Guest guest Posted December 12, 2009 Report Share Posted December 12, 2009 Hi all. I am new to the group but have found ALL of the information posted to be very useful. I haven't seen a posting yet that covers the subject that I am looking for guidance on. My 17 year old daughter has had Lyme for 3-4 years. We are still struggling with treatment and her education. She seems to have a lot of neuro psych symptoms. Her biggest problem for over a year (besides lyme) is violent nightmares. Every night. Someone hurting her, beating her cat, etc. She doesn't wake up screaming, but wakes up shaken and wondering if it's real or if it could/would happen. She has had trouble getting to sleep and we tried several sleep aids, but what best works for her is 3 benadryl. So she takes those every night. She has tried counseling and anti-depressants (lexapro, prozac, cymbalta) but they seem to create more problems than they solve. If anyone has had a similar experience, or can tell me what might be causing this, I would greatly appreciate it. Also, how to motivate a teenager who has a chronic illness to look forward/work towards her future. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2009 Report Share Posted December 13, 2009 Hi , My son had awful nightmares in the midst of his Lyme spiral. Often they involved people violently hurting him, and others watching and not helping. It was awful and broke my heart, not to mention took away sleep that he so seriously need to heal. He did have neuro involvement, but I think his dreams were specific to the fact that we were going from doc to doc, state to state, and no one was making him better. He was out of school. He missed his friends. He missed his sports. He was alone. And boy did those dreams tell that story. He wouldn't wake up screaming either. But shaking. And disturbed. We did a lot of talking about those dreams ... for a while he slept on a cot in our room so we could help him get back to sleep. I have to say that they stopped when he got proper medical help, which makes me think that for him, it was his subc. Helping him to work through what he was dealing with instead of the neuro-involvement. I just remember that as a mom, it was AWFUL and helpful, for it gave me a glimpse into what he was processing. Re: [ ] Nightmares - I haven't posted here in a long time, as my son, now 18, is doing incredibly well. He was diagnosed at age 10 with Lyme and thankfully, with Dr. ' help, he's made a full recovery. Anyway - he had the nightmares and he would sleep walk and talk. He would wake up, come into our bedroom, and say things like " I'm scared " . I'd lead him back to bed and let him talk thru his nightmare. The worst one was, when he was laying back in his bed, he kept asking " am I dead? " am I in heaven? and the whole time, he's still really asleep. One time, he came out of his bedroom shaking, and saying things like 'the walls are melting, what's going on? " very bizzare... The only thing that truly worked for us was letting him talk through his nightmare, and getting him calmed down again, then he'd go back to sleep and be fine for the rest of the night. In the morning, he wouldn't even remember anything.. it was very distrubing. I would recommend, if you don't have one already, is a journal for you. I filled up two notebooks, with thoughts and observations and doctor's visits. A journal might also help your daughter. I know that, for me, after writing in the journal, just small things at times, like : isn't limping today! I could look back and see the improvement that he was making, one small step at a time. When you live with this disease, it's hard to see the improvements, unless it's documented. Without seeing the improvements, it's hard to have hope for the future. Good luck to you, and God Bless. JoAnne S. D wrote: > > Hi all. I am new to the group but have found ALL of the information > posted to be very useful. I haven't seen a posting yet that covers the > subject that I am looking for guidance on. My 17 year old daughter has > had Lyme for 3-4 years. We are still struggling with treatment and her > education. She seems to have a lot of neuro psych symptoms. Her > biggest problem for over a year (besides lyme) is violent nightmares. > Every night. Someone hurting her, beating her cat, etc. She doesn't > wake up screaming, but wakes up shaken and wondering if it's real or > if it could/would happen. She has had trouble getting to sleep and we > tried several sleep aids, but what best works for her is 3 benadryl. > So she takes those every night. She has tried counseling and > anti-depressants (lexapro, prozac, cymbalta) but they seem to create > more problems than they solve. > > If anyone has had a similar experience, or can tell me what might be > causing this, I would greatly appreciate it. > > Also, how to motivate a teenager who has a chronic illness to look > forward/work towards her future. > > Thank you. > > > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG - www.avg.com > Version: 8.5.426 / Virus Database: 270.14.104/2559 - Release Date: 12/11/09 19:37:00 > > ------------------------------------ Lyme Disease News continually updated from thousands of sources around the net: http://www.topix.net/health/lyme-disease MedWorm: The latest items on: Lyme Disease http://tinyurl.com/23dgy8 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2009 Report Share Posted December 13, 2009 Hello all: My now 18 year old was diagnosed with Lyme (in AL) when she was 10. She was an AB student one quarter then failing everything the next. She had neuro-cognitive dysfunction and was diagnosed ADD also. After 5 years of antibiotic treatment she finally beat it for now. We know that she can develop symptoms again if exposed. We think her exposure was when a cousin brought a dog to her great grandmother from North Alabama. The dog was covered in fleas and ticks and had what appeared to be ringworm patches all over him. The dog was here about a month when my daughter who was 2 1/2 broke out in ringworms, impetigo, and then some of the ringworms never got the crusty scabbing on them. She never had bad dreams but she would go for a long period of time without sleep and then sleep for almost two days at a time. She played volleyball before it hit her hard and had to have homebound services. She was doing so well while she was sweating every day and on the antibiotics. When she quit sweating/raising her body temperature through the physical activity then she spiraled down so far she had no energy and slept, headaches, and joint aches. I took her to the high school JV volleyball coach and we put her to work. She practiced with the team, kept score, traveled with them and starting sweating again. She started improving again. She will start college in January with accomodations for the leftover short term memory deficits and ADD. We are very guarded and know that even the bite from a mosquito or flea or tick might start the whole process all over. Sent via BlackBerry from T-Mobile Re: [ ] Nightmares - I haven't posted here in a long time, as my son, now 18, is doing incredibly well. He was diagnosed at age 10 with Lyme and thankfully, with Dr. ' help, he's made a full recovery. Anyway - he had the nightmares and he would sleep walk and talk. He would wake up, come into our bedroom, and say things like " I'm scared " . I'd lead him back to bed and let him talk thru his nightmare. The worst one was, when he was laying back in his bed, he kept asking " am I dead? " am I in heaven? and the whole time, he's still really asleep. One time, he came out of his bedroom shaking, and saying things like 'the walls are melting, what's going on? " very bizzare... The only thing that truly worked for us was letting him talk through his nightmare, and getting him calmed down again, then he'd go back to sleep and be fine for the rest of the night. In the morning, he wouldn't even remember anything.. it was very distrubing. I would recommend, if you don't have one already, is a journal for you. I filled up two notebooks, with thoughts and observations and doctor's visits. A journal might also help your daughter. I know that, for me, after writing in the journal, just small things at times, like : isn't limping today! I could look back and see the improvement that he was making, one small step at a time. When you live with this disease, it's hard to see the improvements, unless it's documented. Without seeing the improvements, it's hard to have hope for the future. Good luck to you, and God Bless. JoAnne S. D wrote: > > Hi all. I am new to the group but have found ALL of the information > posted to be very useful. I haven't seen a posting yet that covers the > subject that I am looking for guidance on. My 17 year old daughter has > had Lyme for 3-4 years. We are still struggling with treatment and her > education. She seems to have a lot of neuro psych symptoms. Her > biggest problem for over a year (besides lyme) is violent nightmares. > Every night. Someone hurting her, beating her cat, etc. She doesn't > wake up screaming, but wakes up shaken and wondering if it's real or > if it could/would happen. She has had trouble getting to sleep and we > tried several sleep aids, but what best works for her is 3 benadryl. > So she takes those every night. She has tried counseling and > anti-depressants (lexapro, prozac, cymbalta) but they seem to create > more problems than they solve. > > If anyone has had a similar experience, or can tell me what might be > causing this, I would greatly appreciate it. > > Also, how to motivate a teenager who has a chronic illness to look > forward/work towards her future. > > Thank you. > > > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG - www.avg.com > Version: 8.5.426 / Virus Database: 270.14.104/2559 - Release Date: 12/11/09 19:37:00 > > ------------------------------------ Lyme Disease News continually updated from thousands of sources around the net: http://www.topix.net/health/lyme-disease MedWorm: The latest items on: Lyme Disease http://tinyurl.com/23dgy8 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2009 Report Share Posted December 14, 2009 It's so odd that this subject just came up because I was going to ask if anyone's children on here had night terrors. I had to treat myself and my son for congenital Lymes. But my daughter was born negative because of my treatment (which I had to do the entire pregnancy... another story). Anyway, after a camping trip at a lake she, at 4 yrs. old, came down with what appeared to be meningitis... high temp, achy joints, then frozen joints, extreme pain. It was slow building and took about a month to escalate. The hospital could not find any bacteria and did test for Lymes, only not quite how a Lyme Spec. would have done it. Anyhow, she started having night terrors about a week before we had to rush her to the hospital. That was over 2 years ago and she still gets the night terrors but only when she is coming down with something, sick or really thrown off her schedule and is overly tired. Wakes up shaking, scared, screaming, tries to crawl out of bed. She can't remember a thing the next morning, thank God. And research says it's best not to talk about it the next day. But I found that since she talks a lot during these that if I hold her close and talk to her calmly it helps. Very helpful is to try and redirect her dream. This works best because she can hear me and responds, although she is totally asleep. So if I tell her to " come home with me and lay down in bed and go to sleep and that I'm with her and she's OK " it helps tremendously. I have to repeat it several times until she has a big yawn. When the big yawn happens I know the terror is over. weird. But it works. I figured this out because only once she had a terror that was not so violent and she was talking about " I want one...only screaming " so I told her she could have one and it seems to calm her down a bit. So I told her to " take several, you can have as many as you want " and she calmed down a lot. This one sounds more like just talking in her sleep but it was really a night terror. This was when I found out that she could actually hear me although sometimes she doesn't respond at first but if you keep repeating it helps I think for them to hear your voice. It's comforting to know mom or dad is with them when they are scared. Also, you might try giving your daughter Melatonin instead of Benedryl. It's all natural and will definitely help them sleep. Be careful giving too much to little ones. It will really knock them out quick. I've only given it to my 6 year old twice but it did keep her from having a terror on those nights. Like half or a quarter of 1mg. I crushed it up and put in juice. But they come in chewables too. For adult size usually 3mg is enough, if it doesn't work take 2 the next night. It will always work if you take enough. For those who are used to Ambien it might take more since that drug is so strong. And everyone I know taking that gets addicted to it, so watch out. You can ask your doctor first of course, but all my doctors have said Melatonin is safe for anyone. Too much Benedryl (anti-histamines) can be very harmful and if it builds up in your system can cause panic attacks. That happened to my husband. Good luck, Suzanne On Dec 11, 2009, at 7:32 PM, D wrote: > Hi all. I am new to the group but have found ALL of the information > posted to be very useful. I haven't seen a posting yet that covers > the subject that I am looking for guidance on. My 17 year old > daughter has had Lyme for 3-4 years. We are still struggling with > treatment and her education. She seems to have a lot of neuro psych > symptoms. Her biggest problem for over a year (besides lyme) is > violent nightmares. Every night. Someone hurting her, beating her > cat, etc. She doesn't wake up screaming, but wakes up shaken and > wondering if it's real or if it could/would happen. She has had > trouble getting to sleep and we tried several sleep aids, but what > best works for her is 3 benadryl. So she takes those every night. > She has tried counseling and anti-depressants (lexapro, prozac, > cymbalta) but they seem to create more problems than they solve. > > If anyone has had a similar experience, or can tell me what might be > causing this, I would greatly appreciate it. > > Also, how to motivate a teenager who has a chronic illness to look > forward/work towards her future. > > Thank you. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2009 Report Share Posted December 14, 2009 Hi Two of my kids had night terrors. One with Lyme and one without. A solution for them , that occasionally works is , after they have been sleeping for about 2 hours , go in and wake them up. Make sure they are awake, like give them a drink or have them go to the bathroom , than have them go back to sleep. I know it's hard to get the kids back to sleep, but it is much better , in my opinion, than being up with them all night long screaming. My daughte's were very severe, and this was what I learned from the psychiatrist. Hugs judy ________________________________ From: Suzanne <suzlwilliams@...> Sent: Mon, December 14, 2009 10:19:16 AM Subject: Re: [ ] Nightmares It's so odd that this subject just came up because I was going to ask if anyone's children on here had night terrors. I had to treat myself and my son for congenital Lymes. But my daughter was born negative because of my treatment (which I had to do the entire pregnancy... another story). Anyway, after a camping trip at a lake she, at 4 yrs. old, came down with what appeared to be meningitis... high temp, achy joints, then frozen joints, extreme pain. It was slow building and took about a month to escalate. The hospital could not find any bacteria and did test for Lymes, only not quite how a Lyme Spec. would have done it. Anyhow, she started having night terrors about a week before we had to rush her to the hospital. That was over 2 years ago and she still gets the night terrors but only when she is coming down with something, sick or really thrown off her schedule and is overly tired. Wakes up shaking, scared, screaming, tries to crawl out of bed. She can't remember a thing the next morning, thank God. And research says it's best not to talk about it the next day. But I found that since she talks a lot during these that if I hold her close and talk to her calmly it helps. Very helpful is to try and redirect her dream. This works best because she can hear me and responds, although she is totally asleep. So if I tell her to " come home with me and lay down in bed and go to sleep and that I'm with her and she's OK "  it helps tremendously. I have to repeat it several times until she has a big yawn. When the big yawn happens I know the terror is over. weird. But it works. I figured this out because only once she had a terror that was not so violent and she was talking about " I want one...only screaming "  so I told her she could have one and it seems to calm her down a bit. So I told her to " take several, you can have as many as you want "  and she calmed down a lot. This one sounds more like just talking in her sleep but it was really a night terror. This was when I found out that she could actually hear me although sometimes she doesn't respond at first but if you keep repeating it helps I think for them to hear your voice. It's comforting to know mom or dad is with them when they are scared. Also, you might try giving your daughter Melatonin instead of Benedryl. It's all natural and will definitely help them sleep. Be careful giving too much to little ones. It will really knock them out quick. I've only given it to my 6 year old twice but it did keep her from having a terror on those nights. Like half or a quarter of 1mg. I crushed it up and put in juice. But they come in chewables too. For adult size usually 3mg is enough, if it doesn't work take 2 the next night. It will always work if you take enough. For those who are used to Ambien it might take more since that drug is so strong. And everyone I know taking that gets addicted to it, so watch out. You can ask your doctor first of course, but all my doctors have said Melatonin is safe for anyone. Too much Benedryl (anti-histamines) can be very harmful and if it builds up in your system can cause panic attacks. That happened to my husband. Good luck, Suzanne On Dec 11, 2009, at 7:32 PM, D wrote: > Hi all. I am new to the group but have found ALL of the information > posted to be very useful. I haven't seen a posting yet that covers > the subject that I am looking for guidance on. My 17 year old > daughter has had Lyme for 3-4 years. We are still struggling with > treatment and her education. She seems to have a lot of neuro psych > symptoms. Her biggest problem for over a year (besides lyme) is > violent nightmares. Every night. Someone hurting her, beating her > cat, etc. She doesn't wake up screaming, but wakes up shaken and > wondering if it's real or if it could/would happen. She has had > trouble getting to sleep and we tried several sleep aids, but what > best works for her is 3 benadryl. So she takes those every night. > She has tried counseling and anti-depressants (lexapro, prozac, > cymbalta) but they seem to create more problems than they solve. > > If anyone has had a similar experience, or can tell me what might be > causing this, I would greatly appreciate it. > > Also, how to motivate a teenager who has a chronic illness to look > forward/work towards her future. > > Thank you. