Nightmares

[Guest guest]

,

I also have bad nightmares and very vivid dreams. The nightmares are so real.

If this is from the spirochete dying then I will deal with the nightmares.

I hope you feel better,

[Guest guest]

In a message dated 10/23/98 1:44:24 PM Mountain Daylight Time, RVKLA@...

writes:

> My meds are Biaxian

> and amantadine. I guess the amantadine helps the biaxin penertrate the

> cell to help kill the bacteria.

This may be true. I think that Amantadine has anti-viral properties.

Here's a Parkinson Disease article and a Hepatitus C article:

---------------------------

AN END TO THE SHAKES #1290

Television News Service/Medical Breakthroughs

©Ivanhoe Broadcast News, Inc. 1998

------------------------------------------------------------------------------

--

Parkinson's disease affects about one million people in the United States.

Levodopa, the most common drug used to treat Parkinson's, is effective. Yet

long-term use causes many patients to develop disabling complications, such as

involuntary muscle movements. Now, new research is offering advanced-stage

Parkinson's patients hope for the future.

The major symptoms of Parkinson's disease -- shaking, stiffness and slowness

of movement -- can be frustrating at best, completely life-altering at worst.

Parkinson's disease robbed Dr. Morabito of a thriving dental practice.

" A drill going in your mouth is no fun at all, and going in at a bad angle or

when you have a tremor makes it a lot worse. So there comes a time when you

have to call it off, " he says.

The father of five was diagnosed with Parkinson's 12 years ago. His levodopa

treatment is effective, but over the years he developed more pronounced

involuntary muscle movements, known as dyskinesia.

Enter the drug amantadine. Chase, M.D., of the National Institutes of

Health Neurology Institute, says, " We found a new use for this old drug, which

actually is quite dramatic. "

Dr. Chase studied 14 patients. He found combining amantadine with levodopa

reduced symptoms by 50 percent. The alternative would be risky brain surgery.

" If you don't like the results, you can stop taking the pills, " says Dr.

Chase. " With surgery, once the hole in the brain is made, you can't take it

away. "

Amantadine, often used to treat the flu, blocks a protein in the brain that

causes involuntary muscle movements. Dr. Morabito continues to take

amantadine. " It helps to smooth things out, " he says.

Dr. Chase says, " When we put him on amantadine, he had a big improvement with

the dyskinesias but not on the walking problems. So although we've made a step

in the right direction, we haven't gotten to the end of the road yet. "

Yet Dr. Morabito is hopeful. " You're gonna have a cure soon, and that's no

B.S. Ten years ago we wouldn't be talking like this, " he says.

High doses of amantadine can cause nausea, vomiting and confusion. Dr. Chase

says these side effects can be easily dealt with by reducing the dose.

For more information about the amantadine study, contact:

800-362-3479

For information about Parkinson's disease, contact:

(301) 496-5751

--------------------------

NEW HOPE: AMANTADINE

from the March-April 96 Issue Focus: On Hepatitis C International Newsletter

------------------------------------------------------------------------------

--

PART ONE- A medical abstract authored by Jill P. , M. D., Dept. of

Medicine, The Milton S. Hershey Medical Center, The Pennsylvania State

University entitled, Treatment of Chronic Hepatitis C with Amantadine

Hydrochloride was submitted to the annual meeting of the American

Gastroenterological Association and the American Association for the Study of

Liver Diseases that took place in San Francisco this past May (96). It is most

interesting to note that the study used patients with chronic hepatitis C

infection who had previously failed therapy with interferon alpha-2b. But

first of all, what is amantadine hydrochloride?

Amantadine hydrochloride is a drug classified as an antiviral. In recent

years, a few drugs have been introduced that have a partial effect against

certain specific viruses which are called antivirals. The difficulty with

viral infections is the speed with which the virus multiplies (replicates). By

the time symptoms appear, the viruses are so numerous that drugs may have

little effect. Ideally, antiviral agents should be given early in the course

of an infection or they may be used prophylactically (as a preventive).

Amantadine hydrochloride, an antiviral agent has been used to prevent and in

some people to treat, symptoms caused by the influenza A virus. This drug is

also used to treat Parkinson’s disease.

