IV IGG

[Guest guest]

Hi

I love that we are getting more " active " here!!! anyway does anyone

have any experience with IV IGG??? Evan's IGG levels had dropped and

he had a 6 month trial of monthly IGG by IV...the first 2 were at

Hospital/Dr office at 60 gms...helped him a LOT and finally we had

treatment progress with abx. But then at home he was then given 38

gms and after 4th one he plateaued and no further improvement.But it

did restore his IGG levels for awhile

since then it has been 4 months and again his levels dropping, sx

worse and no meds are helping. We sought yet another immuno consult

and heard the same thing... " his levels are low but not abnormal

enough to get insurance to authorize; nor low enough to ethically

chance an adverse event as its a blood product and therefore has

risks " .

Because his bloods are not very low/borderline there is a question

about a true " common immunodeficiency " vs depression due to Lyme. Of

course if the " L " word is mentioned nothing will be authorized as

for Lyme its " experimental " ; the only accepted treatment is for an

immune problem iitself.

If normals are 800-1200, his come in at 789-805 -for me, Im thinking

thats low enough!!

what Id like to know is how many have tried IGG and for which dx;

how low were the levels; and what results if any??

thanks

Finette