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2009 Report Share Posted December 15, 2009 My older daughter had a stuffed tiger to scare away the bad dreams. (Not Lyme related) Diane Biel wrote: > > > My now 10 year old daughter had these when she was about 5 years old > till about 8 months ago - after starting treatment for us seemed to > really help. > I was told to talk to her about it right before she went to bed - she > always thought I was crazy but it did help - what we were to say was - > Dear Jesus (or who ever you want to talk to - even if just to yourself > you want to address it too) please keep away my scary dreams tonight. > Say this out laud three times - they also told me to put a crucifix > (any kind of cross - my daughter put a cross she made at school ) at > the top of her bed and a dream catcher on the side of her bed. I do > have to say that it did help..........now I give her meds to keep her > body asleep so she can sleep though the night - > Good luck as night terriers are so scary for them................. > Diane > > ________________________________ > From: jchabot <jchabot@... <mailto:jchabot%40snet.net>> > > <mailto: %40> > Sent: Mon, December 14, 2009 11:51:32 AM > Subject: Re: [ ] Nightmares > > > Hi > Two of my kids had night terrors. One with Lyme and one without. > > A solution for them , that occasionally works is , after they have > been sleeping for about 2 hours , go in and wake them up. Make sure > they are awake, like give them a drink or have them go to the bathroom > , than have them go back to sleep. I know it's hard to get the kids > back to sleep, but it is much better , in my opinion, than being up > with them all night long screaming. > My daughte's were very severe, and this was what I learned from the > psychiatrist. > > Hugs > judy > > ____________ _________ _________ __ > From: Suzanne <suzlwilliams> > > Sent: Mon, December 14, 2009 10:19:16 AM > Subject: Re: [ ] Nightmares > > It's so odd that this subject just came up because I was going to ask > if anyone's children on here had night terrors. I had to treat myself > and my son for congenital Lymes. But my daughter was born negative > because of my treatment (which I had to do the entire pregnancy... > another story). Anyway, after a camping trip at a lake she, at 4 > yrs. old, came down with what appeared to be meningitis.. . high temp, > achy joints, then frozen joints, extreme pain. It was slow building > and took about a month to escalate. The hospital could not find any > bacteria and did test for Lymes, only not quite how a Lyme Spec. would > have done it. > > Anyhow, she started having night terrors about a week before we had to > rush her to the hospital. That was over 2 years ago and she still > gets the night terrors but only when she is coming down with > something, sick or really thrown off her schedule and is overly > tired. Wakes up shaking, scared, screaming, tries to crawl out of > bed. She can't remember a thing the next morning, thank God. And > research says it's best not to talk about it the next day. But I > found that since she talks a lot during these that if I hold her close > and talk to her calmly it helps. Very helpful is to try and redirect > her dream. This works best because she can hear me and responds, > although she is totally asleep. So if I tell her to " come home with > me and lay down in bed and go to sleep and that I'm with her and she's > OK " it helps tremendously. I have to repeat it several times until > she has a big yawn. When the big yawn happens I know the terror is > over. weird. But it works. > > I figured this out because only once she had a terror that was not so > violent and she was talking about " I want one...only screaming " so I > told her she could have one and it seems to calm her down a bit. So I > told her to " take several, you can have as many as you want " and she > calmed down a lot. This one sounds more like just talking in her > sleep but it was really a night terror. This was when I found out > that she could actually hear me although sometimes she doesn't respond > at first but if you keep repeating it helps I think for them to hear > your voice. It's comforting to know mom or dad is with them when they > are scared. > > Also, you might try giving your daughter Melatonin instead of > Benedryl. It's all natural and will definitely help them sleep. Be > careful giving too much to little ones. It will really knock them out > quick. I've only given it to my 6 year old twice but it did keep her > from having a terror on those nights. Like half or a quarter of 1mg. > I crushed it up and put in juice. But they come in chewables too. > For adult size usually 3mg is enough, if it doesn't work take 2 the > next night. It will always work if you take enough. For those who > are used to Ambien it might take more since that drug is so strong. > And everyone I know taking that gets addicted to it, so watch out. > You can ask your doctor first of course, but all my doctors have said > Melatonin is safe for anyone. Too much Benedryl (anti-histamines) can > be very harmful and if it builds up in your system can cause panic > attacks. That happened to my husband. > > Good luck, > Suzanne > > On Dec 11, 2009, at 7:32 PM, D wrote: > > > Hi all. I am new to the group but have found ALL of the information > > posted to be very useful. I haven't seen a posting yet that covers > > the subject that I am looking for guidance on. My 17 year old > > daughter has had Lyme for 3-4 years. We are still struggling with > > treatment and her education. She seems to have a lot of neuro psych > > symptoms. Her biggest problem for over a year (besides lyme) is > > violent nightmares. Every night. Someone hurting her, beating her > > cat, etc. She doesn't wake up screaming, but wakes up shaken and > > wondering if it's real or if it could/would happen. She has had > > trouble getting to sleep and we tried several sleep aids, but what > > best works for her is 3 benadryl. So she takes those every night. > > She has tried counseling and anti-depressants (lexapro, prozac, > > cymbalta) but they seem to create more problems than they solve. > > > > If anyone has had a similar experience, or can tell me what might be > > causing this, I would greatly appreciate it. > > > > Also, how to motivate a teenager who has a chronic illness to look > > forward/work towards her future. > > > > Thank you. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2009 Report Share Posted December 15, 2009 My daughter had nightmares long before we knew she had Lyme. I used to take " monster spray " (vanilla and water) and spritz under the bed, in the closet etc. to de-monster the room and that helped. As for the terrors, she actually had them in the daytime -- suddenly seize up and start screaming, flailing, thrashing around, and I would hold her really tight and rock her until the fit passed -- then she would fall into a really deep sleep and sleep for several hours usually. It was quite scary and, of course, the doctors just told me it was " an interesting strange thing " that they couldn't explain. Natasha > > > Hi all. I am new to the group but have found ALL of the information > > posted to be very useful. I haven't seen a posting yet that covers > > the subject that I am looking for guidance on. My 17 year old > > daughter has had Lyme for 3-4 years. We are still struggling with > > treatment and her education. She seems to have a lot of neuro psych > > symptoms. Her biggest problem for over a year (besides lyme) is > > violent nightmares. Every night. Someone hurting her, beating her > > cat, etc. She doesn't wake up screaming, but wakes up shaken and > > wondering if it's real or if it could/would happen. She has had > > trouble getting to sleep and we tried several sleep aids, but what > > best works for her is 3 benadryl. So she takes those every night. > > She has tried counseling and anti-depressants (lexapro, prozac, > > cymbalta) but they seem to create more problems than they solve. > > > > If anyone has had a similar experience, or can tell me what might be > > causing this, I would greatly appreciate it. > > > > Also, how to motivate a teenager who has a chronic illness to look > > forward/work towards her future. > > > > Thank you. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2011 Report Share Posted April 19, 2011 Hello , Somewhere, sometime, a wise person wrote " the sins of the fathers are visited unto the fourth generation " . We now know, through the works of Ainsworth, Main, Schore, etc., that early childhood failures in self-regulation and attachment are perpetuated in reactive styles over at least three generations. It seems to be the case that many people, families, and even communities spend their lives reacting to the deceit and devastation around them by either an automatic sympathetic display (fight or flight) or an automatic parasympathetic display (dissociation and withdrawal). In both cases the blood leaves the evolutionarily new prefrontal cortices and withdraws to power primal ritualized reactions such as are seen every day on the freeways, in the malls, in schools, and even in professional life. With such an effective denial of reality in waking life - who needs nightmares? Keeping the frontal executive functions active through HEG training is a first step in resolving this all-too-common scenario. The spill-over often shows in dreams. This is usually a time to celebrate the re-awakening of valid perception and support maturation - not to find a way to suppress the subconscious. Best wishes, Nightmares Hi, I just starting training my family using HEG, but my 12 year daughter and wife are getting intense nightmares. The nightmares are about people dying, even themselves. Is there something I need to do differently? What is causing the nightmares in some and not others? Thanks, ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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