Many antiviral drugs act by preventing the formation of viral genetic material

(i.e., they inhibit viral DNA replication). Thus, the virus cannot multiply.

Halting replication of the virus prevents its spread to uninfected cells and

improves symptoms rapidly, but in the case of some infections, does not

completely eradicate the virus from the body. Infection may therefore flare up

again on another occasion.

Other antiviral agents have different actions. Amantadine appears to prevent

the influenza A virus from entering the host’s cells, for example. Amantadine

is believed to prevent influenza A virus from penetrating respiratory

epithelial cells, to uncoat the virus, and thus release viral nucleic acid

into host cells. Ribavirin (Virazole) is another antiviral. It is commonly

used for serious viral pneumonia. Currently, the combination therapy of

ribavirin and interferon to fight chronic hepatitis C is being clinically

tested in the United States.

Part One of this cover story will introduce readers to the amantadine-

hydrochloride study/abstract conducted by Jill P. , M.D.

------------------------------------------------------------------------------

--

TREATMENT OF CHRONIC HEPATITIS C WITH AMANTADINE-HYDROCHLORIDE

J.P. , M.D.,

Dept. of Medicine, The M. S. Hershey Medical Center, The Pennsylvania State

University, Hershey, PA 17033

Treatment of chronic hepatitis C infection with interferon has been

disappointing, with less than one-third achieving a sustained response and

most experiencing significant side effects. For these reasons, a prospective

open-labeled study was conducted to test the safety and efficacy of the anti-

viral drug, amantidine-HCl, in patients with chronic hepatitis C infection who

had previously failed therapy with interferon alpha-2b. Twenty-two patients

with chronic hepatitis C were treated with amantadine-HCl 100 mg given orally

twice daily for six months. Hepatitis C was confirmed by the presence of serum

antibodies, detectable hepatitis C RNA by branched chain DNA analysis, and

abnormal liver histology by biopsy. The mean age was 43.4 years (17-74 years).

Liver histology was consistent with chronic persistent hepatitis (23%),

chronic active hepatitis (55%), or cirrhosis (18%). Patients were followed

monthly with interim history, physical examination, symptom survey and

laboratory tests. Control groups included the same cohort during 2 intervals

of no treatment (24 mos. before and 12 mos. after interferon) and during

therapy with interferon alpha-2b. Serum alanine aminotransferase (ALT) values

decreased from 193 to 75 U/L (P=0.001), and hepatitis C RNA values decreased

from 195 to 88 x 10(5) units (P=0.036) with amantidine-HCl therapy. Twenty of

the twenty-two patients completed therapy with 6 (30%) did not respond to

amantadine-HCl. Responders had lower pretreatment HCV RNA levels than

nonresponders. Two patients terminated in mos. 1 due to cardiac-associated

side effects. Hepatitis C RNA levels were undetectable in 6 patients at

completion of amantadine therapy while RNA levels fell by >50% in eleven

patients. ALT values were significantly lower during amantadine-HCl therapy

and 6 mos. after termination of therapy than ALT levels during either period

without treatment (P=0.0005) or during the period when interferon alpha-2b was

given (P=0.001). No deleterious effects on bone marrow were observed. Side

effects included difficulty with concentration (2) and constipation (1).

Chronic hepatitis C infection may be successfully treated in some patients

with a six-month course of amantadine-HCl whereas in others amantadine

treatment effectively lowers hepatitis C RNA and hepatic transaminases.

[Guest guest]

Dear Dona, I'm

sorry to hear about your daughter having alot of problems. She has a

BIG advantage on her side, she got bit a short time ago. From what I

have read, the sooner they dx lyme the greater the chance of recovery.

