Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Welcome. I don't think I can improve on what Brent told you other than to emphasis gaining knowledge of what your body is going through, stay positive, and find things that you CAN do. If going out on fires is no longer possible or safe for you, perhaps you can use your knowledge in a training or teaching. Some people would enjoy reading about your exploits on a web site you could set up. Just remember, your life isn't over, just changing. Good luck and God bless. Janet in Ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 > Hi there I am a 46 year old firefighter from the uk about to lose my > job because of my PA.Would welcome advice from anyone about how to > make life a little easier > Hello Keeth1999, Firstly, I would like to thank you for being a person who has put himself in harm's way to help others. As you have been a firefighter, you know the joy of helping others. Others can feel similar joy if you let them help you. Secondly, I wish to congratulate you for looking for ways to help yourself. This site is a very good source of support and information, and you have found it, revealed yourself, and asked: what can I do to help myself. Thirdly, if you don't know much about psoriatic arthritis, please explore the links to the left. You can also perform searches on the site to find dialogue about the manifestations and methods of ameliorating this disease. The Cornish Pro, Jack Nicolas (not the golfer), has written/compiled/edited over 100 newsletters for the site which you can find by searching " newsletter " and an issue number. Kathy F., the site's moderator/editor, is highly skilled and very dilligent in her efforts. She is soon to take an early retirement because of the limitations this disease has places upon her. Finally, the best thing you can do outside of arming yourself with knowledge about your flavour of this disease and gaining good medical treatment, is to focus on what you will be able to do rather than what you can't do. Keep your thoughts and feelings toward yourself and others as open and light as possible. We have enough of a war going on internally; we do ourselves no good if we expend our energies in negative ways. I hope that your medical coverage and disability pension paperwork are not overly cumbersome for you to wade through. If you find that you feel over-whelmed/confused/too fatigued about paperwork/forms that would have been easy to complete in the past, ask for help: it is probably your PA letting you know that you your mind and body are already fully engaged in an auto-immune conflict. Stay in touch, Best wishes... Brent Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 --- keeth1999 <keeth1999@...> wrote: > Hi there I am a 46 year old firefighter from the uk > about to lose my > job because of my PA.Would welcome advice from > anyone about how to > make life a little easier > Hi Keeth, welcome to the group. What's your story, how did you ultimately get to the PA diagnosis? What med's are you on? Do you have alternate job skills that you could use to work as other than a firefighter? Please share so we can share advice on living with PA warm blessings, jane __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Hi Keeth, Welcome... I don't really have any good advice, I am disabled myself and stay at home... I am sorry its causing you too lose your job... I sure miss mine... I was in computers of all things lol... But I wanted to say Welcome... Love and Peace Always Shaun and Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 > > Hi there I am a 46 year old firefighter from the uk about to lose my > job because of my PA.Would welcome advice from anyone about how to > make life a little easier > Welcome, I am new also I read a lot of the posts but dont reply much be cause my right hand hurts to type much. I got really depressed when all this pa stuff started with me I also have fibromyalgia so I am always hurting somewhere and always tired. I have always been pretty independant and its hard to accept all of these limitations in my life.I DONT WANT IT. Wel-l-l Ive got it and that is the way it is going to be so I just accept it and try to see it from God's perspective.What can I learn from it? Can I help someone else? What is my purpose now in this situation? I find if I look at it this way I feel more empowered instsead of feeling helpless. There is always someone who needs to be encouraged or needs a friend etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 I've had psoriasis grow at just about any place imaginable. I've never heard of infectious psoriasis, but I can tell that between my junior and senior years in high school 1973, I had an emergency appendectomy where after surgery they had to leave a very loose incision due to the infection from a burst appendix (they had to leave in drain tubes). When the incision finally healed, it was just scar tissue about 1/2 inch wide. I actually got psoriasis on the scar tissue itself. How crazy is that? Mark > > > > Sorry, don't know I've heard of " infectious psoriasis " -- but my guess si that > it's not that unusual for psriasis to break out where the skin is already > stressed, such as the site of an operation or suture..... not sure, just my gut > feeling... anyone? > > Mike D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 Oh Keeth, I am so sorry to hear that. I've lost a few jobs to PA myself in the last 3 years. You want to believe that you can still do what you once could...that's normal. Especially when you are a helper in life. It must be difficult for you to come from being the one who saves to becoming the one who needs help. You are about to embark on a tremendous journey of self-discovery to put it mildly. You are going to get the opportunity to get to know parts of you that have never been allowed to come out. You'll need to forgive yourself for being human and frail first but once you get that out of the way, I bet you'll be able to come to admire the strength that you can develope from being a mere mortal. I was always " Super Betsy " ....helping others and never needing anything for myself. PA changed that. It was a hard adjustment having to learn to accept help and having to get up the nerve to say " I can't do that today or I will pay with pain tomorrow and not be able to care for my daughter " who has special needs. I'm getting better at it. I did get on Enbrel this year and it pulled me out of a 4 month flare