stomach upset was incredible. So, when I first started seeing my rheumatologist, i got switched over to relafen and it did the same thing, even when taking with a heart burn medicine, and eating, but after 2 weeks of taking I broke out in hives and swelling, so that is when I got switched to the feldene. This does remind me of what I went through with my migraine meds. My son is having a tough time, since he is so active and it has always been just me. He wants to be in constant motion and I try but more recently it has been a problem. But he is so sweet when I say my back hurts, he rubs it and says it it better now. So, now I am trying to rely on some arranged play groups and doing what I can. I can relate to the paying for it later, since it he just does not understand. Debbie > > Hello Debbie, > > Although I have been here but half a year, I am sure that I speak for > others when I say we are glad you have found us. This is really a > wonderful group of people. You sound kind-hearted and good- natured, > which is great, because that means you can always be kind and good to > yourself - even when others can't. I am glad you found a > rheumatologist, and you are on a course of treatment that can help > you. I ate feldene for 3 years before my stomach said enough was > enough - be sure to eat meals with that med. > > I hope that your relationship with your child is good. My 12 year- old > son is very helpful to me. Wonderfully every now and then he needs me > to wrestle around with him a bit; and do I pay for it later! He's > getting strong, mentally, emotionally and physically; but he is still > waffling between being a kid one day and a teen-ager the next. I > think he prefers being a kid more than a teen - which is probably > pretty wise. > Take care Brent > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Hi Debbie, Your letter sounds like it could have been written by me. I had only a light case of psoriasis, mostly on my scalp, for a number of years. I had no idea what was happening to me, nor did I associate it when first my fingernails started hurting. I had acrilic nails, so I removed them since I figured they were the problem and the pain eased up with the pressure of the nails gone. Later I had severe pain in both heels. I went to an orthopedic doctor who told me it was just something I would have to work through. Then I had a knee problem, I thought from an injury at work, but I could not figure out how something so insignificant could hurt so bad. The doctor ordered an MRI and that showed some arthritis, period. He gave me a cortisone shot and that was the end of that. Then I came down with the shingles. After a couple of months they went away and I thanked God that the pain didn't linger any longer than it did. I no longer am done with the shingles until my joints start hurting. Not enough to get really excited about because it is winter time and I am sick most of the time. I would no more get over one bout of the flu til I would come down with another. I finally thought I had pneumonia so I finally went to the doctor. On one visit the pain in my wrists were so bad that I couldn't release the emergency brake in my car. I had to get in on the passenger side so I could use both hands. I told the doctor to give me something that would work for the pain or kill me, I couldn't take it any more. He gave me a prednisone z-pack I think it was called. The relief was unbelievabe. He then referred me to a Rheumatologist. It took me 6 months to get in to see him. I have been on methotrexate since that time. It took me nearly a year to get com-pletly off the prednsone, but it was one of my main goals. The methotrexate still makes me sick, but I have reached a place where I do ok, so long as I don't push myself too hard. I try to do at least 1 project every day to keep moving, and some days that is just filling the dish washer. I do a lot of flower growing in the back yard ( and weed pulling) also to keep active. I have a new rheumy and he is keeping a good eye on me. It helps to have a support system. I have an Aunt that has RA, so we talk and compare our symptoms. Also, I am on the internet a lot researching what I can about this crazy disease. Right now I suffer more from the Fibromyalia than the joint pain because of the muscle pain. Too bad both diseases ( or ailments) cause fatigue. Trying to lose weight is a catch 22 circle, too tired to excersize and can't lose any weight or make the most of any diet without excersize. So, such is my life. Didn't mean to write a book. Good Luck. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Hi Debbie, A very belated welcome to the group. I know you have been here two weeks now but I am just getting around to answering mail again. I am often a couple of weeks behind. lol I'm sorry PA has brought you here but glad you found us. It good that, although your job is quite stressful, you still love what you are doing. I'm glad your colleagues are so supportive too. You will settle in well here. Everyone is great! Both caring and knowledgeable. Good luck, Quote Link to comment Share on other sites More sharing options...
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