I, myself was dx in1992 with CFS and FMS. I had a relapse a about 2 year

ago. I found a lyme literate dr, went to him and found out it has been

lyme a along! I had a spect scan, and they found damage to the side,

top, and front of my brain. This is consistant with late stage lyme

disease. My dr has found that wth long term antibotics, the damage may

be reversible . I had a recent one done, which made it just over a year

apart, and unfortuantly, there was very little change.But on the bright

side my body aches are subsiding and my knees no longer hurt. I was on

IVs for a short time, my liver couldn't handle it . My meds are Biaxian

and amantadine. I guess the amantadine helps the biaxin penertrate the

cell to help kill the bacteria. I hope I answered your questions, and I

wish your daughter a speedy recovery. Good luck, and God bless.

KAREN

[Guest guest]

Hi Larry.

I used to blame the nightmares on meds, and remember early in my

treatment asking my doctor about doxycycline causing the bad dreams, he said

it is possible he recalled having bad dreams too when he was on it, (He has

Lyme too.) Well, in the last three years, I have been on all different

kinds of abx, and antidepressants etc. and if one of the meds causes bad

dreams, they all do. I really think that a bad waking situation manifests

itself in my sleep. I would really like to have a sleep study done, but I

would hate to go to where ever they have them. I want my own bed, wonder if

they do that now??? I'd hate to take another pill, but if any med. would

keep me from having these dreams and remembering them, I would certainly

take it. Larry, next time you dream of the ex, let me know if you were

feeling particularly sick at the time.

Hugs,

Marta NJ

>From: " larryyenko " <larryy@...>

>

>To all,

> I have had nightmares on and off for the last 3 years. Some really

>crummy (death and stuff) and some about my X-wife (now those are night

>mares).

> I relate most of the nightmares to the medication I am taking (Flagal

>esp.) or food I have become more sensitive to.

>Larry

[Guest guest]

My son, who is 5, also has nightmares. I'm not sure if it's the

medication he's on or the pain that he is in. I can remember having

nightmeres as a little girl about having my teeth pulled out only to have the

dreams go away with a visit to the dentist.

We have a really nice bedtime ritual that seems to help. They say the

last 30 minutes before a child goes to bed is critical for how they will

sleep. I always read to him or allow him to color in bed, until he is

relaxed enough to sleep. I normally ask him how his day went and we talk

about things. He's 5 and one time he was telling me a story about how 'his

power rangers in his body are tired of fighting the bad guys'.... and then

how the power rangers were worried about not winning. That was his way of

telling me of how anxious he was of his disease. I could help relay his

fears by telling my own story and giving him extra love.

I'm Jewish so I also made a big deal out of going to the Temple and

buying another mezuzah to place on the doorpost of our bedroom. I had him

help me to put up the new one and to say the prayers so that the bad things

couldn't come in.

I'm sure you do most of these things already. I woke up one night and in

the twilight of my sleep, I felt a hand touch mine. Tally had reached over

and took my hand in the middle of the night. He was still sleeping but

subconsciously, he reached out to me to insure that I was still there.

I hope your little one has quiet dreams. Mezuzahs probably aren't your

thing but they do have Native American Dream Catchers that are placed over a

child's bed to catch bad dreams. Maybe if you had her help you make one she

would feel comfortable enough to tell you of her own dreams. I'm not a child

psychologist so I'm not really sure what else to suggest. I just hope she

finds peace in her dreams.

kathy

[Guest guest]

Hi, My daughter also had nightmares when her JRA first

started and it was due to the Indocin. If Mckenzie is on any NSAIDs

such as indocin or naprosyn I read an artical once that they can

cause nigthmares. My daughter still gets them once in a while but not

like in the beginning. She has been on Metho. for four weeks and it

hasnt made them any worst.

[Guest guest]

,

McKenzie is on naprosyn as well as Metho. That is good to know I am not

alone. She will get a steroid injection on Friday so hopefully we will be

able to stop taking the naprosyn all together. I will let you know how

things to out.

Thanks again. Angel Beers

Re: nightmares

Hi, My daughter also had nightmares when her JRA first

started and it was due to the Indocin. If Mckenzie is on any NSAIDs

such as indocin or naprosyn I read an artical once that they can

cause nigthmares. My daughter still gets them once in a while but not

like in the beginning. She has been on Metho. for four weeks and it

hasnt made them any worst.

