New Member - I need help with symptoms!!!

[Guest guest]

My 14-yr old daughter was diagnosed with PA on 11/15. She was

hospitalized in the end of October with extreme hip pain that

extended down into her foot. Her leg was sensitive to the touch.

Her knee was swollen and the entire leg was off color.

After many tests in the hospital and nothing being found, she was

released. She has been on crutches since then. Her hip continues

to hurt and you cannot even brush up against the leg. She cries out

in pain. She cannot wear jeans because the weight of the pants

makes her hip hurt.

After she was released from the hospital, I took her to the

following doctors:

Vascular Surgeon - he could not find anything wrong.

Orthopedic Surgeon - He feels she has RSD, but referred me to a

neurologist and a Rhuematologist.

Neurologist - Feels she may have MS. She had some tests last week

and we are going for an MRI tomorrow.

Rheumatologist - He is positive that she has PA. He put her on

Enbrel. I agreed to keep her on Enbrel for 3 months while we have

the Neuro tests done.

My daughter does have P on her scalp.

My brother has PA and I am familiar with the symptoms and what her

fingers and toes may look like if she does have PA.

My questions are:

1. Does anyone in the group have skin sensitivity?

2. Is it common for the hip pain to be constant?

3. With the Enbrel, can you still have a flare-up?

4. Have any of you been on Enbrel and your nails got worse? She

nails are fine now and she is terrified that they will become

misfigured.

I believe the Enbrel is helping somewhat. She can go a few hours

without the crutches. But she is dying to get rid of them. She has

a nasty rash under each arm.

Sorry of the winded message, but I really need to hear from someone

who can answer my questions.

Thank you,

Louise