Guest guest Posted January 13, 2001 Report Share Posted January 13, 2001 Hi all, Becky, the article on hearing makes me wonder, I have 7 gchildren, 4 are boys, & 3 had trouble with their speech, just the males. Do any of you on list have palpitations, (fast heart beat)? heartburn? Patsy ps Their are several of people in my family that have the spots on bottom of feet. Will they become ulcers? My sis did. She almost lost her foot. My bro, has ulcers on bottom of both his feet. They drain. They are both diabetics. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2001 Report Share Posted January 13, 2001 Becky, My middle daughter, CMT, had hearing/speech problems when she was younger. My oldest daughter had sudden onset profound hearing loss a week after she got married. She doesn't have CMT but her daughter probably does. We joke and tell her she only pretends to have hearing loss. After 1 week of being married she figured it out quick. Judi ----- Original Message ----- From: <patsy1128@...> <egroups> Sent: Saturday, January 13, 2001 8:56 AM Subject: Re: [] Digest Number 701 > Hi all, > Becky, the article on hearing makes me wonder, I have 7 gchildren, 4 are > boys, & 3 had trouble with their speech, just the males. Do any of you > on list have palpitations, (fast heart beat)? heartburn? > Patsy > ps Their are several of people in my family that have the spots on > bottom of feet. Will they become ulcers? My sis did. She almost lost her > foot. My bro, has ulcers on bottom of both his feet. They drain. They > are both diabetics. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2001 Report Share Posted January 15, 2001 -----Original Message----- From: patsy1128@... <patsy1128@...> egroups <egroups> Date: Saturday, January 13, 2001 7:55 AM Subject: Re: [] Digest Number 701 >Hi all, >Becky, the article on hearing makes me wonder, I have 7 gchildren, 4 are >boys, & 3 had trouble with their speech, just the males. Do any of you >on list have palpitations, (fast heart beat)? heartburn? >Patsy >ps Their are several of people in my family that have the spots on >bottom of feet. Will they become ulcers? My sis did. She almost lost her >foot. My bro, has ulcers on bottom of both his feet. They drain. They >are both diabetics. > > >>>Hi, Diabetics have problems with foot ulcers, so it may not be related to CMT, any of the others with spots on feet, non-diabetic, have open sores? ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2001 Report Share Posted January 15, 2001 -----Original Message----- From: john dawson <johnjudi@...> egroups <egroups> Date: Saturday, January 13, 2001 8:15 AM Subject: Re: [] Digest Number 701 >Becky, >My middle daughter, CMT, had hearing/speech problems when she was younger. >Judi >> >>>>>Hi Judi, you say 'HAD " when she was younger, she doesn't have this problem now? What was done to help it? ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2001 Report Share Posted January 15, 2001 Becky, Ear tubes,tonsils and adenoids out and lots of speech therapy. She was pre-school when it was noticed and she had speech into 3rd grade. Judi ----- Original Message ----- From: " Maxwell " <rmax@...> <egroups> Sent: Monday, January 15, 2001 3:32 AM Subject: Re: [] Digest Number 701 > > -----Original Message----- > From: john dawson <johnjudi@...> > egroups <egroups> > Date: Saturday, January 13, 2001 8:15 AM > Subject: Re: [] Digest Number 701 > > > >Becky, > >My middle daughter, CMT, had hearing/speech problems when she was younger. > > >Judi > >> > >>>>>Hi Judi, you say 'HAD " when she was younger, she doesn't have this > problem now? What was done to help it? ~>Becky M. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2001 Report Share Posted January 15, 2001 > > -----Original Message----- > From: patsy1128@w... <patsy1128@w...> > egroups <egroups> > Date: Saturday, January 13, 2001 7:55 AM > Subject: Re: [] Digest Number 701 > > > >Hi all, > >Becky, the article on hearing makes me wonder, I have 7 gchildren, 4 are > >boys, & 3 had trouble with their speech, just the males. Do any of you > >on list have palpitations, (fast heart beat)? heartburn? > >Patsy > >ps Their are several of people in my family that have the spots on > >bottom of feet. Will they become ulcers? My sis did. She almost lost her > >foot. My bro, has ulcers on bottom of both his feet. They drain. They > >are both diabetics. > > > > > >>>Hi, Diabetics have problems with foot ulcers, so it may not be related to > CMT, any of the others with spots on feet, non-diabetic, have open sores? > ~>Becky Good Morning, Foot ulcers are very common with CMT...They are caused by pressure (pressure sores) from foot imbalance and bad fitting shoes...They can become very serious when infected...I have talked to lots of CMTers that have these..Also have read in CMTI where the feet have been amputated because of ulcers becoming infected and life threatening... I have seen CMT sites on this ..I will try to find them and post... Will Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2001 Report Share Posted January 15, 2001 -----Original Message----- From: john dawson <johnjudi@...> egroups <egroups> Date: Monday, January 15, 2001 8:21 AM Subject: Re: [] Digest Number 701 >Becky, >Ear tubes,tonsils and adenoids out and lots of speech therapy. She was >pre-school when it was noticed and she had speech into 3rd grade. >Judi > >>>>>Then it wasn't CMT related, I thought when you first wrote you were relating it to CMT, Thanks, ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2003 Report Share Posted December 9, 2003 . I couldn't download this file....too large for AOL, can you split it up and resend, lots I would like to read. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 JMHO, Maybe we can just do a " ball " and make it where people can either dress up formal, semi-formal, or costume? That way some of us who are just starting our journey and don't quite feel comfortable in formal attire yet can do costumes. I am thinking of doing something like French Renissance to show off the area of my body I am pleased with... j/k, well actually no, I am not kidding but I would rather have people staring at those than my stomach all evening... I think we should combine the best of the two. In my reality (I am not saying that it is this way for others, just me) but when I dress up formal it is like putting on a costume and being someone else for the evening anyway. The freedome to chose either way would bring an interesting mix of personalities to make for a fun evening. ~ Dr. Kuri 12/13/03 262.5/246/150 Quote Link to comment Share on other sites More sharing options...
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