------------------------------------------------------------------------

Best friends, most artistic, class clown Find 'em here:

1/4054/2/_/524922/_/958418011/

------------------------------------------------------------------------

For links to websites with JRA info visit:

http://www.geocities.com/Heartland/Village/8414/Links.html

[Guest guest]

Thanks for the advice, we had a long talk last night and we are going to the

library and learn how to make a dream chaser. McKenzie was very excited when

I told her what it was supposed to do and how it was going to help her

sleep. She actually told me a story last night and she said God was the only

one who could chase her bad dreams away. also wrote and talked about

naposyn so maybe that does have something to do with it as well. Does you

son take maposyn too?

Thanks again, Angel Beers

Re: nightmares

My son, who is 5, also has nightmares. I'm not sure if it's the

medication he's on or the pain that he is in. I can remember having

nightmeres as a little girl about having my teeth pulled out only to have

the

dreams go away with a visit to the dentist.

We have a really nice bedtime ritual that seems to help. They say the

last 30 minutes before a child goes to bed is critical for how they will

sleep. I always read to him or allow him to color in bed, until he is

relaxed enough to sleep. I normally ask him how his day went and we talk

about things. He's 5 and one time he was telling me a story about how 'his

power rangers in his body are tired of fighting the bad guys'.... and then

how the power rangers were worried about not winning. That was his way of

telling me of how anxious he was of his disease. I could help relay his

fears by telling my own story and giving him extra love.

I'm Jewish so I also made a big deal out of going to the Temple and

buying another mezuzah to place on the doorpost of our bedroom. I had him

help me to put up the new one and to say the prayers so that the bad things

couldn't come in.

I'm sure you do most of these things already. I woke up one night and

in

the twilight of my sleep, I felt a hand touch mine. Tally had reached over

and took my hand in the middle of the night. He was still sleeping but

subconsciously, he reached out to me to insure that I was still there.

I hope your little one has quiet dreams. Mezuzahs probably aren't your

thing but they do have Native American Dream Catchers that are placed over a

child's bed to catch bad dreams. Maybe if you had her help you make one she

would feel comfortable enough to tell you of her own dreams. I'm not a

child

psychologist so I'm not really sure what else to suggest. I just hope she

finds peace in her dreams.

kathy

------------------------------------------------------------------------

Best friends, most artistic, class clown Find 'em here:

1/4054/2/_/524922/_/958416167/

------------------------------------------------------------------------

For links to websites with JRA info visit:

http://www.geocities.com/Heartland/Village/8414/Links.html

[Guest guest]

In a message dated 5/16/00 8:58:45 AM Eastern Daylight Time,

mabeers@... writes:

<< Thanks for the advice, we had a long talk last night and we are going to

the

library and learn how to make a dream chaser. McKenzie was very excited when

I told her what it was supposed to do and how it was going to help her

sleep. She actually told me a story last night and she said God was the only

one who could chase her bad dreams away. also wrote and talked about

naposyn so maybe that does have something to do with it as well. Does your

son take naposyn too?

Thanks again, Angel Beers >>

Tally takes naprosyn now but he had been on ibuprofen. They tried

lowering Tally's prednisone 2 months ago and it threw him into a flare. It

wasn't one that required hopsitalization but it is one that set us back some.

At his last RD appointment, his doctor upped his methotrexate (to 7.5 mg)

and I asked him to change Tally to naprosyn. He did and Tally is now on 600

mg a day of that. Tally also currently takes 10 mg of prednisone a day. He

weighs 44 pounds.

Tally goes back in a month this time and if he doesn't see the

improvement he expects to see... he is going to start the Embrel and give

that a go.

kathy

[Guest guest]

Angel:

I thought the nightmares and trouble sleeping is a result of the

steroids. Is McKenzie on steroids?

Charlie

> Hi, Just had a little question. McKenzie has been on Metho for

about six

> weeks now and she is having trouble sleeping though the night. It

seems

> every night she is having nightmares and wakes up three to four

times a

> night. Is this due to the Metho? How do you deal with this? If

anyone else

> has gone though this please let us know.

> Thanks Angel Beers

> P.S. McKenzie is five years old.

