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Re: Digest Number 722

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Judy:

It was really by accident. In attempting to search through genealogical

records at the Mormon Church in Salt Lake City, I ran in to a road block in

trying to figure out where and when my ancestors entered the country.

I searched high and low and thought I was just out of luck in that somehow

they entered the country from Europe and the records were either not

maintained or just lost.

When I consulted with the specialists at the Mormon's record library, they

confirmed that the family name I was tracing was native to this country only,

it did not exist in any other country but the U.S.

This was further confirmed by the people who are researching CMT and looking

at my information.

Hope this helps........

Monte

> From: " Judy " <jaryan17@...>

> Subject: Re: CMT & heredity

>

> Monte

> How did you find out your CMT from the American Indian side of your family?

> I believe my Mt came from my grandmother's side of the family even though

> my father and his mother, my grandmother, were never dx with Mt. My

> grandmother's ancestors were American Indian.

>

> I'd like to learn more about this.

>

> Judy

>

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  • 1 month later...
  • 1 year later...
Guest guest

Dear ,

Thank you for writing and helping me get back on the list. I have no idea how I

was removed, but, I am glad to be back. I have been a part of the list-serv for

almost 2 years. It has been invaluable to me. I owe everything to the

list-serv and the many people who are a part of it. has come a long way

since I suspected Apraxia. Because of the list-serv, we have helped to educate

's speech therapist more about Apraxia. She is a wonderful teacher and

has been open to anything. We are doing our own independent study with ProEFA

and my two kids along with her. made a went from 65% intelligible to 85%

intelligible in 2 1/2 months. She was amazed and talked with all of her

collegues. None of them had even heard of ProEFA. She is convinced, but

disappointed because she cannot really tell other parents about it without it

sounding like she is giving a prescription.

Thank you so much for reposting the information about Carnosine for me.

Congratulations on Tanner's success with it. That is so exciting and makes me

feel hopeful as well. Thank you for all that you do for Apraxia and for this

list-serv. It has been our life saver.

Sincerely,

mother to

Mother to 4.10 (severe apraxia)

and Kaylee 2.6 (possible apraxia)

wrote:

>

>

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  • 5 months later...

Hi Chuck,

I beg to differ with your information about having to choose 'reply to

all'. This email groups " Reply " emails go to the entire group unless

you delete the achalasia address and paste in the

persons address you want to sent it to. I am used to email groups for

my genealogy research so understand the options you mentioned and have

experienced each type, but this group must have the reply option to go

to the entire group. Also, I could be wrong and hope I'm wrong, but I

don't think this group has an active list owner.

LIST OWNER, ARE YOU OUT THERE????????

Lynette in Australia

Message: 5

Date: Tue, 29 Oct 2002 15:01:35 -0500

From: " P. Conrad " <cpconrad@...>

Subject: Re: Private emails

As a list owner I know that the owner of this list has the option

to

have replies go to the author rather than the whole list. In other

words,

unless you change the " " field to the list address, the reply will

just

go to the person who wrote the post you're replying to.

Perhaps a good idea?

Chuck Conrad

Fort Lauderdale

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> Hi Chuck,

HI all...

I reply individually to authors of posts all the time....just click on the

blue highlighted name of the author in a post you want to send an individual

reply to. This is found right under the heading for the post in the body of the

email. I think it's great to do this. It is easy to start building

relationships this way. More personal, and there are so many interesting people

in this group! You never really get to know much about them (other than the

common factor of achalasia) unless if you do this. If we're ever going to have

that " Achalasians Cruise " to Alaska or the Bahamas or wherever, we will have

more fun if we know each other more before we get on board! WOuldn't that be a

hoot? I'd love to see a dining room full of us. A waiter's dream come true!

Let's see...6 gallons of seltzer on table 3, 4 gallons of milk and some cola

syrup on table 6....We could share our favorite burping tips in the talent show.

We would really have fun, wouldn't we? My point really, though, is that it's

nice to get to know more about folks in this room than just our A.

in Houston>

> I beg to differ with your information about having to choose 'reply to

> all'. This email groups " Reply " emails go to the entire group unless

> you delete the achalasia@y... address and paste in the

> persons address you want to sent it to. I am used to email groups for

> my genealogy research so understand the options you mentioned and have

> experienced each type, but this group must have the reply option to go

> to the entire group. Also, I could be wrong and hope I'm wrong, but I

> don't think this group has an active list owner.

>

> LIST OWNER, ARE YOU OUT THERE????????

>

> Lynette in Australia

>

>

>

> Message: 5

> Date: Tue, 29 Oct 2002 15:01:35 -0500

> From: " P. Conrad " <cpconrad@c...>

> Subject: Re: Private emails

>

> As a list owner I know that the owner of this list has the option

> to

> have replies go to the author rather than the whole list. In other

> words,

> unless you change the " " field to the list address, the reply will

> just

> go to the person who wrote the post you're replying to.

>

> Perhaps a good idea?

>

>

>

> Chuck Conrad

> Fort Lauderdale

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Lynette --

Where in my post did I even mention " Reply To All " ?

'Twas 08:01 PM 10/31/2002 +1100 when Begg Family wrote:

Hi Chuck,

I beg to differ with your information about having to choose 'reply

to

all'. This email groups " Reply " emails go to the entire

group unless

you delete the achalasia address and paste in the

persons address you want to sent it to. I am used to email groups

for

my genealogy research so understand the options you mentioned and

have

experienced each type, but this group must have the reply option to

go

to the entire group. Also, I could be wrong and hope I'm wrong, but

I

don't think this group has an active list owner.

LIST OWNER, ARE YOU OUT THERE????????

Lynette in Australia

Message: 5

Date: Tue, 29 Oct 2002 15:01:35 -0500

From: " P. Conrad "

<cpconrad@...>

Subject: Re: Private emails

As a list owner I know that the owner of this list has the

option

to

have replies go to the author rather than the whole list. In

other

words,

unless you change the " " field to the list address, the

reply will

just

go to the person who wrote the post you're replying to.

Perhaps a good idea?

Chuck Conrad

Fort Lauderdale

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  • 8 months later...
Guest guest

>

>

>Date: Tue, 8 Jul 2003 12:11:38 -0600

>From: " " <caerfree@...>

>Subject: Re:

>

> Teri,

>

> I don't have personal experience, but recently, a dear friend's husband almost

>died from his mercury fillings. He literally had AIDS without HIV. He was

crawling

>with candida, he carried all the classic wasting symptoms. Literally, he was

like

>a 'starving African'. Of course the Candida wasn't allowing him to get his

nutrition.

>

>

> It took months of stupid doctors trying to figure out what the cause was.

Finally

>desperate, they went to a hollistic source. As soon as his mercury fillings

were

>removed, he began to recover.

>

>

> That's all the knowledge I can offer on that one.

>

My knee problems went away from the moment I had my fillings

replaced. People have gotten up out of wheelchairs. My problems

were partly due to deadly bacteria growing under dentalwork,

and people should research that.

For six months a serious detox regimen should be done. As much

green juicing as possible, cilantro in capsules to draw mercury out

of the brain and central nervous system, then alpha-lipoic acid

and l-glutathione and n-acetyl-cysteine and C and B and minerals

and trace minerals to bind and carry the mercury out, and milk thistle

to protect the liver. Lots of water. Fiber shakes to speed up transport

and minimize reabsorption.

-Bob

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