Re: Re: I'm out of control (parenting-wise) -- anger/rage

[Guest guest]

If the medication tastes that bad what about and empty gel cap? You can get them

at most drug store.

Sent via BlackBerry from T-Mobile

[ ] Re: I'm out of control (parenting-wise) --

anger/rage

I understand and also remember a time, before treatment, that I would rage, or

want to, at my kids. I'm very thankful that they were too young to remember.

I can understand how alone you feel and am sorry for anyone who has to go at

this alone. Just remember that there are many of us suffering along with you

(in our family, me and our two sons).

I am also taking Mepron and don't like it. I chase it with a quick bite of

cheese or peanut butter. Did you know you are supposed to take it with some fat

to increase its efficiency? Our doctor told us that. It also seems to take the

taste away more quickly.

Be well.

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[Guest guest]

I'm also a single Mom. I have one daughter. We both have Lyme and it's just she

and I. The first time I took Mepron my anger was out of control. My Lyme doc

took me off it for a while at my request. When I went back on it later I

tolerated it much better. It was helping my brain functioning without the anger.

He said I just wasn't strong enough the first time. We needed to heal more of

the Lyme before I could tolerate the meds. It's a personal choice. I couldn't

handle treating my daughter the way I was so I asked him to take me off it and

I'm glad I did. I was scared to try it again later but was thrilled with the

results.

The anger is quite possibly a herxheimer reaction. I've written, and been made

fun of here, about what my daughter and I did to help us at our docotr's

suggestion. To avoid the attacks, I won't repeat it, but you can find it in the

archives, I'm sure, if you'd like. Otherwise ask your Lyme doc what he suggests

for herxes. If it works, great.

I have a 15 year old who can be a handfull. Backtalk can really be a button for

me. So, I've put a TV in my bedroom and when she's in teenager mode, I just shut

my mouth and go to my room for a while. I have also experienced the difficulty

with being touched. I handled it by taking a breath and doing my best to not

react. Those feelings passed but it was very hard while I was going through it.

I have had to on several occasions with adults who all wanted to give me

directions at once, just say, stop. I can't concentrate if more than one person

talks to me at a time. I know you're dealing with kids, but you'd be amazed at

how much they respond if, when you're feeling calm, you just tell them, Mom's

having a hard time with her brain right now and I can only listen to one of you

at a time. I used to help take care of special needs kids, five of them. I would

have to say, O.K. we need to take turns. I'll give you all a turn but right now

it's so and so's

turn and you can go next. That worked amazingly well! When another one would

interrupt I would just say, remember we're taking turns.

Maybe when you're driving home from work you can prepare yourself mentally for

the evening. Take some deep breaths. If your AuPair is still there when you get

home, maybe you need a little bit of time to yourself at home before you switch

to Mom mode. I've found remembering to breathe and self talk is really

important. If you're going from zero to one hundred with no space to do either,

you might want to consider telling your doc you need to adjust something. Maybe

even lowering how much you take may help.

This stuff is not easy and you're are not alone in your experience. You're going

to get through it. I've found it's really important for me to go back to my

daughter when I'm calm and apologizing, explian to her I'm off am little and

it's very important to tell her it's not her fault, I'm just having a hard time.

Take care!

Annie

________________________________

From: darabeth2003 <dara.alewine@...>

Sent: Sat, December 5, 2009 11:02:14 PM

Subject: [ ] Re: I'm out of control (parenting-wise) --

anger/rage

 

I completely understand and experience much of the same. I and my 2 kids are all

diagnosed and in treatment. I felt this way alot pre-diagnosis and at least

being diagnosed and knowing it had to do with lyme made me a little more

forgiving of myself, though of course I fear the same, that I am damaging the

kids. I do find that it is worse towards the end of the day- when I am more

tired, and so are they making them more whiny, demanding and bickering. My son

is experiencing alot of emotional symtpoms including lyme rage also, and by the

end of the day I do not have the patience to deal with it, and we are both

raging at each other.

I have not found an answer, except I am trying to become more structured with

our routines and expectations, trying to pace myself through the day so I don't

fall apart so much at night, and I explain to the kids that mommy does not feel

well either. . .

My son just started mepron- he hates it! Every dose it a fight. Any tricks to

getting to like it??

Dara

>

> I have a 3 and 4 year old (both with Lyme) and I have it as well

> (never again will we go to an east coast summer camp! The deer were

> practically campers there were so many!) Here's my problem...I am

> newly on Mepron (which I know is making things worse), but almost

> every evening I turn into a monster (weirdly days at work are fine).

> If the kids are talking to me at the same time, I lose and scream " one

> at a time! " If my daughter is too clingy I can barely tolerate it and

> want to shake her off me. And when they bicker or fight with each

> other, I feel like yelling " I'm outta here " and slamming the door and

> leaving. I often feel like throwing things and do occasionally slam

> cabinets, throw a loaf of bread into the cabinet or something

> relatively benign, but truth is I feel like smashing things. I am

> entirely impatient and I am yelling at my kids (I was never the most

> patient in the world, but never out of control). I am a 46 year

> single mom with an au pair to help with the kids, but I need more

> support and understanding. I feel so horribly alone. (BTW, I am not in

> lots of physical pain at all -- just lots of subtle, slight, barely

> painful moving pains in hands, arms, legs...doesn' t even bother me

> except that I know it is Lyme. We all got it summer '08 and have been

> on antibiotoics since)

>

> Can any of you tell me stories of similar feelings so I don't feel so

> isolated with this. Strategies to help (that are not time consuming!)

> I am so worried about damaging my kids, who I love more than life.

> Thanks so much,

> Beth

> p.s. Totally tangential side note: My son and I LIKE the taste of

> Mepron!!

>