[Guest guest]

Angel,

My daughter isn't on steroids and she has nightmares too. I think hers

comes from the mtx she's taking because it started after that. Sometimes she

would tell me that someone was trying to get her and there would be no one

there, but you coulndn't tell her differently either.She would be so paranoid

too. Sometimes she can't sleep for 24/48 hours at a time, and guess whose up

with her? You got it me. So her ped said that was normal, but it scares the

heck out of me when she is like that. So what am I suppose to do?

Ywellen

[Guest guest]

Kay.. why in the world are you taking hydrocodone? Hydrocodone (Vicodin)

is a narcotic in the opiate class like codeine. It is toxic to your

liver. Those who have or are abusing alcohol shouldn`t even be taking

narcotics as there is real danger of abuse.You should never take vicodin

with sleeping pills. You will only exacerbate the dangers of the drug.

Are you tryng to fry your brain? I don`t wonder you have weird dreams.

What is the penicillan for?

You couldn`t have been prescribed these for hepatic encephalopathy.

thats not how it`s treated. If you stopped drinking 18 mos. ago I doubt

you would have hepatic encephalopathy now. Cirrhosis can be halted by

eliminating those things that caused it. By doing other things that harm

your liver such as toxic drugs you are only contributing to its

progression. I don`t know why any doctor that knows you have alcoholic

cirrhosis would prescribe you vicodin. You must see a hepatologist and

stop letting your GP fool around with you.

Cirrhosis has ben indicated by a scoring system known as the Child-Pugh

system and there are other systems that indicate how badly damaged your

liver is.. I sent a couple of pages on them to the group.

From the things you have told us your cirrhosis is not that bad..yet.

Advanced stages show other complications such as ascites, edema,

varices, jaundice, spider veins and encephalopathy (which is nothing

like the brain fog most of us describe) The very best way to assess

liver damage is by biopsy and I can`t understand how any one can say

thier liver is damaged 60=70=80% without having one or at least by

showing those signs I`ve listed above.

I hope you have a very good reason for taking vicodin as it will do

nothing for you but mess you up. Further more if it comes in combo with

aspirin it can do real damage to your stomach and esophagus lining.

Please realize I have been trying to help you since you 1st

posted.(remember the 3 boats story?) but we can`t do anything but give

advice. YOU must do the footwork....see a liver specialist!

And what`s with the penicillan?

love and serenity

Jerry

Hi,

With having Hepatic encephalopathy, Im talking hydrocodone

and penicillin and Im having the worst nightmares. They wake me up at

night. Cats chasing turtles, big cats chasing ferrits, big dogs

chasing the cats.. & lots more weird stuff. It gave me a headache. I

took a sleeping pill awhile back and I was hallucinating bad. Why is

this, anyone know?

Kay

[Guest guest]

Mabey you ned a trip to the zoo:))) Just kidding.

Hydrocodone can give you nightmares and disturned sleep.

I can not take them. One of the problems with liver disease is that we tend

to feel the side effects

of medications more because they stay in our system longer as its harder for

the liver to break them down. I would ask the doc to switch you to

perkisette. They too are strong, but I have noticed I dont have the bad side

efeffects like I do with the hydrocodone.

Ama

[ ] Nightmares

>Hi,

>With having Hepatic encephalopathy, Im talking hydrocodone

>and penicillin and Im having the worst nightmares. They wake me up at

>night. Cats chasing turtles, big cats chasing ferrits, big dogs

>chasing the cats.. & lots more weird stuff. It gave me a headache. I

>took a sleeping pill awhile back and I was hallucinating bad. Why is

>this, anyone know?

>Kay

>

>

>

>

[Guest guest]

Hydrocodone and oxycodone are pretty much the same. Both are

semi-synthetic opiates (codeine,morphine, heroin) and as narcotics can

be habit forming leading to addiction. Both are fairly easy to get and

are favored by many drug addicts. Viacodin has hydrocodone and

acetaminophen, Percocet is oxycodone and acetaminophen. Vicodin is a

class 2 narcotic and Percocet is stronger at class 3. Both are stronger

than tylenol 3. (tylenol is acetaminophen) Tylenol 3 contains codeine.