that had me barely walking. I started a new job this week selling cars. I admit....there is still this part of me that gets afraid that I'll flare again and loose this job too but I have learned to cherish every good moment in this life. I have also made a habit out of naming 5 things I am thankful for when I start to feel sorry for myself. I also let it out when I need to....I give myself Seven Minutes of Pity and set a timer. Once I threw a bunch of plastic shopping bags in the air and beat the crap out of them for seven minutes...well... actually after 3 I was cracking up laughing and had to stop. Laughter helps too. Do what you need to do to stay positive. For some, it means giving up watching the depressing news for a spell and watching comedy instead. If you think it through...you'll come up with some things that will give you more control over the situation. We all feel a lack of power and control over this. This is one of the ways you can grow if you chose to. If you stick with this group...you will grow. It just happens. This is a special crew. Welcome Keeth. -Betz > > Hi there I am a 46 year old firefighter from the uk about to lose my > job because of my PA.Would welcome advice from anyone about how to > make life a little easier > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 I hear ya there too... I don't watch the news much anymore, its like watching a constant war movie and I hate war movies... Its sad what the world does anymore and how psyco all the people are getting... I would rather play on here and see all of you then let that bring me down... Love and Peace Always Shaun and Barb Betsy, you are so right about watching the news! As much as I used to value " being informed, " I find that the news just brings me down. Now I just check the headlines online and that's the most I need to know. sherry z > For some, it means giving up watching the depressing news > for a spell and watching comedy instead. If you think it > through...you'll come up with some things that will give you more > control over the situation. We all feel a lack of power and control > over this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2006 Report Share Posted July 23, 2006 When you're a news writer, I can't say it helps stress levels any. Thankfully, I'm at a small town outlet where the news is more good than bad. However, I've got to do one on the local guys that are Iraq bound for this week's edition. One's entering his third tour and he and I went to high school together. *sigh* Jenn in AR > > > For some, it means giving up watching the depressing news > > for a spell and watching comedy instead. If you think it > > through...you'll come up with some things that will give you more > > control over the situation. We all feel a lack of power and control > > over this. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 Hi Keeth, Welcome to the group. I'm sorry to hear that you are going to lose your job because of this disease. How is the PA affecting you? What meds are you on at the moment. This is a great group you have joined. If you are looking for info, advice or just plain sympathy, this is the place. Take care, In a message dated 19/07/2006 11:17:35 GMT Daylight Time, keeth1999@... writes: Hi there I am a 46 year old firefighter from the uk about to lose my job because of my PA.Would welcome advice from anyone about how to make life a little easier Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2006 Report Share Posted August 20, 2006 Bonnie...the last thing you said let me know that you are going to be ok. You said " maybe someday " . Hope. That's what it's all about sister! We have to have hope and we SHOULD have hope because there are drugs out there for us to try and new drugs on the horizon and groups of caring people (you found a good one!). I am single Mom with one daughter who has high functioning autism, OCD and Mood Disorder. I need my energy just to keep up with her. I mananged an antiques shop until the PA got me this year and I could barely walk. Then I got on Medicaid and started Enbrel. When the Enbrel started to work it's magic for me, I took a job selling cars working 48 hours a week. I've had a UTI for 6 weeks and am on my 4rth antibiotic for it. I think the Enbrel might be making it hard to get over it. I have not had Enbrel for this whole 6 weeks and I'm limping a little now and then but hanging in there....except that I have developed Iritis (it can come with PA but it's not very common....just not unheard of). It's inflamation of the optic nerve. I just told someone else that we are a special breed because we learn to keep going and going. When the bomb drops, we will probably be the ones to save the planet! I know this....I have PA but it does not have me. I cannot control what diseases I get for the most part but I can control how I react to them. If you are here...you are like me and you are choosing to do something...anything. Reaching out is a great start. Don't give up that shred of hope. It could happen. I pray that it does for you. Welcome to the group. -Betz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2009 Report Share Posted July 8, 2009 I was diagnosed last year with PA. I am 30. I have read several entries and have to say I am not quite as bad as most, thankfully. I am new to all of this and have the swelling, red lumps on my fingers that are painful and warm, shoulder and lower back problems. I do not have plaque psoriasis just small rashes on my right wrist. When I have a flare I get extremely tired like I will pass out even if I am driving, it scares me a little as I have small children. I am just interested to talk to someone with similar circumstances. Are there any suggestion for the fatigue while I am in the midst of it...I understand the preventative measures (rest, plenty of sleep, naps), but is there anything I can do to stop or make it better while I am in the middle of the fatigue? Thanks so much! Glad to find help. " amygr101 " <AmyGr101@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2009 Report Share Posted July 27, 2009 Hi I'm also 30, was diagnosed when I was about 21 started having symptoms of the skin condition at 11 and the pain of arthritis at about 16. Sometimes B12 can help with energy it's not a miracle worker or anything but it may help you a little. " Keva " <kevajo1@...> Quote Link to comment Share on other sites More sharing options...
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