It is well known that Tylenol can do great damage to one`s liver and is

usually contra-indicated to those with severe liver disease.

My wife died from cirrhosis that was caused in no small part by Tylenol

3.

I`m not picking on you Kay. I`m just trying to inform you of dangers

that you might not know of. When a doctor or dentist prescribes

something for you it is up to you to inform them of all your medical

problems past and present. The way you presented your question it

sounded as if these meds were prescribed for encephalopath. If your

liver problems are indeed advanced then it`s up to you to seek adequate

help and information and I wouldn`t think viacodin or percocet were safe

drugs to take.

I`m sorry if I offended you but I feel I can help you.... you`ve

indicated you had problems with alcohol and it caused your liver

condition. Well I know quite a bit about addiction and I know that

people sometimes substitute one addication for another and rationalize

out their reasons.

I truly want to help you and again I`m sorry.

[Guest guest]

I'll tell ya, I never thought in a million years

>that one person could have so much wrong, or just so much acting up all at

>once!! Sometimes I feel like I am in a nightmare and will awaken from it,

Bert,

I know exactly what you mean. I have been feeling that way for a while now. I keep telling my doctors not to find anything else wrong. I don't want to know!!

I will be praying for your son every day, my dear.

Ginger

[Guest guest]

Hmm thanks for the thought. I am just getting in to testing, beyond the

begining.

Lissa

fredkj2003 <keedfred@...> wrote:

Test for zinc deficiency or copper excess as they are

interdependent. The Homeopathic Manual, Materia Medica (Boericke &

Tafel), under Zincum Metallicum in the " sleep " section states, " Cries

out during sleep; body jerks; wakes frightened, stared. Nervous

motion of feet when asleep. Loud screaming out at night in sleep

without being aware of it. Somnambulism. " Or test the numerous

other remedies recommended in the manual under the " nervous system "

section of the book. LOVE, Eileen

Immunic taught imperfectly still cures people. Show what you know without

waiting to be good at it. Immunity is always an emergency.

Please forward these e-mails because they find their way around the Web, into

the right hands -- you'll save somebody's life.

To subscribe go to: immunics

[Guest guest]

I have the same problem sometimes from my two alcoholic parents. I have nightmares about them at times.

i have depression, migraines, anxiety, allergies, with back and neck pain.

the depression my husband has a hard time with me being in pain and not getting enough sleep sometimes i can sleep for 6 to 12 hours because that is the time that i am not in pain.

, 39, married, 3 children, 2 dogs 3 cats and one overwhelming house to clean

WOW THAT NICE i like that that fits me right now my nightamres are back and i cnat rid them i cant let go of my past its hauting me and i cant take it any longer any friends out there sorry ive been distant my depression , and borederline is real bad i cant be alone or i cant sleep by myself terri

[Guest guest]

No advice other than that it’s

happened to me too. I was shocked in the middle of the night 4 times and have

had several nightmares where I dreamed I got shocked.. it’s completely

terrifying. Once I actually in my dream felt the shock, the terror and the oh

my god I’m so screwed now feeling. My husband had to convince me they

were not real and I still had doubts for awhile. I hope that they go away

eventually. My ICD traumas ended last July and I still have them though.

((((((((HUGS))))))))

From: [mailto: ] On Behalf Of

Sent: Thursday, April 10, 2008

9:00 AM

Subject: nightmares

Hi everyone,

A couple of weeks ago I had to have my ICD replaced because of a fractured lead

(the

Medtronic Sprint Fidelis). A few hours before the surgery, I started receiving

inappropriate

shocks while I was waiting in the emergency room. It fired five times in a row

(about 30

seconds) and then once more a few minutes later before they were able to turn

it off.

Since then, I've been having nightmares about the shocks. I find myself

drifting off to sleep

and feeling like the device is shocking me. Last night I woke up in the middle

of the night

because I dreamed it went off. Has anyone ever had this problem? Before the

inappropriate

shocks, I had never had it go off before, so the five at one time was a bit of

a traumatic event

for me. Any advice?

Thanks,

__________ NOD32 3016 (20080410) Information __________

This message was checked by NOD32 antivirus system.

http://www.eset.com

[Guest guest]

Sounds like PTSD: post teaumatic stress disorder.

My husband has an ICD. Afte rthe initial "eclectric storm" after insertion 4 years ago he had dreams & was fearful w/ memories. He was dx w/ PTSD-post traumatic stress .

it was last fall before it again went off 31 times--the PTSD has returned & w/ his counselor he again is working through it..

You may want to consider sessions with a counselor-ours is the SW in the hear failure clinic--who is great!!

Janet S

nightmares> > > > Hi everyone,> > A couple of weeks ago I had to have my ICD replaced because of a > fracturedlead (the > Medtronic Sprint Fidelis). A few hours before the surgery, I started> receiving inappropriate > shocks while I was waiting in the emergency room. It fired five > times in a> row (about 30 > seconds) and then once more a few minutes later before they were > able to> turn it off.> > Since then, I've been having nightmares about the shocks. I find > myselfdrifting off to sleep > and feeling like the device is shocking me. Last night I woke up > in the> middle of the night > because I dreamed it went off. Has anyone ever had this problem? > Before the> inappropriate > shocks, I had never had it go off before, so the five at one > time was a bit> of a traumatic event > for me. Any advice?> > Thanks,> > > > > __________ NOD32 3016 (20080410) Information __________> > This message was checked by NOD32 antivirus system.> http://www.eset.com> >

[Guest guest]

I think I have Janet beat...a couple of years ago I had 45 shocks in less

than an hour. As soon as it hit me it would recharge and hit me again.

After that event, I couldn't sleep for a couple of days. Every time I

started to doze off I would wake up again feeling I was going to get

shocked. I would even try sleeping upright in a chair but no luck...but the

panic eventually went away. Sometimes I still find myself having a bit of

angst about it, especially in the shower. I keep a blood pressure machine

close by so I can check my b/p and heart rate when I start to get wiggy

about it. Once I realize that my vitals are normal the anxiety goes away.

Now I keep a magnet close by so I can put it over the ICD and interrupt the

shocks when they are inappropriate.

How do you know if they're appropriate or not? Well, if it's an appropriate

shock you'll most likely pass out before it shocks you and you'll drop the

magnet..at least that's what my EP says. Having said that, it's something

that works for ME...I wouldn't suggest it unless you talked it over with

your doc first.

I also take Lexapro which I find has helped a lot. It's nowhere near as

strong as Valium, Xanax or some ot the others, but it helps to " smooth

things out a bit " . You might talk to your doc about it.

Good luck,

Adam

=============================

Adam

Tel: 305.891.2326

E-Fax: 866.792.6103

Cel: 305.970.8565

Email: adam@...

Email: adamrogers@...

[Guest guest]

,

Yes, my husband went through this two years ago. Got

inappropriate shocks. Yes, he has had nightmares ever

since. We were quite concerned about the whole thing.

He did get a sleep aide and a tranqualizer from his

heart doctor. Please be assured that you are not

alone. WE are sure in a mess with these ICD machines,

but in the next generation, they will be so much more

effecient. Be brave and time will take care of

things. Memories fade and so will fear.

Jeanette and Dennis King.

--- <briansutch@...> wrote:

> Hi everyone,

>

> A couple of weeks ago I had to have my ICD replaced

> because of a fractured lead (the

> Medtronic Sprint Fidelis). A few hours before the

> surgery, I started receiving inappropriate

> shocks while I was waiting in the emergency room. It

> fired five times in a row (about 30

> seconds) and then once more a few minutes later

> before they were able to turn it off.

>

> Since then, I've been having nightmares about the

> shocks. I find myself drifting off to sleep

> and feeling like the device is shocking me. Last

> night I woke up in the middle of the night

> because I dreamed it went off. Has anyone ever had

> this problem? Before the inappropriate

> shocks, I had never had it go off before, so the

> five at one time was a bit of a traumatic event

> for me. Any advice?

>

> Thanks,

>

>

>

__________________________________________________

[Guest guest]

Why so many shocks? Five was more than enough for me. Was there something wrong

with

your device?

>

> I think I have Janet beat...a couple of years ago I had 45 shocks in less

> than an hour. As soon as it hit me it would recharge and hit me again.

>

> After that event, I couldn't sleep for a couple of days. Every time I

> started to doze off I would wake up again feeling I was going to get

> shocked. I would even try sleeping upright in a chair but no luck...but the

> panic eventually went away. Sometimes I still find myself having a bit of

> angst about it, especially in the shower. I keep a blood pressure machine

> close by so I can check my b/p and heart rate when I start to get wiggy

> about it. Once I realize that my vitals are normal the anxiety goes away.

>

> Now I keep a magnet close by so I can put it over the ICD and interrupt the

> shocks when they are inappropriate.

>

> How do you know if they're appropriate or not? Well, if it's an appropriate

> shock you'll most likely pass out before it shocks you and you'll drop the

> magnet..at least that's what my EP says. Having said that, it's something

> that works for ME...I wouldn't suggest it unless you talked it over with

> your doc first.

>

> I also take Lexapro which I find has helped a lot. It's nowhere near as

> strong as Valium, Xanax or some ot the others, but it helps to " smooth

> things out a bit " . You might talk to your doc about it.

>

> Good luck,

> Adam

>

>

> =============================

> Adam

> Tel: 305.891.2326

> E-Fax: 866.792.6103

> Cel: 305.970.8565

> Email: adam@...

> Email: adamrogers@...

>

[Guest guest]

my father-in-law died from his shocks!!!Adam <adam@...> wrote: My excessive shocks were due to A-Fib.My heart rate got so high it set off the device.Since it's not designed to correct A-Fib it just keep shocking me until Igot to the hospital and they turned it off. They then pumped me full ofAmiodarone and I eventually auto-converted back to sinus rhythm.The worst part about it was that little episode destroyed the battery so Ihad to have it replaced a few months later.I'm also on ICD

#4 in four years!!!Let's hope that's the last of THAT for awhile.Adam=============================Adam Tel: 305.891.2326E-Fax: 866.792.6103Cel: 305.970.8565Email: adamadamrogers (DOT) netEmail: adamrogersmac __________________________________________________

[Guest guest]

>

> Hi everyone,

>

> A couple of weeks ago I had to have my ICD replaced because of a

fractured lead (the

> Medtronic Sprint Fidelis). A few hours before the surgery, I started

receiving inappropriate

> shocks while I was waiting in the emergency room. It fired five

times in a row (about 30

> seconds) and then once more a few minutes later before they were

able to turn it off.

>

> Since then, I've been having nightmares about the shocks. I find

myself drifting off to sleep

> and feeling like the device is shocking me. Last night I woke up in

the middle of the night

> because I dreamed it went off. Has anyone ever had this problem?

Before the inappropriate

> shocks, I had never had it go off before, so the five at one time

was a bit of a traumatic event

> for me. Any advice?

>

> Thanks,

>

>

I have have them too. Sometimes I jump in my sleep & wake my self up.

Has any one had this. LYNN From Florida

[Guest guest]

Yes!!

From: [mailto: ] On Behalf Of Lynn

Sent: Saturday, April 12, 2008

4:18 PM

Subject: Re: nightmares

>

> Hi everyone,

>

> A couple of weeks ago I had to have my ICD replaced because of a

fractured lead (the

> Medtronic Sprint Fidelis). A few hours before the surgery, I started

receiving inappropriate

> shocks while I was waiting in the emergency room. It fired five

times in a row (about 30

> seconds) and then once more a few minutes later before they were

able to turn it off.

>

> Since then, I've been having nightmares about the shocks. I find

myself drifting off to sleep

> and feeling like the device is shocking me. Last night I woke up in

the middle of the night

> because I dreamed it went off. Has anyone ever had this problem?

Before the inappropriate

> shocks, I had never had it go off before, so the five at one time

was a bit of a traumatic event

> for me. Any advice?

>

> Thanks,

>

>

I have have them too. Sometimes I jump in my sleep & wake my self up.

Has any one had this. LYNN From Florida

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